#autism does make life hard

[my-autism-adhd-blog]

For a long time, I wondered why I seemed to find life much harder than other people did… And then I realised I was autistic

Neurodivergent_lou

[m-a-r-i--c-h-a-t]

but who told them all my distorted thoughts lmao

[thefrogdalorian]

Some days being autistic feels like you're playing a video game on the hardest possible difficulty settings, with no instructions and your health down to 1%, while everyone else gets to play in easy mode with directions (so they always know what to do next) and unlimited health cheats.

Sure, being late-diagnosed means you're aware that you're playing on hard mode. Now you know you will struggle and you can give yourself grace and accommodations.

But some days it all feels so unfair...

Why do I have to constantly struggle at things that seem to come so naturally to others?

[caffeinatedopossum]

Conversation I just had with the person scheduling my therapy (it's at a place that offers disability services so they were asking about that):

Person: oh you're disabled? Were you in a car accident or something?

Me: ah, no, I have a genetic condition that makes my skeleton fall apart

Person: oh geez okay. Do you have to use any mobility aids? Like can you walk?

Me: uhh?? Sometimes? I can walk but not reliably. I can't do anything reliably which is like the whole problem because people don't think of disabilities as being so variable.

Person: wow I don't even think I'd be able to get out of bed, not knowing wether I'd be able to walk or not that day...

Me: oh well I have this pro gamer strategy where laying in bed hurts more the longer I lay there so eventually it will get so painful that I HAVE to get up haha 🙃

[mellotronmkll]

I need to stop having one weird reaction with someone and then letting the anxiety decide in my head that the friendship is doomed because I ruined it like it's my absolute worst trait and I just have to move past it but it's hard

[autisticlee]

no one knows just how hard I work at things. how I have to work 1000000x more than the average person to compensate for being autistic and adhd and probably other things i'm working out with therapist, and having a sort of physical disability i've not received any help or treatment for. everyone assumes I don't try or give up too soon. they think I just started, need more practice. they think I expect everything handed to me immediately with no work or effort and don't acknowledge the multiple years i've put into things. they think I have no right to be upset about still failing to get where I want even after working my entire life to get there, while watching people around me surpass even my meager goals within a fraction of the time and work i've out into the same thing. constantly getting surpassed by everyone around me who seem to barely do any work to get there compared to me. it's all handed to them and falls into their lap so easily. all because they don't have the extra obstacles to overcome and work around that I do. while they go from point A to Z immediately with no major stops in between, I have to go through every single letter and then some, often getting sent back to the start. but it's always *my* fault, according to everyone. it's not the fault of those around me who ignore me, don't support me, don't help me, don't believe in me, etc. it's my fault they don't do those things. because doing the work of 10 people in one isn't enough, just because it's me. and not reaching Z as fast as everyone else means I don't deserve any of the support or help or anything else and means i'm not trying hard enough. it doesn't matter that I *need* to work harder than 100 "normal" people combined to get even half the result! Just because I can't reach what they do means i'm not trying hard enough! ugh.

[b0wi3sgir1]

Autism is honestly the best thing this world gave me, but also I fucking hate it and please make it go away.

[sassmill]

I just want to be allowed to scream at my sister the way she screams at me. I want to be allowed to slam doors and throw things and break things. I want to be allowed to react to the way she treats us and not be called selfish.

[scottpilgrim4everr]

If I was given the option to change my special interest into something more “normal” or intelligent I’d 100% jump on it. I’d be a fool not to.

I hate having anime (Jojo’s Bizarre Adventure in particular) and collecting plush toys as a special interest.

I just want all the bullying to go away.

[soyhasmcaamp]

Stop! *Smak* don't do that! *Smak* stop being bad! *Smak* *smak* *smak*

when the autism is being an actual mental health problem instead of making me obsess over fictional characters again:

[mariska]

me at 1 am when i have to wake up at like 7:30-8 AM at the latest and partake in an autism assessment appointment when my brain almost never naturally wakes up before like 9:30-10 am and i have medical trauma and prior misdiagnosis triggers acting up in my head and i just got my period and i have endometriosis so im in agony and i start to feel a full blown depressive panic attack coming on even though i've already taken my anti panic medication and also i have adhd and cant get myself to turn on fortnite and play for like an hour to try and de-stress because of all of the above plus executive dysfunction

[alchemiclee]

as a fellow introvert; we are social creatures. introverts who purposefully see no one for months on end are usually just in a cycle where its been so long since they’ve hung out that it’s too intimidating for them to do anymore. i 100% feel tired after hanging out with my friends but i DO also feel happy and refreshed! tl;dr - you’re super normal lol. try to reach out to a couple people just to chat this week <3

thanks for reaching out I really appreciate it❤️ but I have to rant a bit. I allow you to ignore it!

