#not to mention the pain. the disability
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why have I been. frontstuck. for like 5 days. why does my brain have it out for me. don't you dare make me host again brain I WILL die from alchol poisoning don't test me.
#jesse.txt#fucking hate this i hate being the denial alter#i hate bein the bpd alter and the impulsive self harm persecutor#i hate being aroace and feeling unremarkable and undesirabpe and worthless#not to mention the pain. the disability#its getting ne so vad its horrible every second un alive is agony. i gave glass bones and paper skin#let me oute.......#vent post#tw vent#system vent#frontstuck#plurality#yeah thats good
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it’s okay to do things that make your symptoms worse (as long as you’ll stay safe)
every once in a while you need to eat something yummy. or go on a walk. or a trip to the zoo. take a hot shower. cry your eyes out. dance. listen to music. draw for way to long. write. laugh. sit in a cafe with a friend. paint your nails. dye your hair. go on a run. pet a cat
sometimes you need to do things that are cathartic or make yourself feel alive. sometimes you need the reminder of why you’re fighting so hard to stay alive
this is your reminder that just because it makes your symptoms worse, it isn’t always the wrong thing to do. there can be value in these actions
#chronically ill#chronic illness#chronic pain#fibromyalgia#spoonie#fibro#ibd#central sensitization#disabled#myposts#chronic fatigue#cat#disability#chronic fatigue syndrome#actually chronically ill#cfs#cfs/me#food mention
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We NEED to reevaluate how we view people with "red flags" that don't actually indicate harm to anyone. Things like "doesn't like animals," "doesn't have pets," "my pets immediately distrust them, so that means they're Secretly Evil."
I have a psychotic disorder. I suffer from flat affect. I have zero control over how I am emoting, and very often my emotional readout is completely blank. A LOT of animals (dogs especially) have exhibited aggression and fear around me ever since this started. (There are only TWO dogs I've met in the last five years that didn't BITE ME.) Dogs are unsettled by me because of a symptom of my psychosis--a condition that is out of my control that IS NOT DANGEROUS and doesn't harm anyone.
I also have a severe autoimmune disease and severe allergies to basically all animals. Whenever I tell people I can't come over because they have pets, or I don't have/want pets of my own, the IMMEDIATE response I always get is "why don't you like animals?" So I'm always pretty pissed off when I have to say, "I'm severely allergic. Don't fucking assume I have an undesireable quality just because I'm not a pet owner."
Another ableist red flag we need to talk about is "has no other friends/all their friends break up with them." Hi. I'm physically disabled with a digestive disease and a degenerative disease in my spine. That means my dietary restrictions are stupid and I can't sit/stand/walk for more than 15 minutes without being in pain. Most of the friends I break up with, I do so BECAUSE THEY ARE INCREDIBLY ABLEIST TO ME with no visible potential of changing. From people relentlessly harrassing me about lifestyle changes to not accepting correction or feedback when I tell them "hey, you CAN'T do x because it triggers y condition." If they argue or blow me off, I'm not their fucking friend!
Tl;dr: Disabled, chronically ill, and people with "scary" mental illnesses are often lumped in with "bad people" for characteristics that hurt no one and aren't in their control. Stop using "my dog is uncomfortable around them" as a litmus test for everyone you hang out with.
#chronic illness#disabled#disability#chronic pain#ableism#saneism#not to mention that its literally dangerous for disabled and psychotic people to be isolated and demonized.#its not just that no one want to be my friend. its that people are that much closer to putting me in danger because i dont fit-#-their standard of a 'good person.'
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Listen guys, you don't need to look nice to go outside. Your health is more important than appearances.
I just went on a walk in my pajamas, greasy hair in a shitty bun, acne, and a pair of new balance sneakers. Cars passed by and I said hi to everyone who passed. Did I feel self-conscious? Of course, but it was worth it.
Now I feel a lot better, because I didn't A. Overextend by forcing myself to shower/get dressed/put on concealer beforehand or B. Avoid doing anything because I felt like a mess.
Go outside and be however you are. It's not your job to look good to random strangers, you deserve to go outside.
#someone get me a cookie for walking with a migraine#i feel very brave#disability#disabled#hearing impaired#meniere's disease#chronic illness#hard of hearing#chronic disability#chronic pain#chronic migraine#chronically ill#invisible illness#illness mention#invisible disability#disability pride#blurb#exercise#accessibility
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"You're so lucky that you can get paid to sit at home and do nothing" is something I hear from family members & people online.
Okay, let's say you're not disabled at all. No health issues. You've somehow tricked the system into believing you're disabled (not possible).
Would you still trade your job and salary to live off of $600-800 a month?
Would you give up your house, your car, your hobbies, the ability to buy gifts for yourself & others, and ALL of your savings, just for the "great benefit" of sitting in bed all day?
Do you really think it's that great?
Now, add health issues to all of that.
