#representation of chronic illness
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disabled people when their disability disables them
#chronic illness#disability#chronic pain#spoonie#ibs#chronically ill#gerd#pots#arthritis#disability representation#disability blog#gastroesophageal reflux disease#autoimmune disease#spoonie stuff#spoonie memes#spoonie humor#spoonie life#disabled#chronic disability#disability humor#chronic illness meme#chronic migraine#invisible illness#illne#shitpost#funny
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#spoonie#chronic illness#chronically ill#chronic disease#invisible disability#disabled#disabled people#disability#mentally disabled#actually disabled#disabled artist#disabled girl#disabilties#disabled pride#disabled representation#disabled community#disabled life#disabled rights#disabledcreator#physical disability#physically disabled#disabledandcute#psychology
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Gentle reminder that your disability and/or chronic illness struggles are valid, even if others have it worse. It’s not like there’s one definitive Most Disabled Person In The World and they’re the only one entitled to accommodations or reactive emotions. That’s not how it works <3
#physical disability#chronic illness#neurological disability#adhd autistic#audhd#neurodiversity#did osdd#late diagnosed autistic#complex trauma#invisible disability#invisible illness#intersectionality#comorbidities#comorbid conditions#disability representation#disability accommodations#disability advocacy#chronic pain#chronic fatigue#chronically ill#disabled representation#disabled rant#disability things#chronic illness things
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I wish there was more representation of disabilities and chronic illness in fantasy, science fiction and action genres.
Not just a side character with 30 seconds of screentime. An important character that doesn't just exist to further the storylines of other characters. I want a character that doesn't get "cured" or healed. A character that stays disabled and/or chronically ill. A character that isn't afraid to ask for help. One that doesn't think they're a burden and doesn't try to hide their disability/ chronic illness.
I want to see how it affects them, not just know they're disabled/chronically ill and it jist never gets mentioned again. I don't mean it should be their entire personality but being disabled and or chronically ill can affect many parts of life.
I just wish there was more representation of disabilities and chronic illness that shows every part of it. Especially in fantasy and science fiction it's lacking.
#disabled#disability#chronic illness#chronically ill#tumblr#cripple punk#fantasy#science fiction#action#representation#disability representation#chronic illness representation
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As Invisible In Books As I Am In Life
"The more time I spend inside books, the more my life feels as fictional as what I'm reading. Because books rarely reflect any fragments of my reality of living with a #chronicillness."
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#books#chronic illness#chronic pain#literature#representation of chronic illness#representation of chronic illness in books#sick-lit#spoonie
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One thing to think about when writing characters with chronic illnesses is that, even if someone knows what illness(es) they have, they may not be able to triangulate what symptoms come from what illness, which means that trying to improve quality of life/reduce symptoms can involve a whack-a-mole of medication and other treatment options to try to hit the right combination in the right way.
Stories often write illness and disability as a linear, straightforward thing--you treat x and y improves--but it often looks a lot more complicated than that. Unlike what medical shows tend to imply, doctors often don't have a clean way to pinpoint what's wrong, because a lot of things have overlapping symptoms, and so diagnoses are as much about exclusion as anything else.
Sometimes, different drugs that someone may need to treat their symptoms are contraindicated, so they either can't take both/all of them and have to pick what is most necessary or they face other negative side effects from taking them at the same time.
Chronic illnesses are messy and complicated! You don't need to simplify them when you write about them.
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Gerald’s Journal - Disability representation
I read scans of Gerald’s Journal and I have to talk about it. Not the lore or anything like that, but the disability rep. I didn’t expect to cry reading this.
Please don’t look at this post if you don’t want to be spoiled about what’s in this journal. If you do want to read it, you can find scans here. Credit to this Twitter/X thread for the images I’ll use.
I don’t have much to say about this image, but it is nice to see Maria using a mobility aid. It’s not often we get representation for an ambulatory wheelchair user.
I do wonder about Maria’s relationship with her parents. They weren’t happy with Gerald’s wish to bring her to the ARK so that he could research a cure for her, but they let her go anyways? Maybe Gerald got some sort of order to get her to go or Maria decided she wanted to go with him, but it seems a little odd to me. I’ll expand on this a little later.
