aetherial-boy

[aetherial-boy]

GUESS WHO JUST MANAGED THEIR FIRST INTENTIONAL WHEELIE!!!

[aetherial-boy]

physically disabled people who are also fat deserve mobility aids just as much as physically disabled people who are skinny.

we also deserve to have mobility aids that fit us, we shouldn’t have to settle for ones that don’t meet our needs. whether it’s having a high enough weight limit or being wide enough or being sturdy enough, we deserve that.

it doesn’t even matter whether a person is fat because of their disability/ies or if they’re disabled because they’re fat. that person still deserve good mobility aids that meet their needs.

[this is a post about fatness and physical disability, derail and i will steal your mail for three months and two days]

[aetherial-boy]

We need to stop pitting hEDS and fibro against rare disabilities bc abled drs are using it to hurt all of us and deny all of us treatment. Fucking stop it

[aetherial-boy]

‘you’re not severely borderline you just need coping methods for your autism / PTSD’

I’ve been in DBT, CBT, regular talking therapy, EMDR, hell I was in and out of psych wards for most of my teenage years. I’m on antidepressants, and I’ve tried so many other medications. I’m treatment resistant and I was literally told I had *severe* BPD when I was diagnosed. I am not getting better. I’m also not just autistic, or just traumatised, or just anything else. I am borderline. It causes my psychosis. It triggers a lot of my bigger meltdowns. It ruins my life. Yes, I’m also autistic and ADHD, and histrionic, and a dissociative system, and traumatised, but I’m severely borderline and that isn’t something you get to just brush aside and tell me isn’t real. It’s very real and it’s my experience with my brain, as well as being what I’m diagnosed with.

[aetherial-boy]

I'm kind of tired of people speaking for wheelchair users and claiming that label when they don't regularly use a wheelchair.

a lot of mobility aid users get frustrated when someone who has temporarily used mobility aids for an injury tries to speak as if they understand the experience of mobility aid users. it's widely understood that they don't and that their experience is not the same as that of someone who uses mobility aids regularly for a disability.

for some reason many disabled people will do the same with wheelchairs.

I see people acknowledge that they have only used a wheelchair a couple of times, that they do so with no regularity, and then speak for us. they speak about the discrimination we experience, the accessibility we need, they claim our identities. it's like they think we can't speak for ourselves. there are so many wheelchair users on every platform who are capable of speaking about whatever you think you need to talk about and we can do so with actual authority on the subject and real experience and knowledge.

you do not have the right to claim the experience of being a wheelchair user if you have only used a wheelchair a couple of times. knock it off.

leave talking about wheelchairs and the experiences of wheelchair users to actual fucking wheelchair users.

[aetherial-boy]

Okay, so, friends. Occasionally I see an American post on here about “guillotine the rich,” and it turns out that “rich” means “anyone making over $50k.”

We need to clear this shit up REAL fast, because otherwise it’s gonna wind up like the French Revolution, where more middle class and poor people were killed for being “class traitors” than actual nobles. (Did you know that France has more nobles today than during the French Revolution? While there were a few showy executions, many nobles did just fine or experienced minor setbacks.)

If someone makes $60,000 a year, they are making about twice as much as a full time worker making minimum wage in California, Arizona, Colorado, Connecticut, DC, Hawaii, Illinois, Maine, Maryland, Massachusetts, New Jersey, New York, Oregon, Rhode Island, or Washington State.

Brian Thompson, the CEO of United HealthCare who was just assassinated in New York City, earned $10 million a year, which means he earned 333 times minimum wage in those states. Basically, he cleared an annual minimum wage salary in just over a day. And that “rich” person making $60k/year that you want to guillotine? He made their salary in a bit over two days of a year.

So he was rich, right?

Well. Tesla is trying to give Elon Musk a pay package of $101 billion. That is 10,100 times what Brian Thompson earned and 3,366,667 times more than a minimum wage worker. (Tesla hasn’t been successful yet because of a complicated lawsuit from a shareholder, but they’ll get there.) If you are a minimum wage worker, Elon Musk makes more every SECOND than you do in a year. And that “rich” person who you want to guillotine? He makes their salary in about 1.6 seconds. Even when he’s sleeping.

Now, remember. The Muskrat also is the head of SpaceX, the Boring Company, X.ai, and X.com, so this is just ONE pay package for him.

What I’m saying is — you have much more in common when it comes to economic grievances with someone earning $60,000 (or even $200,000) than the ultra wealthy that have real power. They are not the people you should expend your energy on.

[aetherial-boy]

I get confused a lot. I think other people get confused too.

Talk about visible autism sometimes, talk about being visibly disabled. But when talk about it, always get low support needs people saying “yeah, I stim and people notice and stare at me. I’m visibly autistic sometimes”

And don’t think they understand when I say visibly autistic or developmentally disabled. Yes, know that sometimes “visibly autistic” isn’t black and white. Some people do get marked as visibly autistic just for stimming a bit.

But when I talk about visible autism, don’t talk about that. And it can be frustrating. Feels like people talking over me. Just want to scream “you don’t get it”.

