#severe autism

[pixierainbows]

wish for smart autism people to STOP saying things like "most autism people actually smart ! ". is not true! is just so erase big part of autism community ! of people like Pixie, and intellectual disability autism people !

STOP say , is not okay ! people like Pixie, people with intellectual disability , are BIG part of autism community ! we deserve be part of own community !

STOP try push out of community, is ableism !

[zebulontheplanet]

Saw a post and it really got me thinking.

The post was talking about why don’t lower support needs, higher masking individuals even believe that higher support needs, low masking, “severely autistic” people, exist. And that got me really thinking. Because, I do think they know we exist. I just don’t think they want too.

I don’t think they want to know we exist. They know we exist, but keep us on the back burner. They live in ignorance bliss of us. I have what some people would think of as severe autism. Im nonverbal (although nonverbal later in life. But outside people don’t care about that. They see nonverbal as nonverbal), I’m intellectually disabled, need help in everyday life, etc. but I’m in the middle. I’m moderate support needs. To me, I’m not severely autistic. But to society, I am considered and seen as severely autistic because society doesn’t have the understanding of moderate autism yet. They don’t understand it. And I’ve seen more times than I can count that severe autism doesn’t exist. Not because they don’t believe in severe autism the label itself because it’s “harmful” but because they don’t believe that it’s just caused by autism. They often believe that’s it’s caused by comorbidities. Like ID, or cerebral palsy, or apraxia/dyspraxia, or mobility issues, or genetic conditions, and so on. Although none of this is bad.

They believe that autism itself can’t create severe autism. Which…isn’t true. Before, it was believed that severe autism was the only type of autism. That it was the only type that existed and if you weren’t severely autistic then you weren’t autistic. Then more research happened, then social media happened, and now..white, lower support needs, high masking, late diagnosed individuals are the majority of what’s being centered. And, that isn’t bad. We need awareness of all autism. But when one type of autism gets centered, it becomes a problem. It becomes the new norm. It becomes what everyone expects out of autism now. Which, isn’t true. Autism all of all types and traits exists. Autism of all support needs exists.

When people say severe autism doesn’t exist, they’re ignoring and saying that a BIG percentage of autistic people don’t exist. They’re saying that we aren’t real. That we aren’t on the internet, or in the communities they live in, or in their schools, or whatever. We’re everywhere. Severe autism is still a thing. It isn’t a misdiagnosis. It isn’t from comorbities, although if someone’s autism is more severe from comorbidities then that isn’t bad.

I think a lot of people need to be more aware of severe autism. And not just severe autism like me or my mutuals, or the people you see here on tumblr. But the ones with even MORE severe autism. The ones who live in group homes, residentials, institutions, and so on. The ones who aren’t on the internet. The ones who aren’t here blogging about their lives. We need to be aware of them too. We need to believe they exist, and believe that their autism is real.

Don’t erase severe or profound autism.

[five-thousand-loaves-of-bread]

there nonverbal level 3 severe profound autistic kids (many with ID) who will never ever able functional communicate even with best therapy best support best assistive device out there

there nonverbal level 3 severe profound autistic kids (with/without ID) who later learn communicate and/or mouth speak but many outside behaviors still look same still high support needs

there nonverbal level 3 severe profound autistic kids (with/without ID) who later learn how mouth speak who now adult cannot ever tell if autistic at all not to mention ever was diagnose level 3 severe profound nonverbal

there kids without functional communication who grow into adult without functional communication

there kids without functional communication who grow into nonverbal adult who use AAC communicate

there nonverbal kids who grow into nonverbal adults

there nonverbal kids grow into speaking adults

how your kid at six not mean will be same as adult.

but also there people who nonverbal level 3 severe profound at 6 and still largely similar at adult.

and also regardless how future adulthood look, still need advocate for those diagnose nonverbal level 3 severe profound six year old

one not erase other. both true.

[rurustims]

me: "im housebound because of my **severe autism**, intelectual disability and also physical disabilities plus chronic illness. but autism is a big massive reason for me being housebound"

them: "are you in a wheelchair? im curious on why you can't leave your house"

sigh. no. im not in a wheelchair — i SHOULD be, but i cant because of neglect. also, being in a wheelchair ≠ to being housebound.

ALSO ! i just said that my autism is the big reason why im housebound, this seems to never make any sense to LSN Autistic people . never . whenever i tell them, that my autism is a big reason im housebound, they will come at me with "are you in a wheelchair then?" "can you not walk" or some variation. please educate yourselves how autism can truly impact ones life, i don't NEED to be in a wheelchair to be housebound or something.

[nonspeakers-r-us]

Nobody talks about episodes of uncontrollable emotion and dangerous behaviors in severe Autism.

