#temperature regulation
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People who have regular body heat don't experience cold the way we do. They apparently have this little heater inside of them that just, keeps their blood and internal organs comfy all the time. Being "cold" to them is just a chill on their skin. "If you're still cold after the first layer, put another layer on!" That doesn't work if you don't have the body heat to warm up those layers!!! it's just cold fabric on top of cold fabric on top of cold fabric on top of cold skin on top of cold fat on top of cold muscle on top of cold bones.
Then of course, even if there are FINALLY enough layers to make our skin warm. That does not mean it will make our bones warm. I could have an electronically heated blanket on me, and start sweating from it, and STILL BE COLD because it takes a lot of time for any amount of heat to pierce the surface level of my body & warm me in any ways that matter. So yeah, anytime you're interacting with somebody who doesn't have temperature regulation issues, and they offhandedly mention that they love the cold, just be aware they are never ever talking about our kind of cold. the kind that feels like an uphill battle. They're talking about something completely different and unique to them and their little internal heater. something some of us may never experience because we're always trapped in that fight with the air around us.
#chronic illness#chronically ill#chronic fatigue#temperature regulation#temperature#cold#invisible disability#invisible illness#disabled#disabilities#disability#cripple punk#crip punk#angry cripple#fuck ableists#actually disabled#chronic disability#cripplepunk
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A struggles to regulate their body temperature, maybe after a traumatic event, injury, or illness.
They used to wear trendy, well-fitted clothing—now, they wear layers of large sweaters and flannel/wool pants and wool socks around—anything to help insulate them and stay warm.
certain times of day are clockwork for spells of chills. it’s common for them to come to breakfast huddled in a blanket, and it takes them at least a half hour of clutching mug of hot tea to warm up enough to function. If they stay up too late at night, they shiver in bed for hours.
being outdoors in the fall and winter is miserable. they try to dress for the weather, but they inevitably get a chill in their bones that they can’t shake for hours even when indoors.
the others can tell when they’re cold, no matter how hard they try to hide it—shoulders drawn tight, arms hugged close, the occasional shivers that ripple down their spine.
during team meetings, A’s the only one huddled in a blanket with a hot water bottle clutched to their core, even when the room is well heated.
their hands and feet ALWAYS feel like ice.
constantly feeling chilled makes it easier for them to get sick, especially when their body is always fighting to stay at a decent temperature. when they do get sick, they’re bedridden for days under piles of blankets.
they used to not be a very tactile person, but now they’re always down for a hug or for someone to throw an arm around their shoulders, the warmth of another human providing indescribable comfort—especially after what they went through.
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Poll idea submitted by Ghost on April 8, 2024
#actually autistic#autism acceptance#autism acceptance month#autism awareness#autism#autism poll#autism spectrum disorder#autistic#actually disabled#poll#autism positivity#tumblr polls#temperature#temperature regulation#hot and cold
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Having POTS is like getting your autonomic nervous system from Wish. My body regulates my temperature as well as a newborn kitten.
Every single moment the AC is running, I am shivering like a wet, abandoned Chihuahua.
And the very instant the AC shuts off, I am melting like gummy bears left in the sun.
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Katy Perry: 🎶 You're hot then you're cold 🎶
Me: No. I'm hot AND I'm cold. Same time.
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When i tell people that my body is really fucking bad at temperature regulation they tend to think i get cold easy or that i react strongly to cold and hot temperatures. While this is true, it's actually so much worse than that and no one that hasn't seen and felt it firsthand believes me.
I can be lying in bed, under multiple blankets and my feet will be so cold, i can't feel or move them anymore. My body's lack of temperature regulation literally paralyses me at times and everyone i tell this believes i'm exaggerating.
#disability#disabled#chronic illness#chronically ill#ableism#tw ableism#temperature regulation#how is this my life??#why is this my life??#fuck my life#cripple punk#tumblr
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Autism & Can’t Regulate Temperature?







