#chronic illness problems
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Sometimes i find myself putting off taking pain killers usually with the mental reasoning that I'm not in a really really high amount of pain so I dont need it yet.
This is a reminder to myself and anyone out there that needs it that you dont have to wait to be in a really high amount of pain before you take pain relief or do things that will make you feel better.
#disabled#chronically ill#chronic fatigue#chronic pain#disability#actually disabled#chronic disability#disabled community#disablity#spoonie problems#disabled life#chronic illness#chronic illness problems
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today is the first time a doctor has ever examined my stomach and told me something was wrong. something physical that he could see and touch. he told me something was wrong with me. and it made me so happy.
something was wrong even when my labs were clear. i’m allowed to be happy to get bad news because it means i finally have answers. and answers is something i spent my childhood praying for. so yes im happy to be told something is wrong with me. because something was wrong before anyone believed me. now i just have proof
#chronic illness#chronically ill#chronic pain#cripplepunk#crip punk#cripple posting#cripple punk#cripple shit#functional neurological disorder#just ibs things#ibs c#irritable bowel syndrome#crippunk#cpunk#c punk#happy cripple#queer cripple#cripple life#cripple problems#my illness is chronic but this ass is iconic#chronically in pain#the chronicles of illness#chronic illness problems#fibropain#fibro problems#fibromyalgia#fnd awareness#fnd
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Prayer Request.
That my Grandparents would be well and able to come to Thanksgiving and that my body would hold up with all the new experiences and challenges(and the rest of my family’s would too)
#prayer request#my rambles#chronic illness#chronic illness problems#my sister#me#lyme disease#neurological Lyme disease#bartonella warrior#OCD#prayer
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"omg bedrotting is so quirky and aesthetic"
well susan maybe it is until you're clutching yourself trying not to cry out of pain, everyone in your life fucking drags you for physically not being able to do personal hygiene, your grades drop and everyone's disappointed in you because even mental effort burns you out, you're so fatigued you don't even have the energy to answer your loved one's texts, heck you're so fatigued that you don't even have the energy for your own HOBBIES anymore, and the guilt makes you want to just curl up into a ball and disappear every day.
#bed rotting#chronically ill#chronic fatigue#chronic pain#chronic illness#disability rant#rant#chronic illness problems#spoonie problems#spoonie#spoonie life#fibromyalgia#fibro problems#cfs/me
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The sky looked so beautiful, so blue with some clouds, a sign of rain that might come at night. I twisted my ankle and fell a while after taking these pics, but at least I got to enjoy a little walk, hopefully my ankle heals soon cause not being able to walk sucks
#I have twisted my ankles so many times#having eds makes my ankles very unstable and they have been through hell and back#but I’m safe at home and bandaged up#BUT AT LEAST THE SKY WAS SO PRETTY#makes me think of sky full of song by Florence and the machine#me#myself and I#and the sky#and a sprained ankle#chronic illness problems#living with eds
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My medically heat sensitive ass watching heat related power outages creep closer and closer to my block like
#closest one is literally three blocks away#frantically knocking on all the wood in my house#please dear gods let me keep my ac cause i'll have to hide in the basememt#or go to a cooling shelter otherwise#chronic illness problems
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FRIENDLY REMINDER: Read your medication labels from time to time to check you're taking your meds at the correct dosage. Especially the ones you've been taking for ages and know your dose off the top of your head.
Signed, someone who found out I'd accidentally lowered a dose of one of my regular meds at some point and I'd been taking that wrong dose for a YEAR now. 😑🙃
#Psa#chronic illness#chronic illness things#actually disabled#fibromyalgia#pots syndrome#hypermobility#chronic migraine#cfs/me#chronic illness life#chronic illness problems#About me 2k24
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docs mis-coded my tit-ectomy referral and i'm too tired to deal with it and the stress of not dealing with it is contributing to my tiredness.
and my fandom has gone pear shaped.
and i am about to have surgery for a tumor in my shoulder.
and i started having bad seizures again and imma spend a week in the hospital hooked up to machines while they induce seizures for funsies or smth.
and twice this week i had to chew a baby aspirin because i was having multiple heart palpitations over the course of multiple hours on multiple days.
and last week i took my first trip since 2020 and i legitimately thought i would die on the plane. the turbulence was bad and i was panicking and i prepared myself to die in a plane crash. and i spent a few days in a daze of recovering from that and convincing myself that i was, in fact, still alive.
and my adhd meds stopped working and i'm not getting any relief from them, just fucky side effects. but docs won't take me off of them or change any other meds until i do my in-hospital seizure party.
so, no.
no i haven't worked on my fics.
no i haven't done my little projects.
no i haven't done the dishes in days.
yes i've been eating like garbage.
yes i've been compulsively spending.
yes i am in a bad fucking mood.
any good news? it's been a year since they cut out 1/4 of my cervix and that all seems to be going fine. my baby niece likes me now and told her mums that she decided i'm supposed to live with her which is adorable. i got some new scrub and serums and my skin has never looked so fucking flawless. and i have a fandom meetup in two weeks if i'm not dead yet i guess.
