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i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary
#cripple punk#cripplepunk#crip punk#cpunk#actually disabled#chronic pain#disability culture#fibromyalgia#disability rights#disability advocacy#physical disability#c punk#angry cripple#queer cripple#cfsme#chronic fatigue syndrome#chronic fatigue#arthritis#diabetes#neurodiverse#neurodiversity#neurodivergent#autism#autistic#adhd#actually autistic#hypermobile eds#hypermobilty syndrome#our writing
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do able-bodied people not understand that if disabled people call out of work every time they don't feel good that we would call out of work every fucking day?
like honestly. what do you think being disabled means?
#if one more person tells me to take a sick day i'm going to throw something at them#i just honestly cannot anymore#disabilties#disabled#actually disabled#epilepsy#ehlers danlos syndrome#physical disability#neurological disability#actually epileptic#zebra#chronically ill#chronic illness#spoonie#chronic fatigue#chronic pain#c punk#crip punk#cripple punk#fuck capitalism#anti work#disability culture#1k#5k#10k
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Regarding the 'Doctors' Saying':* "If you hear hoof-beats, look for a horse, not a zebra."
Okay, fine. But if someone calls you and says: "There's a zebra in my front yard," don't just tell them "Actually, you're wrong. That's a horse," and hang up.
At least call around and see if there's a zoo nearby, or a visiting circus, and ask if they've had any animals escape, lately. And maybe ask them to double-check.
*As I've heard reported by the Elhers-Danlos Syndrome and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome communities.
#my own shower thoughts#undiagnosed & misdiagnosed conditions#disability culture#doctor frustrations
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Chronic illness(es) culture is genuinely questioning how able bodied people can go up and down stairs and walk several blocks without any pain or issues whatsoever
#chronic illness culture#chronically ill#chronic illness#chronic pain#chronic fatigue#disability culture
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you cannot gauge the severity and complexity of someone's identity or health through a computer or phone screen alone. there is no way for you to ascertain whether or not a total stranger is faking a condition because you do not have consistent exposure to strangers, let alone when they are at their worst. it is a waste of time to attempt to "weed out the fakes" when it comes to disabled people. you just don't know what someone else lives with every single day.
#cripple punk#crip punk#mad pride#cpunk#cripplepunk#disability culture#disability rights#disability#disabled#our writing
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Can we go ahead and normalize medicine? Taking pills in front of people? Taking pills in public and not getting weird looks? Using alternative medicines or anything other than pills and not being treated like a novelty? Fucking please because first of all literally everyone takes medicine of some kind at some point in life okay and second of all people need medicine to live it’s a thing it’s pretty common and people need to be in public for a lot of reasons actually so can we please
#disability culture#disability advocacy#chronic illness vent#undiagnosed chronic illness#chronic illness#chronic pain rant#undiagnosed chronic pain#chronic illness rant#chronic pain#chronic pain problems#chronic pain treatment#medical trauma#disability community#disabled community#neurological disability#physical disability#spoonies#dysautonomia#neurodiversity#mental health stigma#undiagnosed disability#fuck society#healthcare reform#normalize it#normalize this#did osdd#disability trauma#autistic thoughts#autistic borderline#comorbid conditions
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A Manifesto for the Liberated Autistic
(written by one Autistic person!)
Communication is a human right! We demand access to whatever form of communication we choose, including unconditional access to Augmented and Alternative Communication technologies.
We demand autonomy over our own bodies and rightful decision-making powers over our own lives as we see fit.
We demand freedom from police brutality and all forms of abuse, including seclusion and physical and chemical restraint in schools and hospitals, and we demand freedom from all forms of violence, including filicide.
We demand that the shameful Judge Rotenberg Center in Canton, Massachusetts—and all other institutions like it—be shut down. #StopTheShock
ABA (Applied Behavior Analysis) is conversion therapy for autistics. We demand freedom from all oppressive “interventions” or “treatments” and quack “cures” for Autism which seek to rob us of what—and who—we are.
We demand unsegregated access to an education alongside our peers.
We demand access to our own communities and our own cultures, and we demand access to knowledge of our people’s history!
We demand meaningful employment and an end to sub-minimum wage for all disabled people.
The way we move is political, and we demand freedom from all pressures to “behave” in accordance with neurotypical standards. Embrace the stim!
We must commit to cross-disability solidarity and cross-movement solidarity.
#ActuallyAutistic people are the REAL experts on Autism.
#actuallyautistic#actually autistic#manifesto#autistic#autistic culture#autistic pride#audhd#neurodivergent#neurodiversity#autism#autism acceptance#communication#autonomy#consent#police violence#stop the shock#judge rotenberg center#ABA therapy#better ways than ABA#conversion therapy#queer rights#neuroqueer#education#accessibility#disability studies#disability rights#disability justice#disability culture#disabled#actually disabled
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disability culture is my friends have an ongoing joke that they're gonna frankenstein-esque style me a new, functional body, half the time out of their own limbs
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Hii! I saw Spoonie in your bio
may I ask what does that mean?
sorry if it's common knowledge, English isn't my first language
Hello! Thanks for asking. Spoonie is in reference to Spoon theory used in some disabled / neurodivergent communities. It's a metaphor for the limited amount of daily "spoons"/ daily energy amount that one has in the day. Particularly as a disabled/ neurodivergent person such as myself, I have less "spoons"/mental/physical capacity available to me compared to a neurotypical, ablebodied person. I personally use it as kinda an all encompassing shorthand term for being disabled / neurodivergent that identifies me to other folks who know about disability/neurodivergent/spoonie culture.
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I think giving people 3-6 extra seconds to respond should be an accommodation.
