disabled-dragoon

[disabled-dragoon]

A board game cafe I like is merging with a local arcade/mini golf/laser quest place that is very much not wheelchair accessibile

I commented on one of their social media posts about it asking about the move and wheelchair accessibility because I couldn't remember just how bad the stairs situation was and maybe it's changed in the 6 years since I last went there

Turns out it's not accessible at all and they blamed it on the age of the building. Said it would be expensive to fix but it was essentially on their "to do" list.

I'm the only person they responded to about it- probably because I was the first one that asked- and now other people are coming out to call them out on it with no response and I feel like I've inadvertently opened a can of worms

[disabled-dragoon]

She's fine. Perfect weight. Very well behaved. Very gushed over. Has a possible skin problem so has had a steroid, got a special shampoo and has to go back in a month.

Vet said she needed an injection so she immediately hopped back in her carrier.

My cat's been falling off things a lot lately so someone has a fancy new cat carrier on the way and a trip to the vet this Tuesday

[disabled-dragoon]

In 2020 I got "randomly selected" to take part in a covid test trial and five years later an email has just popped into my inbox asking me to complete a follow up survey

[disabled-dragoon]

Carrier came. Cat tried it out. Results TBD after further testing but the dog hated it.

My cat's been falling off things a lot lately so someone has a fancy new cat carrier on the way and a trip to the vet this Tuesday

[disabled-dragoon]

My cat's been falling off things a lot lately so someone has a fancy new cat carrier on the way and a trip to the vet this Tuesday

[disabled-dragoon]

A good dose of Tom and Jerry physics would solve all of my back pain instantly

[disabled-dragoon]

I got to room 46 in Blue Prince and now I have even more puzzles I have to solve

[disabled-dragoon]

i wish there was a way to talk about the tiredness/wearing down that comes from disability. i don't mean fatigue in the usual physical sense. i mean like the way that you kinda always have to be on the clock when you're disabled. like every day involves managing and micromanaging aspects of your health. tracking symptoms, taking meds, getting up, getting food, getting washed. like it doesn't become easier. people say that when something becomes a habit it happens automatically and becomes easier to do because you don't have to actively choose to start and carry out that task everyday. there's no proper downtime when you're disabled because even if you have to do something daily, nothing we do ever becomes easy. every task feels like it's being done for the first time again. it always takes mental, physical, amd emotional energy. to do everything. every day. not only disability related tasks, but any single task that even abled people have to do. and it kinda wears you down. makes you tired. in a long term way that never really stops, because if you stop doing the things that are exhausting you'll just die because every single aspect of living is exhausting

[disabled-dragoon]

Game show where the panel are all disabled and doctors come to prescribe them treatments but if a doctor lies or brushes them off a trapdoor opens underneath them and drops them into a pit. But they don't let the doctors out of the pit afterwards

[disabled-dragoon]

There's a certain fear to being completely unable to mobilise without a mobility aid at all that I think it's hard for even other disabled people not in the same boat to understand. If something happened to my crutch I would at best be able to hop for a few steps (or more accurately what I like to call the zombie walk, because my left leg kind of just drags behind me) and that would more than likely just end in a faceplant. For non-ambulatory wheelchair users it would be much, much worse. I would not theoretically still be able to get home or to safety regardless of pain or difficulty or amount of time it would take, I would be stranded. That's something that is always in the back of your mind when you are out alone. Mobility aids break, they can be stolen if you aren't using them. So much rests on an object that isn't attached to your body.

[disabled-dragoon]

This is your reminder that ambulatory ≠ part time

I am a full time wheelchair user but I can still ambulate to some degree!

I plan to use my wheelchair most of the day

Full time and part time just reflect how much you need to rely on your chair, and they still are not black and white. Someone who uses their chair all the time only outside their home would be technically considered full time (at least by my standards)

[Please note that I'm not trying to start an argument with anyone, if you disagree and want to talk about it please talk to me calmly, I deal with brain fog as well as a plethora of mental health problems, please be nice.]

[disabled-dragoon]

People seriously underestimate the long term effects of constant loneliness

"why are you so weird?" Idk, maybe because being completely isolated while growing up has destroyed my brain and now I'm nothing more than a human-mimicking creature that bases all of my actions on what I think is normal human behavior rather than just doing things naturally

[disabled-dragoon]

watching tv with your parents is such a humbling experience. you think everyone understands the basic content of a show but my dad was on season 2 episode 4 of severance and had to ask who mark was

[disabled-dragoon]

Personally, I hate when people try to get around saying 'disabled'. It feels like it's never about actual disabled people and how we personally feel about the word. Its about able-bodied people being uncomfortable with disability to the point that they don't even want to use the word.

[disabled-dragoon]

thank god for the mythbusters though because it used to be that whenever i knew i had insomnia i’d just kind of accept it and stay up doing whatever until my morning classes and spend the day feeling like shit

but then they did an episode where they established that even just fucking laying there for a half hour, not even sleeping just laying there and not even for an hour, makes a significant difference and you’ll feel way better

it has made a huge difference in my life to know that it’s okay if i can’t fall asleep, it takes a lot of the pressure off and ironically helps me fall asleep better

[disabled-dragoon]

When someone has a chronic illness or is disabled and can't work, they say a few common things.

It must be nice to sit around all day/sleep all day.

I wish I could sit around all day and not work.

I wish I could sleep all the time.

They don't want to sleep as much as we have to. They'd feel sick and sluggish.

They don't want to sit around the house all day not doing anything. They'd be bored out of their fucking skull.

It's so unbelievably fucking frustrating, but there's a fundamental lack of understanding.

They liken our lives to a vacation, imagining that it's fun and relaxing and we can do whatever fun things we want to all the time.

In reality, it should be likened to an extended hospital stay. You can't do anything and you feel like shit.

[disabled-dragoon]

This disability pride month I'm BEGGING you to acknowledge and care about the people in this community who often fly under the radar when it comes to positivity and information. People who require equipment to live, like ventilators, pacemakers, and feeding tubes. People who are bedbound. People with visible differences. People who have disabilities caused by things like substance abuse, overdose, or self harm. People with conditions so rare that they've never met someone who has the same one. People who need full time care and have to have help to use social media.

If you want to support the community, that means supporting all of the community. Disability pride means being proud of every last one of us, and making sure everyone feels heard. Make sure to amplify the voices of those who need it this month, and ideally for the rest of the year too.