#cidp

[redroses07]

The worst part about being chronically ill/ living with a rare disease, is I have to explain that I’m not in class cause I had an episode, fell on the floor, then couldn’t get out of bed.

[shapedforfighting]

The hardest part of coming to terms with having an autoimmune disease for me has been recognizing and accepting that I can no longer do everything I want to do. Nor everything I may want to do in the future. I can't have it all anymore. I have to choose.

[coffee-n-bagels-comic-universe]

I know that people aren't here for my real life situation, but I'm back in hospital (a different and better hospital) for more Ivig treatment, I know the writing says 24/06/24 but the cannula was put in my hand yesterday

[fandomangel]

I just wanted to let you guys know where I've been for the last 3 years. This video explains everything. I also want you all to know that I have missed you and want to start working on stuff again but it's going to take time.

That all being said I have released some new merch. It's some cool stuff if I do say so myself. (Though I might be a little biased.) I hope you all enjoy it as much as I enjoyed making them.

[oleander-teacup]

hey cidp gang. my dad was officially diagnosed after suspecting for several years just a few months ago and is having a really hard time with coming to terms with needing a mobility aid.

what would you suggest for easing someone into using a mobility aid? as someone else with autoimmune issues i use braces galore but i dont feel weird about using them because i know they help me to like. literally walk. so i dont exactly know where he's coming from here. any advice?

[disabledsysboxes]

Autoimmune - 4

[crinformativa-blog]

CCSS activa Centro de Información y Derivación de Pacientes para garantizar atención especializada

CR Informativa | redaccion@crinformativa.com San José, 28 de junio de 2024 – La Caja Costarricense de Seguro Social (CCSS) ha anunciado que activará el Centro de Información y Derivación de Pacientes (CIDP) este fin de semana. Esta medida busca garantizar la atención a los usuarios ante un aumento en las atenciones en los servicios de Emergencias y Urgencias de los establecimientos de salud, así…

[kghospital]

Guillain Barre Syndrome (GBS) - Best Neurology Hospital in Coimbatore

[cmtblogger]

Diagnostic Pathways for Idiopathic Neuropathy

“You have a serious illness of an undisclosed nature” says a doctor to a patient in a cartoon within Dr. Norman Latov, MD, PhD’s recent presentation on idiopathic neuropathy sponsored by the Foundation for Peripheral Neuropathy. There are many cases where people present neuropathic symptoms, but the causes are unclear. The current diagnostic pathways Dr. Latov maps out are familiar and…

[best-ghoul]

...I wonder if I should leverage my disability more insofar as building a "brand" as creator. Y'know, own it.

I'm used to hiding it for two reasons: I hate being depressing, and I fear people will see me like an employer does-- as defective and less valuable and unworthy of support.

Those fears are pretty cynical and unreasonable, but so is the world of content creation.

Like, "Transgirl with rare neurological ailment fighting through the pain to realize her vision" is a pretty compelling byline, right?

[silkysong]

i wish people were normal about chronic illnesses for 2 seconds

[fatbitchswag]

It's mental anguish

[coffee-n-bagels-comic-universe]

God, what a journey. I have CIDP.

On the 8th of May I was told that my official diagnosis is 'CIDP' (Chronic Inflammatory Demyelinating Polyneuropathy) I have gone from the introverted but all-out goth willing to wear that blue dress into a hospital (first pic) to (with a fresh haircut) the dying to be out of the house, sill goth, geek (last pic)

I say this not to beg for sympathy but to say I'm officially disabled and finally at a comfortable point to say that, I am weird, I am Autistic, and I'm practically wheelchair-bound.

I am a rare case, most CIDP cases aren't in their early 20s with no prior illnesses before this happens to them, but I am lucky enough to live in the UK and have free healthcare, I can complain about wait times in A&E, or the slow way hospitals communicate, but I'm writing this to say that you should look out for yourself, cause you never know what will happen.

[vaccinelaw]

Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare neurological disorder that causes the immune system to attack the myelin sheath protecting the peripheral nerves. It is a variant of Guillain-Barre Syndrome (GBS); and, like GBS, it has been linked to certain types of vaccinations. At The Vaccine Injury Attorneys, we provide legal representation to those who have been diagnosed with chronic inflammatory demyelinating polyneuropathy (CIDP) after receiving a vaccine. We understand the devastating impact this condition can have on a person’s life and we are here to help you seek the compensation you deserve. Our experienced team of vaccine injury lawyers has a successful track record of representing vaccine injury victims in VICP petitions and has recovered millions of dollars in compensation for our clients. We understand the complexities of vaccine injury law and are prepared to fight for your rights. Contact us today to learn more about how we can help you.

See More: https://vaccinelaw.com/lawyer/Chronic-Inflammatory-Demyelinating-Polyneuropathy-(CIDP)-Lawyer_cp20788.htm

[does-truth-matter]

The CDC has quietly changed who should AVOID the MMR vaccine.

https://www.cdc.gov/vaccines/vpd/mmr/public/index.html

They now state that ANYONE that “Has a parent, brother or sister with a history of immune system problems” should AVOID THE MMR VACCINE!

What exactly is an 'immune system problem?" Every autoimmune disorder.

