i-the-spoonie

[i-the-spoonie]

@/MSINTHECITY - Insta

[i-the-spoonie]

Local PSA: invisible disability does NOT mean you can live your life like a "normal person" invisible disability meant that if a stranger looks at you in public they wouldn't know what's going on.

Like if a wheelchair user were to decide to run into a corner store to grab a candy bar because they know that their legs can last that long without, the cashier wouldn't know.

Or someone with "mild" scoliosis walking upright through their shoulder leans slightly to the left. Maybe they just have bad posture. The lady in the next isle thinks to herself.

The person with EDS or POTS or whatever sort of condition wearing compression gloves out and about. Perhaps it's a fashion statement?

Or what about the people with intestinal issues? They can look like "normal people" too.

You never know what someone is going through.

You never know what they might need to survive or if they're on the edge of a flare up or even if they are currently going through one just by one look.

I think both disabled and non disabled need to realize this. You're not "no longer disabled" because you can "live without" disability aids. They're there to help you. To make your life easier. If living without a cane is going to make it more likely you'll fall over and hurt yourself, use the cane.

If you need to sit down to do dishes or cut vegetables because you need to save your legs for taking out the trash, sit down.

If you need a shower chair because you don't know if you'll pass out, use the shower chair.

People are going to judge you regardless for multiple reasons out of your control.

I'd rather they judge you while you're being safe.

You don't need to struggle to be "normal."

You can just be you.

However that looks for you.

Use your disability aids.

[i-the-spoonie]

The worst thing is that there is so much potential for exploring the horror of psych wards from the angle of medical abuse, ableism, forced treatment/drugging, loss of autonomy, power imbalance, demonization, dehumanization, etc, and YET the horror genre keeps defaulting to "insane asylums and psych wards are scary because there are mentally ill people in there"

[i-the-spoonie]

I’m sick of just trying to get through things.

I want to enjoy things. I want to look forward to things instead of just dreading being tired and in pain.

[i-the-spoonie]

done healing my inner child. next up is my inner teen. her highness demands a sword.

[i-the-spoonie]

Exercise and other forms of exertion can cause profound and lasting harm to people with ME: various forms of evidence

My 2011 paper, "Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome" included data from earlier surveys and discussed the issue of reporting of harms

[i-the-spoonie]

via weheartit

[i-the-spoonie]

People eventually get diagnosed BECAUSE they are already disabled and struggling. The symptoms don't appear AFTER the diagnosis. So don't expect everyone without a professional diagnosis to be basically fine. That makes no sense.

[i-the-spoonie]

[i-the-spoonie]

[i-the-spoonie]

now that I’m paying attention to it, it’s impossible not to notice how many abled standards I hold myself to every single day. it’s a million little ways I beat myself up for not being able to do things “properly” or not being able to do them at all. and with that in mind. it’s not at all surprising to me that every disabled person I know has massive self esteem issues

[i-the-spoonie]

[i-the-spoonie]

If you're disabled/ chronically ill, the universe should make you immune to all the "normal" illnesses.

I'm sick every day and ON TOP OF THAT I have food poisoning? No thank you, you can fuck right off.

[i-the-spoonie]

I don’t have a chronic illness.

I have a chronicle illness.

It changes as it goes.

[i-the-spoonie]

[i-the-spoonie]

[i-the-spoonie]

Me lying down: I feel pretty much fine. What am I doing lying around? I should get up and do something. Or at least sit upright, damn.

Me when I’m upright: oh, Jesus. Oh, damn. Oh, RIGHT—this is why I was lying down.