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#Live in caregiver
caremountain · 1 year
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Parkinson's home care Southlake
The primary benefit of Parkinson's home care Southlake is that your loved one is able to stay in the place that is most comfortable and familiar to them. They can sleep in their own bed, use their own bathroom, and continue their daily routines. Being in familiar surroundings can be especially beneficial for those suffering from progressive conditions that affect the memory such as dementia.
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I feel like people often don’t talk about the experiences of disabled people who have caretakers because so much of the conversation is about us—not including us.
I receive in home care for 30 hours a week (+ 4 hours/week for respite). This is paid for by Medicaid (state insurance). Outside of paid hours, my primary caretakers care for me unpaid and assist me most of the time. I’m very rarely left alone due to my high support needs. Often, when I am left alone, I am completely bedridden or at minimum housebound. I have frequent emergency life threatening health problems, falls, and serious injuries even with support in place, and these things significantly increase when I’m on my own.
I’m extremely lucky that my paid caretakers are my partner, my sister (the only family member I have regular contact with, I’m estranged from the rest of my immediate family and most of my extended family) and my best friend.
I used to have agency staffing which was horrible for me and borderline traumatic. At several points, before doing the self directed care option (which allows me to choose my own staff, hire and train them myself and dictate hours for them), I opted to not have any staffing. I was regularly in the emergency room. I can’t drive, so I was having to walk and if I was lucky enough to be able to take the bus on occasion or get a ride from a Facebook acquaintance, they were few and far in between. I don’t have family support, and even my sister who is supportive wasn’t living in the state at the time and doesn’t have a car most of the time.
And before I could even choose which staffing option, even though medically it had been deemed essential for me to have in home care, even though my insurance covered it, I had to wait several years (I was 18 when I was approved) until I was 21 to qualify to start. The reason why: I was legally an “adult disabled child” because of my high support needs (which is funny because I STILL don’t have SSI at age 24) and thus legally unable to consent to my own care plan. I needed a blood relative to consent, and that same blood relative (who had to have proof of such!) couldn’t care for me. At the time, my sister was the only person who could’ve been my caregiver and also she is the only verifiable blood relative I have contact with for safety reasons, and my only relative on this side of the USA.
The first business day after my 21st birthday I immediately got things set up to get in home care.
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This is out of date, I get assistance with more than just these highlighted ADL (activities of daily living) tasks now.
In short: my day-to-day life is entirely dependent on others.
And there’s power imbalances that exist between me and my caregivers, even with my current caregivers being amazing and anti-ableist. They will always exist. We talk about the power dynamics of me being dependent on them for my survival, and how heavy that weight can be for each of us.
Having caregivers often means that accessibility is extra difficult— I’ve been told straight up multiple times that I can’t have assistance from my caregivers to help me change in a changing room when we’re out shopping. That they can’t go into the bathroom with me, that they can’t help me get un/dressed during appointments, that they can’t come into spaces with me.
I’ve been denied access to psychiatric care because I can’t do my daily living tasks (ADLs- the highlighted items) independently. And when I’m in a hospital or emergency room, I can’t have my in home workers be paid to care for me, there’s an expectation that the nursing staff at the hospital will do it. Even though my caregivers were specifically trained to learn my body and needs for weeks and have been working with me for years. I have severe cPTSD and showering in front of a stranger is something I cannot do. I would rather fall or faint or get injured or just not shower than deal with that. But I’m expected to just let anyone have access to my body just because I’m physically disabled and need support.
When I faint/fall/get injured/have life threatening health issues arise while I’m not clothed, or when I’m otherwise vulnerable, I’m supposed to let strangers just touch me however they want to. I have to show them my chest (for my cardiac care) and let them poke and examine me. I can’t object without losing access to vital care.
I have agency. I have rights. I have autonomy. I deserve to be able to exercise these things.
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thoughtfulchaos773 · 17 days
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I'm thinking of the leak of Claire and Carmy's argument.
I'm wondering if the end of the 3rd season's song "Disarm" by Smashing Pumpkins will give us a clue - at least what the argument will highlight and the theme of season 4.
I think that's the moment- the argument it will reveal the truth of Carmy and Claire's relationship.
If I think about the end of the second season and the song that plays. Half a world away by R.E.M. the lyrics that end with Sydney go it alone foreshadows and tells us about season 3 which starts with Carmy saying I left you alone. (May I had based on that song alone I was about to predict the 3rd season).
But back to the ending of the season 3 song.
