#hypermobile eds
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having chronic pain is like sometimes i’m dissociating from every feeling in my body because i have to ignore my limbs to cope and sometimes im so hyperaware that i can tell the exact amount of degrees my shoulder is hyperextended
#somebody sedate me#hypermobile eds#chronic fatigue#chronic illness#chronic pain#chronically ill#hypermobile ehlers danlos#spoonie#ehlers danlos syndrome#heds#probably heds#potsie#pots#mcas#subluxation#disability#disabled
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forgot 2 update yall but i finally got a cane !!! still in the process of decorating it w/ my partner but look at her !!
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heres to hoping i get more mobility aids in the future :)
#namely forearm crutches the way id KILL for a pair#chronic disability#disability#potsie#pots#pots syndrome#postural orthostatic tachycardia syndrome#mobility aid#physically disabled#disabled#spoonie#ehlers danlos syndrome#hypermobile ehlers danlos#hypermobile eds#cripple punk#cpunk#chronic illness#chronically ill#cane#walking aids
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i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary
#cripple punk#cripplepunk#crip punk#cpunk#actually disabled#chronic pain#disability culture#fibromyalgia#disability rights#disability advocacy#physical disability#c punk#angry cripple#queer cripple#cfsme#chronic fatigue syndrome#chronic fatigue#arthritis#diabetes#neurodiverse#neurodiversity#neurodivergent#autism#autistic#adhd#actually autistic#hypermobile eds#hypermobilty syndrome#our writing
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[ID: a mock caution sign. The illustration, done in bold black, shows a set of hyper mobile hands stretching the thumb to reach their forearm, and lightning bolts float above the wrist. The text on the sign reads “Warning Just because you can bend that way doesn’t mean you should.” /end ID]
Happy EDS awareness month.
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When the chronic fatigue is chronic
#chronic illness#chronic pain#disability#pots syndrome#postural orthostatic tachycardia syndrome#chronic fatigue#invisible disability#fibromyalgia#spoonie#chronic life#hypermobile eds
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can they invent a mobility aid that helps with the joint pain & also does NOT cause different joint pain in a different area from use
#ehlers danlos syndrome#hypermobile ehlers danlos#hypermobile eds#disability#disabled#mobility aid#chronic illness#chronic pain#joint pain
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Story of my life 🙄😅
#disability#disabled#ehlers danlos syndrome#fibromyalgia#hypermobile eds#pots syndrome#rheumatoid arthritis#potsie#spoonie#chronically ill#chronic illness#chronic pain
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daily reminder that if you do not provide the same amount of care, respect and support to people with gi issues, to people who have to use the toilet a lot due to their disablility, to people who are incontinent, to people who vomit a lot, to people who have ibs, to people with chronic nausea, to people with bladder or bowel control issues, to people who use diapers, to people who cannot control their bodily functions, to people who drool, to people who smell bad due to an aspect of their disability, and to people who have any "gross" aspect to their disability that you do to those who have more "conventional" disabilities then you are not an ally.
#heds#hypermobile eds#spoonie#chronically ill#actually chronically ill#cripple punk#crip punk#spoon theory#chronic illness#hypermobile ehlers danlos#disabled#actually disabled#michael scribbles
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my chronically ill best friend just said "I feel like the side effects part of a medication commercial" SO FUCKING TRUE BABE
#we have the same medical condition#pots#potsie#pots syndrome#chronic nausea#chronic joint pain#chronically ill#chronic fatigue syndrome#chronic illness#chronic pain#chronic fatigue#spoonie#invisible disability#disabled#actually disabled#gastroparesis#hypermobile ehlers danlos#ehlers danlos syndrome#hypermobility spectrum disorder#hypermobile eds#hypermobility#wheelchair#wheelchair user#mobility aid#cripple punk#cripplepunk
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dear parents, if your child has "seemed fine this entire time" but is now seeking out diagnoses, mobility aids, medical help, more doctors, and is sharing their pain more. do not fucking shut them down? even if it ends up being nothing, showing them that support through all of that will seriously help them. if it ends up being something and you're a bitch to them, the joke will be on you and that strain on your relationship will never go away because. you didn't listen.
listen to kids. we tell you what we need, it's not that hard.