Extra time on a test is nice and all, but i need more time on small things.
I can't write fast enough or think fast enough to keep up with my peers, but like in a timed trial kind of way.
Give me 3-6 extra seconds to respond to this specific question out loud.
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Happy Disability Pride Month!
I figured we can do a little thing together, and try and support fellow disabled content creators this month. Give em a boost! Help spread awareness of their works/content together! Along with bringing awareness the spectrum that is disability’s!
Reblog this post with YOUR Comission’s info/wishlists/kofi’s what have you!
I’ll go first!
Hi! I’m Belladonna. And I have Fibromyalgia
I have fibromyalgia, an autoimmune disease, along with issues with my spine. Causes me to be bed bound/in a wheelchair often. I use multiple types of mobility aids, and currently have plans for surgieres in the future to help make life not such a lonely nightmare lol
I have open writing coms
I have open art coms
These are my payment options
PayPal: FishyArtist
CashApp: BellaDonnaBucks
Kofi: CherryPopElf
This is my Amazon wishlist
Thank you for reading/reblogging!
#disabled person#disabled#fibromyalgia#disability#disability pride#disability posting#disability positivity#disability awareness#disability advocacy#disability activism#disability acceptance#disability community#disability culture#disabled artist#disabled writer#disabled and queer#disabled and trans#chronic illness#chronic life#chronic pain#disabled pride#disabled poc#disabled people#disabled community#disabled creator#disabled culture#mobility aid user#wheelchair user#walker user#cane user
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chronic fatigue weaves its way into everything. people love to tell disabled people they'd love to rest as much as we do, but they fail to understand how tired we are while we rest. we are not relaxed, we are generally pretty miserable, either from pain, irritability, or fatigue- which bleeds into every aspect of your life. being too fatigued to get up off of the couch means that you're too fatigued to get to the cupboard to pull out pans to attempt to start cooking.
the steps hidden within steps that are required to do a lot of tasks related to being a "functioning adult" are daunting, there are often way too many steps necessary to make "Simple" foods or do "simple" chores for disabled people to accomplish these tasks. chronic fatigue often means that even waking up from a nap or night's rest requires time to adjust to and power through
waking up is a process for me. im often no more alert and awake hours after i've woken than I am right after doing so. caffeine does not help fatigue- at least not at safe doses, for me, anyways. many days the act of moving from my bedroom to my living room is too much. taking dishes to the sink can be too exhausting. i have began falling asleep in front of the kitchen counter while standing because i realize the amount of steps required to clean the counters, or do the dishes, or prepare a meal that all of my energy instantly bleeds away
it's okay if you feel this way too. i have been dealing with chronic fatigue my entire life and it cost me my best paying job. i lost my ability to work because of it. it's not just you being "sleepy", you are genuinely too exhausted to function. you do NOT have the energy levels other people do, and that's okay. it's okay to let yourself be tired sometimes and address that instead of trying to pretend you're not tired.
i wish you good luck. you are loved
#chronic fatigue#fatigue#cfs#cfsme#cfs/me#myalgic encephalomyelitis#chronic fatigue syndrome#actually disabled#chronic pain#disability culture#cripple punk#fibromyalgia#crip punk#cripplepunk#cpunk#disability rights#disability advocacy#chronic illness#chronically ill#depession#adhd#autism#neurodivergence#neurodiverse#neurodivergent#schizophrenia#arthritis#cancer#diabetes#diabetic
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breaking news disabled people aren't using their disabilities as an excuse because it turns out it isn't an excuse it's a state of fucking existence
and existence is everywhere all the time no matter what even if you wish it wasn't
.
#i fucking wish it wasnt too for what its worth#disabled#disabilities#actually disabled#physical disability#physical disabilities#neurological disability#epilepsy#ehlers danlos syndrome#hEDS#hypermobile ehlers danlos syndrome#spoonie#chronically ill#chronic illness#chronic pain#chronic fatigue#crip punk#cripple punk#cpunk#c punk#seizures#seizure disorder#actually epileptic#disability culture#1k
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Wait YOU made the disability pride flag??? That’s amazing!! (And thank you 💚)
I, and a whole bunch of other people, here on Tumblr.
But to accept credit where it's due, yes. The current version of the disability pride flag is based on design ideas that I started playing around with with, in ...*checks my picture library* 2017.
It got better.
What really matters, though, is that people who are not me have decided they like it, and to share it.
Otherwise, it would just remain a clever doodle on my nearly obsolete desktop's hard drive.
So the thanks are mutual.
����💖💛🤍💙💚🖤
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I Think One Of My Favorite Things Is When I See People Matching Their Disability Aids To Their Personal Style <3
#Seeing Everyone's Personal Touch Is Just So Wonderful :]#talking bug#physically disabled#disability#amps#amplified musculoskeletal pain syndrome#wheelchair user#disability culture
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Shout-out to disabled people who don't don't know how much support they require.
Shout-out to the neglected who had to figure out how to do everything on their own, who were never offered any help.
Shout-out to disabled people whose lives would be improved significantly by having caregivers or an acc device or a mobility aid but for whom that's not an option.
Shout out to those who struggle to recognize the difference between a want and a need.
Shout out to those who struggle to understand and recognize thier own limitations.
Shout-out to those who have been forced to scrape by alone, regardless of how much support is technically "required."
I see you.
#neglect mention#original post#disability#support needs#disability culture#Not super relevant but I find the discourse around support needs very alienating for this reason#I don't know how much support I need#I'm not sure what counts as a need#I think we should be focusing on “how can we improve this person's quality of life” rather than “how much support do they need”#But maybe I'm just weird I don't know#disability positivity#asd
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