#cidp

[redroses07]

The worst part about being chronically ill is constantly feeling like you are unworthy of love.

[shapedforfighting]

The hardest part of coming to terms with having an autoimmune disease for me has been recognizing and accepting that I can no longer do everything I want to do. Nor everything I may want to do in the future. I can't have it all anymore. I have to choose.

[coffee-n-bagels-comic-universe]

I know that people aren't here for my real life situation, but I'm back in hospital (a different and better hospital) for more Ivig treatment, I know the writing says 24/06/24 but the cannula was put in my hand yesterday

[fandomangel]

I just wanted to let you guys know where I've been for the last 3 years. This video explains everything. I also want you all to know that I have missed you and want to start working on stuff again but it's going to take time.

That all being said I have released some new merch. It's some cool stuff if I do say so myself. (Though I might be a little biased.) I hope you all enjoy it as much as I enjoyed making them.

[oleander-teacup]

hey cidp gang. my dad was officially diagnosed after suspecting for several years just a few months ago and is having a really hard time with coming to terms with needing a mobility aid.

what would you suggest for easing someone into using a mobility aid? as someone else with autoimmune issues i use braces galore but i dont feel weird about using them because i know they help me to like. literally walk. so i dont exactly know where he's coming from here. any advice?

[redroses07]

yes. I do not want you to pity me because I am disabled. I’m a person just like you, I just need a little extra help sometimes.

Say it with me! Wheelchairs aren’t sad! Mobility aids aren’t sad! Mobility aids are instruments of freedom!

[leoandraphssoulmate]

Every damn time! Especially the ER! Even tho l clearly have 2 different autoimmune conditions!!!

[springstick]

A Kinda Ramble About Health

Sorry for not posting for a few days. I have been struggling with my immune condition a lot recently. I've been getting really bad tremors in my hands, and loss of motor function, and temporary paralysis in my right hand (probably from overuse / note taking). I have a hard time writing and typing. I'm working on getting appointments set up with my doctors, but it's a week before finals and my neurologist is 2 hours away. Does anyone who has CIDP have any advice?

[disabledsysboxes]

Autoimmune - 4

[crinformativa-blog]

CCSS activa Centro de Información y Derivación de Pacientes para garantizar atención especializada

CR Informativa | redaccion@crinformativa.com San José, 28 de junio de 2024 – La Caja Costarricense de Seguro Social (CCSS) ha anunciado que activará el Centro de Información y Derivación de Pacientes (CIDP) este fin de semana. Esta medida busca garantizar la atención a los usuarios ante un aumento en las atenciones en los servicios de Emergencias y Urgencias de los establecimientos de salud, así…

[kghospital]

Guillain Barre Syndrome (GBS) - Best Neurology Hospital in Coimbatore

[redroses07]

The worst part about being chronically ill/ living with a rare disease, is I have to explain that I’m not in class cause I had an episode, fell on the floor, then couldn’t get out of bed.

[coffee-n-bagels-comic-universe]

God, what a journey. I have CIDP.

On the 8th of May I was told that my official diagnosis is 'CIDP' (Chronic Inflammatory Demyelinating Polyneuropathy) I have gone from the introverted but all-out goth willing to wear that blue dress into a hospital (first pic) to (with a fresh haircut) the dying to be out of the house, sill goth, geek (last pic)

I say this not to beg for sympathy but to say I'm officially disabled and finally at a comfortable point to say that, I am weird, I am Autistic, and I'm practically wheelchair-bound.

I am a rare case, most CIDP cases aren't in their early 20s with no prior illnesses before this happens to them, but I am lucky enough to live in the UK and have free healthcare, I can complain about wait times in A&E, or the slow way hospitals communicate, but I'm writing this to say that you should look out for yourself, cause you never know what will happen.

[cmtblogger]

Diagnostic Pathways for Idiopathic Neuropathy

“You have a serious illness of an undisclosed nature” says a doctor to a patient in a cartoon within Dr. Norman Latov, MD, PhD’s recent presentation on idiopathic neuropathy sponsored by the Foundation for Peripheral Neuropathy. There are many cases where people present neuropathic symptoms, but the causes are unclear. The current diagnostic pathways Dr. Latov maps out are familiar and…

[best-ghoul]

...I wonder if I should leverage my disability more insofar as building a "brand" as creator. Y'know, own it.

I'm used to hiding it for two reasons: I hate being depressing, and I fear people will see me like an employer does-- as defective and less valuable and unworthy of support.

Those fears are pretty cynical and unreasonable, but so is the world of content creation.

Like, "Transgirl with rare neurological ailment fighting through the pain to realize her vision" is a pretty compelling byline, right?