#Fibromyalgia and Mental Health

[somethingnubian]

Discover How to Make Sense of Self-Care Practices with Fibromyalgia

By LaTrecia Doyle-Thaxton Happy Saturday, a day that is ruled by the planet Saturn, which would make the “Saturn-day”! Is today a self-care day for you or just another day living with chronic pain? Believe it or not, some don’t really know or ‘innerstand’ what self-care looks, feels, tastes, smells, or sounds like.   I have been there, so I totally empathize. If this is your first time…

[chronicallymistreated]

People only have so much patience for those of us with chronic illnesses, chronic pain, and or mental health difficulties.

At the beginning there is so much support (or at least more support) but when they realise you're not recovering as quickly as they'd like... you get avoided, isolated, told you're exaggerating, etc. They seldom think about how those of us with chronic issues feel. How overwhelming it is to deal with everything day in and day out. There is so much anxiety, depression, grief, etc when dealing with chronic issues regardless of what they are.

If you're even more isolated because people refuse to see how much you're struggling or you're not recovering "fast enough" for the people around you just know you're not alone! There are so many of us in the same boat too

[genderqueerdykes]

i think it's beyond fucked that medical professionals expect you to deal with misery as long as it's not actually killing you. even when there are procedures and therapies and medications, doctors always wait until the very last second until it's actually life or death. preventative medicine is so hard to find. sick and disabled people are forced to live with misery simply because we're not actively dying.

nobody should have to sit around miserable just because they *technically* can survive this. is it really even surviving when you can't function?

[s0fter-sin]

something people just don’t think about is how often chronically ill and disabled people just don’t have access to good food. not healthy food, good food; well made, tasty meals that don’t come from a jar or a freezer. how many of us are housebound or can’t drive? delivery services only offer within certain distances, if you live outside a city they aren’t an option. many people don’t have the energy or ability to cook for themselves if they have the skill to begin with. many certainly don’t have the ability to learn how. it’s something that goes completely unnoticed, just the opportunity to have a good meal and how much that wears you down

[study-diaries]

Reminder

Your pain (physical/mental/emotional) is valid even if nobody can see it

Your pain is valid even if you have no physical symptoms

Your pain is valid even if there is no physical injury

Your pain is valid even if others tell you it's not

Your pain is valid even if you do not have a life threatening disease

Your pain is valid even if you don't have a diagnosis

Your pain is valid even if you do have a diagnosis

Your pain is still valid even if nobody believes you

Your pain is still valid even if you are too "young" for the problem/issue

Your pain is valid even if the health care advisor/anybody tells you that it's in your head

Your pain is valid no matter what the conditions are

Your pain is valid.

Pain does not discriminate between age, gender, race, nationality etc. Just because you can't see pain, doesn't mean it's not there.

[spookysalem13]

I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.

This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.

I don't get to live my life, I'm surviving not thriving.

[insert-name-heres-things]

Happy Disability Pride Month!!!

Remember Folks:

- SELF CARE IS NUMBER ONE

- Use your spoons sparingly! Here’s some spoons to go: 🥄🥄🥄🥄🥄🥄🥄

- Clean your mobility aids! (Seriously dude when was the last time you wiped that shit down with an antibacterial?)

- Accommodate yourself, as others will follow.

- Make goals within your reach and abilities

- DO YOUR COPINGS SKILLS

- Remember to stay hydrated and take your meds!

- For my fellow heat sensitive homies, stay cool this summer! A cold rag draped behind your neck, airy clothing, a small portable hand fan, keeping ice packs ready, cold water and expecially cold electrolyte drinks, all do wonders!

- For my fellow autistic folks, don’t be afraid wear earmuffs, stim, use chew charms, whatever it is that helps you regulate. You don’t have to mask if it’s something that isn’t benefitting to your life.

- POTS havin mofos like me, salt the ever loving fuck out of your food. Try different foods with salt, such as fruits and vegetables! I’m currently eating a salty tomato. Drink lots of water, I’ve been aiding gateraid packets to my water and it’s made a HUGE difference, especially as someone who hates drinking water.

- Those with PTSD for whatever reason, I wish you safety and support as you learn to cope and hopefully heal.

- I don’t know exactly what to say to others with H-EDS, as I’m still understanding this disorder other then BE CAREFUL WITH YOURSELF THIS PRIDE MONTH. I swear to god we are the most accident prone mother fuckers lmfao-

- If your immune system is all fucky like mine, keep clean and be sanitary, communicate with others that if they’re sick you can’t be around them, and wear a mask if you feel like that’s the right option for you. In my hometown I’ve gotten yelled at more than once for wearing a mask post-covid, however you can’t let someone else’s ignorance result in your own suffering.

- Don’t forget to move around and stretch! A little movement can do a lot for your body.

- Check in with your disabled friends! Try and see if there’s any way you can help one another, see where both of your strengths and weaknesses lie, and swap some spoons!!