Quote from right page: “[Maria] is growing into a lovely young woman. It breaks my heart that someone as bright and energetic as her is diminished by disease. There are no visible effects, and I’ve caught my fellow researchers muttering to each other, doubting her illness. It is infuriating. I find all my reason and restraint vanished when she’s slighted.”
Oh my days, I’ve never felt so seen by a piece of media and it just so happens to be my special interest video game. I am tearing up again thinking about this. Maybe that’s silly but to have a character express his frustrations about people doubting the invisible disability of his grandchild is so touching. I wish people in my life were more like Gerald. People with invisible illnesses get doubted so much because we “look fine”, but it’s so invalidating to have your struggles questioned just because the symptoms aren’t as visibly obvious.
Quote from left page: “[Maria] doesn’t know the full scope of what [Shadow] has been designed for, but she understands he will be under tremendous strain. She’s helped me conceptualize a number of accessories that will help focus his power and aid in his mobility.”
So we now have confirmation that Shadow’s air shoes and inhibitor rings are akin to mobility aids. I headcanoned this but I didn’t know they’d flat out confirm it like that. My favourite character is canonically disabled physically (and I’d argue mentally given his PTSD). I don’t have much to say about this besides being happy that my favourite character is now even more relatable.
It also makes a lot of sense for Maria to help create them because she has experience with her own disability and can offer a perspective that an able bodied person couldn’t. That and it makes Shadow’s connection so much stronger. His mobility aids were designed by Maria. He didn’t just help her with her disability - she helped with his. He wouldn’t be able to function without what she and Gerald created for him.
Quote from the right: “Back on Earth [Maria’s?] parents have been blessed with another little girl. They’re already run tech(?) and she has none of the genetic markers like to [Maria’s] condition. While this was welcomed news, the unspoken commentary was received loud and clear.”
(I am assuming they’re talking about Maria’s sister, but I guess they could also be talking about her cousin.)
So did Maria’s parents see their new daughter as a replacement? If I’m reading that correctly, it’s so sad. Do you think Gerald told Maria about her sister/cousin? If she did know about it, I bet she was excited to meet her. But I get the feeling that her parents back home didn’t really care about her anymore given what Gerald says in his journal. It hurts that much more when you consider how much Maria wanted to go home, perhaps even return to her family.
I feel like all of this makes Maria’s death more tragic for both Gerald and Shadow. For Gerald, he did so much reason and sacrificed so much in order to try and find a cure for Maria. He supported her when no one else did. And from his perspective, despite her illness and the judgement of others, including potentially her own family, she was still positive. And yet she was killed, and he only found out about her death because of a report that had her name on it (I think anyways?).
From Shadow’s perspective, she is the person who gave his name meaning. Despite most being distant and weary of her, she was immediately friendly to him and helped teach him about the world. She helped created the devices used to reduce his pain and control his powers. He quite literally carries part of him with her. She was his sole reason for existing for a long time. And despite being this super supportive, kind, loving person, she was killed. I can imagine him being mad at Gerald for messing with his memories, but I figure there’s a degree of understanding, even if he doesn’t fully agree with what Gerald did. The difference between them both is Shadow’s purpose shifted beyond Maria while Gerald’s did not. Anyways, I digress - this post is about disability rep, not Shadow lore.
I love this and Dark Beginnings for their direct and indirect disability rep. My love for Shadow and Maria has only grown and I have a deeper appreciation for Gerald. I wish more people were as understanding as he is towards people with invisible disabilities.
I don’t really have a conclusion. I just really wanted to yap about the journal entries.
