#chronic exhaustion

[wolfchanw]

Off my usual topic, I want to talk about idiopathic hypersomnia for a minute.

I have been tired for YEARS. I sleep and sleep and sleep and I can still fall asleep at the drop of a hat. I have followed alllll the sleep hygeine advice, regular physical activity, giving up caffeine. I went to the doctor and got my iron levels up, started using a CPAP.

I was sleeping 10 hours a night, napping two hours in the afternoon, and I was still exhausted and crabby all. the. time.

I was convinced that this was something I was doing wrong. I wasn’t cut out for motherhood, I wasn’t following the advice correctly, I needed to…I don’t know, something.

I finally asked my doctor for a referral to a sleep specialist. She talked to me at length, but it at one point she looked at my CPAP data and I saw her eyes get huge. “Is this ACCURATE?!” she asked me “You sleep a LOT!”

So. With a hypersomnia diagnosis she got me started on a stimulant medication to help me stay awake during the day. This was two weeks ago and I am MIND BLOWN. I was worried that I might feel…amped up, but I just feel like myself for the first time in years.

I don’t need a nap. I can play with my kid, I can push the swing. I can walk the dog. I CAN GO OUT TO DINNER. My well of patience is so much deeper because I’m not fighting to stay awake after 2pm.

We’re still pursuing more diagnostics, including a 24 hour sleep study to see if I have a form of narcolepsy and some more blood work. But. I feel like I’ve gotten a fresh start.

So please. If you’ve got something weird going on physically or mentally and you KNOW it’s not right, keep pushing for more diagnostics, ask for referrals, get to the bottom of it!

[furiousgoldfish]

[thevoidpeeringback]

I think the scariest thing about having a chronic illness is you truly don’t know what you’re going to feel like from one day to the next.

Yesterday I was able to shower and stand up for more than 10 minutes and today breathing is hard.

The unpredictability and the sheer fear of having to deal with flare ups and feeling like everything is falling apart constantly.

I am tired.

[fruitdragon]

Went out today because I needed some new paint brushes

Found a statue of the dude that founded my University

Note, I heard some people talking about how expensive alt is. Almost everything in this outfit is thrifted or handmade with the exception of my forearm crutches and accessories.

The base vest was 6 bucks at the local thrift shop and I hand studded it, most patches I didn't make I traded for within the local community, and my pins are mostly from events in the area. My collar is made of an old belt and some claw spikes from studsandspikes (I order in bulk, that's the most expensive part so I've been making my own spikes recently) and all my chain is from old necklaces (mostly thrifted) time, effort, and imagination (also willingness to stab yourself with a needle like a hundred times)

[cynthiadasorceress]

Transformers: Prime headcanon

Spoilers ahead!

I headcanon that after that one episode where he almost dies from Energon poisoning, Raf is almost always exhausted. He also has a ton of health issues and an irregular heartbeat.

I never liked how he was just fine after getting poisoned and nearly dying. I feel like he would have some sort of problem after that, especially with how young he is.

[justsheerfilth1]

People don’t talk about how frustrating chronic exhaustion is. I honestly feel like a zombie some days, with the energy of someone who hasn’t slept in a week having to act the same as healthy able bodied people do 🙃🙃🙃

[asymmetricalhealing]

One of my coworkers went to the dr. Just not feeling well.

Dr ran all sorts of blood work.

Results the next day.

Meanwhile I'm on year 15 of "if you lost weight you'd feel better"

I'm not angry. Explosively murderous.

I mean my blood tests come back wonky and they are like "hmmmmm. But when was your last cycle. "

[nd-babblinggoblinfromthevoid]

I hate waking up and being ready to just go back to sleep again. No matter the amount of sleep.

30 minutes

3 hours

13 hours

I've even pulled a 30+ before (that was due to medication mixup and was scary but anyway)

Doesn't matter. Always exhausted. Always ready to hunker down for nap/sleep. Years and years of fatigue. I barely remember what it was like to be hyper and energetic and bouncing around ready for adventures.