I wish to not be a social creature because going too long without having a friend to talk to or not having someone to talk with almost daily feels bad and it's so hard to have a friend when I need one D:

i've been reaching out to people for the last few weeks or so but they don't reach back. try playing games with people but they play with their other friends or dont feel like playing. invite people to hang out but they say maybe and never give an answer or don't respond.

I don't want to bother my closest friends in our group chat too much in our group chat but the chat is mostly me sending messages with no response and even couple times saying I need a friend when I was having bad days but they didn't want to chat and I dont want to force anyone to entertain my lonely depressed ass. (especially when all I really needed was to talk about the new star rail stuff to distract me but I don't think they've finished it yet so I don't want to spoil) they live together so they always have to socialize and probably make each other tired without needing to add me to it.

so i've also been trying to reach out to new people, like joining twitch chats again for the first time in years. but that never goes well and doesn't satisfy my social needs. too many people talking at once and being the new person no one cares about and all....getting to know a new is very exhausting. but it's so hard to just be able to skip all that getting to know each other stuff jump straight into talking about a thing we both like (in this case it's star rail and cosplay and maybe art) I don't have enough already-known people to reach out to and i'm too tired to do the small talk dance until it's appropriate to jump into special interest territory. being autistic is so exhausting. I with to be one of those rare autistics I sometimes hear about that have 0 interest in social interaction at all

so as you can see, i'm trying. so hard. to the point I'm exhausting myself. it's been too much work for no payoff and makes things feel worse when the outcome isn't what I need and its constant reaching with no one grabbing my hand back. so I keep making annoying tumblr posts about it. i'm so sorry to anyone that reads my nonsense 😭😭😭😭😭😭😭😭😭😭 this is a normal thing with me but it's usually kept to my other blog that's reserved for more serious posts like this but I tried posting here as a way to "reach out" and see if it invites any friendly friends or something but I don't think i'm doing it right...

(but I am going to a con tomorrow with someone I haven't talked to in like 2 years. but we don't have anything in common anymore so theres not much to talk about. he's the only person who responded to me after trying to reach out for like a month but I fear it will only exhaust me being around too many people and not help this gross need to have a deeper connecting socialization D:)

[followerofmercy]

Networking/Knowing A Guy: A Guide

This is the autism website. Now, as an extension of the power of love and friendship, there are few things more useful than Knowing A Guy. Knowing A Guy means you have a support network. Knowing a plumber, or a tax accountant, or just that one dude that's really fucking good at finding the information you need when you're really overwhelmed, can be the difference between being able to pay rent and having a fun party with friends to fix your shit.

How does one end up Knowing A Guy? It's a skill you can develop called Networking and it is one of the foundations of society. Unfortunately making those connections with people is fucking hard and nobody makes a tutorial for it. So, here you go:

The golden rule is you scratch my back and I scratch yours

It is necessary for survival to seek out useful people

Great news! Everyone is useful in some form or fashion - including you! When given the opportunity to learn about someone, do it! Extroversion does not come naturally to some people and that's okay. Just take whatever falls in your lap.

Types of usefulness: trade skills, connections of their own, personality you jive with, pleasant to talk to, niche interest in shared hobby, security - the list is pretty much endless. I know a guy that lives in the metro area - no job, no major hobbies, inoffensively annoying to me personally, kinda ignorant, not attractive to me, but you know what? He knows how the fuck to get around the city by foot. My rural-raised ass APPRECIATES the guide.

Remember important information: general personality, background, skillset, likes and dislikes. You can find this information by making smalltalk about their life. There is no such thing as pointless conversation. (Yes, even the annoying smalltalk)

The more people you know, the higher the likelihood that one of them will be useful in a given situation - or will know someone who is.

It is overwhelming. In a given clique/community/workspace/whatever, there is A Guy Who Knows The Other Guys. This Guy is a shortcut. Find them. They're often elderly, extroverted, a little bit annoying, a secretary or in some otherwise forward-facing position. Look for people that are gossipy/talk about other people a lot but not in negative ways. If they constantly talk shit, they'll talk shit about you too. They're still useful but be careful with the information you share

You do not have to like someone for them to be useful.

