#chronic pain
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Being chronically ill is like
“It’s fine”
“It’s fine”
“It’s fine”
*complete mental breakdown because you can’t do this anymore*
“It’s fine”
#I can feel the menty b coming#when I do a lot of activity I end up with sustained flu-like symptoms until I recharge but I don’t have time to recharge for 2 more days#chronic illness#chronically ill#chronic fatigue#chronic pain#disability#disabled#lupus#fibromyalgia#pots#autoimmine disease#invisible disability#invisible illness
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'being disabled is a full-time job' actually with most full-time jobs you get evenings and weekends off, plus holiday time and potentially other benefits like healthcare and dental. we don't get to clock off from being disabled nor do we reap any benefits, material, social, or otherwise. hope this helps
#appreciate the sentiment but the analogy just does not work for me. if anything we do ten times more labour than the average able-bodied#employed person managing our bodyminds appointments etc. who said that#.txt#spoonie#chronic pain#chronic illness#disability
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chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier
#chronic pain#chronic fatigue#chronic illness#chronically ill#new daily persistent headache#< my personal brand of mostly useless diagnosis
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Reallll.
me when my disabilities disable me:

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#chronic illness#chronic pain#chronically ill#pots#pots syndrome#chronic fatigue#ehlers danlos syndrome#spoonie#hypermobile ehlers danlos#disability
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tongue in cheek art about weird bodies and waiting for a diagnosis
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shaking myself (very gently) . being in pain takes a lot of energy!!!!!! being in pain is exhausting!!!!!!! you are not lazy or weak because you need to spend so much time resting, this is your body coping with how much pain you’re in literally 24/7!!!!!!!!!
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Reposting again (targeted(at myself🥲))
abled bodied people also need to understand that, for physically disabled people resting isn't "free time" that you can use up with assigning us tasks or duties because you're busy. it's an essential part of managing disability and some of us have a hard limit that we're avoiding by having days where we do nothing.
#physically disabled#hypermobile spectrum disorder#hypermobility#chronic pain#chronic illness#autoimmune#hidden disability#chronic fatigue#chronically ill
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#bpd#mental health#actually bpd#mental illness#bpd shit#actually borderline#bpd shitposting#bpd problems#bpd mood#bpd meme#autism#actually autistic#chronic pain#chronic illness
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#fibromyalgia#chronic illness#chronic pain#chronic fatigue#fibro#spoonie#chronically ill#invisible illness
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Today, despite the weight of disability and emotional pain, you still did something to care for yourself. No matter how small it seemed—it mattered. That is resilience. That is love.
#chronic pain#disability#chronic illness#actually autistic#cripple punk#c punk#self love#proud of myself
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also frustrating when doctors do find something and it only partially explains your symptoms (or perhaps doesn't at all).
the severity of whatever they found isn't proportional to the amount of pain/discomfort you're feeling. but the fact that they found something makes them less inclined to search for the actual reason why you're in so much pain.
“Normal” test results are not the relief people think they are. When you wake up in pain and continue to be in pain for hours every day and your tests come back normal you don’t stop being in pain.
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Genuinely, do abled people just not understand the word "chronic"? like it's a random word from a random language they've never heard before?
#mine#text post#chronic illness#chronically ill#spoonie#chronically sick#chronic pain#disability#disabled
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I promise I'm really smart it's just all my best thoughts get lost in The Fog
#fibromyalgia#fibro problems#disability#chronic pain#chronic illness#chronic fatigue#brain fog#disabled#spoonie#sillyposting#dissociation#dpdr#derealization#depersonalization
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Mmm i need a pavement roller to roll over me. I need every single joint cracked.
Except for when I pop em and it hurts...
That just sucks.
I love cracking my bones. I'm like a fidget toy but more emotionally complex
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