#we are *disabled*

[demonboyhalo]

collection of useful things tumblr has taught me:

even if you can't fall asleep, laying down with your eyes closed will still rest your body

you don't have to brush your teeth standing up

you don't have to do any chore standing up, from dishes to showering

you don't have to shower with the lights on

if you can't brush your teeth, flossing and a tongue scraper gets rid of plaque and bad breath

if you can't do that, mouthwash kills a lot of bacteria

eating "unhealthy" food is better than eating no food

you can make the same meal everyday for however long you still want it

some pills come in syrups or chewables if you can't swallow them

kids nutritional shakes can be a quick way to get fuel if you can't eat/don't have time

if walking hurts/exhausts you on a regular basis, canes and rollers are for you, no matter how young you are

we have free will—if doing something "out of the ordinary" makes life easier for you, do it

if you have even a dollar to spare, please consider donating to Alaikum's family.

they're a large family at only 10% of their goal to evacuate, and could use any help you can give!!

[bee-fox]

I think that it's really important for people to realize that being disabled is traumatic. genuinely. your body and brain feel like they are breaking down and wrong. you are in constant heavy stress from stuff like chronic pain. most disabled people i know have a somewhat regular emotional break down from the trauma of it all. and we are expected to just smile through it by society, to not be in the way, to not be an issue.

[systemic-stupidity]

*deep breath in*

*deep breath out*

Let AAC users say fuck!

Let them swear, let them say fuck and asshole and anything else they want.

Let them program their devices to say ‘fuck off’ instead of just ‘leave me alone, please’. Let them have language that’s adult or even offensive! Give them the ability to communicate the same as anyone else- let them have the option to be abrasive and even rude for when people are being assholes, let them swear casually so they can joke with their peers and say shit like ‘can you pass the damn ketchup’!!!!!!!!

Let disabled people say fuck!

[sidras-tak]

Accessibility takes too goddamn fucking long.

My brother was paralyzed in October 2023. We got him home from the hospital (in Texas, when we live in Iowa) in a clunky old hospital chair. He hated it. He was scared and angry and in pain and his life had just changed forever and he couldn’t do anything for himself in that wheelchair. His first goal (aside from learning how to transfer) was to get a wheelchair. My family was lucky enough to afford one so we thought it would be easy enough. Nope.

We couldn’t buy him a wheelchair. He needed a prescription. For a wheelchair. A doctor had to examine him and declare him in need of a wheelchair. It wasn’t good enough that he had scans and tests showing tumors cutting off his spinal cord. He needed his primary care doctor to examine him during a physical and write a prescription. He was making 2-4 transfers a day, tops. He had no energy to get to a doctor. Home health was in and out every day. He had no time to get to a doctor. He didn’t get a prescription for almost a month. Then it had to go through insurance.

We asked if we could skip insurance and just buy a wheelchair for him. Nope. They wouldn’t sell us one, not even at full sticker price. It needed to be approved by Medicare. We ordered a wheelchair, a nice one, a good shade of green, sporty, small. It would let him move around the house. He would be able to cook, to reach drawers and get stuff from the fridge and brush his teeth and put his contacts in at a sink. We were told it would take awhile, maybe two months. Silently we all hoped he would be around to see two more months.

He went on hospice care on a Saturday in March. On Monday, I was calling his friends to come see him before he died. I got a call on his phone. It was the wheelchair company. They were about to order his wheelchair, she said, but there was an issue with insurance— had he stopped being covered by Medicare? Well, yes. When he started hospice care, he got kicked off Medicare. The very nice woman I talked to told me to call her if he resumed Medicare coverage so she could order his wheelchair. He died less than 12 hours later.

We ordered that chair for him in early December. Medicare didn’t approve the order until March. He was dead before they got around to it. He wanted that fucking wheelchair so badly. The only reason he had any semblance of independence and any quality of life for the last five months of his life was because the wheelchair company lent him an old beater chair, a very used model of the chair he ordered. If I could go back and change one thing about his end-of-life, I would get him his dream wheelchair. He told me again and again he couldn’t wait to get it, so that he could feel like a person again. He made the best of what he had with that old beater chair, but it still makes me mad to this day. He was paralyzed. He needed a chair that afforded him dignity. We had the money for it. And yet, we were left waiting for five months, for a chair that wouldn’t even get ordered until the day he died.