Season 3 ends with the song disarm- lyrics:
Disarm you with a smile And cut you like you want me to Cut that little child Inside of me and such a part of you Ooh, the years burn Ooh, the years burn I used to be a little boy So old in my shoes And what I choose is my choice What's a boy supposed to do? The killer in me is the killer in you My love I send this smile over to you
Giving us a hint to the 4th season. This song is quoted by Billy Corgan as:
“... rather then have an angry, angry, angry violent song I’d thought I’d write something beautiful and make them (his parents) realize what tender feelings I have in my heart, and make them feel really bad for treating me like shit.
Disarm’s hard to talk about because people will say to me ‘I listen to that song and I can’t figure out what it’s about.’ It’s like about things that are beyond words. I think you can conjure up images and put together phrases, but it’s a feeling beyond words and for me it has a lot to do with like a sense of loss. Being an adult and looking back and romanticizing a childhood that never happened or went by so quickly in a naive state that you miss it.”  — Billy Corgan on Disarm
Season 4 will explore Carmy's issues with Donna, shedding light on Claire and Carmy's relationship and its core truth. It was an idealized version of what he didnt have his mother and one moment will show just how he's trying to workout his relationship with his mom through claire. How he was dating someone who has versions of donna and idealized versions of Donna carmy never got to experience.
This repeat of donna was outlined in the network script but not the show itself. This claire and carmy relationship in the show is insidious. It's not obvious she resembles donna except for her actions and the camera angles and she's also the happy- "nice" idealized version of donna that donna plays but shows her true face eventually.
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It's like the song and how he idealizes a childhood- a teenage love that he never had. But realizing in season 4, like the song's synopsis, his choice in changing- in breaking that cycle of relationships that resembles his relationship with Donna.
This song is about him resolving a cycle that he made the mistake of repeating things so he can move on.
My theory on the argument shedding light of claire- it will probably happen on the night of Tiffany's wedding. They either get back together briefly, so he's Claire's plus one – probably one date to try it again – or he's Richie's plus one.
This show loves parrallels- the argument between claire-carmy-richie will resemble this scene:
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Donna yelling- Carmy dealing with her anger- all of it with Richie in the middle just watching not cutting in- but who knows maybe he has changed and will step in when Claire argue with carmy- listening to disarm it's about breakin cycles- changing and Richie will do the thing he's never done with Carmy he's going to stop the argument from escalating or at least he'll try to.
Another clue of a possible parrallel: we get clues throughout the episode fishes that donna is connected to claire. Keep in mind, after the scene with Donna yelling at Carmy to move the pot, we dive into Claire—an idealized relationship Carmy never had.
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After the scene with Carmy freaking out about Claire, Richie tells Tiffany about hooking Carmy up. Tiffany is surprised because from what she knows of Claire, she's so nice.
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Let's talk more about that nice thing that tiffany says...because it appears through 2x06 fishes.
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With the berzattos. Things and people just can't be nice. The berzattos are both kind and agressive. If claire is a bearzatto- then she has the same traits in that household. Probably being nice is not what Claire is- not fully at least.
Why this will happen the night of tiffanys wedding? Because tiffany and richie talk about claire and carmy.
And all tiffany knows is what claire said about the situation.
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There's going to be another theme similar to seasons 2 and 3, where Richie and Tiffany are the ones discussing or observing Claire and Carmy's relationship with the awareness of repeating cycles. But it's not just Carmy repeating the cycle of being like Donna; it's also his relationships resembling Claire mirroring Donna.
Because from the conversation with Tiffany and what she was told about Carmy, Claire throws pity parties like Donna.
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Sorry, but Claire is having a pity party over what Carmy said while he was having an existential crisis in the fridge.
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Claire annoyed with the question are you okay? Yeah similarities as it's been discussed here.
Now that Carmy has faced Chef David, as Jimmy mentioned, he has to confront it head-on. Carmy will begin to see the reality and let go of the idealized versions of his mother. He will see the truth about their relationship, which will lead him to end things that no longer serve him.
Apologizing to those he's hurt the right way carmy is going to be able to smile and show the tenderness in his heart. He'll have the courage to change and no longer carry things and people from his mother. He'll break a cycle.
Now if that argument is about syd? About carmy lying - about not doing anything with sydney?
The climax of the argument: Clairebear is going to try to make Carmy say the words "I love you" just to prove something. just as Donna makes him say the words..
Remember Donna is coming to the wedding too. Both Claire and Donna he'll have to face them, and Claire and Donna being in the same room together will make the resemblance even more obvious.
We shall seee. What a mess.
