#spoonie life

[chronicillnesshumor]

[provemethatimbeautiful]

It sends the message that they added no value to the group and that's just sad. Disabled people have value beyond what abled people are willing to do for them.

the framing of "we can tell early humans had compassion because we've found skeletons of disabled people who made it to old age" kind of boils my piss a little bit because it kind of fundamentally assumes that compassion is the only possible reason to live in community with disabled people. and idk about you but I don't like the direction that logic tends to lead people

[disabled-bug]

I’m so proud of people living with chronic health conditions. That shit is HARD. Idk who needs to hear this, but if no one else has said it: I’m proud of you. You’re sticking it out through so much pain and grief. That’s no small feat.

Every small thing you do for yourself health adds up. The grief is heavy and it comes from a place of love. The grief knows the pain is wronging you.

I’m proud of you. I hope on the good days you can be proud of yourself.

Keep going.

[wheelchairbarbie]

@spoonie-living

[squid-socks]

Me accepting I have limitations and need to respect my chronic illness and neurodivergence.🌸🤗

Vs

Me getting terrified my acceptance is actually self-denial and I am using it all as an excuse not to do better. And that by accepting my limitations I am actually solidifying them when I could have broadened them🫠

I assume for me it’s somewhere in the middle but I seem to live on extremes😂🥲

[tumble-tv]

"You're always so chipper and excited even though you're in pain, I could never."

Bethany, if I wasn't chipper and excited about the most mundane things like bees and dice, then I would literally be bedrotting all day every day, sobbing because my entire life is falling apart because I have no answers or relief to pain that doctors think is fake. So I will take joy in my trinkets and rollerskating while my body allows because one day I won't be able to.

[mellosdrawings]

So I wait.

[slveepyscwrs]

If I had a dollar for every promise I broke due to chronic fatigue, illness, and disability, maybe I could actually afford healthcare.

[doresworld]

It is so fucked up that disabled people are terrified of going to the doctors

[chronicillnesshumor]

[disabled-bug]

disabled people when their disability disables them

[wheelchairbarbie]

@annieelainey

[squid-socks]

Yo so my other grandma is largely blind and fairly deaf and deeply depressed. And her birthday is coming up. She’s also 90 and has difficulty with most things from eating to simply holding things.

What kind of a gift can I give her? Does anyone have any ideas? I live very far from her and see her rarely. We don’t call and we never have and that doesn’t even seem like something she wants? She’s fully mentally present as well. Still incredibly intelligent✨

Any ideas would be really REALLY appreciated!!especially if you have experience with this!!

(For far the ideas is a nice soft cake treat or so🌸)

Edit: THANK YOU GUYS SO MUCH FOR ALL THESE IDEAS! I don’t know which one I’ll use but I truly and deeply appreciate all the input! Please feel free to leave more ideas but I just want to say how grateful I am💓

[lifewithchronicpain]

If you don't need a cane, but you get one to signal disability because sometimes you get faint and need to sit, or whatever, as a cane user for years, go ahead. Please, if it makes claiming accomodations easier for you, even if you don't need it to walk, I don't care. This is your permission if you needed it.

Can I suggest that you can get a foldable one at CVS (they're great) so it's there when you need it? Shits fucked up, do what you need to do. Just beware there are assholes that won't care about the cane. But overall, it does make things easier and is easily purchased. Go for it.

[tumble-tv]

*yawns*

*dislocates jaw*

*immediately sneezes*

*sneeze causes jaw to go back to normal*

[geometric-bs]

"Doing your best" (with chronic illness)

My doctor (bless him) straight up went "don't" when I said "I'll do my best"

Because what I think "my best" is, is completely draining myself for this One Thing and going above and beyond

I guess this goes for people w/o chronic illness as well, but "your best" shouldn't mean you end up hurting yourself in the long run. "Your best" is as much as you are willing to devote to something proportional to how much you care about it within the confines of what is healthy for you AND considering all the other stuff you have to do

Please just- holy heck we're already struggling so much please don't devote your precious energy to something that doesn't deserve it

don't do your best, do whats best for you