Not only are you stuck at home, but your body hurts every time you try to move, lights and sounds can send you into a meltdown, you can't even make it to the bathroom without nearly passing out the entire way there. You're always too fatigued, too dizzy, or in too much pain to do basic activities. You can't cook for yourself more than once or twice a month. Fast food is expensive. You can't keep your place clean or even get yourself to shower regularly. You can't afford your hobbies – even just buying a video game is 10% of your income for the entire month. You don't get to buy yourself (or your kid/s) nice things. After paying bills, you have almost nothing left for necessities and gas. Your car breaks down? It costs 50%-200% of your monthly paycheck. You want new clothes? You got the thrift shop, clearance section at walmart, or ordering cheap things from horrible places like Temu, Shein, or Wish. You want a place to live? You won't be able to afford to live alone until you get approved for housing assistance after waiting 5 or more years on a waiting list. And either way, bills are gonna be more than half of your monthly paycheck.
Does all of that sound like a privilege?
And do you REALLY believe anyone would try to fake a disability for that?
Get mad at the system that underpays you, not at disabled people who are paid well below a sub-minimum wage just to "sit around" and feel like shit all day
#the examples i gave just mentioned my own health issues#i dont know what it's like to experience other people's disabilities so i can't speak on those#but anyone is welcome to add stuff if theyd like#disability#chronic pain#.bdo
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say No to the supposed toxic yaoi of shipping a rapist abusive creep with a man who enabled him and was then tortured by him for several months.
Embrace, or at least consider, instead, the nuanced tenderness of a woman and a man, both hurt by the same monster, in a kinder ending, being able to heal their bodies from where he touched them. Regaining parts of themselves. Connecting and apologizing and healing alongside one another, growing into happy people who will live far beyond the events on that awful ship.
And have her peg him
#mouthwashing#anya x curly#tw sa mention#tw abuse mention#it's about curly#Understanding so well#The terror and pain his inaction caused#And anya. Being slow to. But slowly#As she heals from it#Coming to love him. And forgive. In her own time#Sharing scares and wounds and hurts and Healing#And also she pegs him#tw suggestive#If anyone clowns on this by like#Saying victims can't do sex stuff I will explode#Let anya do a sex let her reclaim herself she's allowed to#Let curly be sexy. Let disabled folks and sa survivors be sexy
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Not enough heating pad for the ouchie so I’m just rolling around like a rotisserie chicken
#*microwave noises*#PEM’s got HANDS today#chronic illness#fibromyalgia#me/cfs#disability#gastroparesis#migraine#postural orthostatic tachycardia syndrome#chronic fatigue#chronic pain#pots#PEM#ouchie#rotisserie chicken#food mention#cw food#hEDS#ehlers danlos syndrome#MCAS#interstitial cystitis#am i dying?
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trans day of remembrance please for fuck's sake remember disabled trans people this time, dont leave it to us to be the only ones who mourn them
so many posts about today and ive seen nobody mention them. nobody at all.
im fucking tired.
#ffs if youre able-bodied and/or nt PLEASE reblog this#you are VERY encouraged to#im tired of everyone at least getting a mention#but disabled people literally having to force even someone aknowledging us down people's throats#i cant with this shit#ofc all marginalized groups deserve to be acknowledged#but that also means us#please don't forget your disabled siblings who lived and fought and just looked for better days#please don't let their memories fade away#please don't let their lives and the many battles they fought mean nothing#this trans day of remembrance make sure to remember everyone#not only the ones who were able-bodied#not only pallatable trans people#everyone means Everyone.#disabled#trans disabled#trans day of remembrance#cripple punk#queer cripple#cpunk#madpunk#neuropunk#transgender#i should probably get ready for everyone taking this out of context but im tired angry and in pain so i cant bring myself to care lmao
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A very validating fact I learned recently is that you aren't being dramatic/faking when you unmask about your symptoms
If you're used to masking normally, it absolutely carries over to masking your physical ailments
Learning to unmask with your "invisible" disabilities is extremely difficult due in large part to the self fakeclaiming / denial
#did system#traumagenic system#actually did#did osdd#dissociative system#actually dissociative#did stuff#did#dissociative identity disorder#dissociation#endos do not interact#pro endos dni#endos dni#fakeclaiming mention#chronic illness#chronic pain#chronically ill#chronic fatigue#disability community#disability rights#disability pride#disabilities#masking#sick#ill#mental heath awareness#actually cdd
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GUESS WHO STARTED HIS MALL DATE OFF BY GETTING A COP TOWED????
You're not more important than me because your legs work and you have a gun <3
#cripple#cripplepunk#cripple punk#cpunk#c punk#cpunk blog#c punk blog#angry cripple#disability#disabled#queer cripple#physically disabled#disability advocacy#physical disability#disabled humor#actually disabled#heds#ehlers danlos#hypermobile ehlers danlos#ehlers danlos syndrome#chronic pain#tw ableism#cw ableism#acab#tw gun mention#cw gun mention
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Guys what the fuck.