#I’m so excited to play SxS Gens tomorrow!!#gerald’s journal#sonic x shadow generations#shadow dark beginnings#sonic x shadow dark beginnings#gerald robotnik#maria robotnik#shadow the hedgehog#sonic the hedgehog#sonic#sth#disability representation#invisible disability#invisible illness#chronic illness#sonic disability stuff#nagichi talks
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sorry to my star wars/marvel followers but i just need to talk about A Quiet Place: Day One for a minute because i feel like it’s one of the first mainstream “end of the world” movies that taps into the potential storylines of people with chronic illness/pain. like one of my first thoughts anytime i watch a movie where infrastructure collapses and transportation goes out i run through a mental list of pharmacies in my area and think about which ones i could reach on foot within a day. or how obstacles that just inconvenience other travelers could fully stop me from getting my prescription. i worry about how different pharmacies are organized and if they’d have enough of my specific medication to get me through however long it takes for the world to come back, if it ever does. Lupita acted that feeling so well, and her outlook on the apocalypse was so different than any other character i’d seen because Sam already knew she was dying, and she was going to die whether or not the creatures came. so she’s not worried about getting to safety or trying to rebuild a life, because she’s been preparing to leave life behind for years now. she just wants to be in her home neighborhood in places with good memories and good food, and go out on her own terms instead of waiting for the disease to catch up to her. she couldn’t just do that before the arrival, though, but she can once what was left of her life collapses and she knows everything she loves (Frodo, memories of her father, her poetry) is safe with someone she trusts. it’s such a reverse plot to the usual apocalypse where everyone’s fighting for long-term survival and trying to rebuild what they lost, while Sam takes her losses in stride and slowly relinquishes her important belongings to Eric so she can die in peace. god it’s just such a genius reversal of the usual fight-for-your-life storyline with huge untapped potential that i hope inspires other movies to explore similar plots because there’s so many directions a writer could take with a chronically ill character in an apocalyptic situation, and i would love to see a horror/scifi subgenre of people with chronic illness in survival situations. okay that’s all.
#truly the representation i didn’t know i needed#thank you lupita nyong’o john krasinki and michael sarnoski#a quiet place day one#aqpdo#a quiet place: day one#lupita nyong'o#joseph quinn#frodo the cat#chronic illness#not sw#not mcu
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Age Regression takes many forms.
Extra big shoutout and lots of love to my regressors who don’t have ’typical, active’ pastimes while regressed.
The regressors who don’t crawl on the floor with their toys because they have chronic pain
The trauma regressors who are burnt out by their regression
Littles with sleep disorders, disabilities, or other circumstances that leave them always too tired to play
Littles who live in hostile situations that prevent them from feeling safe enough to enjoy activities
Regressors who have allergies, autoimmune, ED, digestive problems, or other conditions that prevent them from having typical ‘kid snacks’
Littles with depression, primarily impure regression, have tantrums, or other emotional dysregulation that makes them unhappy when regressed
Physically disabled regressors who can’t run around outside and/or don’t have accessible park equipment
Neurodivergent Littles who find certain play and activities uncomfortable for whatever reason
Regressors who struggle with psychosis, delusions, or intrusive thoughts—especially scary ones
Littles who are frequently hospitalized, have to undergo procedures, and/or take medications that make regression difficult
Regressors who can’t afford to buy gear
Littled with disabilities, chronic pain or illness, and autoimmune disorders that leave them constantly feeling sick
Whether it’s due to a disability, chronic pain, depression, living situations, etc, regression is different for everyone, and that should be recognized. Whatever it is, your regression is valid and important. You are welcome here and you are a valued me ever of the community, even if your little space doesn’t look the same as someone else’s. So much of agere is advertised around things like playing with toys, going to the park, having snacks, etc. But that’s not how regression works for everyone, and their experiences shouldn’t be erased because they aren’t a certain ‘aesthetic.’
In fact, you’re really awesome, brave, and strong—and I’m proud of you! Keep on regressing, everyone!
-Marty ❤️
#agere community#sfw agere#sfw regression#agere blog#little space#age regression caregiver#sfw interaction only#age regression community#agere little#age regressor#Baby thoughts#disability#disabled#disabilties#disabled regressor#disabled representation#chronic illness#chronic pain#chronic fatigue#chronically ill regressor#Depressed regressor#Neurodivergent regressor#Neurodivergent#autism
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The Disability Library
I love books, I love literature, and I love this blog, but it's only been recently that I've really been given the option to explore disabled literature, and I hate that. When I was a kid, all I wanted was to be able to read about characters like me, and now as an adult, all I want is to be able to read a book that takes us seriously.
And so, friends, Romans, countrymen, I present, a special disability and chronic illness booklist, compiled by myself and through the contributions of wonderful members from this site!
As always, if there are any at all that you want me to add, please just say. I'm always looking for more!
