#ibd

[thequietesthing]

the incredible harsh quiet revelation that you have when you are diagnosed with chronic illness(es) is that you will never be healthy again. I don't think able bodied people are able to understand what it means to just resign to the fact that your life is not just yours anymore. you share it with a weight that will be with you until you are gone from this world.

[thatchronicfeeling]

One of the tricky things about being chronically ill is that you sometimes need help from medical professionals.

Many of these people have extremely fragile egos. Experience shows that, in 50-97.8% of cases, asking questions can lead to said medical professional going in the huff.

By 'huff', I mean anything ranging from 'slightly miffed that you threw them a curve ball' to 'incandescent with rage that you do not fit into the medical model that they are comfortable with'.

It can be difficult to tell in advance what you (a vulnerable person in this power dynamic) are going to be met with.

Also, you really do need to ask questions sometimes because you:

(a) don't want to get worse

(b) don't want to die

[mitamicah]

Happy disability pride month everybody!! ❤️💛🤍💙💚

To those who might not know Jere has been very vocal about his experience with IBD more specifically ulcerative colitis that resulted in him getting a lifesaving surgery at 19 leaving him with his two surgical scars on his stomach. Here's a few links to articles if you want to know more (x) (x). I'd also like to link the podcast interview where I first learned about his experience (starts at 11.10) since it touched me hearing him open up about for it for what sounded like the first time after he himself brought it up in such an authentic manner.

Since learning about his disability around april-may I have felt an even stronger connection to him. Although I do not have IBD myself, I just find his honestly, vulnerability and authenticity so inspiring that I could not help not to love him and and so the real brainrot began

For this reason drawing him for disability pride has been on my mind almost as long so I hope you enjoy the outcome - stay strong everybody and you are amazing just as you are, with or without disabilities

With regards, your fellow autistic Kääryle (Käärijä fan) 💚

[crosswire]

You know whats even worse than the pain and the grossness of having uc/ibd is the isolation. No one talks about this illness because it's "gross." Irl it's not polite conversation, and online the disability community only cares about chronic illness when it can be romanticized or quirk-ified. There's nothing to be romanticized about literally shitting your pants and feeling alone all the time because you can't eat things or do things. People pretend they can relate with their food poisoning or whatever. But no, it's always worse, and people just expect you to be okay. When you eat something you're not supposed to, people blame you, like they wouldn't do the same, just because you miss what feels like truly living. It's so fucking isolating and I can stand the pain but I can't stand that

[agentxpoe]

I love when I’m having Symptoms™️ and I backtrack what I have/haven’t done and I’m like

[h-the-scientist-not-from-steps]

IBD problems

[motherofpuppets]

brb getting my inflamed intestine pierced at Claire’s

[should-be-sleeping]

I need a somewhat silly amount of Prilosec to function. The pharmacist refilled the prescription today, gave me a sympathetic look and just said, "Does your tummy hurt? :("

lmao (affirmative)

[ego94]

stop telling chronically ill people, “don’t let your illness define you.”

i’m not letting my illness do anything. i didn’t ask for my life to be like this.

it’s an unfair expectation to put upon me, to always be happy despite the pain i’m constantly in. let me have my bad days. having bad days does not mean i’m giving up.

[thatchronicfeeling]

happy disability pride to the people with chronic diarrhoea 

[crohnschronicals]

[crosswire]

Life is just an eternal cycle of going to the bathroom

[earlgraytay]

...I wonder how much of the "Real Men Don't Eat Vegetables" malarkey is driven by undiagnosed Crohn's disease/IBD.

[arctic-hands]

[Image Description: the "not what I'm called" meme, showing Something, in this case the text "Crohn's disease/Ulcerative colitis", addressing two kids with the speech bubble "hey guys". In response, one of the kids points and excitedly says "Irritable Bowel Disease!", to which Crohn's disease/Ulcerative colitis replies in allcaps "Not what I'm called". End I.D]

Look I'm tired 😫

[t4tozier]

shoutout to everyone w non-curable illnesses. it may not necessarily be terminal, but just. anyone whose illness can be treated but never cured. or maybe it can’t even be treated properly! if you have to be on meds for the rest of your life, or get surgery, or whatever else you need to do to maintain your health, ily <33

[lgbtqreads]

Shopper’s Delight: Independent Bookstore Day 2025

Independent Bookstore Day occurs on the last Saturday of April every year, and we love to celebrate here by highlighting some great indies and the opportunities and recommendations they give queer books! (Please note the below are only as guaranteed as they are by the store and are not guaranteed past April 26th. Also, I totally presumptuously gave some advice in a few places that I cannot…