#actually hypermobile

[crippledpunks]

cane users don't have to use their cane for every single step in order to be valid in their need for a cane. cane users can suddenly stop using their cane while moving around and not invalidate their need for it next time they use it. some cane users may only use their canes during flare ups. some only need their cane every few steps for short bursts. everyone's needs are different.

every cane user deserves respect.

[chronicbitchsyndrome]

seeing a lot of discussion of upcoming food safety deregulation that doesn't provide any options beyond "don't eat pre-prepared food and buy from local farms."

therefore, i want this thread to be for tips, advice, resources, etc, for disabled people specifically to get through the upcoming food safety deregulation in the USA. please reblog and add on advice for minimizing upcoming risk when you can only eat pre-prepared and frozen meals, rely solely on SNAP/EBT for groceries, etc.

(i'll admit this is a bit selfish; i don't have any advice to start us off because i am a disabled person who relies almost exclusively on pre-prepared meals to survive and can't buy groceries if they're not SNAP eligible, so i would really, really personally benefit from tips and advice.)

stay safe and take care of each other!

[hypermobile-culture-is]

Hypermobility culture is having the urge to stretch but stretching does nothing.

No matter how you twist and turn.

[spookietrex]

Me: *crunches shoulder* Did you hear that?

My partner, wincing: Yeah. I thought it was a car crunching on the road but I guess it was your shoulder?

Me, proudly: Yeah!

[milo-by-the-fishtank]

“You are addicted to not being in pain”

Uh…. Yeah, I think YOU would be too if you constantly hurt and dislocated your joints!

[fizzyvitals]

TW/CW: the reality of being disabled

You know I never talk about how much I grieve over my old body. I used to be able to walk up hills, run, stand up without getting dizzy (possible POTS), play tag/chase, and generally be the athletic type until my disability has taken over my body, and it's excruciating to know how much has changed in the last 3-4 years. It's like when COVID hit, my disability hit.

I always had trouble with being "double jointed" but nobody took me serious, and neither did it do anything debilitating at the time. My knee's just popped every time I squatted, my neck would pop, my fingers started to appear "double jointed" but eventually my index finger bones are able to move out of place, and my shoulder shortly started to sublux/dislocate at 11. I got so used to "that's normal" to where it's became my normal, but a painful normal.

I've worked plenty of long shifts without a complaint in the world. I've done it with a knee brace on during plenty of shifts, because if not I wasn't the best worker.

But hey, guess I'll walk until my knees dislocate their last time.

Ciao,

Azhtynn E. Myllo

[anachr0nismm]

As a disabled person, the ‘bedrotting “trend”’ is absolutely disgusting.

I don’t even know how to explain all my feelings about it, but seeing ableds talk about it like something they can choose to do, something they can do for fun, even, makes me feel absolutely awful.

Some days I am stuck in bed for long amounts of time because it hurts too much to move or I’m too dizzy to even sit up, and my chronic illness is not the worst example of even people who have the same chronic illness as me.

I can physically feel my muscle rotting on particularly bad days because of my lack of movement. They may not actually be rotting, but that doesn’t change how it feel to me. I feel like my body is dying constantly, and I can’t do anything but lie here and scroll through Instagram reels with a heat pillow between my back and the mattress.

My depression also affects my getting up, though I mainly want to focus on chronic illness and physical disability since I feel like it isn’t talked about enough.

That is not a hobby, a trend, or a past time. That is a seriously worrisome act that shows how much chronic illness (and other disorders) can disable those who have it.

I do not cry at night after a long day of laying in my bed because I was too sore and sick to do anything else for some able bodied person to say that it’s ‘perfect’ and try to make it aesthetic.

Fucking think about what your doing. Us disableds are left out of so many peoples minds, either unintentionally, or because people don’t want to or see the point in thinking of us. And it’s horrible.

I got very upset seeing some of the things people were saying while trying to claim it was a ‘trend’ and just needed to rant about it. Please think about us before you do shit like this.

[your-fav-is-hypermobile]

Clownpierce from Lifesteal is hypermobile !

requested by @mishametic (won’t let me tag so i just have to hope and pray they see it) :-)

[genderqueerdykes]

I love, love, LOVE your posts! I’ve learned so much from you. Do you happen to know anything about hEDS and top surgery recovery? I’ve been struggling to find information 😅

hey i appreciate that!! i'm glad i could've helped you!

that is actually a fantastic question! i have not gotten top surgery yet, but i would absolutely love to hear from people who have done so who have hEDS or other hypermobile spectrum disorders, for that matter!

please feel free to chip in whatever information you may have!

[crippledpunks]

shoutout to every person who deals with incontinence. i dealt with bedwetting up until my early teens, and now deal with stress and urge incontinence and for years never wanted to talk about it because of the shame and stigma other people place on not being able to control your bladder or bowel movements.

incontinence is a disability. it's not gross or wrong to talk about incontinence. incontinent people are not dirty or disgusting. if we could control these parts of our body, we would. we're not an inconvenience for being this way, and we don't have to be treated like a burden or like we need to be "fixed".

whether or not you use incontinent products like briefs, pads, diapers, plastic bed sheets, or whatever else, you are loved, important, and deserved to be seen when there are conversations about disability awareness and acceptance. we don't deserve to hide in shame when all we need is to be accommodated and accepted.

[st7arlight]

sketch page :) slaps dipper with my disable-inator get chronic pain idiot

[hypermobile-culture-is]

hypermobile culture is thinking that everyone goes around in a mild amount of pain until age 19 and then. you learn.

^^^

[lokilysolbitch]

me simply laying on my side:

several joints: *start slipping out of their sockets and hurting*

me: SORRY i forgot y'all were sensitive SNWOFLAKES🙄🙄librals🙄🙄🙄🙄libocrats🙄🙄🙄🙄🙄🙄🙄blue haired libras🙄🙄🙄🙄🙄🙄🙄🙄🙄🦅🦅🦅🦅���🇷🇫🇷🇫🇷🍔🍔🍔

[dandelion-system]

The day a doctor hears me say ‘I am in immense amounts of pain. I would not like to sacrifice living a normal life, in which I go to work, have friends, and possibly meet a partner, to not be in pain.’

And then the doctor responds ‘we’re going to find you a way to live a normal life, where you can go to work, have friends and a romantic relationship. Because it is unfair that this thing outside of your control should dictate to you that you must now stay at home forever and miss out on joy.’

because I swear to god every doctor I see tells me to just do less? Hello?? I’m already doing the bare minimum! I would like to have options to do more! Not less! Diagnose me and support me, stop telling me to ‘slow down’!!

[cocokitty200]

my back hurts so bad guys please take my disabilities n give them to someone else.

[diovinnie]

I am a broken down robot waiting for a purpose at the bottom of an ocean of dissociation. Rust has marred my flesh under my suit and I’m breathing air that is an illusion of who I once was. I don’t know who I am now. Just an unnecessary construct waiting to shut down.

My battery is lasting longer than I thought. I just continue to drift on low power. I don’t know how much longer I can. Maybe an eternity. Maybe not.

Whispers in my brain tell me I can go on. I don’t believe them. I feel like something created as a means to an accidental end. Or rather, no end.

The end is never the end. I died years ago, only to be reborn in a body that isn’t mine, in a life I was never intended for.

What do I do now? I’m sorry I wasn’t cut out for this.

Was there ever really anything before this?