Tagging: @currymanganese @whenmemorydies @turbulenthandholding @moodyeucalyptus @vacationship @fresaton @vacationship
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awildteddy · 1 year
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kiddo who keeps stomping in rain puddles with no boots on + carer who picks them up and carries them over the puddles so their clothes don’t get wrecked
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mydearestdrabbles · 1 year
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sgsg first time regressing around each other (´。• ᵕ •。`) ♡
gojo: it happened when he returned back from a mission- a particularly tiring one, and was greeted with one of those unmistakably comfy hugs geto provided- the reunion and his exhaustion made it easy to slip so quickly, and with a little less shame then if he’d had to walk his partner through the ins and outs of things, but suguru was always good at learning by doing.
geto: it happened when he let his hair down, nevermind the reason- gojo quick to comb his fingers through it, wrapping strands around his fingers as he went along- his hands were so soft and inviting- coupled with the forehead kisses from time to time satoru managed to sneak between giggles and sweet nothings there was an undeniable fuzziness he felt must’ve been what his partner had described as regression- he slipped slower, taking the time to savor the smaller headspace as it overcame him, and acknowledge that he too deserved to be taken care of.
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rebellum · 2 years
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I feel like... Perhaps... Arguing that transphobia is defined by murder and that anything other than murder doesn't even matter... May NOT be conducive to fighting for trans rights.
Like... people want the right to exist as they are. They want to have access to hrt and surgeries and prosthetics. People want access to clothes that fit them and reflect how they want to be seen. People want access to medical care (eg. Getting screened and treated for sex-based forms of cancer can be impossible if you have the "wrong" sex listed to receive those tests). People want to be respected and treated well. People want to not be sexually assaulted and beaten and abused. People want to have access to housing and jobs, and the protection to not lose those things for being trans. People want access to shelters for homeless people or survivors of domestic abuse. People want name changes.
Acting like all of those things don't matter because at least they weren't murderered by an individual (and instead die of suicide or state violence, or survive and suffer) isn't okay.
#'hey people are forcibly detransitioning you and raping and beating you and you lost your job and are going to be homeless and#probably die of infection from being stabbed for trying to go to the bathroom. but at least you arent part of a demographic that has a#higher murder victim rate! shhh just ignore that we dont actually have data on the murder rate of your group.'#do ppl like. forget state based violence exists. and that thats most violence minorities face.#idk man im just. mad about people on here acting like youre only oppressed if youre a perisex trans woman who was AMAB.#cause i exist at the intersection of multiple minorities and being told hey u experience violence but at least you wont be murdered by an#individual feels like a slap in the face.#like it doesnt matter if i have to mask my neurodivergent behaviour bc if people see they could assume im on drugs and call the police and#i could potentially be really hurt but not die but hey at least i wont die just be horrifically traumatized by police brutality!#there are millions of people with mental illnesses similar to my own around the world who are institutionalized and forcibly medicated or#living on the streets or dependant on horrifically abusive caregivers#but hey at least they arent being murdered!#like. the way the transphobia discussion on tumblr rn discusses (and doesnt discuss) race and ability and class and health makes me#feel very invisible.#like if people had to choose who to believe about my experiences between listening to me a black/mixed mentally ill maybe disabled (used to#be disabled) hella nd trans nonbinary person#or listen to a white middle class trans woman's take on my experiences that theyd choose her. its such a weird weird microcosm.#its like a monkeys paw like people are finally listening to trans fems and finally recognising the violence they experience and finally#actually caring about them but for some reason decide that in order to do that its necessary to throw every other minority under the bus#like fuck man have you seen how 'anti transandrophobia truthers' discuss race? its NOT okay#we all matter we all are so similar and are part of the same groups and same communities we need to stick together#stop using trans fems as a battering ram to hurt other minorities challenge#cause like. yes its some trans fems. but its mostly NOT?#like its non trans fems telling other non trans fems that they arent oppressed#and even when many trans fems are like what the fuck dude of course other trans ppl matter whats wrong with you#the group of like 80% non trans fems 20% trans fems are like 'hmm if you are defending other trans people you must not really be trans fem'#like. denying trans fems their identity bc they disagree with them?? dude someone doesnt stop being a trans fem cause they recognise#people other than trans fems matter and exist#its just all so WEIRD its a weird little tumblr microcosm#i wanna stress. for those of you who dont have access to other lgbtq+ communities. how much it seems to be primarily a tumblr thing. to
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everyone-is-emptyy · 1 year
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caremountain · 1 year
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Live in caregiver
One of the greatest benefits of hiring a live in caregiver is its affordability. It’s often cheaper to have a caregiver come in several days each week to assist seniors with their ongoing needs than it is to pay for a long-term living facility. This helps aging adults save up on their retirement money to plan for long-term care, if needed.
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shadystranger · 2 months
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it was so iconic samndean got this 3yo and decided to give him textbook parents fighting trauma hejjdej like it was a bless to the universe they couldn't reproduce so no one would suffer being raised by them but they still found a way to do it wow if there's a will there's a way I guess
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sevenangrybees · 7 months
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On one hand I'm so so excited for more people to meet mithrun in the anime and go nuts over him.