- Be aware of what triggers your disorders. Whether if it’s caffeine triggering bipolar episodes, the weather causing fibro flares, big changes causing meltdowns, overexerting your hypermobility, whatever it is, it matters. Listen to your body and mind.

- Don’t be afraid to call out that doctor who isn’t listening, dismissing your symptoms and medically gaslighting you.

- While it may not seem like a big difference for some, trust me when I say your appetite is so important! Remember if it comes down to it, that it’s better to eat something, ANYTHING, than nothing at all. 

- To that person who might be hesitant, ashamed or might be questioning wether or not they should use a mobility aid, if it’s the difference between you being stuck at home vs going out and living some life… USE THAT MOBILITY AID!!! Same goes for braces and any other tool that may help you live a better quality of life.

- Be accepting towards those with disabilities different then your own- remember this month isn’t a competition about who’s struggling the most, rather to understand that people of physical, psychological, sensory, neurodivergence, and even undiagnosed disabilities all share one thing in common.. WHICH IS BEING DISABLED!

- Doesn’t matter who you are, how young or old, black or white, thick or thin - the disabled minority is one you can end up becoming a part of at any time, and likely will if you live long enough. Disability doesn’t discriminate, so EVERYONE should be advocating for disabled people’s rights.

- And of course, have pride in being disabled. This shit is fucking hard, but if you’re reading this, you’re doing it. Just being here today and doing what you can handle or manage, is doing your best, and that’s enough. You don’t have to push yourselves to impossible lengths to be proud of yourself.

Here, have the disability pride flag:

[spoonie-support]

[i-the-spoonie]

[disabledprincesses]

Sometimes gaining weight is what progress looks like.

Sometimes going out less often is what progress looks like.

Sometimes wearing looser and less fashionable clothes is what progress looks like.

Sometimes using a mobility aid more often is what progress looks like.

Sometimes cancelling plans is what progress looks like.

Sometimes its not about what we think progress looks like. Sometimes you just ask the person and trust what they say.

[ineffectualdemon]

I have so many mental illnesses and physical disabilities that I'm just going to start saying that I'm cursed

"oh I'm sorry I can't come today because The Curse is acting up."

[neurotichunter]

I don't want this anymore. I want to be a normal person. Not this meat sack riddled with the bullshit my body and my mind come up with every second.

[dailydivergent]

If you're neurodivergent, taking a break literally requires planning.

This is because we often don't give notice to how much work we actually do in a day, because what constitutes as "work" for us is not "work" for others.

It requires me work to:

walk the dog

make a meal

shower

write a tumblr post

So of course taking breaks is going to require some work, too.

Here's how I've learned to plan for my breaks:

I give worry a time & place; this allows me to say, "now's not the time to worry" once I'm on break.

I accept all work as work (mentioned above)

I focus on doing the top 3 tasks in a day, not all of it; this combats the feeling that I need to do something to "deserve a break" (total bs, btw)

I listen to my body; it's not up to me to decide when it's "time" for a break

I have fun projects within my hobbies; this gives me a focus for my breaks, so I'm not spending time deciding what to do during my breaks

I know it seems convoluted now, but I promise you, this kind of forward planning for my breaks has allowed me to actually rest when it's time to rest.

I can finally rest on a daily and weekly basis without constantly solving problems in my head, ruminating on past conversations, or worrying about the future, because I gave worry a time & place.

I can accept that I do deserve a break every single day no matter what I actually accomplished, because I accepted everything as work, focused on my top 3, and listened to my body when it said it's time.

I can look forward to what I spend my breaks on, because I took the time to plan fun projects with other people, which holds me accountable to doing those things with my friends.

It took me a long time to get here, but I hope this post speeds up your process—even if just a little bit.

[this-smile-is-real]

Hi.

My name is Hannah and I am 27 years old.

I have lived with Complex PTSD and Anorexia since I was 6 years old.

Over the years I have also been diagnosed with depression, anxiety, panic disorder, Functional Neurological Disorder, Fibromyalgia, a large bowel that no longer works and Costochondritis. I have had 46 hospital admissions both medical and mental health over the past 8 years to date (date of posting is April 2024)

I require weekly psychology, dietitian,, GP and physiotherapy appts as well as weekly medication costs, and other specialist appointments frequently.

I have been on the disability pension since 2019 but that doesn’t even begin to cover half of what I require and I have thousands of bills outstanding and money required to access the supports that I need to not be in hospital every few weeks.

I so appreciate the current cost of living but would be so grateful any donation large and small so that I can begin to truly live. Believe me when I say I have exhausted every option possible to try and get on track and moving forward.

Thank you for reading x

[fibromyalgicaf]

"It does not matter how slowly you go as long as you do not stop." - 孔子

____

Ko-fi

[unfilteredrealities]

Hey Google , how to not beat yourself up for being chronically ill and how to still be compassionate with yourself when it’s very hard to do so? 😭