#chronic exhaustion
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having a body is so fucking high maintenance
#ana posts#disabled#actually disabled#physically disabled#disability#mobility aids#braces#girlhood#teenage life#childhood#periods#menstruation#chronic pain#chronic illness#chronic exhaustion
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#chronic fatigue#chronic pain#chronic exhaustion#pain management#aftermath of abuse#at least i get to have a good time sometimes a little bit#its minutes
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I think the scariest thing about having a chronic illness is you truly don’t know what you’re going to feel like from one day to the next.
Yesterday I was able to shower and stand up for more than 10 minutes and today breathing is hard.
The unpredictability and the sheer fear of having to deal with flare ups and feeling like everything is falling apart constantly.
I am tired.
#chronic illness#ocd#chronically ill#chronic fatigue#chronic pain#chronic exhaustion#chronically fatigued#im so tired#chronicepisode#frick
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Went out today because I needed some new paint brushes
Found a statue of the dude that founded my University
Note, I heard some people talking about how expensive alt is. Almost everything in this outfit is thrifted or handmade with the exception of my forearm crutches and accessories.
The base vest was 6 bucks at the local thrift shop and I hand studded it, most patches I didn't make I traded for within the local community, and my pins are mostly from events in the area. My collar is made of an old belt and some claw spikes from studsandspikes (I order in bulk, that's the most expensive part so I've been making my own spikes recently) and all my chain is from old necklaces (mostly thrifted) time, effort, and imagination (also willingness to stab yourself with a needle like a hundred times)
#thoughts#disability#chronic pain#chronic exhaustion#forearm crutches#punk jacket#punk rock#punk diy#diy or die#my outfits
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it's always been weird to me people attribute certain things to being/getting old. like pain, being tired, lack of energy, memory issues, mobility issues, digestion issues, etc.
as a disabled person with chronic issues that include all these, this mindset has led to me never taken seriously and my problems dismissed as a kid. "you're too young to feel pain/be tired/forget things/etc you just want attention/are lazy" that just taught me to ignore my problems and not get help because it's "not bad enough"
but everyone my age will talk about "oh I feel so old I feel my age hitting me because i'm so tired and my back hurts now" while I'm sitting here like IVE BEEN THIS WAY MY WHOLE WHAT DO YOU MEAN ITS ONLY FOR OLD PEOPLE (we aren't even old. 30 is not old. which makes me even more confused)
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Transformers: Prime headcanon
Spoilers ahead!
I headcanon that after that one episode where he almost dies from Energon poisoning, Raf is almost always exhausted. He also has a ton of health issues and an irregular heartbeat.
I never liked how he was just fine after getting poisoned and nearly dying. I feel like he would have some sort of problem after that, especially with how young he is.
#ramblings of a sorceress#transformers aligned#aligned continuity#transformers#tfp#tfp raf#transformers: prime#transformers prime#raf esquivel#rafael tfp#rafael esquivel#raf tfp#tfp rafael#chronic exhaustion
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I don’t know how to live with this chronic pain. It’s so bad I can’t sleep, which of course, worsens my chronic exhaustion. I’m at the max of my pain meds. I was given an uppage of a dose three days ago by three tablets just Incase. I needed all three immediately.
Those with chronic pain, how do you do it? A lot of times, it’s hard to even get out of bed and I need help just to sit up.
Edit: Marijuana in all forms is illegal where I live.
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I hate waking up and being ready to just go back to sleep again. No matter the amount of sleep.
30 minutes
3 hours
13 hours
I've even pulled a 30+ before (that was due to medication mixup and was scary but anyway)
Doesn't matter. Always exhausted. Always ready to hunker down for nap/sleep. Years and years of fatigue. I barely remember what it was like to be hyper and energetic and bouncing around ready for adventures.
Now I'm only ever mentally pining for adventures knowing full well my body wouldn't let me go and if I went anyway it'd be the last anyone saw of me.
