#Chronic Inflammation

[endometriosismemes]

[demiboydemon]

So sad about the United Health CEO :( has he tried yoga?

[420spoons]

Meme painting of a woman adorned in royal clothing and jewels. The text over the image reads, ‘Disabled people, watching all of the accommodations that were created because of COVID get ripped away as part of able-bodied peoples’ “attempt to get back to normal.”

[hannahcrazyhawk]

Autoimmune diseases, “Here, we got you this fever.”

Me: “Why!”

Autoimmune diseases, “Just because.”

[squid-socks]

So I saw a short commentary video on this the other day and I’d love some opinions!

What would you - as a disabled person - want others to do that would make your life easier? (Maybe what are things that mean you always have to have someone with you doing but you think should be normal to do by strangers?)

Thank you!!

[thecovenhouseco]

The scariest thing about being chronically ill and waiting to figure out wtf is wrong with you is dealing with scary symptoms you don’t know is just a symptom or something else that’s really serious. The anxiety from that itself is debilitating. My body feel like a torture device that I will never escape.

[fruitdragon]

My mother explaining my disability : Okay so you have GCK-MODY which means that if your insulin levels aren't regulated they will start to eat your connective tissues and your mitochondria isn't properly stimulated when nutrients enter the cell leading to chronic exhaustion. You also have Chronic Migraine, hemiplegic leading to partial paralysis and weakness of the limb leading to long term damage, as well as "regular" meaning some days you won't be able to get out of bed because the your senses are attacking your brain, sometimes leading to vomitting spells and blindness episodes. You are also suffering from Long COVID, post COVID myopathy and lactic acid overproduction....

Me explaining my disability: So yeah my parents genetics are a nightmare and I got cursed by the bone wizard, check out my forearm crutches

(my mother's explanation is actually usually much more detailed since she got her PhD in biology and biochemistry and works in patient engagement for research surrounding disability. But I gave what she will bring up in casual conversation)

[kellylynncurry]

I want my old body back Before the medication ravaged it And distorted it Gave it these aftereffects And turned it into this wreckage — Kelly Lynn Curry

From the book Radiant Poppy

[pcos-and-endo-awareness]

[anunavoidabledichotomy]

Me, before leaving my apartment three days ago: should I bring pain relief supplies? Nah, it's only 3 days, I should be fine

Me, now, after 3 pain filled days: damn

[beenovel]

I dream of things, just like anyone else. The things I dream of are so far beyond my reach I may as well be dreaming of riding a dragon.

I dream of a body that does not hurt. I dream of a mind I can trust. I dream of a life where I don’t have to down medication the second I wake up. I dream of travel, without the worry of where I’ll get my medication, without the worry of how the new environment will hurt me. I dream of holding a steady job, of being able to provide for myself, something I may never have. I dream of going through my day without having to calculate how much energy each task will consume.

I will never have most of these things. They will never exist in my life. And that is harder to accept some days.

[endometriosismemes]

Image: The singer of Ms. Jackson looks questioningly upwards Image caption:

Me: Explains what a chronic illness is Healty Person: Forever ever? end of image

[demiboydemon]

I was going to feel sad about the United Health CEO dying but my insurance doesn’t cover sympathy. Maybe losing weight will help?

[bluebird-poetry96]

Self Doubt in the Air

Why can’t I just...

Be.

Be a person who makes mistake,

Be someone who takes risks, and thinks themselves invincible,

Be a courageous person, live in the storm that is my soul.

Be a person who loves way too much, with such a force of-

Wait,

That’s one I have mastered...

I have banged that god forsaken hammer atop that nail,

Bending, breaking, busting

Beseeching to receive the same. 

i just want to be...

Free...

-Raven Blue Bell

[blitzsicedcoffee]

It's always so funny and awkward when you have a chronic illness and go to the urgent care where they know nothing about your chronic illness.

Doc: wow your heart rate and blood pressure are kinda high

Me: thanks it's the illness ~

Doc:....your...UTI?

Me:....no.

[thecovenhouseco]

Being physically ill and going to the doctor is the same as bringing in your car to the shop because it’s acting funny and the car running perfectly fine while at the shop.