Now I'm only ever mentally pining for adventures knowing full well my body wouldn't let me go and if I went anyway it'd be the last anyone saw of me.

I need to interrupt this pitiful whining with the observation that my youngest's silhouette right at this moment looks like shinchan standing on the dining room chair particularly his head-cheek shape and well that's all carryon

[radiyostatic]

hypersomnia is actually the worst thing ever i slept for 14 hours yesterday and took a nap earlier and now im probably about to take a nap again bc sleeping is the only thing i have energy for

[whitewolfstracks]

Hey, after publishing this post, some of you offered help, and though I never thought I'd find myself in this situation, I decided to set up Buy me a coffee. Well, in my case it's Buy me a meal 😅

You can find me there @whitewolfsoul

I'll never be making any exclusive content or offer membership, this is based on strictly voluntary one-time support. Though, once I get my tablet fixed, I can make you a commission as a thank you gift at least xD

For more info, you can either read the linked post, or I'll also share my profile info from Buy me a coffee below. If you decide to donate, know I'm really extremely grateful!!!

I wouldn't be doing this if I wasn't absolutely desperate, I have problems with accepting help.

"I never thought I'll be doing this, but I've reached the most desperate time of my life.

For two years now, I've been unable to work because of extreme exhaustion. I've gone through multiple tests, which proved nothing, so the doctors ruled it's a result of my mental health.

Thanks to my multiple mental health disorders, I've been found elegible for disability pension, but just the lowest level. Right now, I'm living from state benefits that barely cover my rent, I get my food from food banks.

The problem is that for the past year, I've been suffering from worsening joint pains. Again, multiple tests that proved nothing yet, but I can't walk at this point. I can't even go to the shop or pick up my post, and food or medicine delivery is expensive.

It will take three more months for my disability pension to come, but that won't even cover my rent. Due to all of this, my mental health is deteriorating, and I'm also losing things that I need to replace, making mistakes that cost me money because my brain is so overwhelmed.

If you would find it in your heart to make a small donation just so I could buy some food, I would be extremely grateful. I don't share much about my condition online, but if you wanted to contact me to make sure I'm a legitimate person, below is my blog address."

Thank you! ♡

[traashgremlin]

Hm question to my disabled folks who suffer chronic all over body pain and chronic heavy never goes away exhaustion. Mobility aids?

Cane's don't seem to work well for me.

So i was thinking crutches. But I'm so tired all the time that I worry that wouldn't work either.. but being plus sized. And young. I'm so scared of judgement by others over me being in a wheelchair.

But. My current thing is is i don't have a diagnosis yet. But I've been seeing doctors for almost 5 years trying to find out what is wrong. Over these years I've been suffering from a horrible exhaustion that doesn't go away no matter what I do. And pain that is most times unbearable but I grit my teeth and deal for the time being.

But I'm just looking for some advice I suppose

[actualaster]

"How can you be tired?! You didn't do anything yet today!"

The mere act of being a physical entity exhausts me, if I am awake I am tired because it uses so much energy to be conscious.

[furiousgoldfish]

me: moves around

my chronically ill body: this is a personal attack

[thevoidpeeringback]

I want to make this abundantly clear, just because someone isn’t talking about their pain or their struggle does not mean they are ✨magically better and healed✨

[fruitdragon]

There's a girl in my class who can be nice but she's very religious and while talking about my disability said "God doesn't give us more than we can bear and if you believe enough you will be healed."

Also "You're a nice person so I believe that you will get better." I tried to explain that I am chronically ill and my bones and ligaments are unlikely to ever heal and she insisted "you will."

I'm so tired of this. She insisted that since I'm a good person I will get better and I'm stuck on does she believes those who are disabled are just automatically bad people? Or haven't believed in God enough?

[narcissism-positivity]

How to be a narc who loves chatting with and appreciating other narcs

But I rarely have enough spoons to actually respond 😭😭😭