ieatratsforbreakfast · 2 days ago
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I need a hug from every disabled person ever right now.
I'm going through a really rough patch with my ME/CFS and chronic pain, and I'm still coming to terms with the fact that I'll most likely need to start using a wheelchair before 2025.
Can every disabled person hug me rn? Like virtually just have a little disabled moment.
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crippleswag · 10 hours ago
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mutual aid request
[pt: mutual aid request. end pt]
hi i am a physically disabled person who struggles with severe chronic pain and i have my MRI on monday but i dont really have money to get to it since they scheduled it at a hospital further away than my regular hospital which is significantly closer 🥲. this is a really important appointment and i really dont wanna cancel it..
i think i should be able to get there and back if i could get 500SEK (~50$) for gas, and if you are unable to give anything because you aren’t financially stable that’s is absolutely okay & please dont give anything if it’ll fuck up ur own economy!! but if you are unable to donate, please reblog this, every rb helps 🤍 every dollar helps and you don’t have to give anything huge amounts, it adds up, thank you!🤍
here’s the link to my paypal
0/50$
[pt: 0/50$. end pt]
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pleaseletmeexist · 7 months ago
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When I say “school should be disability accessible”, I don’t just mean we need handicap rails and EAs. Kids should be able to miss a day without failing out of school. You shouldn’t be dismissed from clubs because your attendance record is “spotty” (true story). I once missed an entire week of school because of a terrible, unending migraine. I was expected to keep up with my studies despite the blinding pain that came with working on my computer. When I heard my teachers say that you couldn’t miss exams, I asked what I would have to do to be excused from them. Their response? “Either get a doctor’s note an hour before the exam or death of an immediate family member.”
I cannot express how rigid this expectation was. First of all, with my condition, I wouldn’t have enough warning about my sickness to go to the doctor and request a note. For many people, this is exceptionally difficult, especially with the current shortage of medical professionals. Next, it ignores the fact that my schedule may not line with theirs because of my medical needs. Once, I had to visit a hospital a province away (which I was on the waiting list of for over a year) on the same day as an exam. I begged my mother not to take me because I was so nervous that I would be marked as an automatic fail. I was lucky enough to make it work, but that’s only because of my spectacular support system consisting of family members and wonderful doctors.
Disabilities aren’t always about needing a bus that can accommodate wheelchairs. It’s already difficult enough for many of us to maintain school attendance without the harsh punishments involved for skipping a day. We need to be able to miss school without being punished. Only than can you claim that the school is “accessible”
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crippledpunks · 6 months ago
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i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary
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majaurukalo · 6 months ago
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Disability benefits shouldn’t be tied to the income of a disabled person’s partner/spouse/parent.
Do you hear me?
DISABILITY BENEFITS SHOULDN’T BE TIED TO THE INCOME OF A DISABLED PERSON’S PARTNER/SPOUSE/PARENT.
This is the straight forward way to deprive a disabled person of their financial freedom and independence and trap them into possible abusive relationships.
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frank-gallaghers-beer · 7 months ago
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me when the chronic pain is chronic and painful:
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a-sassy-bench · 11 months ago
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do able-bodied people not understand that if disabled people call out of work every time they don't feel good that we would call out of work every fucking day?
like honestly. what do you think being disabled means?
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genderqueerdykes · 3 months ago
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i just think it's bullshit that alternative meats, milks, eggs, breads, and other foods are prohibitively expensive. like i don't know how to tell people that not everyone who eats vegan or vegetarian is choosing to eat that way because of their moral beliefs- a lot of people are eating these foods because they have food allergies or intolerances, or have other gastrointestinal issues
i don't have a choice. it's downright cruel to make these different options more expensive. there is no one size fits all diet- every single person needs a unique diet and some folks literally have no choice but to utilize these substitutes. some vegetarians cant digest soy. some vegetarians can't eat beans. i also don't know how to tell you that not every vegetarian or vegan can ingest raw vegetables and fruits, or even cooked ones, for that matter
there are a LOT of health conditions like irritable bowel syndrome, gastroparesis, crohns disease, and other gastrointestinal issues that can cause a person to become very sick or even die if they ingest too much raw plant matter, especially vegetables high in fiber. when these fibers cannot be broken down by a person's digestive system, they can form blockages in the intestines and kill people. not every person on this planet benefits from eating a lot of leafy greans. some people are allergic to chlorophyll. some people are allergic to citric acid. diabetic people have to be careful with certain vegetables and fruits causing spikes or dips in blood sugar, and many people with diabetes end up with gastroparesis, or similar gut issues. there are a lot of reasons why people can't just switch to a diet of salads and fruit smoothies every day.
alternative foods need to be available to everyone, regardless of how much income they make. having safer alternative foods should not be relegated to the rich. these are not just being consumed by spiritual white moms on instagram. these foods need to be accessed by disabled people all over the world.
