#Support And Awareness

[nupalcdc]

Cerebral Visual Impairment (CVI) affects how the brain processes visual information. Early detection and tailored support are crucial for improving outcomes. Learn more about CVI and how to help those affected.

Book your appointment today! https://tinyurl.com/y6ew4xd8

🤙Call us at +91 9910388103

[sayruq]

[greyphitus]

Hey guys

There's a post going around about something called the "Invertebrate Studies Institute" needing help. A few comments made on the post made me curious, so I checked it out and it seems sketchy to me. (ETA: the post's OP is now aware of the situation and is trying to rectify things on their end, and are ok with my post getting more exposure. Read the notes for more info too!)

The institute is a startup and the owner has displayed misogynistic behavior. He made a company and received "$1.3 million in research grants from the USDA and Bill & Melinda Gates Foundation" in 2011, but there aren't any research papers listed on the ISI website more recent than 2012 (sources: ISI website, People Behind the Science podcast transcript, All Things Bugs LLC webpage). It's possible his research is still a work in progress, but I would expect to see some genome sequencing work at the least since that seems to be a major focus.

Also, it's possible to ship frozen specimens in dry ice and have them be fine. Even stuff for molecular work and genome sequencing. So the inability to get help from other research groups, to where they're asking for a local freezer plug-in, is a bit weird to me.

Some screenshots below the cut, didn't screenshot everything since it's mostly just text, but I did cite the sources if you wanna read them yourself.

Not sure what the overall point is of this post is besides "seems sketch to me" but I saw a lot of people worrying on the initial post so I wanted to at least mention this stuff.

Comments from the tumblr post which sparked my initial concerns.

Screenshots from the LinkedIn link, with the initial contact and follow-up legal threat.

Screenshot from the ISI website talking about their facility and "initiative" (I noticed a lot of the wording on the website sounded like they hadn't done significant research, which also gave me pause).

And, for fun, the CDC guide on shipping frozen specimens.

[giantkillerjack]

Today my therapist introduced me to a concept surrounding disability that she called "hLep".

Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"

And my therapist pointed out that this is not "help", it's "hLep".

Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.

At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.

So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!

Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!

Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!

Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.

[becomingvecna]

reblog if you think these are all valid reasons for a student or an employee to take a day off from their school or their job without their grades or paycheck being affected in any way:

- period cramps

- exhaustion, be it mental or physical

- depression, anxiety, and other mental health related issues

[kiindr]

you're allowed to celebrate even the smallest of your wins. any achievement is an achievement. any progress is progress.

[maxiglow]

JZ

[radiostatic166]

Please stop infantlizing autistic people

Stop being weirded out when we cuss. Stop being weirded out when we talk about nsfw topics. Stop being weirded out when we are semiverbal or nonverbal.

We can smoke too, we can drink, vape, and cuss and do anything normal people can do. We can have (concented) sexual relationships. We can kiss people. We can have kinks. We can like BDSM or have fetishes. We are not innocent little kids.

Just because we have a disability doesn't mean we aren't people.

Just because we sometimes need to live with someone else doesn't mean we aren't people.

Just because we don't pick up on social clues doesn't mean we aren't people.

STOP INFANTILIZING US. STOP CALLING US INNOCENT. STOP THINKING YOU NEED TO PROTECT US. WE ARE REGULAR PEOPLE TOO.

[poorly-drawn-mdzs]

Ghouls night out

[First] Prev <–-> Next

[kindnessoverperfection]

Please, if you can, take a moment to read and share this because I feel like I'm screaming underwater.

NPD (Narcissistic Personality Disorder) stigma is rampant right now, and seems to be getting progressively worse. Everyone is using it as a buzzword in the worst ways possible, spreading misinformation and hatred against a real disorder.

I could go on a long time about how this happened, why it's factually incorrect (and what the disorder actually IS), why it's harmful, and the changes I'd like to see. But to keep this concise, I'll simply link to a few posts under the cut for further reading.

The point of this post is a plea. Please help stop the spread of stigma. Even in mental health communities, even around others with personality disorders, in neurodivergent "safe" spaces, other communities I thought people would be supportive in (e.g. trans support groups, progressive spaces in general), it keeps coming up. So I'm willing to bet that a lot of people on this site need to see this.

Because it's so hard to exist in this world.

My disorder already makes me feel as if I'm worthless and unlovable, like there's something inherently wrong and damaged about me. And it's so much harder to fight that and heal when my daily life consists of:

Laughing and spending time with my friends, doing my utmost best to connect and stay present and focused on them, trying to let my guards down and be real and believe I'm lovable- when suddenly they throw out the word "narcissist" to describe horrible people or someone they hate, or the conversation turns to how evil "people with narcissistic personality disorder" are. (Seriously, you don't know which of your friends might have NPD and feels like shit when you say those things & now knows that you'd hate them if you knew.)

Trying to look up "mental health positivity for people with npd", "mental health positivity cluster bs", only to find a) none of that, and b) more of the same old vile shit that makes me feel terrible about myself.

Having a hard time (which is constant at this point) and trying to look up resources for myself, only to again, find the same stigma. And no resources.

Not having any clue how to help myself, because even the mental health field is spitting so much vitriol at people with DISORDERS (who they're supposed to be helping!) that there's no solid research or therapy programs for people like me.

Losing close friends when they find out, despite us having had a good relationship before, and them KNOWING me and knowing that I'm not like the trending image of pwNPD. Because now they only see me through the lens of stigma and misinformation.

