venting about my chronic illness, mental illness and gayness ♿️🌈tw for sh and ed stuff
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daily reminder that if you do not provide the same amount of care, respect and support to people with gi issues, to people who have to use the toilet a lot due to their disablility, to people who are incontinent, to people who vomit a lot, to people who have ibs, to people with chronic nausea, to people with bladder or bowel control issues, to people who use diapers, to people who cannot control their bodily functions, to people who drool, to people who smell bad due to an aspect of their disability, and to people who have any "gross" aspect to their disability that you do to those who have more "conventional" disabilities then you are not an ally.
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WHY IS EVERYONE EVERYWHERE SO ABLEIST ALL THE TIME
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to me, the universal trust in doctors from people who haven't experienced medical mistreatment/neglect is akin to the trust that upper middle class and white people have in the police. they haven't experienced the mistreatment themselves so they assume it doesn't exist. they assume that every doctor or police officer is only in it for protecting people. they assume that the people who made the rules for these organisations are somehow all-knowing and know the truth about what is morally correct for society. the difference is that there actually is such thing as a good doctor, while there is no such thing as a good cop.
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Being well enough to cook your own meals is a luxury i will never take for granted again.
I remember when i would skip meals rather than get out of bed and cook because the pain was so bad, many nights of going to sleep hungry. And when i could get out of bed it was only for snacks or instant food because i was never well enough to prepare a real meal.
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Being chronically ill and disabled truly is just constantly battling a hydra. You finish a doctors appointment and two more get scheduled
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Video
Earth’s Rotation Visualized in a Timelapse of the Milky Way Galaxy by Aryeh Nirenberg
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One of the most dangerous things in the world is not being able to say no to people because you don't want to upset them or dissapoint them. This will completely ruin your life in every way possible, at work, in your private life, your sex life and your friendships. It's a way of removing your own consent in your own decisions and go against your wishes, it is always a crime against yourself. Let yourself have a say. Upsetting people is better than traumatizing yourself.
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That shake-off! 😄 Follow me for more happy dogs!
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I find that it's so unnecessarily hard to explain that chronic illnesses and pain are... chronic. People seem to not understand the chronic part. Whilst I understand that some people recover, a lot of us never will and people seem unable to grasp that...
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btw saying that disability accommodations gives someone an "advantage" over abled people is like saying people with glasses/contacts have an advantage over people who can see fine without them and if you say this you're really ignorant
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braces do damage to your body
canes do damage to your body
crutches do damage to your body
rollators do damage to your body
wheelchairs do damage to your body
before you choose to use a mobility aid you need to weigh the pros and cons of using one. there are drawbacks to every single mobility aid. there is no such thing as a harmless mobility aid. mobility aids are not the right choice for everyone and it's important that people emphasize that when suggesting that people try them. mobility aids can permanently damage your joints and it's important that people emphasize that when suggesting them.
mobility aids need to be an informed decision.
so many people have permanent damage to their bodies that they regret because people online told them to try a mobility aid and that there were no downsides. there are downsides.
a mobility aid is only the right choice when the benefits outweigh the drawbacks. it takes information for someone to know whether they would benefit enough from a mobility aid to make it worth it. when you tell someone that there are no problems with mobility aids, that doctors are all lying about the damage they do, you deny people information. doctors can be wrong and can deny people mobility aids incorrectly but there's truth in the fact that they damage joints, change gaits, and cause muscle atrophy among other problems.
and on that note doctor/PT/OT guidance is important when it's available. using mobility aids that have been sized incorrectly, even for a short time, can cause enough damage that mobility aids are no longer an option for that person. using mobility aids incorrectly, even for a short time, can cause enough damage that mobility aids are no longer an option for that person. failing to tell people that they need to learn how to use and size their mobility aid correctly (preferably with a doctor/PT/OT's help) causes real harm to people.
give people information when you suggest mobility aids to them. people listen to your suggestions without researching and it causes harm.
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I love young cripples with stereotypically “old people” disorders! (Personally I have severe plantar fasciitis at 20)
You’re not “too young” to have this pain.
You don’t need to “wait until you’re older and then you’ll see”.
Your disability is a disability regardless of your age!!!!
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❗CRIPPLE TIPS❗
✨ Able bodied friends edition ✨
If you are in a group that includes anybody who is using a mobility aid, if you are out and about and a Stairs Situation arises, either ask them which they'd prefer, or opt for the elevator (given your group is small enough. If not, have a couple friends use the elevator with your disabled friend, after asking if this is what they prefer (they may enjoy a moment alone, everybody is an individual with their own preferences). This means they don't lose the emotional "high" of being part of a group, conversation can continue so they won't suddenly feel lonely and excluded on the solo elevator ride, which can creep in and ruin their mood especially if they're new to their disability, and there's less of a chance of confusion once you're at your destination. Nobody likes being lost, but the inherent exhaustion and physical exertion that comes with using and mobility aid is incredibly... Unfun. And distressing! This can be easily avoided and you have the chance to be an Excellent friend! We notice these things!
This post is about being Physically Disabled, Able bodied people are encouraged to reblog, but Do Not Derail-- make your own post if you need to say something not related to being physically disabled.
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I think a lot of physically abled people think that medical settings are designed to be accessible for physically disabled people, when that is so far from the truth.
I can't access half the rooms in my GP surgery, which often means that doctors have access to the computer system during my appointments because they're logged in upstairs and it would take too long for them to log out and then log back in. The GP practice also doesn't have any accessible parking spaces – I have to park in town and then walk/roll 20 minutes just to get there.
Then there's the fact that the equipment just isn't accessible. The GP practice cannot monitor my weight or perform certain physical exams because they don't have sitdown scales or any hoist safely transfer me on to an examination table. This meant I developed life-threatening starvation related ketoacidosis because my GP was unable to monitor my weight when I was unwell, so didn't realise how bad my malnutrition was.
A lot of wheelchair users in the UK resort to using veterinary practices because dog scales are more accessible than the scales in GP practices.
The same is true in hospitals. The majority of hospitals don't have changing places toilets so anyone who needs significant support from carers, or who need hoisting or an adult changing table can't use the toilet in hospital. When I was admitted recently every time I needed to transfer to a commode it took a significant amount of time to find people who had the appropriate training to use the hoist. And when those people were found, there wasn't really enough room to use one safely or with dignity. The commode that they had also did not meet my needs at all, and it's honestly a miracle I didn't fall, which given I'd just had surgery wouldn't have been good.
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