#celiac disease

[talkethtothehandeth]

If you have celiac and buy the brand Van’s for their waffles, please know that 9 days ago there was a recall because some of the packages of the gluten free waffles may contain “undeclared” wheat. And if you have celiac, you know “may” might as well mean “does”.

This recall only applies to boxes with the matching lot codes and numbers, and do not pertain to other products that Van’s has to offer. These boxes were distributed in AZ, CA, FL, GA, IL, NC, & WA. Please check your boxes immediately to ensure your own safety and save yourself the painful reactions to gluten. It’s advised the purchased packages be either thrown out (or given to someone who can eat wheat so as not to waste it) or return the product to where you’ve purchased it from.

“The U.S. Food & Drug Administration website published the recall July 3. It applies to certain packs of Van's Gluten Free Original Waffles with lot code UW40193L, expiration date Jan. 19, 2024, and UPC 0 89947 30206 4. According to the Van's recall, some of the packs of waffles may contain undeclared wheat.”

[slipintotragedy]

it’s disability pride month so i want to talk about one of my least favorite stigmas around celiac disease

in lots of media, being gluten free is played as a joke or something someone is to be annoying/pretentious. the amount of times i’ve heard jokes like that is honestly disheartening.

it also doesn’t help with the general population’s belief that celiac disease/gluten sensitivities are not serious. i’ve been diagnosed with celiac disease for 3 years now, i’ve been gluten free for about 4, and it has substantially improved my quality of life. i can’t afford risking cross-contamination because it leaves me sick for days. nearly every time i have a reaction to gluten, it’s hard for me to even drink water the next day because my body is an absolute mess. i’m miserable and fatigued for days until my body heals. not to mention the long term effects that have left me unable to stand/walk around for extended periods of time because my joints are pretty weak.

being gluten free NEEDS to be taken seriously. it’s not a choice i’ve made because i’m hoping on the latest fad, its not a preference, it’s an autoimmune disorder.

[spookysalem13]

I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.

This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.

I don't get to live my life, I'm surviving not thriving.

[mindblowingscience]

For roughly one in every hundred people, food containing even the smallest amounts of gluten can deliver a gutful of hurt. While a domino effect of immunological reactions can be traced back to their genetic roots, a number of contributing factors are also involved, making it difficult to map the precise chain of events that causes an allergy to gluten to emerge. Using transgenic mice, an international team led by scientists from McMaster University in Canada has identified a crucial role played by the very cells making up the gut's lining, describing a major stepping stone that could lead to new therapies.

Continue Reading.

[finnlongman]

Heads up to UK coeliacs: Lidl have changed the recipe of their fake pringles (previously the only ones that didn't contain wheat) and they now contain wheat! Not just a "may contain" but an actual ingredient! Be careful, check the ingredients, and tell your gluten-free/wheat-free friends.

[lifblogs]

The google ai is so bad for trying to search if foods are safe for me to eat, or if they’ll try to kill me. And underneath the ai answer bullshit there are hardly any reliable links.

If someone has even said the words gluten free in something then google will tell you the product is gluten free even if it’s not.

This is DANGEROUS!

[certifiedceliac]

Today is National Banana Day! Did you know bananas and celiac disease have a very interesting history? Before celiac was well understood and gluten was identified as the problem, a banana-based diet was used to treat the disease in children (and at the time, presumed to have "cured" them).

[lee-romee]

chocolate peanut butter banana bread

i've been kicking this recipe around in my head for months at this point --- i used peanut butter instead of any type of dairy/oil, & it turned out so moist & flavourful

275g bananas ((about 2 large))

132g peanut butter ((½c))

150g white sugar ((¾c))

2 large eggs

1tb vanilla extract

1c oats

40g cocoa powder ((½c))

1tsp baking soda

¼tsp salt

½tsp cinnamon

100g chocolate

blitz the oats to flour & set aside

preheat over to 370F

mash bananas in an empty bowl

add in peanut butter, sugar, eggs, & vanilla, & combine fully

whisk together the drys, then add them + the chocolate & fold until just combine

grease loaf pans ((i used 3 mini ones)), & pour batter in ((1½c in each mini pan))

bake for ~40min, or until a toothpick comes out with a few crumbs / just some moisture

cool in the pans until they are cool enough to be handled with bare hands, then remove using a toothpick to until the edges, then cool fully on a baking rack

[arctic-hands]

I love food. Would love to be able to actually tolerate eating it one day

[disabled-sapphic]

Having celiac/coeliac disease is so bizzare, like it's all casual that eating gluten will give me cancer or dissolve the inside of my intestine so it can't do anything and I'll starve to death even while feasting like a king like I'm in some kind of Lovecraftian horror... and then everywhere I turn people are making "hehe this person is sooooo annoying for being gluten free" jokes

[crippleprophet]

still trying to sort through the layers of this ableism & antifatness but it’s particularly painful that society treats eating gluten-free as something rooted in a desire for weight loss when

i gained more weight in the year after figuring out i have celiac than any other year of my life

including going up two shirt sizes

& going from being read as (small)fat but not having any access issues around size separate from mobility aids to being outside the bounds of straight sizing

because my body can absorb nutrients now

& for most people who ‘need’ to be eating gluten-free, you will gain weight!! & we, including those of us who were already fat, should be given space to celebrate that!! hallelujah that my body is still here to grow!!

[chronic-gastro-illness-culture]

hows the tummy hurty fandom doing

[nightmarekilljoy]

Today I ate some pickles and a piece of cheese (plant based)... and I told a family member and they said "Oh that's not food." as in that's not a meal.

Um. How do I tell them that mentality isn't healthy??

Please, if you're out there struggling with food do not listen to people like this. Eating anything is better than eating nothing at all. /srs

And people with digestive disorders like me can't eat like an ablebodied person can. Keep that in mind.

-Amber (she/they/it or star/shine/rot)

[anna-pineappel]

Happy Celiac Disease Awareness Day to those who (unfortunately) celebrate 💚

[certifiedceliac]

A new study that analyzed the activity of more than 10,000 genes found that a drug being investigated to treat celiac disease prevented intestinal damage caused by gluten. The research focused on the molecular mechanism of ZED1227, a treatment designed to block transglutaminase 2 (TTG), an enzyme that reacts with fragments of gluten. This reaction makes the fragments more recognizable to the cells that cause destruction of the nutrient-absorbing finger-like projections in the intestine of those who have celiac disease.