#fibromyalgia problems

[howellslides]

babes my experience is not universal and blah blah blah but when i bring up how much pain i’m in by using positivity and humour, that is not the time to respond with sympathy and sads. like if i’m joking about it i’m either not ready to be upset about it or i’ve already done being upset about it, you being upset about it for me is just pushing me into that space unnecessarily and kinda makes me feel like i’m not allowed to like? talk? about my day? unless i’m catering to your emotions in the first place.

also, like, just match my energy, the conversation is gonna be way funnier if we’re both joking about it cuz let’s be real bodies are already engineered terribly and there’s something hilarious about mine not even meeting that subpar standard

[mosscaller]

Being a night-owl due to insomnia and chronic pain would drive a normal person insane at this point. I've spent nearly two and a half weeks up late ( until 10 am most times ), but it isn't as though I want to be awake by myself..

With how much it's been raining, I'm having trouble coping with how badly my entire arm has been hurting.

I have my physical therapy this morning. I'm hoping that they'll be able to help, because it's getting to the point where being awake is just not enjoyable.

I'm trying to cope, but even when I do sleep it isn't restful.

At least it's cool and quiet.

I like it when the world is calm.

[stars-and-branches]

Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside

[disabled-bug]

I’m so proud of people living with chronic health conditions. That shit is HARD. Idk who needs to hear this, but if no one else has said it: I’m proud of you. You’re sticking it out through so much pain and grief. That’s no small feat.

Every small thing you do for yourself health adds up. The grief is heavy and it comes from a place of love. The grief knows the pain is wronging you.

I’m proud of you. I hope on the good days you can be proud of yourself.

Keep going.

[chronicsymptomsyndrome]

I know its kind of silly to say “don’t feel bad for canceling because of pain, fatigue, etc” because I know guilt is a reflex you can’t easily refrain from. But you can reason with yourself so instead I’ll say this:

Nobody can feel what you’re feeling but you. Nobody knows the severity of what you would be putting yourself through if you were to “tough it out.”

If you do “tough it out,” the purpose for you doing the thing will most likely not be fulfilled anyway. You probably will not be mentally present or engaged. You probably will not have a good time or get much out of it. Etc.

If people really have such a problem with it, thats a huge red flag. Being transparent about your needs and boundaries is a great way to weed people like that out of your life.

If you have any kind of chronic illness or disability, remember that you probably have a very warped judgement of what is “reasonable” to endure in terms of pain, fatigue, burnout, etc.

You didn’t ask for this, you don’t deserve this, there is no reason you should have to bear the weight of it alone. I bet if someone else was in your position, you wouldn’t mind helping accommodate for them?

Low energy days are truly sacred, take them seriously. Please respect your body’s signals. “If you do not choose times to rest, your body will choose for you” or however the saying goes

It is so much pressure to have to deliberate what sacrifices are necessary for proper self care. Give yourself extra credit for having to deal with that stress on top of whatever is putting you in that position in the first place. Thats a lot at once

You are leading by example and showing others that you would never expect them to hurt or overextend themselves for your benefit. Putting yourself first always inspires other to do the same.

Please be proud of yourself for even considering canceling and putting your needs first. That is so strong of you <3

[justsomerandomgay]

something that isn’t talked about enough with chronic illness is knowing that going to your appointments and doing your exercises and all that will help but being in too much pain or too fatigued to go, so your just stuck in this constant cycle of knowing what you need to do to get better but not being able to do it because your sick

[m0thmancore]

the thing that drives me crazy about fibromyalgia is trying to explain it to people. yes i am in pain all the time. no i didn't do anything to get hurt. no it will almost definitely never go away entirely. no i don't know what caused it.

"so you're just going to be on pills your whole life" if the pills keep working, yeah, probably! i don't like being in pain!

[jomasays]

“I want to live, not just survive”.

[spookietrex]

I hate the look on able-bodied people's faces when you can't do a thing that you could do the day before. The look of disappointment, confusion, the "Oh but you could do it before. Are you SURE you can't do it?" Like yes, Brenda, I'm sure that I am in too much pain to function/move from my bed right now so going for a walk when I could move 50 feet yesterday without my cane IS too much.

[mosscaller]

Loneliness is eating away at me..

Long hours kept awake due to severe pain. Vacant stares in the mirror, as I try to discern if I'm slipping further into insanity, or is it just exhaustion from not having any control of my life...

I'm unsure of who I am.

Disabilities and mental illness stole my youth. I never got a real chance to experience things the way others do. There was always something hindering my progress. I found myself struggling to take flight, while watching others soar above the clouds.

It wasn't fair. It still isn't.

From the sanctuary that was built for me, I sit huddled by the window. Life goes on without me. I stare out at the world below, watching people living their lives. I want to be a part of it. To enjoy the day to day grind. Have a job. Feel like I'm worth something...

But I can't. My disabilities restrict me, so much to the point where my memory issues/mental issues and epilepsy wrap around me. Chaining me in place. I'm unable to join them..

I know that this is my personal feelings. How I feel..

Which is not always the case for others experiences.

Life is a journey for us all. But I wish I could have a job. To go out into the world...but my family doesn't think it's wise. ( They're not keeping me here by force. ) If I get too overwhelmed, or stressed out I could have a seizure. Falling and hurting myself is dangerous. Even more so, my memory issues are another problem. ( I have trouble remembering when to eat, due to not recognizing when I'm hungry or thirsty. I have to be reminded to take my meds, and take care of my needs. Holding down a job would cause so many problems.. )

I'm too much of a liability.

They want me to just relax, and be comfortable at home.

At the end of the day, I do my best to make sure they have everything they need. ( Keeping the apartment clean. Making food. Making sure they have coffee in the morning and giving them comfort when they need it.) They don't want me to be overwhelmed. But what about them?

They worry about bills, food etc..

I just want to help them. I feel powerless..

[endometriosismemes]

[stars-and-branches]

Maybe THIS dose of ibuprofen will be the one that fixes me

[bblackberrry]

"being tired all the time is not an aesthetic"

me who's chronically ill and still tries to romanticize life:

my disappointment is immeasurable and my day is ruined

[tumble-tv]

WAIT THERES PEOPLE WHO ARENT IN PAIN ALL THE TIME

[cherryblossomforest]