a-totally-reasonable-username

[a-totally-reasonable-username]

Hot take but disability benefits assessors are more of a drain on society than disabled people

[a-totally-reasonable-username]

One thing about disability and chronic illness that always seems to get overlooked and/or forgotten is how much more difficult normal health issues become. Things like colds, minor injuries like scrapes and bruises, localised infections... Stuff like that doesn't stop happening to you just because you have other, bigger health issues. But they can be a lot more complicated and difficult to deal with if you're already disabled.

[a-totally-reasonable-username]

Gender + species dysphoria but being too disabled to do anything about it fucking sucks. And always looking sick just makes it worse. I look like a fucking skeleton with my bones poking out in the most disgusting ways and no matter what i do i can barely keep my weight, never mind gaining any. Sickly pale to the point i almost look white is a special kind of horror in itself.

Can't even go to an actual hairdresser because i can't wear masks while getting my hair cut. Can't bleach or dye my hair or use makeup because i react allergic to all of it. Can't bind because compression binders aren't safe for my weak ribs and i'm allergic to tape. Can't even glue on fake piercings because they're all so small i can't hold them. Can't get any actual piercings, including earrings, for a multitude of reasons. Same for tattoos. Can't start hrt because it's lower priority than the other five hundred doctors and specialists i need to go to and there's only so many appointments i can manage in a week.

I hate the fact that i look human at all and there's literally nothing i can do to channge my appearance in any way

[a-totally-reasonable-username]

I can't sleep on my stomach because that fucks up just about all of my joints. Sleeping on my back messes with my digestive system and massively fucks up my neckband back. Sleeping on my side fucks up my shoulders, hips and ribcage.

So now I'm working on learning how to sleep while hovering in the air without touching anything! I'll update as i make progress on that!

[a-totally-reasonable-username]

Had an appointment with my orthopedist and told him that i need a specialist's report on the necessity of a stairlift so i could get financial aid for it approved. He just stared at my wheelchair, then at me, then back at my wheelchair. Looking back at me, slightly incredulous "...okay what exactly do they want now?"

[a-totally-reasonable-username]

Being a horror fan with intrusive thoughts and a tendency towards hallucinations and paranoia is one hell of a combo

[a-totally-reasonable-username]

Me: yeah most often it's my feet and legs but sometimes it can be my whole body and it'll be so cold i can't really move or feel anything properly but i also don't realize i'm cold until i'm warmed up again

My doctor: alright that's... weird and definitely not good and we need to look into those temperature regulation issues. But, i mean, that isn't happening with these hot summer temperatures, right? (Clearly asked as a rhetorical question)

Me: oh no it happened again like four days ago!

My doctor: 😐

[a-totally-reasonable-username]

[a-totally-reasonable-username]

Just cracked my back and something fucking crinkled. What the fuck. My back cracking is kind of extreme but it's fine. But what the everloving fuck just made a crinkling noise in my back?? My entire spine cracking and popping? Fine, normal, the goal even. However little crinkly sounds towards the side?? Inside of my back??? Not normal?????

[a-totally-reasonable-username]

Discussed my body's (lack of) temperature regulation with my GP and the baffled, despairing look of wtf she gave me after i told her about that time i randomly got frostbite in july was truly epic.

[a-totally-reasonable-username]

Really hate how my father could barely be a part of my life, then not at all and somehow he's still a fucking problem. Like, I have zero contact or interaction, not even indirect, absolutely nothing. And still he's making things difficult without even doing anything. Annoying as hell

[a-totally-reasonable-username]

“You shouldn’t self-ID as ADHD/autistic, you’re turning a very real mental condition into a trend” Ok then stop saying delulu. Stop speculating on which cluster C personality disorder the criminals you hear about on the news have. Stop saying “schizoposting” and “acoustic” and “is it restarted?” Stop using “psycopath” and “sociopath” as catch-all ways of calling someone a bad person. Stop saying “the intrusive thoughts won” when you bleach your hair and then turn your nose up at people who suffer from very real, very scary urges of physical/sexual violence. Stop saying “I’m so OCD” as a way of calling yourself neat. Stop treating BPD/ASPD/Bipolar as inherently abusive. Stop saying “OP I am living in your walls” without tagging for unreality. Stop diagnosing complete strangers you’ve never met on r/AITA with NPD.

You first. If you don’t want our disabilities to be treated like trends then stop belittling and minimising them. I’ll NEVER judge a person for trying find labels for their symptoms when an apathetic, racist, sexist, ableist healthcare system refuses to. But I will absolutely judge a hypocrite. Which a lot of you are

[a-totally-reasonable-username]

Also if you listen to your body and don't eat stuff you hate, it can be a lot healthier than forcing yourself to eat it anyways. Sincerely, a picky eater who found out all the fruits and vegetables they've always hated are high histamine and are actually making them sick. There's no need to force yourself and your body.

I am judging everyone who judges even their friends for being a picky eater. It's rude as hell

people are absolutely EVIL about the boundaries of "picky eaters". no, they do not have to try it. yes, they can know they don't like it without having eaten it before. no, they probably have not suddenly grown a taste for the food they've said they hate. no, they probably are not going to like it in the Special Way This One Place Cooks It. yes, you are being a bad friend if you try to "trick" them into eating it anyway

[a-totally-reasonable-username]

Fatigue is kicking my ass so bad at the moment 😭 i just wanna be able to hold onto a thought until i finish the thought. They all just keep slipping away. And then i forget and then with a lot of effort and focus i remember again only for it to slip away again. Rinse and repeat about five times for every thought i'm trying to finish.

[a-totally-reasonable-username]

Why do i always feel like i wasted the whole day and did nothing at all on the days i did unusually much? That feeling is somehow always strongest on the days i had a lot of appointments, went on shopping trips, cleaned, organised paperwork and was generally productive. It really seems like it should be the other way around

[a-totally-reasonable-username]

you ever realize how able bodied people just are not expected to do things that cause them excruciating physical pain? like they’re just. not

if i shouldn’t use my cane because i can sometimes technically walk without it, it would just hurt like a motherfucker then abled people should no longer be allowed to use potholders to take things out of the oven because i mean

well they could technically pick up a hot pan with their bare hands. it would just hurt like a motherfucker

[a-totally-reasonable-username]

you ever realize how able bodied people just are not expected to do things that cause them excruciating physical pain? like they’re just. not

if i shouldn’t use my cane because i can sometimes technically walk without it, it would just hurt like a motherfucker then abled people should no longer be allowed to use potholders to take things out of the oven because i mean

well they could technically pick up a hot pan with their bare hands. it would just hurt like a motherfucker