My campus now had two lifts not working (one has been out of service for like almost a month now) and the third lift only goes up to the third floor. my class is on the fourth floor. My class is also Critical Issues in Disability. this sounds like a critical issue to me. Plus, this is the room I have to wait in at the moment
[Image ID: a picture of glass windows with two black line decals on it. one of the decals show a person in a wheelchair being pushed by someone else, looking at each other. The second decal shows an older person using a cane leaning on another person slightly. End ID]
the irony of me waiting here for accessibility. I am. so tired of this shit.
UPDATE: the class is being moved somewhere more accessible, instead of the fourth floor. Now I feel awkward for making it a big deal but also now I’m happy because I might’ve just brought attention to something maybe people haven’t noticed before? I don’t know how to feel but it’s some feeling
UPDATE 2: I have to go into one building and walk through three other buildings to get to my class now
#disability#cripple punk#disabled#cpunk#cane user#chronic pain#cripplepunk#actually disabled#mobility aid#crutch user#described#inaccessibility#at least the student services person I spoke to was really nice#oh and not to mention I had to go up a steep sorta path to get to this third elevator#how the fuck am I meant to get to class#plus I know someone in my class uses a wheelchair#how they fuck are they meant to get to class too?#moony talks#moony speaks#moony describes
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Tbh it really is something to have grandmothers (one late 70s other late 80s) who are in better shape than you are, like I go see my grandma and we walk somewhere and i'll be panting before she's even slightly out of breath and it's not like she's in the best of conditions either, and then don't even get me started on my other grandma, she still does sports.
#chronic illness#disabled#disability#chronic pain#chronically ill#postural orthostatic tachycardia syndrome#pots#ehlers danlos syndrome#heds#chronic fatigue syndrome#cfs#me cfs#myalgic encephalomyelitis#(grandfathers aren't mentioned due to both of them being dead)#my grandma's are both not in the best of conditions#but at least stamina and exercise wise they are both in better shape than i am#which is certainly a Feeling#i do walk faster than my grandma from the first example#but that's more because i am tall and she is very short#and that she is a bit unstable#but both distance and time wise she can walk more than i can#and then sports grandma...#even as a kid she could keep up with her energetic grandchildren#out of the two of us guess which one uses a rollator#it's me#i started using a mobility aid before either of my grandmas#and while the older one has started using a cane sometimes#sports grandma only needed one for a bit after her knee surgery
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Having subjective symptoms is very isolating because there is no way for others to witness what you're going through. They just have to trust you and you have to trust them to believe you. I know everyone in my life believes it, but they don't get it. I expressed to my therapist that I feel that all of these symptoms begin rattling around in my head and it creates a barrier between me and others.
My world: hurting, trying not to show it, coping with pain, fearful, etc
Their world: normal, uneventful, happy evening
It's very difficult to have something happening to you that nobody else can see.
#disability#disabled#hearing impaired#chronic illness#meniere's disease#hard of hearing#chronically ill#invisible illness#chronic migraine#chronic disability#chronic pain#illness tw#illness mention#spoonie
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If there's one thing I want able bodied people to understand, Its that sometimes you don't get to get your pain treated. Sometimes the emergency room will tell you that they can admit you if you're suicidal from the pain but they won't treat the pain that's making you that way.
#tay dont look#cripplepunk#disability pride month#suicide mention#i count the hip i broke in basic training as a 3 on the pain scale
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Extremely unfriendly reminder
It is ableist to doubt someone’s allosexuality /alloromantism simply because they are disabled.
It is infantilizing to not take us seriously with we clearly state who we are and just deside you somehow know better. We are not stupid.
It is a stereotype that we are all aroace. That we are incapable of understanding or feeling romantic or sexual feelings. Or acting apon them. I even heard a horror story where someone was forcably wheeled out of health class when sex Ed started.
And this goes for everyone. The two people who have done this were both disabled and asexual /aromantic . I was not questioning my sexuality or romantic orientation, I simply mentioned I was allo, disbaled, and couldn’t date or have sex because of it. “Are you suuure you’re not aromantic?” It’s just awful.
#from my own little galaxy world#lgbtq#disability advocacy#disability#neurodivergent#queer#gay#bisexual#pansexual#amplified musculoskeletal pain syndrome#lesbian#asexual#aromantic#tw sex mention
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Ah. Dust your voice is different now huh? To us it just looks like it's in italics where it wasn't before...what does it sound like? More echoey? Quieter? Do you have to use more magic to talk?
Dust: i took the ability to subconsciously speak, eat, and hear for granted. it takes effort now. everything sounds muffled. eating is a slow and embarrassing task that i need help with now. i've been told that my voice sound softer, almost echo-ey. Killer says it sounds like I'm in pain 24/7. they're not wrong. i didn't have a sense of smell in the first place, so no loss there. i can still see perfectly fine for some reason i refuse to question, so, yay there too Cr: Dust's shirt: i lured him to death with a can of baked beans
#dust sans#old injury#disability#disabled character#death#murder#<- those two tags are for his shirt#chronic pain#food mention#hard of hearing#<- tags mostly so people can filter them out as needed#Dust opening a door because he's looking for Horror rip#queue
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