#cripplepunk cpunk

[hellyeahsickaf]

I've been taken by The Sinus Pressure

[thedisablednaturalist]

In case the esim process confuses you or you aren't able to buy them yourself for any other reason, crips for esims for Gaza is collecting donations, they've almost met their goal of $150,000 raised. Donating allows them to buy esims in bulk which allows them to obtain more than individuals would be able to. I just donated and it was super easy as you can use paypal.

[satellites-halo]

yeah you're "punk" but are you normal about deformed people?

Edit: reblogs are off because my notes have been filled with this post for months. the correct term is 'people with limb/facial differences' and this post was originally about the cripplepunk movement not punk as a whole

[crippledpunks]

i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary

[sag-dab-sar]

Medical devices should not require an iOS or Android app to work. It took me twelve fucking minutes to set up and get my phone to connect to my migraine treatment device, 12 minutes during a horrendous migraine and I had to fight with my phone to get it to work instead of pressing a fucking button on the device. It might need a small controller to change strength but thats not fucking difficult to add.

Relying on a phone is bullshit: what if I'm out of battery? what if bluetooth is broken or something? what if I'm in too much pain to get the treatment app to work defeating the purpose? What if I'm paranoid about privacy so chose a non iOS/Android phone? What if I have issues with smartphones so use a classic cell phone? I know people that require that.

Requiring a disabled person to have iOS/Android in order for treatment to work is an unnecessary and borderline discriminatory practice.

[wheelie-hurting]

when the “10 tips on how to make showering easy for disabled people” list doesn’t include a shower chair or a shower/changing table or grab bars etc, i know they don’t care about us physically disabled people.

good for u that turning off the lights and lighting a scented candle instead and listening to music or put on a show and using a bath bomb etc etc helps u but like none of those tips are that beneficial for physically disabled ppl specifically.

it’s good that those tips are there but for once we’d love to be included.

[cripple-woe]

I made up a way to explain fatigue!

[fallenstarcat]

sure there’s a ramp, but is it steep? is there a curb at the top? is the ground uneven? do i need a key for the elevator? are the aisles and doorways wide enough? do i have room to turn? is there furniture and clutter in my way? is the carpet difficult to wheel on? can i open the doors myself?

accessibility to wheelchairs is more than just a ramp.

[mimikyu-chr]

Disabled people should be allowed to exist in public. Yes, I mean all disabled people.

That includes people with tic disorders.

That includes people who smell ‘bad’.

That includes people who can’t help being loud.

That includes people who move ‘strangely’.

That includes people with bulky mobility aids.

That includes people who drool.

That includes people who struggle with incontinence.

We all should get to exist, however that looks, and go out in public, use public transport, do activities outside our homes. And we should be allowed to do those things without being glared at or having ableist things said to us.

[kneptoon]

Shoutout to leftists who are too poor/disabled to give back to their community.

Shoutout to leftists who are too poor/disabled to shop at local/small businesses.

Shoutout to leftists who are poor/disabled and have to buy things from Amazon and other megacorps because it’s the most cheap or convenient.

Shoutout to leftists who are too poor/disabled to reduce their environmental footprint because they need the single-use plastics.

Shoutout to leftists who can’t go vegan because of dietary needs, disordered eating, or neurodivergence.

Shoutout to leftists who can’t volunteer or go to community events/protests/noise demonstrations because of inaccessibility.

Shoutout to leftists who can only be politically active online because they’re housebound.

Shoutout to leftists who are disabled and are rarely politically active because they simply don’t have the energy.

Shoutout to leftists who can’t be politically active because they’re under the care of a guardian or are trapped in an abusive situation, and they don’t have control over their finances/belongings.

Shoutout to leftists who can’t read theory, or who have trouble reading theory, but still do their best to learn.

Shoutout to leftists who can’t understand theory at all because of cognitive/intellectual disability.

Shoutout to leftists who want to be more active in their community but can’t because they struggle with anxiety, socializing, or maintaining relationships.

Shoutout to leftists with personality disorders, complex trauma disorders, conduct disorders, OCD, psychosis, and any other leftist whose personality or thoughts often unwillingly go against their beliefs due to a trauma response or chemical imbalance.

Shoutout to leftists who don’t have any “practical” skills that would be needed in a commune (i.e farming, building, sewing)

Shoutout to leftists who are too busy simply trying to survive to even think about being politically active.

Shoutout to leftists who have to always ask for mutual aid but can never give back.

Shoutout to all the leftists who can’t do this and can’t do that and can’t do the things that leftists are “supposed” to do. No one person is perfect.