On the other I am so worried about folks not being cool about their bad ass fucked up fave needing caregivers.
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cjbolan · 27 days
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As I just today became an aunt, I can't comprehend how JD Vance call himself "pro-family" yet thinks women shouldn't help children who aren't theirs. Unless it's in a way that supports his extreme ideologies.
How does JD Vance think we survived so long as a human species?!!! We survived thanks to women helping children who aren't theirs!!!!!!
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despazito · 1 year
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Being second generation half Russian in Canada is like a weird purgatory bc of course i reap all the benefit of white privilege and pass as just another white Canadian mf yet ppl still treat your country of origin as some crazy foreign boogeyman and regurgitate insane propaganda, but if your parents retained their communist moral compass (75% of them turned into materialistic consoomers the moment the country opened up) you also just feel this immense cognitive disconnect from the west and Canadian ideology. It's like an identity in here ...
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A/N - okay but like no one told me no.. sooo CG LUMIERE HEADCANNONS :D!!! (Specifically the live action version <3) — gonna make a Moodboard too!!! (⁠≧⁠▽⁠≦⁠)!!!
Caregiver!Lumiere Headcannons
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He'd be a very fun Caregiver, he honestly thrives on chaos-
Amazing at cheering up a sad little. <3
"Chéri", "Little one", "Little Flower" & "Precious"
He will absolutely sing for you, he has such a lovely voice (self projection on the fact that I love Ewan McGregors voice- his voice is so calming 😭)
Can't exactly cook, y'know being a candelabra and stuff, however is brilliant at *planning* meals for you to have-
If you wanna have a tea party he will get everyone together 😌 (yes he can and will make cogsworth join in if you want him to lol)
Loves reading- on occasions will sit with Belle and will take it in turns with her to read to you.
He knows the best music.
He comes up with amazing stories, like on the spot- 😂
Sticker chart >>>
Celebrations and praise for everything. You got dressed today? Got out of bed? AMAZING, let's throw a little party-!!!
Is very cautious around you considering the whole fire situation..
I mean- you never have to worry about being scared of the dark with him around <3
When he turns back to a human all the hugs in the world!!! 😭💞
Would teach you to dance!!!
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mitskijamie · 9 months
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I'd love to hear more of your thoughts about Roy's family, if you have any.
Honestly, I imagine Roy's parents were okay. Not good but not awful. Sort of bare minimum. I think their household was stable (no abuse or explosive fighting or anything like that) and his parents provided for their children materially, but they were emotionally distant and withheld affection from their children and from each other. They probably should've gotten divorced some time ago, because they clearly don't actually love each other, but it's not like they're getting in screaming matches or anything, so you feel bad saying it. They were never the sort of parents who would cuddle you when you were upset and ask you what was bothering you (which is why Jamie and Georgie freaked Roy out so much), you'd just bottle it up and pretend you were fine until you started to trick yourself into feeling better. Yk
I know most people take his granddad being so heavily involved in his upbringing as a sign that his parents were all over the place and didn't take care of him, but I won't lie, I don't love that assumption. Intergenerational households and grandparents doing childcare are very very common worldwide, especially among families who don't have a ton of money, and we know the Kents were working class, so I always figured Roy's granddad was his daytime caregiver when he was little because his parents had to work and granddad was retired + would take care of him for free. I think his granddad was a lot more emotionally open and affectionate with him than his parents, though, and that's part of why Roy remembers him so so so fondly :(
As an adult, I think Roy has a somewhat functional relationship with his parents, but they're not close and don't see eye to eye on like. Anything. They're conservative and passive-aggressive (because the golden rule of the Kent household is to never address anything! you always bottle it up!) and Roy and Rachel (which is his sister's name. do NOT @ me) can't be in a room with them for more than like 2 hours without going insane.
They're constantly making backhanded comments about Rachel being a single mom, and then they piss and moan about how they never get to see Phoebe, like they have no clue why that would be. They don't approve of Keeley because she's a titty model, but then Roy starts bringing Jamie around and all they can talk about is how much they loved Keeley. They're "heartbroken" that Phoebe doesn't have any cousins and want to know when Roy is going to get married, but not to Jamie, because they think he's just looking for a "sugar daddy." Exhausting
Roy talks to them on the phone once every couple of months and sees them only on holidays. Holiday dinners are always followed by a 4 hour debrief with Rachel and like 3 bottles of wine
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crippled-peeper · 10 months
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if anon thinks I don’t get enough help for someone who claims to have an SCI they should Venmo me $500 right fucking now so I can actually fucking get help instead of being a whiny shrieking loser in my inbox about it
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uwugenides · 3 months
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anyways, venting in the tags cause what else
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