[owlmylove]

the flesh is unwilling and honestly, the spirit isn't too keen on the idea either

[beaft]

it is legit bizarre to me how hard video game creators and film directors and showrunners try to pretend that fat people don't exist. can you think of the last time you saw a fat person in a lead role? god forbid a fat woman? i can walk down the street or go into a shop or restaurant and see fat people everywhere but then i switch on the tv and suddenly it's like a glimpse into an alternate universe where no one has a bmi over 24. insidious and weird

[inkskinned]

it is hard to explain but there is something so unwell about the cultural fear of ugliness. the strange quiet irradiation of any imperfect sight. the pores and the stomachs and the legs displaced into a digital trashbin. somehow this effect spilling over - the removal of a grinning strangers in the back of a picture. of placing more-photogenic clouds into a frame. of cleaning up and arranging breakfast plates so the final image is of a table overflowing with surplus - while nobody eats, and instead mimes food moving towards their mouth like tantalus.

ever-thinner ever-more-muscled ever-prettier. your landlord's sticky white paint sprayed over every surface. girlchildren with get-ready-with-me accounts and skincare routines. beige walls and beige floors and beige toys in toddler hands. AI-generated "imagined prettier" birds and bugs and bees.

pretty! fuckable! impossible! straighten teeth. use facetune and lightroom and four other products. remove the cars along the street from the video remove the spraypaint from the garden wall remove the native plants from their home, welcome grass. welcome pretty. let the lot that walmart-still-owns lay fallow and rotting. don't touch that, it's ugly! close your eyes.

erect anti-homelessness spikes. erect anti-bird spikes. now it looks defensive, which is better than protective. put the ramp at the back of the building, you don't want to ruin the aesthetic of anything.

you are a single person in this world, and in this photo! don't let the lives of other people ruin what would otherwise be a shared moment! erase each person from in front of the tourist trap. erase your comfortable shoes and AI generate platforms. you weren't smiling perfectly, smile again. no matter if you had been genuinely enjoying a moment. you are not in a meadow with friends, you're in a catalogue of your own life! smile again! you know what, forget it.

we will just edit the right face in.

[an--artistic--autistic]

i am unreasonably proud and excited about this

[s-ccaam-era-crepe]

i think everyone who's ever had migraines should be financially compensated forever btw

[uncanny-tranny]

[millionmovieproject]

It's a holiday. For children. Give them the candy, or fuck off.

[giantkillerjack]

Today my therapist introduced me to a concept surrounding disability that she called "hLep".

[plain-text version of this post can be found under the cut]

Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"

And my therapist pointed out that this is not "help", it's "hLep".

Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.

At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.

So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!

Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!

Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!

Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.

Plain-text version:

Today my therapist introduced me to a concept surrounding disability that she called "hLep".

Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"

And my therapist pointed out that this is not "help", it's "hLep".

Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.

At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.

So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!

P.S. Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!

Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!

Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.

[ratbastarddotfuck]

if you're a white person taking pleasure in the idea that Trump voters of colour are experiencing racist violence from white trumpers because "they got what's coming to them" I don't think you're anti-racist at all, I think you were just waiting for an acceptable target, and you're also fucking weird.

Bad Person Deserves Punishment For Their Sins give me a fucking break and get yourself out of the fucking catholic church. you're all prison abolitionists until you see someone you don't like.

[typical-vindication]

"you can't have npd/aspd! you're too nice"

"you can't have autism you're just an intj!"

"You don't have DID you're just young!"

"You're not disabled you're just a strong and special perso-"

beheading you with my axe

[stellaltumi]

my chronically ill best friend just said "I feel like the side effects part of a medication commercial" SO FUCKING TRUE BABE

[wispforever]

happy pride, everybody. ask me about my queer system

[Edit: now has image description]