#joint hypermobility

[frank-gallaghers-beer]

me when the chronic pain is chronic and painful:

[demiboydemon]

So sad about the United Health CEO :( has he tried yoga?

[vampiresblog]

currently the worst part my health rapidly declining is that I have barely any energy at all and the energy I do have is spent on booking drs appointments, arranging with specialists, organising all of my medical records and history to bring to new drs, submitting applications for disability support, getting blood drawn for genetic tests, etcetera. I don't have time to do anything except be sick, and I don't even know what I'm fucking sick with

[a-totally-reasonable-username]

How many braces and splints do i need to wear for them to count as an exoskeleton? Asking for a friend

[arrayoflightarchives]

Do you guys ever get the overwhelming need to go tell a doctor everything and have them actually give you a diagnosis

[scretladyspider]

Hey y’all. I need to request mutual aid. Due to my joint hypermobility (likely undiagnosed EDS, I’m diagnosed with joint hypermobility but tbh I match a lot of EDS criteria, but I mean it took them like 27 years to even diagnose me with the joint hypermobility even tho I constantly had ankle sprains growing up, anyway) I’m unable to do heavy lifting and need to hire movers. I need help to raise $1800 by July 21st.

Between needing to start new utilities, paying this and next months rent at the same time (a requirement by the leasing company), the pet deposit, and the last month of rent on my current place, plus everyday things that naturally come up like gas and groceries, I just do not have the funds to do this without help. My family already helped me with the security deposit, which I will be paying them back for, but because of this they do not have the funds to also help with movers. Im $50 of the way to the goal already after sharing this on Twitter, so I’m sharing it here too.

Anything helps. Thank you. 💜

Please reblog. 💜

venmo- secretladyspider

CashApp - secretladyspider

PayPal

[consider-your-potatoes-mashed]

A paraphrased conversation between my mom and I

Me: “I couldn’t go to class today because my disability is causing my joints to be too unstable for what we are doing today plus my pots is really flairing”

My mom: “ you know I don’t see you as disabled, you should really stop thinking about disability and start thinking of ability or different ability”

[fibrospoons]

Starting new medication:

Doctor: take these pills twice a day before meals

Me: OK easy enough

6 months later:

Me: I don't feel even slightly better, actually probably worse

Doctor: well you are taking the pills wrong. You need to take them 40 mins before food, with a whole glass of water. Also eat more calcium because the pills destroy your bones.

[im-secretly-a-frog]

I have mobility issues, but I don't have a diagnosed condition. I can walk, and on the good days there's only a little pain, but on the bad days, I can barely walk around my own house without leaning heavily on anything I can. I don't have mobility aids. I don't even feel like I can ask for them.

I'm so tired. I feel helpless, and it's getting worse. I don't think anyone will believe me.

[demiboydemon]

Doctors office: all our locations are wheelchair accessible! You can come to whichever is closest to you :)

The office: *has five floors and no elevators, doors too narrow to fit an even smaller than average wheelchair, no ability to prop doors open, stairs at the entrance, no accessible bathrooms, no disabled parking spaces with the closest parking lot three blocks away, no ramps, and no curb cuts*

Doctors office: also if you’re more than 5 minutes late you have to pay us $50 🥰

[alxor-of-hellsite]

Does anyone have tips to help with subluxation? My hips especially have been refusing to stay put.

[a-totally-reasonable-username]

thinking about my wrist that's been a major issue for days now: "ugh it hurts so bad and there's this stabbing pain that makes it feel like my bones are in the wrong place and" remembers that my bones sitting wrong is the issue* "...right"

[cuntyglam]

headcanoning franky as having chronic pain is my self care. his joints ache and click, and he can easily dislocate them, but sometimes has trouble getting them back in. when he wakes up in the morning he needs to pop some of his joints back into place, like his fingers and shoulders. disabled king.

[qrow-life]

Mobility Aids

Sadly I’m at the point where just walking around my house hurts (8/10 and sometimes an 9/10) and I’m kinda stuck on if I should get a wheelchair on my own or if I should just wait til I see one of my specialists bout it. It’s just so painful and I hate using Advil bc it makes me sleepy and I just knock out for a good couple of hours. So, I don’t know what to do. My body is just in constant pain.

Mind you I have forearm crutches just a little lost on what to do.

[consider-your-potatoes-mashed]

Pretty sure I subluxed my hip in my sleep last night so we’re having a “fun” (not really) time out here

[fibrospoons]

Went to another rheumatologist today, who confirmed that I fall on the joint hypermobility spectrum, but that it's unlikely to be Ehlers Danlos Syndrome which is good, I think?

Mostly I just wanted reassurance that I don't need to worry about my heart or organs prolapsing.

But other that that he recommended that I eat a bag of crisps everyday to help with low blood pressure / pots, which I'll do happily as I love salt.