#living with chronic disease

[pained-princessluna]

Chronic illness be like: now our right knee is hurting

Me: ok. Is this a new accessory or should I get it checked out?

Chronic ilness: I don't know sis, sounds like a you problem tbh...

[spoonie-support]

[apostate-in-an-alcove]

As a chronically ill person, I don't trust nor do I like doctors and medical professionals as a whole and if that makes me an unreasonable asshole then so be it.

[ragnarokhound]

can vamp Tim give Jason a blood transfusion if needed? 🤔

in your vamp/wer verse I mean

Oh, that's an interesting question! In my vampire!Tim/werewolf!Jason verse and the accompanying fic, Tim drinks almost exclusively off of Jason because a) Jason loves it and b) Tim would near-starve himself otherwise :') (and he kind of does anyway, Jason has to bully him into feeding). So the only blood inside Tim at any given moment is usually Jason's original blood anyway. But can Tim give that blood back in an emergency?

tldr: yes, under certain conditions. lol

My reply was getting long because this kind of speculating is my favorite game to play, so if you're curious about what those conditions are and how I reached that conclusion, more details are under the cut:

In this verse, Jason is the kind of werewolf who doesn't have a lot of control/retained personality when he shifts, but he DOES have a lot of meta powers. (As a treat for becoming a mindless, violent monster lol ur welcome Jay)

One of those powers includes rapid healing ala deadpool/wolverine (unless the wound is inflicted by silver, ancestral or otherwise) so it would be remarkably difficult for Jason to reach the point where he even needs a blood transfusion. But let's consider that worst case scenario, in which Jason has suffered enough silver-inflicted wounds that his healing factor breaks and he needs blood, yesterday. Wuh oh.

Tim is the #1 candidate to consider for a Jason blood transfusion because that's his gamer fuel of choice - but for Tim to be a viable donor, it would depend on the length of time it's been since Tim drank from Jason, and how much. They're on a time limit because Tim's body doesn't replenish blood on its own, he has to steal it.

Brace yourself for the suspect use of rough science facts in the middle of supernatural fantasy speculation about vampire/werewolf AUs, lmao

So supposing Jason has about 12 pints/5.7 L of blood in total, he could lose maybe 5 pints/2.4 L of blood at a time without dying (and that's a high estimate, he'd start going into shock way before that lmao), AND it would take him weeks to restore that blood - if he were human.

Luckily for Tim, he can steal quite a bit from Jason without killing him because of the handy dandy werewolf healing factor that restores Jason's blood almost as fast as Tim's dusty ass can absorb it. (Tim's veins @ Jason's blood: 𝔪𝔬𝔦𝔰𝔱𝔲𝔯𝔦𝔷𝔢 𝔪𝔢). Unluckily for Tim (and Jason), Tim has about a zillion hangups over drinking that much all at once. Aw.

A brief google search tells me that in an average human body, red blood cells live about 120 days. For simplicity, we'll say that Tim being a vampire and having weird vampire powers counteracts Jason being a werewolf and his blood having weird werewolf properties - so when Tim is full (and I mean full) of Jason's blood, he's good for somewhere just under that 120 days.

The blood isn't immediately starving in Tim's stupid vampire body because it's strong, sexy werewolf blood; it stays hydrated for a million years and could thrive like a dandelion in a crack in the sidewalk, let alone a perfectly good, albeit abandoned, vascular system. (Jason's blood @ Tim's veins: 𝒾𝓉'𝓈 𝒻𝓇𝑒𝑒 𝓇𝑒𝒶𝓁 𝑒𝓈𝓉𝒶𝓉𝑒)

That being said, Tim starts getting very hungry near the end of that time frame as the blood is used/dies, and that time frame shrinks every time he bleeds (which is often, RIP Tim). But he'd still have a solid month or so of healthy, viable Jason blood pumping through his undead ticker. (unless Tim gets REALLY beat up lol, which is not unlikely OTL)

SO all this to say: can Tim give it back?

I would say yes, IF Tim has fed recently, and he's fed A LOT. Otherwise, he just straight up might not have the blood to give anymore because his stupid husk of a body already used it all.

