#cripplepunk cpunk
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I've been taken by The Sinus Pressure
#god and the postnasal drip too#disability#actually disabled#chronic pain#chronic illness#cfs#chronic fаtiguе ѕуndrоmе#fibromyalgia#spoonie#me/cfs#cfs/me#long covid#pots#cripplepunk cpunk
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In case the esim process confuses you or you aren't able to buy them yourself for any other reason, crips for esims for Gaza is collecting donations, they've almost met their goal of $150,000 raised. Donating allows them to buy esims in bulk which allows them to obtain more than individuals would be able to. I just donated and it was super easy as you can use paypal.
#wrenfea.exe#gaza#palestine#esims#from the river to the sea palestine will be free#cripplepunk#cpunk#lets support our disabled siblings!
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You know what? It’s fucking hard trying to get better. It’s exhausting managing doctors appointments, doing daily PT exercises, eating better, trying to exercise, trying to meditate, and doing ADL’s. I have had a bad crash per week trying to juggle and do all of the above.
It’s easier and less acutely painful to just coast and not actively work on ‘getting better’. Is the work worth it? I don’t know yet.
But to people who’ve tried and given up, to those who don’t even bother - you still deserve care and compassion.
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yeah you're "punk" but are you normal about deformed people?
Edit: reblogs are off because my notes have been filled with this post for months. the correct term is 'people with limb/facial differences' and this post was originally about the cripplepunk movement not punk as a whole
#if you arent#youre a fucking poser#punk#cripplepunk#cpunk#cripple punk#visible disability#deformities#disability pride#physical disability
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ayo this pretty cool
[id: active style manual wheelchair with frame made of rectangle wood planks screwed together. end id]
as we know active type wheelchair very expensive, & repair need buy from specific medical manufacturer n take very long time. someone (who wheelchair user themself of near 40 years) made open source active manual wheelchair where most (if not all?) material from commercial easy get materials! wood, plastic, pvc pipe, & those commercial aluminum square pipe things. n they put guide made them yourself in link for anyone want try make
this video from their instagram show their wood frame wheelchair actually pretty durable, include clip from everyday use & even drop wheelchair all over place (basically imagine what airline do to them…) - n wheelchair stay in tact! n even if some part break - it easy change because wood planks all screwed together so you just buy wood plank & unscrew & rescrew.
not great for people w advanced seating positioning needs probably (think if only problem is easy butt pressure sore, maybe can still use this + supportive cushion but think beyond that it get hard). but if like you don’t need those things then maybe fun project?
have not use for self so can’t actually talk about experience but it look pretty cool
edit: reblog this version instead
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i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary
#cripple punk#cripplepunk#crip punk#cpunk#actually disabled#chronic pain#disability culture#fibromyalgia#disability rights#disability advocacy#physical disability#c punk#angry cripple#queer cripple#cfsme#chronic fatigue syndrome#chronic fatigue#arthritis#diabetes#neurodiverse#neurodiversity#neurodivergent#autism#autistic#adhd#actually autistic#hypermobile eds#hypermobilty syndrome#our writing
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Medical devices should not require an iOS or Android app to work. It took me twelve fucking minutes to set up and get my phone to connect to my migraine treatment device, 12 minutes during a horrendous migraine and I had to fight with my phone to get it to work instead of pressing a fucking button on the device. It might need a small controller to change strength but thats not fucking difficult to add.
Relying on a phone is bullshit: what if I'm out of battery? what if bluetooth is broken or something? what if I'm in too much pain to get the treatment app to work defeating the purpose? What if I'm paranoid about privacy so chose a non iOS/Android phone? What if I have issues with smartphones so use a classic cell phone? I know people that require that.
Requiring a disabled person to have iOS/Android in order for treatment to work is an unnecessary and borderline discriminatory practice.
Edit: After seeing all the personal anecdotes in comments reblogs and tags, I've come to a new conclusion— it is discriminatory.
#disability#disabled#cripplepunk#cpunk#and technically#madpunk#because implanted technology can be used for neurodivergence#why does everything need bluetooth or wifi now that connects to only two options but shitty powerful companies#*both not but#void post#nerivio
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I made up a way to explain fatigue!
#cripplepunk#cripple#cripple punk#physically disabled#disabled#actually disabled#woes whines#disability#cpunk
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sure there’s a ramp, but is it steep? is there a curb at the top? is the ground uneven? do i need a key for the elevator? are the aisles and doorways wide enough? do i have room to turn? is there furniture and clutter in my way? is the carpet difficult to wheel on? can i open the doors myself?
accessibility to wheelchairs is more than just a ramp.
#disability#disabled#wheelchair#wheelchair user#wheelchair problems#accessibility#wheelchair accessible#cripplepunk#cripple punk#cpunk#disabled life#disabled struggles#disabled problems#disability life#disability struggles
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I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)
It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:
How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.
Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."
How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills
How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud
Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides
Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance
Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!
There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.
Please boost!
#signal boost#please reblog#I'm so so glad this has gotten the traction that it has!#chronic pain#chronic illness#disability#fibromyalgia#cfs#chronic fаtiguе ѕуndrоmе#actually disabled#spoonie#me/cfs#cfs/me#long covid#important#invisible disability#ehlers danlos syndrome#lyme disease#chronically ill#cpunk#cripplepunk#it's a bummer that it's so US centric but if you're outside of the US you can look into similar programs#I hope that other countries have options like these#the US seems so behind when it comes to medical care and disability resources. and i mean it is#but it's good to know all of your rights as a disabled person or if you ever become disabled
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Disabled people should be allowed to exist in public. Yes, I mean all disabled people.