Edit 20/10/2023: You can now suggest books using the google form at the bottom!
Updated: 31/08/2023
Articles and Chapters
The Drifting Language of Architectural Accessibility in Victor Hugo's Notre-Dame de Paris, Essaka Joshua, 2012
Early Modern Literature and Disability Studies, Allison P. Hobgood, David Houston Wood, 2017
How Do You Develop Whole Object Relations as an Adult?, Elinor Greenburg, 2019
Making Do with What You Don't Have: Disabled Black Motherhood in Octavia E. Butler's Parable of the Sower and Parable of the Talents, Anna Hinton, 2018
Necropolitics, Achille Mbeme, 2003 OR Necropolitics, Achille Mbeme, 2019
Wasted Lives: Modernity and Its Outcasts, Zygmunt Bauman, 2004
Witchcraft and deformity in early modern English Literature, Scott Eaton, 2020
Books
Fiction:
Misc:
10 Things I Can See From Here, Carrie Mac
A-F:
A Curse So Dark and Lonely, (Series), Brigid Kemmerer
Akata Witch, (Series), Nnedi Okorafor
A Mango-Shaped Space, Wendy Mass
Ancillary Justice, (Series), Ann Leckie
An Unkindness of Ghosts, Rivers Solomon
An Unseen Attraction, (Series), K. J. Charles
A Shot in the Dark, Victoria Lee
A Snicker of Magic, Natalie Lloyd
A Song of Ice and Fire, (series), George R. R. Martin
A Spindle Splintered, (Series), Alix E. Harrow
A Time to Dance, Padma Venkatraman
Bath Haus, P. J. Vernon
Beasts of Prey, (Series), Ayana Gray
The Bedlam Stacks, (Series), Natasha Pulley
Black Bird, Blue Road, Sofiya Pasternack
Black Sun, (Series), Rebecca Roanhorse
Blood Price, (Series), Tanya Huff
Borderline, (Series), Mishell Baker
Breath, Donna Jo Napoli
The Broken Kingdoms, (Series), N.K. Jemisin
Brute, Kim Fielding
Cafe con Lychee, Emery Lee
Carry the Ocean, (Series), Heidi Cullinan
Challenger Deep, Neal Shusterman
Cinder, (Series), Marissa Meyer
Clean, Amy Reed
Connection Error, (Series), Annabeth Albert
Cosima Unfortunate Steals A Star, Laura Noakes
Crazy, Benjamin Lebert
Crooked Kingdom, (Series), Leigh Bardugo
Daniel Cabot Puts Down Roots, (Series), Cat Sebastian
Daniel, Deconstructed, James Ramos
Dead in the Garden, (Series), Dahlia Donovan
Dear Fang, With Love, Rufi Thorpe
Deathless Divide, (Series), Justina Ireland
The Degenerates, J. Albert Mann
The Doctor's Discretion, E.E. Ottoman
Earth Girl, (Series), Janet Edwards
Everyone in This Room Will Someday Be Dead, Emily R. Austin
The Extraordinaries, (Series), T. J. Klune
The Extraordinary Education of Nicholas Benedict, (Series), Trenton Lee Stewart
Fight + Flight, Jules Machias
The Final Girl Support Group, Grady Hendrix
Finding My Voice, (Series), Aoife Dooley
The First Thing About You, Chaz Hayden
Follow My Leader, James B. Garfield
Forever Is Now, Mariama J. Lockington
Fortune Favours the Dead, (Series), Stephen Spotswood
Fresh, Margot Wood
H-0:
Harmony, London Price
Harrow the Ninth, (series), Tamsyn Muir
Hench, (Series), Natalia Zina Walschots
Highly Illogical Behaviour, John Corey Whaley
Honey Girl, Morgan Rogers
How to Become a Planet, Nicole Melleby
How to Bite Your Neighbor and Win a Wager, (Series), D. N. Bryn
How to Sell Your Blood & Fall in Love, (Series), D. N. Bryn
Hunger Pangs: True Love Bites, Joy Demorra
I Am Not Alone, Francisco X. Stork
The Immeasurable Depth of You, Maria Ingrande Mora
In the Ring, Sierra Isley
Into The Drowning Deep, (Series), Mira Grant
Iron Widow, (Series), Xiran Jay Zhao
Izzy at the End of the World, K. A. Reynolds
Jodie's Journey, Colin Thiele
Just by Looking at Him, Ryan O'Connell
Kissing Doorknobs, Terry Spencer Hesser
Lakelore, Anna-Marie McLemore
Learning Curves, (Series), Ceillie Simkiss
Let's Call It a Doomsday, Katie Henry
The Library of the Dead, (Series), TL Huchu