Example: was in library yesterday. State Caregivers came with their clients, they sit in library, walk around, watch movies, look at books, eat lunch. They’re required to take their clients out into the community for a certain amount of hours a week, so why not the library? I was there. Was there with my caregiver. Looked over, saw the clients, and saw the caregivers looking at my caregiver with a knowing look. They knew. I knew. Their clients knew. I was like them, and they were like me. Just people sitting in the library who are disabled and require caregivers.

That’s what I’m talking about. That knowing look. That look of pity. That look to my caregiver that says it all. The looks of pity from the librarian. From everyone.

Visible autism for higher support needs autistic people, so much more different than visible autism for low support needs people. And that needs to be realized. Strangers know. And sometimes they don’t know what’s going on, but they all went to school probably, right? They know the special education kids. The “special” kids. Yeah. That’s us. That’s me. They know. I’m tired of people not understanding.

Yes, community. Find middle ground. You’re like me, I’m like you. We are all autistic (those who are autistic), but that doesn’t mean all experiences the same. That doesn’t mean we think, act, eat, sleep, the same. You’re different, and that’s ok.

[aetherial-boy]

bebsi's no good, high sodium, ultra-processed, mass produced ask game

for the disabled people filled with hate and malice. still try to send an ask to people you reblog from or who reblogs from you so we all get to complain, ameen

Tell me about an ableist experience you had that threw you off.

Worst thing someone has said to you with regards to disability.

Do you have any examples of places that tried to be accessible but failed spectacularly?

Is there an example of disability in media that you really don't like?

What's the silliest thing a medical professional has said to you?

Is there something regarding disability that people told you that you were wrong about but you was right actually?

Is there a real disability advocate you strongly dislike? And why.

Is there any medically advised treatment that you took which made things worse?

What's a treatment you are tired of people suggesting to you? And why.

When you are filled with hate and spite what helps you cope?

Do you have a "harmful" coping mechanism that helps?

Complain about your most despised symptom to me.

Have you ever been in a medical study?

If there was an activity you could do without repercussions (I don't mean murder) what would it be?

What's something your disability has stopped you from learning or doing?

What disability space have you found most welcoming to you?

What disability space have you found most hostile to be in?

Is there something you wish other disabled people would understand about you?

Is there any struggles you had as a child that were due to disability but did not get treated as part of your disability?

Is there something that's actually helpful for you but you resent it anyway?

[aetherial-boy]

I’ve got SO much further trying to work out some of my ‘i don’t know’ issues and ‘i need more help than just lifestyle changes’ issues by reminding my doctors that I’m a pharmacy student and I really want to get back to theatre for the sake of my mental health (had to quit because i’m simply too sick to do that and my coursework, might try getting back into backstage work and see how i cope with that soon though)

like, I’ve gotten the referrals I needed, but also pain relief past just otc stuff, support with starting to use a wheelchair part time AND medication for my constant nausea. ‘I want to keep doing this and my symptoms are stopping me’ feels like a magical sentence that makes doctors more willing to help you sometimes.

Highly recommend reminding doctors that you have a life to live and things to do when it comes to getting needed treatment in general. Like even if you're not diagnosed so they can't "treat" you with like... disease modifying treatments, there are supportive treatment things that you CAN do in the meantime. Like using mobility aids, getting referrals to occupational therapy, or trying methods for pain relief. There's a lot you can do "in the meantime" and I don't think doctors always remember that sometimes the "meantime" can be years long and you don't want to sit around waiting the whole time.

[aetherial-boy]

shoutout to everyone with forget disorders (adhd, DID/osdd, ptsd/c-ptsd, asd, dementia/alzeheimers, schizophrenia, other psychotic disorders, major depressive, chronically ill/phys disabled people with brain fog, people with long-Covid, natural memory degradation, and etc.)

[aetherial-boy]

might actually be the one thing i miss about my bio family. yes my mum was abusive and yes my grandparents aren’t people i could live with permanently, but i was allowed to just

sing

all the time

it was normal to walk into a room or do a task and sing while i did it, or just sing *because* and now i think about it i really miss that

i want to sing so often but i don’t live in a house where randomly bursting into song is acceptable

[aetherial-boy]

i want to sing so often but i don’t live in a house where randomly bursting into song is acceptable

[aetherial-boy]

Doctors quit assuming a patient is bullshitting before you have proof challenge: impossible edition

That should not be a near universal experience for disabled people the way it seems to be.

[aetherial-boy]

How to approach a wheelchair user in your way

-> A visual guide

[ID: a graphic with simple figures. on the left is a column of 3 identical images of a wheelchair user sitting in front of a pedestrian. on the right are examples of do's and don'ts. the first don't is a person attempting to step over the wheelchair user. the second don't shows a person attempting to push the wheelchair user. the final image is a do with a person saying "excuse me" to the wheelchair user]

❌ stepping over wheelchair users

❌ pushing wheelchair users

✅ asking politely for the wheelchair user to move

[aetherial-boy]

gonna cosplay Viktor on friday bc my fiancé is going to see a film im not interested in, i’m gonna also use it as an excuse to take over the living room and practice wheelchair stuff

[aetherial-boy]

i did just get a frog to sew snaps onto the hands and feet of though, he’s sat in a little hugging pose and i eanna put him on my wheelchair

[aetherial-boy]

caster flutter my beloathed

(i just wanna go fast 🥲)