I apologize for the long post. This is important to me. Heavy CW for mention of knives, self-injurious behaviors, description of intense emotions, brief descriptions of restraints and police. Yes, I used the word "severe" to describe my Autism. This is because I am Nonspeaking, very High Support Needs, visibly Autistic, and have a Borderline IDD. This is how I choose to describe my Autism. Please don't attack me for this, Tumblr. Anyways. Darting out into busy streets. Repeatedly banging your head against walls. Throwing objects, sometimes even very dangerous objects such as knives. Breaking things - anything - no matter the value or durability. Unplanned, sudden violence towards self and others. Lashing out, in pure emotion, just screaming into nothing at the top of your lungs, for no obvious reason other than pure, unadulterated, terrifying emotion. This may not seem like symptoms of Autism for anyone, and they may not be caused by Autism at all. But for many young people and adults with severe Autism, this is what our families deal with regularly. "Difficult behaviors", as I've often heard them described as by social workers. There's often no clear reason for then. They just. Happen. We are almost never diagnosed with secondary conditions. It is considered a symptom of our severe/profound Autism. While in many Speaking and Low Support Needs people with Autism, they would be diagnosed with various conditions. Conduct Disorder. Bipolar. Borderline Personality Disorder. Maybe even a severe case of Intermittent Explosive Disorder. But for those of us on the more visible part of the Spectrum, nobody knows how to deal with us. It's scary and heartbreaking for our families, and deeply traumatic for us. Many times, our families and caregivers will turn to emergency services such as police or EMTs when they have no where else to turn. I don't like this option, I hate it. But in moments of extreme panic and fear, I don't always blame families for this. Nobody talks about those of us who have been restrained by our arms and ankles to hospital beds for weeks at a time. Nobody talk about those of us who turn violent on the people we love most, when we just can't control ourselves. I wish I had good advice for those of us struggling with this. I wish I could comfort you. While mood stabilizers and antipsychotic medications have helped me, it doesn't help everyone. DBT for severely Autistic individuals is another thing that greatly helped me. This is a fact of life for many individuals with severe Autism and their families. It's terrifying. But please keep trying treatment, keep advocating for yourself as much as possible, and keep going. I'm sure you don't think this means anything, but you are strong. You are brave. I see you and I want you to keep going. Nobody talks about episodes of uncontrollable emotion and dangerous behaviors in severe Autism.

[birdofmay]

Important: If a person on Tumblr says that somebody else writes your posts for you, and wants you to prove that you write everything on your own:

Don't respond. Don't upload a video of you typing or using your AAC device. Block that person, or ask someone to block them for you.

They won't listen to you and you can't convince them. They're just mean. It's spam. Really, just ignore them.

Here's a long post I wrote about that today, in case you're curious:

[river-neurodivergent-willow]

Yes, autism can and does make some autistic people physically hurt other people.

Yes, autism can and does make some autistic people unable to differentiate right from wrong.

Autistic people who seemingly have always supported people with higher needs, their activism stops at this, suddenly "autism doesn't do that" "autistic people are always in control of their actions"

"Supporting" higher needs autistic people whilst having the idea autistic behaviours should never be changed, only goes so far.

Your support stops when you get to the autistic people who need someone to spoon feed them, help them toilet, help them dress bathe and walk. Maybe you might accept that, those needs whilst significant, are morally neutral.

But once it gets to the things you can't deny are bad,

the hitting other people,

the breaking their bones and breaking other peoples bones in meltdowns,

The destruction of their environment,

the lack of ability to control themselves in meltdowns,

the lack of ability to be aware of anything/most things in meltdowns or just normally,

The not remembering anything someone did after a meltdown therefore not able to independently take accountability,

the unable to differentiate right from wrong.

Once autism causes undeniably bad, negative behaviour. Behaviour that needs correcting, that needs intervention, that's not natural and needs to be changed. (And you call it abuse when professionals attempt to intervene and redirect some autistic peoples behaviours yet you deny autism does that, do you want the destructive autistic people to just stop existing???)

You don't want to associate yourself with that, you no longer support people with those behaviours, you deny that autism can do that.

After all, that is easier for you than admitting autism can be a negative thing, that it's not just society that makes us disabled.

[arquaticdreamer]

Cloud hates every time bio toxic family keep asking Cloud to change AAC voice to cookie monster, or some silly fun voice. Like what the hell!?!? It's not a toy AAC is my voice. Stop trying to grab and play with my AAC.

[pixierainbows]

Pixie been trying out new therapist for some months now . who have already have experience with people like Pixie .

This therapist do seem be familiar with cognitive and intellectual disability , and of severe early childhood trauma .

Pixie said want 2 things . the right diagnosis word . And . How to fix them things that happen That Pixie not remember .

Today finally therapist said the diagnosis words and Pixie is ? panicking ? overwhelmed. Not want that word , need something easier to fix … and … Something more simple so Pixie can understand

Is dissociative identity disorder . and . therapist sounded very sure . Guardian Wizard also think same .