The Lion Hunter, (Series), Elizabeth Wein
Lirael, (Series), Garth Nix
Long Macchiatos and Monsters, Alison Evans
Love from A to Z, (Series), S.K. Ali
Lycanthropy and Other Chronic Illnesses, Kristen O'Neal
Never Let Me Go, Kazuo Ishiguro
The Never Tilting World, (Series), Rin Chupeco
The No-Girlfriend Rule, Christen Randall
Nona the Ninth, (series), Tamsyn Muir
Noor, Nnedi Okorafor
Odder Still, (Series), D. N. Bryn
Once Stolen, (Series), D. N. Bryn
One For All, Lillie Lainoff
On the Edge of Gone, Corinne Duyvis
Origami Striptease, Peggy Munson
Our Bloody Pearl, (Series), D. N. Bryn
Out of My Mind, Sharon M. Draper
P-T:
Parable of the Sower, (Series), Octavia E. Butler
Parable of the Talents, (Series), Octavia E. Butler
Percy Jackson & the Olympians, (series), Rick Riordan
Pomegranate, Helen Elaine Lee
The Prey of Gods, Nicky Drayden
The Pursuit Of..., (Series), Courtney Milan
The Queen's Thief, (Series), Megan Whalen Turner
The Quiet and the Loud, Helena Fox
The Raging Quiet, Sheryl Jordan
The Reanimator's Heart, (Series), Kara Jorgensen
The Remaking of Corbin Wale, Joan Parrish
Roll with It, (Series), Jamie Sumner
Russian Doll, (Series), Cristelle Comby
The Second Mango, (Series), Shira Glassman
Scar of the Bamboo Leaf, Sieni A.M
Shaman, (Series), Noah Gordon
Sick Kids in Love, Hannah Moskowitz
The Silent Boy, Lois Lowry
Six of Crows, (Series) Leigh Bardugo
Sizzle Reel, Carlyn Greenwald
The Spare Man, Mary Robinette Kowal
The Stagsblood Prince, (Series), Gideon E. Wood
Stake Sauce, Arc 1: The Secret Ingredient is Love. No, Really, (Series), RoAnna Sylver
Stars in Your Eyes, Kacen Callender [Expected release: Oct 2023]
The Storm Runner, (Series), J. C. Cervantes
Stronger Still, (Series), D. N. Bryn
Sweetblood, Pete Hautman
Tarnished Are the Stars, Rosiee Thor
The Theft of Sunlight, (Series), Intisar Khanani
Throwaway Girls, Andrea Contos
Top Ten, Katie Cotugno
Torch, Lyn Miller-Lachmann
Treasure, Rebekah Weatherspoon
Turtles All the Way Down, John Green
U-Z:
Unlicensed Delivery, Will Soulsby-McCreath Expected release October 2023
Verona Comics, Jennifer Dugan
Vorkosigan Saga, (Series), Lois McMaster Bujold
We Are the Ants, (Series), Shaun David Hutchinson
The Weight of Our Sky, Hanna Alkaf
Whip, Stir and Serve, Caitlyn Frost and Henry Drake
The Whispering Dark, Kelly Andrew
Wicked Sweet, Chelsea M. Cameron
Wonder, (Series), R. J. Palacio
Wrong to Need You, (Series), Alisha Rai
Ziggy, Stardust and Me, James Brandon
Graphic Novels:
A Quick & Easy Guide to Sex & Disability, (Non-Fiction), A. Andrews
Constellations, Kate Glasheen
Dancing After TEN: a graphic memoir, (memoir) (Non-Fiction), Vivian Chong, Georgia Webber
Everything Is an Emergency: An OCD Story in Words Pictures, (memoir) (Non-Fiction), Jason Adam Katzenstein
Frankie's World: A Graphic Novel, (Series), Aoife Dooley
The Golden Hour, Niki Smith
Nimona, N. D. Stevenson
The Third Person, (memoir) (Non-Fiction), Emma Grove
Magazines and Anthologies:
Artificial Divide, (Anthology), Robert Kingett, Randy Lacey
Beneath Ceaseless Skies #175: Grandmother-nai-Leylit's Cloth of Winds, (Article), R. B. Lemburg
Defying Doomsday, (Anthology), edited by Tsana Dolichva and Holly Kench
Josee, the Tiger and the Fish, (short story) (anthology), Seiko Tanabe
Nothing Without Us, edited by Cait Gordon and Talia C. Johnson
Nothing Without Us Too, edited by Cait Gordon and Talia C. Johnson
Unbroken: 13 Stories Starring Disabled Teens, (Anthology), edited by Marieke Nijkamp
Uncanny #24: Disabled People Destroy Science Fiction, (Anthology), edited by: Elsa Sjunneson-Henry, Dominik Parisien et al.
