#hypermobile eds

[sebs-out-of-spoons]

okay, so, apparently your kneecaps shouldn’t be able to be moved around a lot or side to side, and if it can do that, it can be indicative of instability in those joints.

i can and always have moved my kneecaps around whenever i’m bored or just randomly, especially side to side.

this is a very fun (not, but useful at least) discovery.

[crippledpunks]

i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary

[potsiepumpkin]

When the chronic fatigue is chronic

[p0is0n-is-th3-cur3]

Having dreams crushed by disability is such a deeply traumatic experience, the realization that you’ll never be able to do the thing you want most in life because your body isn’t able to handle it. Waking up the day after you received the news and feeling that utter sense of heartbreak in your chest. Watching people go on and do those things while you sit on the sidelines, forced to watch bitterly. That feeling of being trapped, imprisoned by your inability to do what you love. The grief, the anger, the sadness. All because your body doesn’t allow you to.

[janeacular]

can they invent a mobility aid that helps with the joint pain & also does NOT cause different joint pain in a different area from use

[overqualifieddog]

[ID: a mock caution sign. The illustration, done in bold black, shows a set of hyper mobile hands stretching the thumb to reach their forearm, and lightning bolts float above the wrist. The text on the sign reads “Warning Just because you can bend that way doesn’t mean you should.” /end ID]

Happy EDS awareness month.

[chronic-counter-user000]

dear parents, if your child has "seemed fine this entire time" but is now seeking out diagnoses, mobility aids, medical help, more doctors, and is sharing their pain more. do not fucking shut them down? even if it ends up being nothing, showing them that support through all of that will seriously help them. if it ends up being something and you're a bitch to them, the joke will be on you and that strain on your relationship will never go away because. you didn't listen.

listen to kids. we tell you what we need, it's not that hard.

[thescrappyraccoon]

Story of my life 🙄😅

[stellaltumi]

my chronically ill best friend just said "I feel like the side effects part of a medication commercial" SO FUCKING TRUE BABE

[clownrecess]

Happy disabled pride month to disabled people with undiagnosed physical disabilities

Happy disabled pride month to disabled people with undiagnosed mental disabilities

Happy disabled pride month to mobility aid users

Happy disabled pride month to disabled people who are in constant pain

Happy disabled pride month to AAC users

Happy disabled pride month to disabled people with ableist family

Happy disabled pride month to fat disabled people

Happy disabled pride month to disabled people with scars

Happy disabled pride month to disabled addicts

Happy disabled pride month to disabled people who's disability is progressing

Happy disabled pride month to disabled people who love their disability

Happy disabled pride month to disabled people who hate their disability

Happy disabled pride month to disabled people with underrepresented and/or uncommonly known disabilities

Happy disabled pride month to all disabled people. I love you. /p

[irreverententity]

my sleeping positions to accommodate my joint pain have me looking looking either like a rag doll thrown away by a child or a meticulously arranged corpse by a serial killer

[panicismydefaultstate]

Just in case anyone else needed to hear this today-

Your health is not your fault. You didn’t do anything to “deserve” this. And you are right, it isn’t fair. You are allowed to feel upset, hurt, angry and jealous that your health, body or mind disables you.

It’s not fair, and that sucks. You are allowed to scream about that as much as you need to.

[crippledpunks]

cane users don't have to use their cane for every single step in order to be valid in their need for a cane. cane users can suddenly stop using their cane while moving around and not invalidate their need for it next time they use it. some cane users may only use their canes during flare ups. some only need their cane every few steps for short bursts. everyone's needs are different.

every cane user deserves respect.

[bunnyboyzyon]

[squishranger]

by the way...

PSA!

please do your best to not express disgust when a hypermobile person... exists. like, i'll bend my fingers weird, and the people around me will writhe and gag in disgust. referring to it as "body horror" is the worst part. it's not body horror. my body isn't horror. my body is a part of me.

yeah, it's a little freaky when you're not used to it, but please do your damnedest to keep it to yourself. it's incredibly humiliating to be on the receiving end of that sort of thing. it makes me feel like a monster or something less than human. be kind to those that aren't like you. that's the lesson at the end of the day, for all things.

thank you for your time 🙏

[forflightlessbirds]

daily reminder that if you do not provide the same amount of care, respect and support to people with gi issues, to people who have to use the toilet a lot due to their disablility, to people who are incontinent, to people who vomit a lot, to people who have ibs, to people with chronic nausea, to people with bladder or bowel control issues, to people who use diapers, to people who cannot control their bodily functions, to people who drool, to people who smell bad due to an aspect of their disability, and to people who have any "gross" aspect to their disability that you do to those who have more "conventional" disabilities then you are not an ally.