#heds#hypermobile eds#chronic illness#chronic fatigue#chronic pain#chronically ill#invisible illness
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my sleeping positions to accommodate my joint pain have me looking looking either like a rag doll thrown away by a child or a meticulously arranged corpse by a serial killer
#﹒⊂⊃﹒sirius.yaps#hypermobility#ehlers danlos syndrome#hypermobile ehlers danlos#hypermobile eds#joint pain#chronic illness#chronic pain#chronically ill
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#hypermobile eds#ehlers danlos syndrome#more tags for the people#physical disability#actually disabled#heds#hypermobile ehlers danlos#hypermobility#ehlers danlos problems#disability
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cane users don't have to use their cane for every single step in order to be valid in their need for a cane. cane users can suddenly stop using their cane while moving around and not invalidate their need for it next time they use it. some cane users may only use their canes during flare ups. some only need their cane every few steps for short bursts. everyone's needs are different.
every cane user deserves respect.
#chronic pain#cripple punk#cane user#disability culture#physically disabled#physical disability#disability activism#disability rights#disability#disability advocacy#cripple#crippled#fibroymalgia#fibro#actually hypermobile#hypermobile eds#hypermobilty syndrome#hypermobile joints#hypermobile#back pain#crip punk#cripplepunk#disabled#bad back#arthritis#our writing
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by the way...
PSA!
please do your best to not express disgust when a hypermobile person... exists. like, i'll bend my fingers weird, and the people around me will writhe and gag in disgust. referring to it as "body horror" is the worst part. it's not body horror. my body isn't horror. my body is a part of me.
yeah, it's a little freaky when you're not used to it, but please do your damnedest to keep it to yourself. it's incredibly humiliating to be on the receiving end of that sort of thing. it makes me feel like a monster or something less than human. be kind to those that aren't like you. that's the lesson at the end of the day, for all things.
thank you for your time 🙏
#heds#hypermobile#hypermobility#cripplepunk#cpunk#actually disabled#disabled community#hypermobile eds#hypermobile ehlers danlos#spoonie#ren.txt
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Happy disabled pride month to disabled people with undiagnosed physical disabilities
Happy disabled pride month to disabled people with undiagnosed mental disabilities
Happy disabled pride month to mobility aid users
Happy disabled pride month to disabled people who are in constant pain
Happy disabled pride month to AAC users
Happy disabled pride month to disabled people with ableist family
Happy disabled pride month to fat disabled people
Happy disabled pride month to disabled people with scars
Happy disabled pride month to disabled addicts
Happy disabled pride month to disabled people who's disability is progressing
Happy disabled pride month to disabled people who love their disability
Happy disabled pride month to disabled people who hate their disability
Happy disabled pride month to disabled people with underrepresented and/or uncommonly known disabilities
Happy disabled pride month to all disabled people. I love you. /p
#multiply disabled#disabled pride#actually autistic#physically disabled#autipunk#cripplepunk#aac user#nonspeaking autistic#nonspeaking#disabled#autism#aac users#aac device#neurodivergent#chronic fatigue#hypermobile eds#hypermobile ehlers danlos#undiagnosed ehlers danlos#ehlers danlos syndrome
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So sad about the United Health CEO :( has he tried yoga?
#/s#chronically ill#chronic pain#chronic illness#chronic fatigue#chronic inflammation#actually disabled#disabled#disability#disabilties#endometriosis#ehlers danlos syndrome#joint hypermobility#hypermobile ehlers danlos#hypermobile eds#psoriatic arthritis#chronic illness memes#potsie#pots#pots syndrome#fibromyalgia#pcos#polycystic ovarian syndrome#arthritis#type one diabetic#type 1 diabetes#diabetes#type one diabetes#type 1 diabetic#chronic illness problems
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