Uncanny #30: Disabled People Destroy Fantasy, (Anthology), edited by: Nicolette Barischoff, Lisa M. Bradley, Katharine Duckett
We Shall Be Monsters, edited by Derek Newman-Stille
Manga:
Perfect World, (Series), Rie Aruga
The Sky is Blue with a Single Cloud, (Short Stories), Kuniko Tsurita
Non-Fiction:
Academic Ableism: Disability and Higher Education, Jay Timothy Dolmage
A Disability History of the United States, Kim E, Nielsen
The Architecture of Disability: Buildings, Cities, and Landscapes beyond Access, David Gissen
Being Seen: One Deafblind Woman's Fight to End Ableism, Elsa Sjunneson
Black Disability Politics, Sami Schalk
Borderline, Narcissistic, and Schizoid Adaptations: The Pursuit of Love, Admiration, and Safety, Dr. Elinor Greenburg
Brilliant Imperfection: Grappling with Cure, Eli Clare
The Cambridge Companion to Literature and Disability, Barker, Clare and Stuart Murray, editors.
The Capacity Contract: Intellectual Disability and the Question of Citizenship, Stacy Clifford Simplican
Capitalism and Disability, Martha Russel
Care work: Dreaming Disability Justice, Leah Lakshmi Piepzna-Samarasinha
Catatonia, Shutdown and Breakdown in Autism: A Psycho-Ecological Approach, Dr Amitta Shah
The Collected Schizophrenias: Essays, Esme Weijun Wang
Crip Kinship, Shayda Kafai
Crip Up the Kitchen: Tools, Tips and Recipes for the Disabled Cook, Jules Sherred
Culture – Theory – Disability: Encounters between Disability Studies and Cultural Studies, Anne Waldschmidt, Hanjo Berressem, Moritz Ingwersen
Decarcerating Disability: Deinstitutionalization and Prison Abolition, Liat Ben-Moshe
Demystifying Disability: What to Know, What to Say, and How to Be an Ally, Emily Ladau
Dirty River: A Queer Femme of Color Dreaming Her Way Home, Leah Lakshmi Piepzna-Samarasinha
Disability Pride: Dispatches from a Post-ADA World, Ben Mattlin
Disability Visibility: First-Person Stories From the Twenty-First Century, Alice Wong
Disfigured: On Fairy Tales, Disability and Making Space, Amanda Leduc
Every Cripple a Superhero, Christoph Keller
Exile and Pride: Disability, Queerness and Liberation, Eli Clare
Feminist Queer Crip, Alison Kafer
The Future Is Disabled: Prophecies, Love Notes, and Mourning Songs, Leah Lakshmi Piepzna-Samarasinha
Growing Up Disabled in Australia, Carly Findlay
It's Just Nerves: Notes on a Disability, Kelly Davio
The Immortal Life of Henrietta Lacks, Rebecca Skloot
Language Deprivation & Deaf Mental Health, Neil S. Glickman, Wyatte C. Hall
The Minority Body: A Theory of Disability, Elizabeth Barnes
My Body and Other Crumbling Empires: Lessons for Healing in a World That Is Sick, Lyndsey Medford
No Right to Be Idle: The Invention of Disability, 1840s-1930s, Sarah F. Rose
Nothing About Us Without Us: Disability Oppression and Empowerment, James I. Charlton
The Pedagogy of Pathologization Dis/abled Girls of Color in the School-prison Nexus, Subini Ancy Annamma
Physical Disability in British Romantic Literature, Essaka Joshua
QDA: A Queer Disability Anthology, Raymond Luczak, Editor.