Pixie maybe … scared ? or . Some kind of upset . not understanding not remembering . is so hard , scary , angry frustration, something like.

what is Pixie supposed do now ??

[pulsar-ray]

happy Pride month ! ! here is your reminder that intensely / severely / big / whatever word wanna use Mentally Disabled people CAN use whatever label/exoression they want because they have the same autonomy as You !

yes this includes Kink

includes Gender

includes HRT

includes Sexuality

includes Romance

includes Neo/Xeno labels

includes those who Can't understand gender sexuality etc because STILL have autonomy to do whatever want

includes EVERYTHING & EVERYONE

!

[dysmotility]

you don’t have to necessarily agree with someone’s take to think their voice is important.

right now i’m seeing some discourse about the different access needs disabled ppl have, like physical access needs vs. sensory needs.

i don’t necessarily agree that late dx’d autistic folks are choosing to make their disability a big deal, i do think that our voices tend to take up more than our share of space i. the autism community. we tend to center our own experiences and not consider the overt isolation and dehumanization of growing up segregated because of a disability.

i will always support the most marginalized, and that includes the visibly, cognitively, and intellectually disabled.

[rurustims]

hii there ! you can call me ruru or toffuu, i am plural however generally no other will post on here apart from me, ruru. please read this through for more information about me 🤍

🎐 . about disabilities & disorders of mine

im a high-complex support needs autistic / level 3 autistic with an intelectual disability (low iq). this means i heavily struggle with expressing what i mean correctly and process language differently. also have continued late regression of skills.

i have many disabilities and disorders. please be mindful, respectful and patient with me. Moderate ADHD Combined type, Mild visual impairment, learning disabilities, on the shizophrenic spectrum and mentally ill.

hypermobile enhlers danlers syndrome, chronic fatigue syndrome, chronic joint pain, unexplained momentary paralysis of the legs, medically suspected arthritis.

semiverbal with speech impairment, late met speech milestone. generally part time aac device user.

mildly hard of hearing and future wheelchair user.

🎐 . about my identity & who i am

im an intersex nonbinary transgirl, im also transfemneu and transxenofem and cistrans. i use a lot of xenogenders and am a pansexual lesbian.

i use shi/hir, kid/kidself, pie/pieself, mew/mewself pronouns for the most part, if you struggle with abstract pronouns, you may just use my name or it/itself.

🎐 . what will be on this account?

me rambling and silly posting, talking about my interests as well as my disabilities and my day.

continue below for further information on my beliefs and interests as well as tags.

🎐 . what are my stances / beliefs on things?

i support all types of queer folk and their identities and what they are, no matter if contradictory or not.

i support all plural folk no matter of origin or what labels they use, i wont exclude anyone or try to go at them because of how they believe their brain is wired.

i support educated and informed self diagnosis, however, intelectual disability is not self diagnosable.

lastly dont involve me in any discourse, may that be queer discourse, system discourse or ship discourse, i dont care and it's odd.

the misinformation and ignorance a lot of folk put onto the topic of the puzzle piece symbolism on autism is often ableist and should be worked on in the lower needs autism community.

🎐 . what i like, interests and so on!

special interests of mine

my little pony, specifically generation four or generation three merchandise. its been my special interest for about ten years now.

i have also had a special interest in autism for about seven years now.

and a game called adopt me on roblox has been a special interest of mine for five years now!

hyperfixations of mine which i have or which come back

breaking bad, shameless us, the amazing world of gumball, tokio hotel, cookie run kingdom, heartbreak high, isopods, snails, future man, avatar the last airbender and way more.

hobbies which i have right now

watching cartoons or east asian dramas

collecting toys, rocks, notebooks, stickers, manga, sensory items, stuffed animals and more

🎐 . the tags i might use in my posts

#rurusharing : just a general type of tag of mine, might use this when im just sharing about my day or something which happened.

#rururant : not particularly venting, but could be, it'll be sharing of some sort related to negativity.

#ruruspinterest : this is me talking about my special interests in any way!

rurufixates : mentioning of hyperfixations

[ichverdurstehier]

Is it possible for someone's autism levels to change due to trauma? Like could a 1.5 go to a 2.5 after being kidnapped and tortured? I'm writing a story

[birdofmay]

Everyone:

If you get an ask about Facilitated Communication (FC) or Rapid Prompting Method (RPM):

Ignore it!

This person isn't interested in us, they are harmful. And they want to shove their political agenda on us.

Don't respond to their ask, block them!

[theexodvs]

Lorna Wing: "Severe autism isn't real."

Twitter:

David Ley: "CSBD isn't real."

Twitter:

Julia Serrano: "Autogynephilia isn't real."

Twitter:

John MacArthur: "PTSD isn't real."

Twitter: REEEEEEEE

[arquaticdreamer]

Some of these older folks have never seen a disabled nonverbal autistic or any autistic for that matters and it really shows. (Mostly the ones in doctors offices I see).