You aren’t a fake leftist for not being able to do these things. All that matters is that you put in the effort, in whatever way that you can.

It’s not about your abilities as an individual. It’s about our power as a collective.

[hellyeahsickaf]

I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)

It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:

How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.

Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."

How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills

How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud

Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides

Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance

Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!

There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.

Please boost!

[crippl-hacker]

You know what? It’s fucking hard trying to get better. It’s exhausting managing doctors appointments, doing daily PT exercises, eating better, trying to exercise, trying to meditate, and doing ADL’s. I have had a bad crash per week trying to juggle and do all of the above.

It’s easier and less acutely painful to just coast and not actively work on ‘getting better’. Is the work worth it? I don’t know yet.

But to people who’ve tried and given up, to those who don’t even bother - you still deserve care and compassion.

[crippledpunks]

chronic fatigue weaves its way into everything. people love to tell disabled people they'd love to rest as much as we do, but they fail to understand how tired we are while we rest. we are not relaxed, we are generally pretty miserable, either from pain, irritability, or fatigue- which bleeds into every aspect of your life. being too fatigued to get up off of the couch means that you're too fatigued to get to the cupboard to pull out pans to attempt to start cooking.

the steps hidden within steps that are required to do a lot of tasks related to being a "functioning adult" are daunting, there are often way too many steps necessary to make "Simple" foods or do "simple" chores for disabled people to accomplish these tasks. chronic fatigue often means that even waking up from a nap or night's rest requires time to adjust to and power through

waking up is a process for me. im often no more alert and awake hours after i've woken than I am right after doing so. caffeine does not help fatigue- at least not at safe doses, for me, anyways. many days the act of moving from my bedroom to my living room is too much. taking dishes to the sink can be too exhausting. i have began falling asleep in front of the kitchen counter while standing because i realize the amount of steps required to clean the counters, or do the dishes, or prepare a meal that all of my energy instantly bleeds away

it's okay if you feel this way too. i have been dealing with chronic fatigue my entire life and it cost me my best paying job. i lost my ability to work because of it. it's not just you being "sleepy", you are genuinely too exhausted to function. you do NOT have the energy levels other people do, and that's okay. it's okay to let yourself be tired sometimes and address that instead of trying to pretend you're not tired.

i wish you good luck. you are loved

[cosmiccripple]

idk who popularised the narrative "i don't let my disability stop me" but it needs to be stomped on, pulverised by a meat grinder and then thrown into the depths of the sea never to be seen again.

it is by far the most popular ableist narrative and i see it so much and immediately just think i'm a bad person for not being able to 'get over' my disability despite the fact it's an incurable, permanent and severely disabling disability.

stop stop stop stop pushing the mindset that people have to persevere despite their disabilities in order to be a worthy person

leave me alone and let me be disabled in peace

[plague-parade]

reminder this pride month that disabled people in the US on SSI and some forms of SSDI* do not have the same marriage equality as people not on SSI and SSDI. its called the marriage penalty.

by getting married, a disabled person can lose their income, benefits, and health insurance.

if a disabled person marries an able bodied person, and combined their assets are $3000 or over they will lose all benefits, including medicaid (health insurance).

if a disabled person marries a disabled person, their assistance is lowered 25%.

we don’t have marriage equality until all disabled marriages are equal.

*SSDI title II (disabled adult child) does fall under the marriage penalty, regular SSDI does not.

sources x x x x

[chronicbitchsyndrome]

there's currently misinformation going around tumblr about what the SSI marriage penalty is, so this is my attempt to explain it in plain language.

when you marry someone who is not on SSI, and you are on SSI, their income is counted as your income. your SSI will be docked according to their income from then on. if their income outstrips your SSI (maximum SSI is $914 a month as of 2023), you will be ineligible for SSI from then on.

if two people on SSI get married, their maximum SSI benefits are reduced by 25%. they no longer get SSI as individuals, they get SSI as a couple, which is 25% less money than individuals are eligible for.

collectively, these two processes are known as the marriage penalty.

some news outlets are currently (September 2023) incorrectly reporting a bill as removing the marriage penalty. this is false. the bill is changing the savings cap for married couples on SSI. the savings cap is the amount of money you are allowed to save in your personal account before being kicked off SSI. this is different from the marriage penalty, and outlets referring to them as the same are conflating two different laws that apply to SSI recipients. please do not assume based on mis-worded news articles that you can get married without losing your income and health care if this bill passes. you may be putting yourself in danger by doing so.