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Me: Your place is so much nicer than mine I’m so dysfunctional lmao
Friend: no my house is such a mess I have adhd too dude
Me: Sure but your place is still way better than mine
Friend: stfu everyone always says that
…
Friend entering my home: oh dang. fair enough. how are you living like this
Me: lol dissociation
#adhd life#doom pile but make it a whole room#adhd cleaning#chronic illness vent#audhd problems#adhd autistic#adhd brain#executive dysfunction#living with adhd#neurodiversity#adhd problems#adhd struggles#adhd things#adhd stuff#comorbidities#neurological disability#chronic illness problems#chronic pain problems#dissociative disorders#dissociation#dpdr#depersonalization#derealization#late diagnosed autistic#did osdd#adhd system#audhd system#living with depression#undiagnosed chronic illness#undiagnosed disability
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Me sitting here wondering what this squeaking sound is only to realize it’s me wheezing. 🤦♀️
#disabled#chronic illness#disability#pots#chronically ill#chronic pain#mcas#mast cell activation syndrome#postural orthostatic tachycardia syndrome#spoonie#chronic illness problems#allergy problems#me/cfs
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Not to be a whiney bitch, but could they not work out a higher dosage in some of these tablets so I don't have to take a fucking million of them for the privilege of breathing when my lungs decide to treat themselves with a spot of pneumonia?
Context for the mlm thing‚ the checkout lady in Lidl wanted me to invest in her herbal lung detox made from what she thinks might be mycelium‚ but she isn't sure, but it definitely starts with M, and she's got big tubs of it
#bendybitchesanonymous#if another person tells me to take their MLM remedy or vitamin C‚ I will start biting#pneumonia#ehlers danlos syndrome#ehlers danlos problems#edsawareness#ehlers danlos zebra#chronic illness#chronic pain#spoonie#edsproblems#chronic fatigue#chronic illness problems#weak ass bitch#weak ass lungs#you had one job
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My life is exhausting in a way that an abled bodied person wouldnt understand and thats okay. I dont need them to understand. However, i do need them to realise them being "tired sometimes" or "having an aching leg after running" doesnt equate to them understaning my experience. You dont need to understand my pain to be supportive.
#disabled#chronically ill#chronic fatigue#chronic pain#disability#actually disabled#chronic disability#disabled community#spoonie problems#disablity#disabled life#chronic illness#chronic illness problems
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The cycle of depression 🫥 has continued as my physical health continues on the decline. I become increasingly more stressed with how much work I've been missing due to my mental and physical health.
But I'm doing the best I can with what I can do.
#skeleton#dark aesthetic#goth#gothic#goth aesthetic#goth art#mental health#chronic illness#stressed and depressed#stressed#depressed#chronic depression#disabled#chronic pain#autoimmune disease#grunge#dark grunge#alt#alternative#gothgoth#gothcore#purple aesthetic#purplecore#purple#skulls#chronic illness problems#chronic health issues#disability awareness#invisible disability#invisible illness
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Chronic Illness magical thinking: Maybe I'll feel better if I take a shower.
I am in a lot of pain tonight. Like cannot find a comfortable position, it won't abate with meds, and I want to cry. What does my brain come up with? Take a shower.
And I'm going to do it, because at least I'll be clean when I present to urgent care tomorrow.
(Yes, tomorrow, because as a chronic pain patient, this isn't even the worst I've had, so why pay the ER fee.)
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the level of physical pain i am in is so extreme
#a normal person would go to the hospital but for me it's just a flare on a tuesday#it's so bad i stood up wrong and almost passed out#chronic illness problems#jess.mess
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Test run today of my makeup for my Jessica Jones cosplay. I've realized I haven't actually every tried to wear a mask when also wearing foundation so figured I'd see what happens while I'm at meetup tonight. I'm hoping it doesn't leave weird smear lines or anything since I want to take the mask off briefly for my pic with Charlie before putting it back on. We'll see.
#chronic illness problems#i would love to skip the mask entirely but not with my health issues in a packed con center#i'm just glad jj doesn't do contouring or anything that would make this more complicated
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