You do not have to like someone for them to be useful.*

If you have low self esteem, you're going to feel like you're using people. You're not. That's the devil talking. People like feeling valued and the connections you are making are the threads holding community together. Recognize people for their talents. It's only a problem when you're taking advantage of people

So: don't feel scummy about it. You're an animal. You have to claw out your right to survive and people will respect you more for it.

Luckily mutualism is the name of the game in the animal kingdom. Offer something back. The foundation of a Know A Guy relationship is Mutual Benefit

Sometimes that Mutual Benefit is just spreading news of the The Guy far and wide. My plumber friend is my actual friend and I love her to death, but I'm maintaining our backscratch relationship by pimping out her plumbing business to anyone that'll listen

Food is a good Mutual Benefit. People across cultures for all of human history have bonded over food. I have good success asking people for a favor and then offering to buy them lunch in return **

General compensation is also good. Offer a service in return and always do your best to offer financial compensation as appropriate. Having your plumber friend take a look at your drain: doable with a case of beer. Having your plumber friend redo the pipes in your entire house? You need to pay for that.

Being transactional is not necessarily a bad thing. I would advise against keeping an itemized list of things owed, but fish don't seek out cleaner shrimp just because they enjoy their company. Everyone gets something

Unfortunately being extroverted and generally personable is a huge benefit here, but that's the value of the Guy That Knows A Guy. There's someone out there that has consolidated All The Guys so you don't have to be the local expert. Always remember nobody can do everything and you don't need to master every skill

* This is the foundation of a functioning community. I have many acquaintances that I find incredibly annoying. They include doctors, welders, artists, social workers, lawyers, construction crew and random fuckers at the grocery store. I do not hang out with them. I do not have to in order to maintain a civil Know A Guy relationship. I can drop them useful tidbits and fuck right off so I don't have to spend any more time than necessary with them

** People may assume romantic intent. Be prepared for that. I generally denote that it's a friendly/work lunch by calling them bro at some point if they're my age. Otherwise my general demeanor is sufficient to show that I do this with everyone

Source: personal experience, mother's teachings of crime, booth vending and poverty

[badolmen]

I’m having a normal one.

[edwardshundredyearoldspunk]

on this first day of disability pride month I had 1) a very embarrassing (but thankfully, private) meltdown, 2) an even more embarrassing conversation where I tried to address the cause of said meltdown to my mother but just ended up getting stonewalled, and finally 3) was told yet again that I'm “looking for drama” because “it's not a big deal” (because to her it isn't) and “if you behave like a child I'm going to treat you like a child”. cool.

[micer2012]

a reflection on MatPat's plagiarism

Hello, my name is Della, or micer2012, and 2 years ago Game Theory plagiarized three Tumblr posts of mine, making a video that now holds almost 6 million views.

My posts explaining his plagiarism made their rounds on Reddit, Tumblr and Twitter, but despite the Hermits and Pooka commenting on it (generally in support of me or saying they don’t know enough details about the situation to say either way), MatPat and his team have never owned up to anything, and no mention of my name is present on the video. The one Reddit post they made denying it (which was made before my detailed takedown, which they have never responded to (though the mods on the r/GameTheorists Reddit were kind and made sure it stayed up)) didn’t even mention me by name, just referring to me as “a tumblr user”. (Though one of the screenshotted comments in the body of the post does say my name)

This experience was baffling, but it’s overall had a positive impact on my life. r/Hermitcraft gave me a Golden Apple Award (post of the year, 2021). My inbox was filled with excited fans, wanting to ask me questions or pose their own theories, far more than the hate I got. (Though the hate I got from Game Theory fans was VERY funny. I wondered why none of them gave me shit about saying “MatPat misgendered Evil Xisuma” before realizing none of them read that far into the post.)

And getting on a more personal, and much more important note, I met most of my current online friends through this, including my partner. It helped me grow closer with my irl friends as well and gave me an entertaining story that I tell whenever I have the chance. It was one of the first things in my life that really made me feel like my talents, my autistic hyperfocusing and analyzing of things I love, could be valuable. Useful. Exploitable. It blew my mind that MatPat thought an autistic kid’s ramblings about a Minecraft Youtube joke character were good enough to steal. To put an audible sponsorship on. To get 6 million views off of.

