#chronic illness is ASS

[galwithalibrarycard]

I’ve come to the conclusion that the only good thing about the covid years is that they gave me an excuse to skip the yearly hell of colonoscopy prep for three years in a row. Sadly, my time has run out and tonight is and has been Suffering Hours again. Also the readmore function on mobile seems to be broken now, so I can’t even complain in relative private out of respect to the squeamish and the many folks in worse situations who don’t deserve to hear me complain and to whom I wish the best.

[justsomerandomgay]

abled people don’t seem to understand why i try to avoid getting a cold like it’s the plague, like mate im literally chronically ill, i don’t need another illness on top of it!

[dogd0m-charlie]

yeah yeah sure rough freaky t4t gay sex where i mount you aggressively and overstimulate you by making you cum over and over until you're crying etc etc. but- hey, no, listen. take my hand for a second. what if. what if maybe um. you know, instead of that, what if you let me just lay back and kiss my neck gently and slowly jerk me off or maybe ride me for a little while and praise me for how much I've been doing lately and how good i make you feel all the time and tell me you're proud of me, because you know it's really hard for me to always just push through and make myself get things done and you want me to be the center of attention just this once, so you decide to make me cum this time while muttering praises in my ear to make me really feel as appreciated as possible. maybe. (please)

[impure-as-a-lamb]

genuinely fuck all my family members that made fun and keep making fun of my pain and don’t take me seriously. then something bad happens or i get finally diagnosed and they’re like “omg why didn’t you tell me sooner???” YOU ALWAYS TOLD ME I WAS EXAGGERATING.

[catwouthats]

Not this fucking poolverine fic making my disabled ass fucking sob because whenever I look in the mirror all I see is a dying and unhealthy body

But no matter how broken this body is it’s still keeping me alive and it’s beautiful for that.

[cyb3r-st4rz]

I cant post everything right now because my tumblr is slow but bro I gotta talk about how Vessel really went above and beyond today

His vocals are always insane but he really amped it up. The breakdowns, singing harmonies instead of the usual track and just generally giving it his all

It was fucking crazy also considering that performing without two of your bandmates and friends can be terrifying (for me anyway)

He kept bowing to us and doing little hand gestures it was the sweetest thing ever

[thedisablednaturalist]

Guys Jansport adaptive backpack is on sale for 32% off on Amazon right now (blue color, pink color is on sale for 24%). The usual price is $70, right now it's $47.

[noxious-fennec]

"الخيل و الليل و البيداء تعرفني ... والسيف و الرمح و القرطاس و القلم" ، المتنبي

Translation: "the stallions, the night and the wasteland know me ... and the sword, the arrow, the parchment, and the pen", Al-Mutanabbi

A tribute of sorts to a man of many attributes.

[justsomerandomgay]

i hate how when abled people are sick everyone drops everything for them and feels such sympathy but when chronically ill people are sick or flaring up, no one cares because im supposed to be used to it.

[hellyeahsickaf]

This is not a joke but men, if you need to see a doctor see a fucking doctor. There is nothing emasculating or shameful about it and you are never less of a man for doing it. Your pride is not worth your health or life. You aren't weak because you didn't tough something out you're strong for tending to the needs of your body. The mindset that it's weak to seek medical care can have deadly consequences

Yes this includes "embarrassing" issues. An object stuck in your ass because you girlbossed too close to the sun trying to have a good time, not only will any person in the ER tell you they've seen it (and probably worse) but people have died from sepsis because they didn't want a doctor to examine them that way or to have to explain their predicament. Not worth dying over

Another person touching you in a medical setting is not sexual in any way shape or form. It implies nothing about your sexuality. Even if your body reacts in a way you don't want it to (it happens, likely won't but if so they don't think you're a perv or some shit). Malpractice of course exists and often a witness will accompany the doctor for such examinations to keep you safe and ensure you are treated professionally.

Strict laws exist to protect your right to privacy. Anything you say to your doctor stays confidential.

If you are trans your doctor should know this as it can be vital to you receiving proper care. And you are again, no less of a man. Dysphoria can be unbearable and acknowledging your anatomy can be awful for some but sometimes it's just something you need to get through for the sake of your physical health. Also trans or cis or in between there's no such thing as a "girl illness/disability". Get checked for whatever's going on

STIs and UTIs and the likes are not shameful. If Planned Parenthood is an available resource in your area you'll probably find that more comfortable and safe than you expected. And if you're a minor they will allow anyone confidential and typically free care (tell them you have no insurance). It's not just a lady clinic that only does abortions, they do everything from trans care to routine exams and birth control (many also provide free condoms). However many doctors specialize in/treat this shit, see it every day, and sometimes the treatment is so simple and can prevent something so much worse.

[jdeanmorgan]

Disclaimer: this means pain caused by tiredness or exhaustion. I call them tired aches.

[canine-heart]

Sometimes I just want to put this body through a fucking meat grinder.

[bestfriend-confidant-sillyrabbit]

Vintage dip and pip

[rigormortisangel]

no semester is complete without me missing at least half the classes because my body doesnt work

[thedisablednaturalist]

My new gp: hi how can I help yo- um

Me, sitting with a planner, notebook, and my laptop: what

[orbitposting]

"Accommodations give disabled people an advantage over non-disabled peers"

TW: mentions of ableism, mistreatment of disabled children, and it's effects, mentions of fatphobia

For context, my sisters and I all grew up in the late 90s/early 00s with different disabilities (overlap was acknowledged later in life). My eldest sister has autism with some support needs without intellectual disability, my older sister has dysgraphia, and I have asthma. Looking back, none of us were fully accommodated.