Neurodivergent_lou
#autism#actually autistic#autism & body temperature#temperature regulation#I’m always too cold or too hot#i’m sure some of you can relate#feel free to reblog/share#source: neurodivergent_lou (Facebook)#tw bright colors#tw eye strain
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“seasonal” depression but seasons don’t exist like they used to so the “season” lasts several extra months bc of climate change and then the very short happy season is also deeply depressing because for the same reason so really it’s just year-round depression
#seasonal depressive disorder#fuck climate change#climate justice#fuck global warming#heat intolerance#audhd problems#pots#temperature regulation#summer depression#i hate summer#fuck summer#fuck the heat
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heat regulation tips for the summer
- handheld fans!! i haven’t gotten an electric one to bring on the go yet, but a paper one can help a lot with cooling down quickly
- don’t have enough room in your bag to carry water and gatorade/electrolyte drinks? carry a packet of powdered electrolyte drinks
- going off of the last point, i’ve found liquid iv to be amazing for getting in electrolytes, especially if you have a dysautonomia condition. it is a bit expensive, but they have a lot of discount codes floating around.
- sportswear is great for staying cool, especially if you tend to sweat a lot or have sensory issues where you need to wear longer clothing than summer heat tends to require
- parasols can be good for blocking the sun. a lot of alternative subcultures have it as a bit of a staple, so i recommend look into gothic and lolita fashion if you want to find particularly cute ones
- for the love of god, if you drive, buy one of those front windshield sun blockers for when your car is parked. hot cars are so evil.
best, someone struggling with having pots in this heat :’)
#i might make a post of more pots specific tips too later#feel free to reply/message me if you’d find that useful !#pots#postural orthostatic tachycardia syndrome#temperature regulation#actuallyautistic#sensory issues#orthostatic intolerance#dysautomnia
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If anybody else struggles with the cold, I stumbled upon this thread of people being really sweet and listing off different ideas on how to warm yourself up. I found it because like the OP, I also wanted to satisfy my urge to sunbathe on giant rocks
#plum rambles#resources#winter#fall#autumn#cold weather#staying warm#cozy#circulation issues#temperature regulation#I’m reptile brained
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temp regulation issues fuckin suck. i was freezing in my office yesterday, but sweltering today. nothing has changed about my office or really the weather, my body is just like this. i flip flop between sleeping fine and waking up in a puddle of sweat, again with no notable changes in my environment or behaviors. rip me
#mj.txt#i think this is a dysautonomia thing#not sure if its bc of pots or is separate from that#either way. its the worst#cpunk#cripple punk#dysautonomia#temperature regulation
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Cold is sharp stabbing needles puncturing every tiny little atom in your body & Hot is a low hum drum throb pulsating through your organs. And both get infinitely worse when you add water :)
#I like the heat but thats just a me thing#I have been too damn hot before#idk#back to my temperature posting#temperature regulation issues#temperature#temperature regulation#temperature sensitivity#cold sensitivity#heat sensitivity#heat tolerance#cold tolerance#cold weather#hot weather#chronic pain#disabilities#disabled#disability#cripplepunk#angry cripple#chronic disability#chronic illness#chronic fatigue
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Ponyboys temperature would be bipolar. One second he’s cold and the next he’s sweating and it would piss Soda off when he’s trying to sleep when he’s next to someone who is cold as Antarctica and then hot as a desert 
#dally winston#johnny cade#ponyboy curtis#steve randle#the outsiders#darrel curtis#sodapop curtis#twobit mathews#socs#grease#greasers#greaser#incorrect outsiders quotes#incorrect the outsiders quotes#incorrect quotes#temperature regulation
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Ok, somebody fucking explain how when I was sitting around in nothing but my socks and underwear I was hot and sweaty, but now that the laundry is dry and I've put on jeans, a tshirt, and a cardigan I'm comfortable.
I added more insulation, and somehow got less warm, even though the temperature of the room didn't change.
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I, as a person, run hot. I am chronically Too Warm ™ I also have a deep need to sleep under a blanket at night and my shitty university apartment does not have the best air conditioning therefore it is hard to keep my apartment cold (you might be seeing where I am running into problems)
to remedy this I have to use my little spray bottle of water I use to style my hair and spritz my self all of my bare skin like a succulent or produce at the grocery store in order to cool myself down before I get under the covers
what I’m trying to say is sometimes self care is treating yourself like a plant
#self care#WARM#temperature regulation#it’s very hard#I think it’s the autism#the autism is probably also why I think of my self as a sad little cactus#I think I understand that guy who made the carrot post now#I could be a carrot
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me: it's cold in here, I'll turn up the heat
family: why not just put on a sweater?
me, with temperature regulation issues: see that would make sense, however my head and torso are hot, my hands and feet are freezing, and I'm shivering and sweating all over
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