The Right to Maim: Debility, Capacity, Disability, Jasbir K. Puar
Sitting Pretty, (memoir), Rebecca Taussig
Sounds Like Home: Growing Up Black & Deaf in the South, Mary Herring Wright
Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane and Live One Step Ahead of Your Symptoms, Ilana Jacqueline
The Things We Don't Say: An Anthology of Chronic Illness Truths, Julie Morgenlender
Uncanny Bodies: Superhero Comics and Disability, Scott T. Smith, José Alaniz
Uncomfortable Labels: My Life as a Gay Autistic Trans Woman, (memoir), Laura Kate Dale
Unmasking Autism, Devon Price
The War on Disabled People: Capitalism, Welfare and the Making of a Human Catastrophe, Ellen Clifford
We've Got This: Essays by Disabled Parents, Eliza Hull
Year of the Tiger: An Activist's Life, (memoir) (essays) Alice Wong
Picture Books:
A Day With No Words, Tiffany Hammond, Kate Cosgrove-
A Friend for Henry, Jenn Bailey, Mika Song
Ali and the Sea Stars, Ali Stroker, Gillian Reid
All Are Welcome, Alexandra Penfold, Suzanne Kaufman
All the Way to the Top, Annette Bay Pimentel, Jennifer Keelan-Chaffins, Nabi Ali
Can Bears Ski?, Raymond Antrobus, Polly Dunbar
Different -- A Great Thing to Be!, Heather Alvis, Sarah Mensinga
Everyone Belongs, Heather Alvis, Sarah Mensinga
I Talk Like a River, Jordan Scott, Sydney Smith
Jubilee: The First Therapy Horse and an Olympic Dream, K. T. Johnson, Anabella Ortiz
Just Ask!, Sonia Sotomayor, Rafael López
Kami and the Yaks, Andrea Stenn Stryer, Bert Dodson
My Three Best Friends and Me, Zulay, Cari Best, Vanessa Brantley-Newton
Rescue & Jessica: A Life-Changing Friendship, Jessica Kensky, Patrick Downes, Scott Magoon
Sam's Super Seats, Keah Brown, Sharee Miller
Small Knight and the Anxiety Monster, Manka Kasha
We Move Together, Kelly Fritsch, Anne McGuire, Eduardo Trejos
We're Different, We're the Same, and We're All Wonderful!, Bobbi Jane Kates, Joe Mathieu
What Happened to You?, James Catchpole, Karen George
The World Needs More Purple People, Kristen Bell, Benjamin Hart, Daniel Wiseman
You Are Enough: A Book About Inclusion, Margaret O'Hair, Sofia Sanchez, Sofia Cardoso
You Are Loved: A Book About Families, Margaret O'Hair, Sofia Sanchez, Sofia Cardoso
The You Kind of Kind, Nina West, Hayden Evans
Zoom!, Robert Munsch, Michael Martchenko
Plays:
Peeling, Kate O'Reilly
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With an extra special thank you to @parafoxicalk @craftybookworms @lunod @galaxyaroace @shub-s @trans-axolotl @suspicious-whumping-egg @ya-world-challenge @fictionalgirlsworld @rubyjewelqueen @some-weird-queer-writer @jacensolodjo @cherry-sys @dralthon @thebibliosphere @brynwrites @aj-grimoire @shade-and-sun @ceanothusspinosus @edhelwen1 @waltzofthewifi @spiderleggedhorse @sleepneverheardofher @highladyluck @oftheides @thecouragetobekind @nopoodles @lupadracolis @elusivemellifluence @creativiteaa @moonflowero1 @the-bi-library @chronically-chaotic-cryptid for your absolutely fantastic contributions!