At home, when my sister would have meltdowns due to sensory overload or changes in environment, and my mom consistently chose to scream at her for "misbehaving"/"being difficult". In order to stop the chaos, I was often left to comfort my sister. Often, I would simply offer her ice-cold water and tissues, and things would calm down.

In middle school, I remember she went to an alternative school in order to accommodate her better. While it was very valuable to have her learn the bus system and the self-reliance of getting to school, this program taught 4th grade math to her in 8th grade. She struggled with getting back on track with math for years. Eventually, she left due to difficulties with other students and the lack of consequences for various unacceptable behaviors.

In high school, she was supposed to pass a language course in order to graduate. She took Spanish, since my mom was offering to help with her knowledge of Spanish. However, this didn't help, even with my mom's college-level knowledge of Spanish. Notably, she didn't speak English in full sentences until she was seven years old. ASL was also not an option, but fortunately they waived the language requirement. Graduation was a close call, for other reasons, as well.

My older sister's experience is what is prompting this post. She has struggled with dysgraphia throughout her school years, and it was never accommodated. While she was a prodigy with immense knowledge of history, it would never come across in her writing. She was diagnosed around 10th grade, which she remained in denial about. However, my mom talked to the school regarding accommodations, and they had nothing to offer. Throughout her education, she would fail every writing assignment or writing-based class she was given. This was especially frustrating when classes that didn't revolve around writing paragraphs made her do it, anyways. She only passed 10th grade Physical Science since my mom knew the teacher, and asked that he not account for the lack of writing assignments and explained her situation. What prompted this post was actually my dad finding her SAT results, and me discovering that she had all zeros for her essay score, despite getting a 1170 for the multiple choice portion. (Quick aside: standardized testing should NOT be considered indicative of any student's performance if they cannot properly accommodate disabled students.) She did graduate, but my family wasn't sure the school would let her.

In my case, throughout elementary, middle, and high school, gym class felt like I was constantly fighting for my life. While I was allowed to have my inhaler on me starting in 6th grade or so, I was still expected to do the exercises everyone else had to do. I was not allowed to take breaks, technically, but I did. This was especially noticeable when we would run laps around the gym. Every time I did so, I was harassed by the PE instructor until I kept running. Games weren't much better, either. I was always picked last (which makes sense), but not only that, I was purposefully targeted during games. I was openly mocked as I did my best to participate.

In 9th grade, things hit a wall. When swimming was introduced to the class, I outright refused. I kept "forgetting to bring my swimsuit", when that stopped working I "had to go to the health clinic", and when that stopped working, I got a note from the health clinic excusing me from the swimming portion of gym class.

The PE teacher did not go down without a fight, nor did my parents. I was told that I could have to do it again when we moved schools the next year (that school ended up not having a swimming pool), that I wouldn't graduate without this credit, that I was making the situation worse by singling myself out in this way, and that I would get an F in gym anyways. They eventually acknowledged my excuse, but made me sit by the pool as everyone swam so I could take notes on the same article about what to do in case of a drowning every week.

Peers would acknowledge me from the pool, friends would say hi and guys would mock me. Girls I didn't know would talk about how strange my lack of participation was. Meanwhile at this time, my dad was making me log my calories on MyFitnessPal and I was very aware of how "different" my body was from the other kids. I would have panic attacks just thinking about going into the pool. While it was hard, I don't regret fighting for what I needed. Also of note: it was a chlorine pool, and chlorine heavily affects my asthma. Sometimes my lungs would hurt just being in the pool room. This wasn't really acknowledged, I would wheeze while walking up the stairs, and it often hurt to sing in choir after pool days.

I also struggled with ADHD throughout K-12, but I wasn't diagnosed until after I graduated high school. However, as an AFAB person, I constantly had teachers mention symptoms of ADHD in my comments. It started with not turning in work and doodling/chatting in classes I didn't care about, but it eventually spread to other classes that interested me. I also struggled with severe compartmentalization, which I didn't realize until after high school. I couldn't remember what my homework was when I was at home. If I remembered what the assignment was, I couldn't remember the information needed to complete it! This meant I did any homework I did complete while at school.

Fortunately, graduating high school didn't turn out to be a problem for me. After a rough freshman year, I turned things around. I became a member of NHS my senior year and finished out pretty strong. That was, until COVID. I had my therapist send a note saying I was not in a place to do schoolwork, and to simply keep my grades from pre-lockdown. I didn't get AP credit for AP Biology, but I learned plenty. I also withdrew from my dual-enrolled Calculus 2 course. Looking back, with my compartmentalization issue, there was no way online school would work for me.

So yeah, actually being disabled in school isn't a walk in the park! Imagine that! For anyone wondering, we're all doing fairly well now. My eldest sister works janitorial in a hospital setting and enjoys it, since she finds the surgical field fascinating and doesn't mind all the blood and such. She did eventually catch up in math in community college, but she wasn't able to finish the degree (due to her advisor). My older sister works retail and is a union steward. A lot of what she does is mainly talking and some basic math. Fortunately, if she needs to write, she can just use a computer, since the physical act of writing is what is a lot of what's hard for her. Spellcheck is also helpful. I spent my summer doing more intensive mental health care, and now I'm more directed than I have been for years. I'm currently waiting on hearing back about a bank teller job, and I'm looking forward to that!

If anyone is currently struggling with accessibility in education, just know what you are asking for is reasonable. All you are asking for is equal opportunity education, and you should not be denied that.