* Achalasia

* Addison’s disease

* Adult Still's disease

* Agammaglobulinemia

* Alopecia areata

* Amyloidosis

* Amyotrophic lateral sclerosis (Lou Gehrigs)

* Ankylosing spondylitis

* Anti-GBM/Anti-TBM nephritis

* Antiphospholipid syndrome

* Autoimmune angioedema

* Autoimmune dysautonomia

* Autoimmune encephalomyelitis

* Autoimmune hepatitis

* Autoimmune inner ear disease (AIED)

* Autoimmune myocarditis

* Autoimmune oophoritis

* Autoimmune orchitis

* Autoimmune pancreatitis

* Autoimmune retinopathy

* Autoimmune urticaria

* Axonal & neuronal neuropathy (AMAN)

* Baló disease

* Behcet’s disease

* Benign mucosal pemphigoid

* Bullous pemphigoid

* Castleman disease (CD)

* Celiac disease

* Chagas disease

* Chronic inflammatory demyelinating polyneuropathy (CIDP)

* Chronic recurrent multifocal osteomyelitis (CRMO)

* Churg-Strauss Syndrome (CSS) or Eosinophilic Granulomatosis (EGPA)

* Cicatricial pemphigoid

* Cogan’s syndrome

* Cold agglutinin disease

* Congenital heart block

* Coxsackie myocarditis

* CREST syndrome

* Crohn’s disease

* Dermatitis herpetiformis

* Dermatomyositis

* Devic’s disease (neuromyelitis optica)

* Discoid lupus

* Dressler’s syndrome

* Endometriosis

* Eosinophilic esophagitis (EoE)

* Eosinophilic fasciitis

* Erythema nodosum

* Essential mixed cryoglobulinemia

* Evans syndrome

* Fibromyalgia

* Fibrosing alveolitis

* Giant cell arteritis (temporal arteritis)

* Giant cell myocarditis

* Glomerulonephritis

* Goodpasture’s syndrome

* Granulomatosis with Polyangiitis

* Graves’ disease

* Guillain-Barre syndrome

* Hashimoto’s thyroiditis

* Hemolytic anemia

* Henoch-Schonlein purpura (HSP)

* Herpes gestationis or pemphigoid gestationis (PG)

* Hidradenitis Suppurativa (HS) (Acne Inversa)

* Hypogammalglobulinemia

* IgA Nephropathy

* IgG4-related sclerosing disease

* Immune thrombocytopenic purpura (ITP)

* Inclusion body myositis (IBM)

* Interstitial cystitis (IC)

* Juvenile arthritis

* Juvenile diabetes (Type 1 diabetes)

* Juvenile myositis (JM)

* Kawasaki disease

* Lambert-Eaton syndrome

* Leukocytoclastic vasculitis

* Lichen planus

* Lichen sclerosus

* Ligneous conjunctivitis

* Linear IgA disease (LAD)

* Lupus

* Lyme disease chronic

* Meniere’s disease

* Microscopic polyangiitis (MPA)

* Mixed connective tissue disease (MCTD)

* Mooren’s ulcer

* Mucha-Habermann disease

* Multifocal Motor Neuropathy (MMN) or MMNCB

* Multiple sclerosis

* Myasthenia gravis

* Myositis

* Narcolepsy

* Neonatal Lupus

* Neuromyelitis optica

* Neutropenia

* Ocular cicatricial pemphigoid

* Optic neuritis

* Palindromic rheumatism (PR)

* PANDAS

* Parkinson's disease

* Paraneoplastic cerebellar degeneration (PCD)

* Paroxysmal nocturnal hemoglobinuria (PNH)

* Parry Romberg syndrome

* Pars planitis (peripheral uveitis)

* Parsonage-Turner syndrome

* Pemphigus

* Peripheral neuropathy

* Perivenous encephalomyelitis

* Pernicious anemia (PA)

* POEMS syndrome

* Polyarteritis nodosa

* Polyglandular syndromes type I, II, III

* Polymyalgia rheumatica

* Polymyositis

* Postmyocardial infarction syndrome

* Postpericardiotomy syndrome

* Primary biliary cirrhosis

* Primary sclerosing cholangitis

* Progesterone dermatitis

* Psoriasis

* Psoriatic arthritis

* Pure red cell aplasia (PRCA)

* Pyoderma gangrenosum

* Raynaud’s phenomenon

* Reactive Arthritis

* Reflex sympathetic dystrophy

* Relapsing polychondritis

* Restless legs syndrome (RLS)

* Retroperitoneal fibrosis

* Rheumatic fever

* Rheumatoid arthritis

* Sarcoidosis

* Schmidt syndrome

* Scleritis

* Scleroderma

* Sjögren’s syndrome

* Sperm & testicular autoimmunity

* Stiff person syndrome (SPS)

* Subacute bacterial endocarditis (SBE)

* Susac’s syndrome

* Sympathetic ophthalmia (SO)

* Takayasu’s arteritis

* Temporal arteritis/Giant cell arteritis

* Thrombocytopenic purpura (TTP)

* Tolosa-Hunt syndrome (THS)

* Transverse myelitis

* Type 1 diabetes

* Ulcerative colitis (UC)

* Undifferentiated connective tissue disease (UCTD)

* Uveitis

* Vasculitis

* Vitiligo

* Vogt-Koyanagi-Harada Disease

Wonder how many doctors are paying attention?

~shared from Jodi Wilson