Hearing the same stigma come up literally wherever I go. Clubs. Meetings. Any online space. At the bus stop. At the mall. At a restaurant. At work. Buzzword of the year that everyone loooves loudly throwing around with their friends or over the phone. Feels awesome for me, makes my day so much better/s

I could go on for a long time, but I'm scared no one will read/rb this if it gets too much longer.

So please. Stop using the word "narcissist" as a synonym for "abusive".

Stop bringing up people you hate who you believe to have NPD because of a stigmatizing article full of misinformation whenever someone with actual NPD opens their mouth. (Imagine if people did that with any other disorder! "Hey, I'm autistic." "Oh... my old roommate screamed at me whenever I made noise around him, and didn't understand my needs, which seems like sensory overload and difficulty with social cues. He was definitely autistic. But as long as you're self-aware and always restraining your innate desire to be an abusive asshole, you're okay I guess, maybe." ...See how offensive and ignorant that is?)

Stop preventing healthcare for people with a disorder just because it's trendy to use us as a scapegoat.

If you got this far, thank you for reading, and please share this if you can. Further reading is under the cut.

NPD Criteria, re-written by someone who actually has NPD

Stigma in the DSM

Common perception of the DSM criteria vs how someone may actually experience them (Keep in mind that this is the way I personally experience these symptoms, and that presentation can vary a lot between individuals)

"Idk, the stigma is right though, because I've known a lot of people with NPD who are jerks, so I'm going to continue to support the blockage of treatment for this condition."

(All of these were written by me, because I didn't want to link to other folks' posts without permission, but if you want to add your own links in reblogs or replies please feel free <3)

[nupalcdc]

Learn about Cerebral Visual Impairment (CVI), its causes, symptoms, and available support options. Empower yourself with knowledge to help those affected by CVI lead better lives.

Book your appointment today! https://tinyurl.com/y6ew4xd8

🤙Call us at +91 9910388103

[positivelypositivethoughts]

[buffysummers]

Hi. So, those of you who have been following me may already know the financial struggles I've had in the past, but the situation has become much more dire. So, I started a gofundme so that if I raise any money, it is publicly displayed.

I don't really expect anything but I do have to try. I took a job that is commission based after I was laid off from my editing job, but that it is not high paying nor is it reliable because it is commission based only. The money I make from this job will never be enough for me to live off of.

I am also, of course, actively searching for other jobs but things are so competitive and also barely pay a living wage.

Sorry if this is either too long or too short. If anyone needs more details about the situation in order to feel comfortable donating, please feel free to message me. ❤️

Thank you to anyone who took the time to read this, spread this link or donate to my tense situation. I know this is embarrassing, I hate having to do this. But I gotta try something.

[pink-devolve]

If you’re a domestic violence survivor, I’m proud of you for surviving.

If you’re an SA survivor, I’m proud of you for surviving.

If you’re a CSA survivor, I’m proud of you for surviving.

If you’re an ECSA survivor, I’m proud of you for surviving.

If you’re a child abuse survivor, I’m proud of you for surviving.

If you’re a neglect survivor, I’m proud of you for surviving.

If you’re a war survivor, I’m proud of you for surviving.

If you’re a natural disaster survivor, I’m proud of you for surviving.

If you’re a gun violence survivor, I’m proud of you for surviving.

If you’re a cult survivor, I’m proud of you for surviving.

If you’re an organized abuse survivor, I’m proud of you for surviving.

If you’re a torture survivor, I’m proud of you for surviving.

If you’re a TTI survivor, I’m proud of you for surviving.

If you’re a physical abuse survivor, I’m proud of you for surviving.

If you’re a mental abuse survivor, I’m proud of you for surviving.

If you’re a survivor, I’m proud of you for surviving.

[bebx]

from me. to me and to you.

[forestpixies]

no actually you’re either gentle parenting your child or you’re being emotionally and/or physically abusive to them, whether or not you’re aware of that.

because the term gentle parenting already includes discipline and teaching your kid right from wrong. gentle parenting doesn’t mean you can’t tell your kid no. it means you can tell them no when they do something they shouldn’t, but instead of punishing or yelling at them, you’re explaining and giving them reasons why they can’t do that, you are helping them learn and encouraging them to be better. gentle parenting means you’re using reasons built on mutual respect instead of anger. because yes, no matter how young your child is, they deserve respect too.

I’m sorry but most of the times when someone says they’re a strict parent, what it means is that they give their child childhood trauma that’ll last a lifetime, whether or not they’re aware of it. especially parents who brag to other people about how strict they are and how they punished their children.

and I’m sorry but saying you have a short temper is never an excuse to be emotionally and/or physically abusive towards your kid either.

“I yelled at you because I have a short temper” then why am I the one suffering? if you can’t control your anger, then get help. work on it. do better. be better.

also… your child standing up for themself against you, when you’re being abusive to them, isn’t them being disrespectful towards you. it means they are defending themself because you wouldn’t do that for them and so they had to step in and be their own protector.

if you’re a parent and can defend and stand up for yourself when you feel like you need to, but at the same time punish your kid when they stand up for themself against you, then you are the problem.

I was that child and I’m gonna make it as simple as I can for any parent out there — because no kid deserves to go through what I went through — imagine yourself owning a dog. really. you can either

a.) beat that dog whenever they do something wrong and simply take your anger out on them until they’re fully submissive and are terrified of you

or

b.) train them with love and gentleness and earn their love and loyalty in return

now imagine both A and B dogs on leashes and imagine them no longer being on leashes one day. which dog do you think will run away as far as they can and never look back, and which one do you think will stay because they love and want to be with their owner?