#chronic illness moms

[thoradvice]

you don't have to be glad that it's not worse. that goes for everything. disability, trauma, mental illness, grades, finances, whatever. you're /allowed/ to be upset that things are the way they are. you don't have to be grateful for your situation - bad is bad. somebody else's suffering doesn't make yours less painful. it's okay to be angry

[disabled-dyke]

if upon being told about someones illness/condition, your first thought is to say “have you tried X?” i want you to step back for a moment and think to yourself “if i thought of X after hearing about this condition for the very first time, the person who has this condition very likely has thought of this and possibly tried it already”

we are tired of constantly being told to try the same things by people who didnt know our condition existed five minutes ago.

you dont need to offer any solutions or try to fix us. i know it might seem like a polite thing to do or that it shows you care, there are other ways to show us you care.

[squid-socks]

“Don’t make yourself seem sicker than you are.”

How about accept the reality of my situation so it doesn’t always sound like a crazy shock to you when you hear me talk about the same issues I’ve always had. Thanks. 😑

[sickiehugs]

some kind of episode where The Gang gets a magical curse that makes them all swap bodies with eachother temporarily, and whoever ended up in the chronically ill character's body is like "Jesus, you *live* like this all the time?" and they're like yup.

[gorgeousgreymatter-x]

funny story my wart was not large but it was deep because it was there for about a decade because I also got diagnosed with Crohns a little over a decade ago and the feet were just not a priority friends

i actually scared the derm because he froze for like a straight minute and realized I hadn't moved or made a single sound and he was like oh wow you have a high pain tolerance

and I was like haha yeah I feel it I just tell myself it's not happening and do it anyway lol chronic pain ammirite

he did not laugh lmao

lol also yesterday I got the wart frozen on my heel for like the 5th time and now I can't walk because of the hole in my foot

my body is great ya'll it's just great out here

[toadilyoptimistix]

Medically Adverse

My parents didn't take me or my siblings to checkups, dentist appointments, or anything medical growing up after I turned 12. My sister wasn't educated about periods and thought she was dying when her cycle started. I wasn't checked for glasses and spent my life bumping into everything until this year. My brother is undiagnosed autistic and berated for being weird. I have had two experiences where I literally thought I was going to die and my parents told me I was being dramatic and to get over it (though I couldn't walk I was in so much pain). Had to have an emergency wisdom tooth surgery after I moved out because I suddenly couldn't eat I was in so much pain (they were coming in sideways). I have spent the last three years disabled, two of those years unable to reliably walk, and all of those in debilitating pain and exhaustion.

This is called neglect. Medical neglect. And its not okay. I'm dealing with serious health issues that could have been caught early on if I'd been taken to the doctor and also was educated about my body. I thought babies came out of the belly button and spent the entire pregnancy stressed about my belly button coming undone. Like. What?

Being raised in a cult that was both medically adverse and anti body has really set me up for failure physically and mentally. Take your kids to the doctor. Take them to the dentist. Educate them about their bodies. Or send them to a school that will do it for you.

And do my parents accept the blame of neglect? No. They swear up and down that all doctors are evil and want to kill people. Which is insane.

Anyways. That's my rant. Medical professionals have saved my life. They're not all amazing but many of them are. They are doing their best to help me and treat me so I can live some kind of life.

[chronic-counter-user000]

PRAISE THE FUCKING LORDS WE HAVE A CANE

CELEBRATION

MY FIRST MOBILITY AID

[lupusbaby]

Today my mom goes, “I went to bed so early last night! Have you ever been so exhausted that you feel achy and sick from it?” and me and my sister did The Look™ at each other and then I said “yes…constantly every day”

[ohgreat-moretapes]

Tim I noticed a lot of indigenous patches on your jacket, are you Native?

Idk what my dad was 'cause I never knew him, but yeah my mom is (or... Was.. I guess..) Muscogee, the tribe native to the part of Alabama I'm in.

If I remember correctly she came to Alabama from Oklahoma (where a lot of Natives were displaced to in the 1800s) to "get back to her roots."

But yknow, I was separated from her in childhood (which tbh is upsettingly common for Native families) and I was raised in a very white very Catholic asylum so I'm not as connected to the culture as I'd like to be.

-Tim

[thornsinpudding]

Getting sick when you're chronically ill is actually hell on Earth... no matter how severe your illness is originally it becomes like 300 times worse and it's so unbearable

[a-totally-reasonable-username]

Had a check up appointment with the first doctor that took my issues seriously. He gave me referrals to a bunch of doctors not even close to his field because at the time my gp blocked everything, saying it was just psychological and they wouldn't endorse my pretending. The last time i had an actual appointment with him was about a year ago, i think (he's still been prescribing me physical therapy without issues). So i gave him an update, told him about all the things that have changed since then. Last time he saw me i didn't even have any doctors that believed me about my joint issues so when I told him that i'd have surgery on my wrist he went "surgery?!" This is about how he looked saying it btw

He was very happy to hear that i now had multiple doctors that took my issues seriously and at one point he said that even if there is no official diagnosis that explains all my issues my quality of life is still important and that's when i looked like the surprised pikachu meme

[sickiehugs]

When a character is feeling super sick and shitty but they don't have a fever, so they aren't taking it seriously or resting because to them, they aren't really sick unless there's visible proof. Maybe it comes from when they were growing up, and their family never took their illness seriously unless there was a fever. Maybe they would accuse them of lying to get out of things. So now, they worry if that really is the case. They work themselves to the bone and feel like they're going to collapse, but they aren't really sick unless they have a fever.

Bonus points if they have a partner who cares about their well-being, and as soon as they see them in the state they're in, they immediately make a fuss and insist that they rest. The character somehow feels good, even though they don't want their partner worrying, because someone is finally making it a big deal. It's finally real, it's finally serious.

[rickypottsboyfriend]

reminder that self care isnt just cleaning ur room , showering , doing your laundry etc

its also taking time for yourself . laying in bed at 3 in the afternoon watching youtube , playing your game until 1 in the morning , taking an extra day in between your showers

self care is listening to yourself and your body while understanding what needs to be done

dont exaust yourself doing stuff thats supposed to make you feel better . take time to rest

[spookietrex]

Had my disability hearing today. Got to explain a "bed day" to the judge. Also got to explain why I want to punch my partner's mom in the face when she says she loves me to the judge as a sign of my irritability. My lawyer explaining to my partner later: "Everybody's mom came up."

[vicetrevni]

Accommodations do not 'limit' what a person is able to do.

It means that it eliminates a point of stress/grief in their daily life, so they can do *more*.

It is not 'laziness' to want to do more, but needing accommodations to make that happen.

[soggyburgers]

i went to a 5sos show in 2022 and straight up my mom was like "did you do a whole body shave?" and i was like "??? no?" and then she was like "EVERYONE is gonna be full body shaved" and then i got nervous and fomo'd and then full body shaved lmao