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cosmiccripple · 1 year ago
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idk who popularised the narrative "i don't let my disability stop me" but it needs to be stomped on, pulverised by a meat grinder and then thrown into the depths of the sea never to be seen again.
it is by far the most popular ableist narrative and i see it so much and immediately just think i'm a bad person for not being able to 'get over' my disability despite the fact it's an incurable, permanent and severely disabling disability.
stop stop stop stop pushing the mindset that people have to persevere despite their disabilities in order to be a worthy person
leave me alone and let me be disabled in peace
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ash-the-fluffy-cat · 1 month ago
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You don’t get to say queer lives matter if you don’t say black lives matter
You don’t get to say queer lives matter if you don’t say disabled lives matter
You don’t get to say queer lives matter if you don’t say First Nations lives matter
You don’t get to say queer lives matter if you don’t say neurodivergent lives matter
You don’t get to say queer lives matter if you don’t say women’s health matters
You don’t get to say queer lives matter if you don’t say ANY other marginalized communities’ lives matter
Intersectional identities are here and won’t go away
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matchakuracat · 6 months ago
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being chronically ill with fluctuating symptoms is so annoying because when it's at it's worst im like "okay i desperately need some type of mobility aid right now, i haven't been able to leave my house in days" but then i'm able to go for a walk one day and suddenly i feel like im exaggerating my symptoms and that i actually can walk fine and it would just be embarrassing and pointless to ask for a mobility aid assessment
but like ... not struggling as much one day doesn't take away from the days that i struggle the most
our pain is valid even when it's not at it's worst and we deserve the accommodations we need even if we don't always need them at all times
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crippleswag · 1 year ago
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when the “10 tips on how to make showering easy for disabled people” list doesn’t include a shower chair or a shower/changing table or grab bars etc, i know they don’t care about us physically disabled people.
good for u that turning off the lights and lighting a scented candle instead and listening to music or put on a show and using a bath bomb etc etc helps u but like none of those tips are that beneficial for physically disabled ppl specifically.
it’s good that those tips are there but for once we’d love to be included.
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janeacular · 1 month ago
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People who have regular body heat don't experience cold the way we do. They apparently have this little heater inside of them that just, keeps their blood and internal organs comfy all the time. Being "cold" to them is just a chill on their skin. "If you're still cold after the first layer, put another layer on!" That doesn't work if you don't have the body heat to warm up those layers!!! it's just cold fabric on top of cold fabric on top of cold fabric on top of cold skin on top of cold fat on top of cold muscle on top of cold bones.
Then of course, even if there are FINALLY enough layers to make our skin warm. That does not mean it will make our bones warm. I could have an electronically heated blanket on me, and start sweating from it, and STILL BE COLD because it takes a lot of time for any amount of heat to pierce the surface level of my body & warm me in any ways that matter. So yeah, anytime you're interacting with somebody who doesn't have temperature regulation issues, and they offhandedly mention that they love the cold, just be aware they are never ever talking about our kind of cold. the kind that feels like an uphill battle. They're talking about something completely different and unique to them and their little internal heater. something some of us may never experience because we're always trapped in that fight with the air around us.
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transsexualfiend · 8 months ago
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If you want to call yourself "madpunk", "cripplepunk", "neuropunk", etc, your activism better not stop at the things you find "bad". People with no empathy. People with personality disorders. People who need their aids in daily life. People who have extreme fluctuating emotions. People with paraphilias. People with dissociative disorders. Psychotic people. People who have different modes of eating, excreting, having sex, etc. Homeless people. People who wear diapers. People who have violent urges/thoughts. People who you think are "dangerous". People who use drugs. People who need medication to survive and live. People with physical deformities. People who have delusions. People who struggle with feeding themselves, cleaning, working, etc.
If you think any of these factors make someone "abusive", you are ableist. Abusers are abusive. None of the above things make someone an abuser.
Madpunk and cripplepunk aren't just "adhd and autism punk". Or "mobility aid user punk". Keep that in mind.
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crippledpunks · 6 months ago
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chronic fatigue weaves its way into everything. people love to tell disabled people they'd love to rest as much as we do, but they fail to understand how tired we are while we rest. we are not relaxed, we are generally pretty miserable, either from pain, irritability, or fatigue- which bleeds into every aspect of your life. being too fatigued to get up off of the couch means that you're too fatigued to get to the cupboard to pull out pans to attempt to start cooking.
the steps hidden within steps that are required to do a lot of tasks related to being a "functioning adult" are daunting, there are often way too many steps necessary to make "Simple" foods or do "simple" chores for disabled people to accomplish these tasks. chronic fatigue often means that even waking up from a nap or night's rest requires time to adjust to and power through
waking up is a process for me. im often no more alert and awake hours after i've woken than I am right after doing so. caffeine does not help fatigue- at least not at safe doses, for me, anyways. many days the act of moving from my bedroom to my living room is too much. taking dishes to the sink can be too exhausting. i have began falling asleep in front of the kitchen counter while standing because i realize the amount of steps required to clean the counters, or do the dishes, or prepare a meal that all of my energy instantly bleeds away
it's okay if you feel this way too. i have been dealing with chronic fatigue my entire life and it cost me my best paying job. i lost my ability to work because of it. it's not just you being "sleepy", you are genuinely too exhausted to function. you do NOT have the energy levels other people do, and that's okay. it's okay to let yourself be tired sometimes and address that instead of trying to pretend you're not tired.
i wish you good luck. you are loved
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