And that’s why I’m writing this post, this update years later. As you might’ve been able to guess, Hbomberguy’s Youtube video on plagiarism reopened this wound. It was really hard for me to sit through, it took days of pausing and taking breaks, because I had experienced everything he was talking about firsthand. 

In my 10 page long takedown post, I wrote about how his rewording of my sentences made him say things that were incorrect, just like Filip did. The content farm production style that made big companies like Cinemassacre take one creator (AVGN/MatPat) and turn him and his content into a brand, a voice that reads out scripts by other people with other opinions/theories, is a history shared with Game Theory. What really hit me was Harris talking about how big creators only do this to people they think they can get away with doing it to. How they view their victims as lesser, as not deserving of their words, repackaging them as their own to give to an audience that can gain from hearing them, but deserves better than to have to listen to the original victim.

That’s the thing, I 100% think a video version of my theory to expose to a bigger community than “Evil Xisuma Fans on Tumblr” is a great idea!! Near the end of the video Harris talks about how video adaptations of things could be a great market, even an accessibility tool, and I completely feel that about my posts. I wrote them quickly assuming the reader was someone well versed on Evil Xisuma lore, after not even watching most of the CarnEvil series, and the diagrams I made to explain them are even less comprehensible. Harris makes a joke that I completely agree with, 

“I’m sure some of my videos would do very well if someone translated them into English.”

I don’t think I would’ve ever made my posts if I didn’t have autism, and a special fixation on Evil Xisuma and Hermitcraft. I made them because I felt the character was being done an injustice, and because I wanted to share with other superfans this theory that might explain it away. I do think that MatPat plagiarizing me was ableist. I used to wonder a lot if this would’ve happened if my posts were articulated better, if they had been peer reviewed, if the posts themselves had been spread to a wider audience before MatPat made his video. At one point when the discourse was fresh (before I had the time to write out my 10 page rebuttal), a bigger YouTuber (100k subs at the time) messaged me and started talking on Discord, interested in possibly making a video on the discourse, but I think my style of typing and general enthusiasm drove him away. You can tell by a single look at my blog (or my original 3 posts!) that I don’t usually type like this. This post you’re reading now has been peer reviewed and edited, and took me hours to format correctly. That video could’ve been huge, the entire outcome of this MatPat situation would probably be much different.

I also used to stress a lot about “being the one who ruined Evil Xisuma’s story”. If you didn’t know, to me S8 Evil Xisuma’s story got wrapped up pretty quickly and unsatisfying (in my personal autistic opinion). (though this might’ve been due to s8 being experimental and ending early with moon big) There was no real culmination of the plot points and arcs going on, and I don’t want to blame myself, but when Xisuma said on stream (when the MatPat thing was first going on) that he didn’t want to focus on the discourse or draw more attention to it, it makes a lot of sense to me that he just wanted to wrap it all up as quickly as possible. For a while I beat myself up about it, of ruining the story of this character I love, but it’s not my fault. If anyone’s, it’s MatPats, but I don’t think it’s useful to just blame someone else. That’s how the story ended up going, and that’s fine. This is Evil Xisuma we’re talking about, their inconsistent lore is what made them such an interesting character. And notably, Pooka made an animation with an awesome culmination of Jeff, the Dreamer, Evil Xisuma, and his own sona’s story, and it makes me so happy to watch. Whatever Pooka does is of course his own choice, but I’m glad he got to give this personal story his own ending (if it is an ending, and not just the start of a new chapter!). 

Typing this all out and getting it off my chest has made me feel a lot better. For a while I wanted to make my OWN video essay about Evil Xisuma’s lore and CarnEvil’s lore, actually going episode by episode to explain it instead of just assuming you knew as much about Evil Xisuma as I did. That idea is still not off the table, but MCYT isn’t something I’m that into right now. Maybe if something else comes out about Evil Xisuma I’ll get back on it, but for now I’m fine with letting that go. But I want to make other videos, share other theories and analysis… if I have the freetime I’d love to make YouTube videos, and if I don’t have the time I’ll continue posting to my tumblr and infodumping to my friends. Apparently my infodumping is valuable enough “content” to steal! Writing this out has made me feel a lot better though, I’m really glad I got it out.

If anyone ever wants to talk to me about the things I’m obsessed with, or reach out to me as a source in a bigger discussion about Game Theory or other channels, my inbox is more than welcome :] Thank you for reading! 

Sincerely, a tumblr user.