That includes people with tic disorders.
That includes people who smell ‘bad’.
That includes people who can’t help being loud.
That includes people who move ‘strangely’.
That includes people with bulky mobility aids.
That includes people who drool.
That includes people who struggle with incontinence.
We all should get to exist, however that looks, and go out in public, use public transport, do activities outside our homes. And we should be allowed to do those things without being glared at or having ableist things said to us.
#disabled#physically disabled#cpunk#cripple punk#cripplepunk#tics#disabled people#disabled people should be allowed to exist#ableism#ableists fuck off
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You are well within your right to be angry about the help you didn't get and should have gotten.
You are well within your right to be angry about having your needs neglected.
You are well within your right to be angry.
#this post is mainly about physical disabilities and needs not being met#things like medical neglect or refusal of services for whatever reason#able bodied ppl with non-physical disabilities are allowed to like and reblog and relate and stuff too ofc!#But I made this post in part for myself#to reassure myself that it's ok that I never received help for my chronic pain as a child despite it being bad#cripple punk#cpunk#cripplepunk#physical disability#actually disabled#physically disabled#angry cripple
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I’m sick to death of hearing “see! Accessibility benefits everyone, not just disabled people/mobility aid users/chronically ill people/etc!!” That shouldn’t matter. Even if the only people in the world that would benefit from an accommodation are disabled people, we still deserve it. I’m sick of non-disabled people constantly being centred and catered to with accessibility content. Every time someone makes an add-on to a post about an accessibility device or whatever, it just feels like they’re saying that our needs aren’t enough to warrant accommodations, it has to benefit non-disabled people too. We deserve accommodations no matter if non-disabled people can benefit from it.
#disability#disabled#cripplepunk#cpunk#cripple punk#accessibility#maybe this is kinda ranty but I’ve just seen this happen one too many times
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Shoutout to leftists who are too poor/disabled to give back to their community.
Shoutout to leftists who are too poor/disabled to shop at local/small businesses.
Shoutout to leftists who are poor/disabled and have to buy things from Amazon and other megacorps because it’s the most cheap or convenient.
Shoutout to leftists who are too poor/disabled to reduce their environmental footprint because they need the single-use plastics.
Shoutout to leftists who can’t go vegan because of dietary needs, disordered eating, or neurodivergence.
Shoutout to leftists who can’t volunteer or go to community events/protests/noise demonstrations because of inaccessibility.
Shoutout to leftists who can only be politically active online because they’re housebound.
Shoutout to leftists who are disabled and are rarely politically active because they simply don’t have the energy.
Shoutout to leftists who can’t be politically active because they’re under the care of a guardian or are trapped in an abusive situation, and they don’t have control over their finances/belongings.
Shoutout to leftists who can’t read theory, or who have trouble reading theory, but still do their best to learn.
Shoutout to leftists who can’t understand theory at all because of cognitive/intellectual disability.
Shoutout to leftists who want to be more active in their community but can’t because they struggle with anxiety, socializing, or maintaining relationships.
Shoutout to leftists with personality disorders, complex trauma disorders, conduct disorders, OCD, psychosis, and any other leftist whose personality or thoughts often unwillingly go against their beliefs due to a trauma response or chemical imbalance.
Shoutout to leftists who don’t have any “practical” skills that would be needed in a commune (i.e farming, building, sewing)
Shoutout to leftists who are too busy simply trying to survive to even think about being politically active.
Shoutout to leftists who have to always ask for mutual aid but can never give back.
Shoutout to all the leftists who can’t do this and can’t do that and can’t do the things that leftists are “supposed” to do. No one person is perfect.
You aren’t a fake leftist for not being able to do these things. All that matters is that you put in the effort, in whatever way that you can.
It’s not about your abilities as an individual. It’s about our power as a collective.
#leftism#anarchism#anarcho communism#cripplepunk#cripple punk#mad liberation#disabled#disability#disability rights#cpunk#activism#punk
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if you didn’t realize, ableism is actually bigotry and systemic ableism and inaccessibility are really oppression and it’s not something disabled people brought on ourselves by having bodies&minds that you think are inferior and therefore not worth fighting for. disabled people’s lives and wellbeing matter. we don’t have to earn our worthiness by doing “enough” to deserve a good life. nobody does.
#cripplepunk#neuropunk#actually disabled#disability rights#neurodivergent#chronically ill#madpunk#ableism#inaccessibility#actually autistic#ehlers danlos syndrome#higher support needs#autpunk#cpunk#disabled lives matter#tourettes#functional neurological disorder#mobility issues#physically disabled#my text
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i just wanted to say you're not gross if you deal with gastrointestinal issues. even if people treat your symptoms and disorders like they're disgusting, they're not. they're genuine health problems- health includes your entire body. if you are having issues digesting/processing foods, eating, controlling your bowels or having diarrhea or constipation issues or frequent gas and bloating, you're not gross. if you need a colostomy bag, you're not gross. if you need to use diapers you're not gross. if you frequently vomit you're not gross. if you deal with acid reflux and chronic heartburn you're not gross.
people and even doctors will treat people with these kinds of issues like we're disgusting but we're just people with health issues. a GI issue is no less worthy of attention than a broken bone. it doesn't matter where it's located in the body you still need help with it. there are many issues people can have with digestion that aren't necessarily "gross" and they don't deserve to be looked down on. you deserve care and respect from everyone in your life. you don't deserve to be treated like your health problems don't matter
#crip punk#cpunk#cripple punk#actually disabled#disability culture#chronically chill#disabled culture#angry cripple#gi health#gastrointestinal#health#cripplepunk#chronic pain#our writing
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