If he tried to give Jason blood around the time he's getting hungry again, when Jason's blood is on it's last legs after sustaining an active vampire without reinforcements for weeks to months, it wouldn't be as effective as a blood transfusion from someone who can make their own blood and therefore has a fresher supply.

tldr (again lol); Tim could become a blood donor for Jason, but only once he's regularly letting himself drink from Jason, and drinking until he's full.

[mxmorbidmidnight]

Vaccines save lives. Get vaccinated to protect those in our community who cannot access or safely receive vaccines.

Maintain practices such as wearing a mask when sick. Never shame another person for wearing a mask because covid is “over”

Sick leave should not be a privilege, it is a right. For the welfare of yourself and others you should not have to work sick.

For you it might be a common cold, but for someone like me and many of my dear friends it will take weeks and weeks to recover.

Do not forget the horrors of the pandemic. Do not forget those stuck in their homes due to risk of infection.

[cluescorner]

Arlecchino's whole deal is unbelievable

Arlecchino: Huh I wonder what's causing my weird powers? I can't really worry about that right now tho, I've gotta become King and then kill my "Mother".

*Kills Clervie and "Mother"*

Arlecchino: Huh I wonder why I was able to defeat a Fatui Harbinger when I'm like 17 or so? I can't really worry about that right now tho, I've gotta be in jail and become a Harbinger.

*Is in jail for a while and becomes a Harbinger*

Arlecchino: Huh I wonder why I am-

Pierro: Hey what's up hello, anyways you're descended from the Crimson Moon Dynasty of Khaenri'ah. I'm sure that this is a lot for you to take in so-

Arlecchino: Ok.

Pierro: ...You're just cool with that?

Arlecchino: IDK maybe? I can't really worry about that at the moment, I'm a father now. This orphanage full of children I love (who also are child soldiers and are not allowed to leave or else I'll execute them except maybe now I'm just gonna wipe their memories IDK I'm morally complex) isn't gonna run itself.

*Runs the orphanage/spy recruitment initiative*

Me, the fucking player: WHAT DO YOU MEAN YOU ARE KHAENRI'AN? WHY WASN'T THIS BROUGHT UP IN YOUR FUCKING QUEST?? OR ANYTHING ELSE????

Arlecchino, talking to me through my phone: I honestly don't know why you care, I'm too busy to give a shit. Anyways, I'm gonna go fight fate itself I guess. I'm sure that I don't share any thematic parallels with any other Khaenri'an characters (particularly as it relates to acting and family angst) and that I haven't made the idea of 'curses' on Khaenri'ans and what they entail even more complicated than they already were. See ya.

[doomedfromthewombfr]

🎄 Newsflash: Not everyone is jingling all the way. For those of us living with mental illness, chronic illness, or both, the holidays can feel like an endurance test wrapped in tinsel and topped with guilt.

✨ If you’re struggling this season:

It’s okay if “merry and bright” isn’t in your vocabulary right now.

Canceling plans doesn’t make you a bad person- it makes you a human protecting your peace.

You’re allowed to prioritize survival over celebration.

💡 To everyone else:

Stop assuming the holidays are magical for everyone. They’re not.

Offer support, not judgment, when someone says they’re overwhelmed.

Don’t guilt people into participating- sometimes the best gift we can give is space to breathe.

🎁 The real holiday spirit? Empathy. Share it freely, especially with those quietly carrying more than their fair share.

Take care of yourselves, and remember: surviving is enough. ❤️

[everdeansystem]

Today is the day that my mind and soul realized we walked with death side by side. There is no lure, no want or desire. Just a comfort in knowing that they are there. A solace in the companionship.

[obsidianwhipsers]

🎄 Newsflash: Not everyone is jingling all the way. For those of us living with mental illness, chronic illness, or both, the holidays can feel like an endurance test wrapped in tinsel and topped with guilt.

✨ If you’re struggling this season:

It’s okay if “merry and bright” isn’t in your vocabulary right now.

Canceling plans doesn’t make you a bad person- it makes you a human protecting your peace.

You’re allowed to prioritize survival over celebration.

💡 To everyone else:

Stop assuming the holidays are magical for everyone. They’re not.

Offer support, not judgment, when someone says they’re overwhelmed.