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Submit a Book:
#disability resources#disability#chronic illness#disability books#books#resources#book list#disability literature#literature#disability representation#disabled characters#information#informative#disability education#disability history#disability rights#please add to this#to be updated#long post
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Reminder at all, someone with a disability/chronic illness might be capable of completely different levels of activity from day to day. You can’t hold yourself or others to the best version of the physical self every single day. That goes for able bodied people too! Energy levels fluctuate, and for people with a disability/chronic illness that difference will be even more extreme.
Be patient. Be gentle with yourself and others.
Just because the other day you did a workout, went grocery shopping, and/or washed your hair, it doesn’t mean you’re less valuable today while you’re stuck in bed.
Be kind to yourself.
#chronic illness#disability#chronic pain#spoonie#chronically ill#arthritis#fibromyalgia#disability pride#disability representation#disautonomia#physical disability#autoimmune disease#gastroesophageal reflux disease#pots#postural orthostatic tachycardia syndrome#spoonie stuff#spoonie life#no spoons#support#encouragement#endometriosis#reminder
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Not this fucking poolverine fic making my disabled ass fucking sob because whenever I look in the mirror all I see is a dying and unhealthy body
But no matter how broken this body is it’s still keeping me alive and it’s beautiful for that.
#like I think my body is okay but like…#it’s beautiful for keeping me alive#my disabled ass is still crying#cat rambles#deadpool and wolverine#poolverine#deadpool#disabled#disabled representation#ig#disability#chronic illness#chronically ill
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#invisible disability#disabilties#disabled people#disabled#disability#actually disabled#disabled artist#disabled community#disabled girl#disabled life#disabled pride#disabled representation#disabled rights#disabledandcute#disabledcreator#physically disabled#wheelchair#spoonie#chronically ill#chronic illness#chronic disease
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I'm gonna say it
Firefly/Sam is not a trans allegory. She is DISABLED and TERMINALLY ILL. She is no allegory, she is a very explicit representation of PHYSICALLY DISABLED people. I don't want that to be erased or overriden by headcanons.
SAM is Firefly's MOBILITY AID.
#honkai star rail#firefly#sam#hsr firefly#hsr sam#hsr stellaron hunters#stellaron hunters#disability#terminal illness#chronic illness#disability representation#disabled#i love sam#and i relate so much to her#mobility aid
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i want more fantasy stories where the main character has a disability (mental or physical) and it is a major challenge.
i want a story where the protagonist goes on a quest into the Fae Courts and also has to keep taking her meds, counting the days til she’s out with increasing dread.
i want a story where the protagonist struggles with learning a magical power not because it’s the “wrong one” but because they have ADHD and can’t focus on it.
i want a story where the protagonist is constantly gauging what actions will and won’t be worth the physical toll and recovery time.
i want a story where the protagonist has a flare up and can’t do something because of it and it matters in the long run
i want a story where the characters disability is actually disabling and they still win.
(other people please add. these examples were based on my experience
#actually autistic#actually adhd#actually disabled#hypermobile ehlers danlos#chronic illness#chronic pain#disability#representation
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The way Nicky’s death felt so similar to Joyce Summers—because it was the same idea. That the true heartbreak is it wasn’t a monster, something huge she could fight—it’s just the simple tragedy of everyday life.
“No, Billy. Sometimes, boys die.”
The fact that she left more story to tell on purpose, but they’ve devised the chapters. That Agatha and Rio living together in a cottage—literal cottage core lesbian witches—and Rio being Nicky’s “father” is among those chapters she’s doing press anywhere and everywhere to be allowed to tell next.
And the fact that, again, Jac was explicitly writing towards people who have had the experience of terminally ill, disabled, or chronically sick kids. She’s written another mother for whom her unlikely, disabled kid was the honor and love of her life—two more, with Rio, to the point of her bending the laws of nature around them.
I’m so emotional. I love her so much.
#it’s so precious to me#it breaks and mends my heart that it does to her as well#jac schaeffer#agatha all along#aaa#aaa finale#aaa spoilers#agatha all along spoilers#agatha all along finale#wandavision#agatha harkness#rio vidal#billy maximoff#billy kaplan#teen agatha all along#agatha x rio#rio x agatha#agathario#nicholas scratch#lgbtqia#btvs#buffy the vampire slayer#joyce summers#disability representation#representation matters#disabled representation#chronic illness#terminal illness
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