#joint hypermobility

[frank-gallaghers-beer]

me when the chronic pain is chronic and painful:

[a-totally-reasonable-username]

How many braces and splints do i need to wear for them to count as an exoskeleton? Asking for a friend

[scretladyspider]

Hey y’all. I need to request mutual aid. Due to my joint hypermobility (likely undiagnosed EDS, I’m diagnosed with joint hypermobility but tbh I match a lot of EDS criteria, but I mean it took them like 27 years to even diagnose me with the joint hypermobility even tho I constantly had ankle sprains growing up, anyway) I’m unable to do heavy lifting and need to hire movers. I need help to raise $1800 by July 21st.

Between needing to start new utilities, paying this and next months rent at the same time (a requirement by the leasing company), the pet deposit, and the last month of rent on my current place, plus everyday things that naturally come up like gas and groceries, I just do not have the funds to do this without help. My family already helped me with the security deposit, which I will be paying them back for, but because of this they do not have the funds to also help with movers. Im $50 of the way to the goal already after sharing this on Twitter, so I’m sharing it here too.

Anything helps. Thank you. 💜

Please reblog. 💜

venmo- secretladyspider

CashApp - secretladyspider

PayPal

[consider-your-potatoes-mashed]

A paraphrased conversation between my mom and I

Me: “I couldn’t go to class today because my disability is causing my joints to be too unstable for what we are doing today plus my pots is really flairing”

My mom: “ you know I don’t see you as disabled, you should really stop thinking about disability and start thinking of ability or different ability”

[fibrospoons]

Starting new medication:

Doctor: take these pills twice a day before meals

Me: OK easy enough

6 months later:

Me: I don't feel even slightly better, actually probably worse

Doctor: well you are taking the pills wrong. You need to take them 40 mins before food, with a whole glass of water. Also eat more calcium because the pills destroy your bones.

[demiboydemon]

Doctors office: all our locations are wheelchair accessible! You can come to whichever is closest to you :)

The office: *has five floors and no elevators, doors too narrow to fit an even smaller than average wheelchair, no ability to prop doors open, stairs at the entrance, no accessible bathrooms, no disabled parking spaces with the closest parking lot three blocks away, no ramps, and no curb cuts*

Doctors office: also if you’re more than 5 minutes late you have to pay us $50 🥰

[snakeskinass]

Guess who possibly has hypermobility spectrum disorder. 😜

[im-secretly-a-frog]

I have mobility issues, but I don't have a diagnosed condition. I can walk, and on the good days there's only a little pain, but on the bad days, I can barely walk around my own house without leaning heavily on anything I can. I don't have mobility aids. I don't even feel like I can ask for them.

I'm so tired. I feel helpless, and it's getting worse. I don't think anyone will believe me.

[alxor-of-hellsite]

Does anyone have tips to help with subluxation? My hips especially have been refusing to stay put.

[a-totally-reasonable-username]

Orthopedist was checking my range of motion and seeing how hypermobile my joints are and halfway through he actually muttered "damn" Under his breath and at another point he accidentally set a subluxated joint back into place and he was so freaked out and after he finished examining me he was so stumped on wtf to do with me he went to talk to his higher up and got a colleague to make an appointment for me with genetics testing so.... I think i'm winning?

[cuntyglam]

headcanoning franky as having chronic pain is my self care. his joints ache and click, and he can easily dislocate them, but sometimes has trouble getting them back in. when he wakes up in the morning he needs to pop some of his joints back into place, like his fingers and shoulders. disabled king.

[consider-your-potatoes-mashed]

Pretty sure I subluxed my hip in my sleep last night so we’re having a “fun” (not really) time out here

[fibrospoons]

Went to another rheumatologist today, who confirmed that I fall on the joint hypermobility spectrum, but that it's unlikely to be Ehlers Danlos Syndrome which is good, I think?

Mostly I just wanted reassurance that I don't need to worry about my heart or organs prolapsing.

But other that that he recommended that I eat a bag of crisps everyday to help with low blood pressure / pots, which I'll do happily as I love salt.

[qrow-life]

Mobility Aids

Sadly I’m at the point where just walking around my house hurts (8/10 and sometimes an 9/10) and I’m kinda stuck on if I should get a wheelchair on my own or if I should just wait til I see one of my specialists bout it. It’s just so painful and I hate using Advil bc it makes me sleepy and I just knock out for a good couple of hours. So, I don’t know what to do. My body is just in constant pain.

Mind you I have forearm crutches just a little lost on what to do.

[witch-wagon]

The universe made me a neurodivergent cripple bc she knew that I'd be too powerful without both causing me problems.

[xmcu-fietro]

people with chronic fatigue—how do you manage the fatigue when you have a lot of things to do?

my doctor thinks I may have fibromyalgia but she’s been overall pretty unhelpful/dismissive, and I need a few tips for figuring out how to conserve/boost energy as I finish the semester and prepare for a busy summer. Caffeine doesn't help me because of my ADHD, and sleep rarely helps.

Specifically, is there anything that helps energy while standing up? I don’t have any issues with walking, but when my fatigue/muscle and joint pain/muscle tension flares a lot it makes standing up pretty exhausting, so outside of making myself go to classes when I can I pretty much stay in bed or on the couch as much as possible, but that’s not good for my grades or my mental health.

Any help is appreciated!