I need to interrupt this pitiful whining with the observation that my youngest's silhouette right at this moment looks like shinchan standing on the dining room chair particularly his head-cheek shape and well that's all carryon

#chronic fatigue#chronicillness#chronically ill#chronic illness#chronic exhaustion#chronically exhausted#so tired#so unbelievably tired#always down to nap#shinchan#pots#potsawareness#life with pots#potsie#pots syndrome#postural orthostatic tachycardia syndrome
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People don’t talk about how frustrating chronic exhaustion is. I honestly feel like a zombie some days, with the energy of someone who hasn’t slept in a week having to act the same as healthy able bodied people do 🙃🙃🙃
#what did I do in a past life#something real bad#disability#disabilities#chronic fatigue#chronic exhaustion#chronic pain#ehlers danlos syndrome#fibromyalgia
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Can't be assed (usually due to chronic pain and exhaustion, but sometimes I'm just apathetic) to take care of myself and home but I CAN Be Bribed

[Image Description: a notebook page that says "Level 0 twelve/ twenty/twenty-four. Underneath that is a list of tasks, each with a square to be filled in front of it and EXP points at the end of it. The tasks are: Do dishes (filled in, 5 points; Clean apartment (2 points); Eat at least 1 substantial meal (filled in, 1 point); Read at least one chapter of book (1 point); Write (2 points); Brush teeth (filled in, 3 points); Look up city wifi [program] (filled in, 1 point); Try and clean blood stain (filled in, 2 points), Unclog bathroom sink (filled, 2 points); Powder (filled in, 1 point); and French (3 points). At the bottom it says "Reward: ["black sketchbook" has been crossed out and replaced] Heavenly Tyrant", followed by fifty boxes, fifteen of which are filled in. End I.D]
Depending how quickly I level up, might increase the points needed to one hundred bc I can't afford to buy myself little treats all the time 😭
#i believe this is called gamification but definitions differ#to do list#not my bujo it's one of my Beryl Cook pocket notebooks i stuck to my phone case#stationery#chronic pain#chronic illness#chronic exhaustion#general apathy#motivation#edit bc I missed an item on the list
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kaz brekker not only suffers from chronic pain but also chronic illness and chronic exhaustion. his issues basically just never go away
#ana posts#kaz brekker#six of crows#crooked kingdom#soc ck#grishaverse#chronic pain#chronic illness#chronic exhaustion#disabled#disability#disability awareness#disability pride#disabilities#disability representation#physical disability#invisible disability#actually disabled
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I want to make this abundantly clear, just because someone isn’t talking about their pain or their struggle does not mean they are ✨magically better and healed✨
#chronic illness#chronically ill#chronic fatigue#chronic pain#chronic exhaustion#chronicepisode#invisible illness#painful
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One thing about disability and chronic pain is that sometimes I'm not sure if I'm in pain (regular or spikes, body be like that) or PAIN (should seek medical attention, like is my heart hurting to hurt or is there something wrong is my hip actually reinjured or just I just pull a muscle in an already fucked up system and the cold is getting to be
IT WOULD BE NICE TO KNOW FOR SURE IF FALLING DOWN THE STAIRS GAVE ME A CONCUSSION OR IT JUST SET OFF AN ALREADY BUILDING MIGRAINE
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Hey, I never thought I'd find myself in this situation, but after some of you offered help, I decided to set up Buy me a coffee. Well, in my case it's Buy me a meal 😅
You can find me there @whitewolfsoul
I'll never be making any exclusive content or offer membership, this is based on strictly voluntary one-time support. Though, once I get my tablet fixed, I can make you a commission as a thank you gift at least xD
For more info, you can either read the last post about my situation, or I'll also share my profile info from Buy me a coffee below. If you decide to donate, know I'm really extremely grateful!!!
I would also really appreciate, if you could share this post. Thank you! ♡
I wouldn't be doing this if I wasn't absolutely desperate, I've always had issues with accepting help.
"I never thought I'll be doing this, but I've reached the most desperate time of my life.
For two years now, I've been unable to work because of extreme exhaustion. I've gone through multiple tests, which proved nothing, so the doctors ruled it's a result of my mental health.
Thanks to my multiple mental health disorders, I've been found elegible for disability pension, but just the lowest level. Right now, I'm living from state benefits that barely cover my rent, I get my food from food banks.
The problem is that for the past year, I've been suffering from worsening joint pains. Again, multiple tests that proved nothing yet, but I can't walk at this point. I can't even go to the shop or pick up my post, and food or medicine delivery is expensive.
It will take three more months for my disability pension to come, but that won't even cover my rent. Due to all of this, my mental health is deteriorating, and I'm also losing things all the time that I need to replace, making mistakes that cost me money because my brain is just so overwhelmed.
If you would find it in your heart to make a small donation just so I could buy some food, I would be extremely grateful. I don't share much about my condition online, but if you wanted to contact me to make sure I'm a legitimate person, below is my blog address."
Thank you! ♡
#temporary pinned#housebound#disabled#chronic joint pain#chronic exhaustion#disabled lesbian#actually autistic#actually mentally ill#actually borderline#disabled therian#actually cptsd#unemployed#chronic pain#destitute#poverty#financial help#not kin related
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hypersomnia is actually the worst thing ever i slept for 14 hours yesterday and took a nap earlier and now im probably about to take a nap again bc sleeping is the only thing i have energy for
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Hm question to my disabled folks who suffer chronic all over body pain and chronic heavy never goes away exhaustion. Mobility aids?
Cane's don't seem to work well for me.
So i was thinking crutches. But I'm so tired all the time that I worry that wouldn't work either.. but being plus sized. And young. I'm so scared of judgement by others over me being in a wheelchair.
But. My current thing is is i don't have a diagnosis yet. But I've been seeing doctors for almost 5 years trying to find out what is wrong. Over these years I've been suffering from a horrible exhaustion that doesn't go away no matter what I do. And pain that is most times unbearable but I grit my teeth and deal for the time being.
But I'm just looking for some advice I suppose
#disabled#mobility assistance#mobility aid#questions#mobility aid question#disabled community#chronic pain#chronic exhaustion#chronic illness#unknown illness
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