Don’t guilt people into participating- sometimes the best gift we can give is space to breathe.

🎁 The real holiday spirit? Empathy. Share it freely, especially with those quietly carrying more than their fair share.

Take care of yourselves, and remember: surviving is enough. ❤️

[i-say-stupid-things]

me: tells a friend about my chronic pain to explain why i don’t do something

them: “oh? so how often a day do you take painkillers?”

me: “a day??”

[electoons]

she was the silliest billy 🥹

[spoonie-support]

If you are chronically ill, a woman, or a member of the lgbtqia+ community you are safe here! ❤️💛💙💚🩵 Welcome to my page!!! 🥄

[lizardkingeliot]

Anyone else just trying to get all their little morning tasks done so they can have the afternoon free to suffer The Horrors but your heart is pounding the whole time like a tiger is presently in the room trying to swallow you whole or is that just me 🙃

[ethaninthewilde]

I've had hip issues since I was born, hip dysplasia and perthes disease and interior hip anteversion (my femur's rotated inwards 50°, then my foot's rotated outwards about the same) and my femur on one leg is 4-5cm shorter than the other, developed arthritis at 15 and then recurrent bursitis. I was on the waitlist for surgery as a kid and it got scheduled and cancelled three times, then never ended up happening. Financial issues meant I couldn't get it privately, then when I moved to NSW I had to get on the waitlist over here and went straight back to the bottom of the list.

I got offered a cancellation spot three weeks from now. I know it's not going to fix everything wrong with it, it's the first of three surgeries I need, but once I have this first one the next two are guaranteed to be only months apart, and I'm so happy about it I'm trying not to cry on the train. My physio says these surgeries should fix about 95% of the pain I experience, which has gotten so bad over the last year that I regularly can't sleep without codeine, it wakes me up in the middle of the night, and sometimes I just can't sleep at all.

I'll be spending christmas alone in the hospital most likely, but I literally don't care!!! i'm so happy. i'm so relieved. this doesn't feel real. this feels life saving. god.

[chroniclyillpolybat]

December feels so far:

Living with a chronic illness is incredibly challenging. Every morning, I wake up and assess my pain levels and the medications I need to simply function. Even on my best days, I experience some level of pain. It's hard to accept that I shouldn't be in any pain at all – it feels abnormal.

Simple tasks like climbing stairs are difficult and even dangerous due to my clumsiness. Holding a pen for extended periods causes significant hand pain, making it impossible to enjoy my passions for drawing and painting. It's heartbreaking.

Rhinestoning is currently the only activity I can comfortably engage in, and I cherish its creative outlet.

My mobility issues worsen in cold weather, making it feel like I'm wading through quicksand.

I think I'm slowly emerging from the grief stage of this illness. My life has been completely disrupted, and even after almost a year, I'm still adjusting. My rheumatologist suspects another autoimmune disease, which feels like a cruel twist of fate. It's frustrating to constantly re-evaluate my plans and abilities. I just want to find the right medications and improve my overall function.

I tend to isolate myself to avoid burdening others. I know I need to change this, as I would want support if the roles were reversed. Learning that I am worthy of help is a constant struggle, but I'm working on it.

[isasmonologue]

six years ago

i thought i was as deep as depth could go

i was an absent high school student

and a constant at the hospital

whoever said being a teenage girl was the worst

had obviously never been sick too

my life in ruins

my body eating itself alive

i was scratching at the walls of reality

trying to get a grip

and everyone just watched

with sad, accusatory eyes

my face shaded grey

and you could tell i had given up

they didn’t believe me until it was too late

and they were disappointed

when my body came home

and i didn’t come with it

last year

i got sick for the first time as an adult

the doctor told me she was sorry

said i didn’t deserve this

broken and bruised

i hit the bottom so hard, it hit back

it started with the convulsions

my spine crumbling underneath the pressure

suddenly comes the blisters and oozing

and my skin erupts into flames

i am not afraid of hell anymore

my legs sitting stagnant

as i scream for them to just move

my blood weeping too

my mother cries at my bedside

and the nurses comfort her

my father pretends it isn’t real

the vessel is leaking

is calcifying within the wrinkles of my brain

this vessel is sinking

and i fear there is no escape for me