5 years ago, I was in Rehab.
10 years ago, I was watching my Potential and Opportunities dissolve and evaporate in an ocean of cheap gin and expensive whiskey.
But 5 years ago, I was in Rehab.
One of the exercises they had us perform was to imagine ourselves happy, 5 years in the future.
Many of us in that room had forgotten how to imagine nice things happening to them. A few snorted (well, I snorted), finding the notion that we’d even still be around in 5 years grimly humorous.
For about half of us, it was the last stop on the way down.
But I indulged the therapist. I was there, after all, because I did not want to die. So, I imagined myself, 5 years hence.
Happy.
It came to me all at once; an artistic remix on Norman Rockwell’s Freedom From Want, reframed with myself placing food at the table.
Sunday Dinner At My Place, I answered, when it came my turn to share my fantasy. I was asked what food I imagined eating.
It’s not the meal itself, I said, it’s the implications framed around it. Sunday Dinner At My Place means that I have a Place. It means that I have Family that will actually speak to me and friends who actually want to see me. It means money enough not just to feed myself but others too. It means having the time to spare to take the time preparing the meal.
A lot of nodding heads all around me. A struck chord. Many people with no Place, in that place. Nowhere that would lament their leaving.
5 years hence, as I lay down to sleep in my Home, with my Wife and my Son, surrounded by my Art and my Flowers, I reflect.
It was a long road. It was hard. We lost people. So many people. There were long days and long nights and hospital stays. Angry arguments with ghosts. I changed, in ways I never hoped for, or expected. Good ways, finally, for once. Slowly, against the backdrop of a world in chaos, I found my mind.
Sometimes, My Wife wondered aloud, what she did to deserve me. After some stumbling with my feelings, I eventually settled on an answer.
I’m a Rescue.
She gave me a Home.
And, so, I gave her a Family.
It seemed fair
This Sunday, my folks, which whom I have not had a shouting match in years, will come over for dinner. We will cook and eat together. My Friend became My Wife, and she took a piece of me and with it she made Our Son. There will be many hugs, and no violence. Good Things Happened.
I don’t know who needs to hear this, but you don’t know what the future holds.
don’t give up yet, ok?
It could get good, even.
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if any non-palestinians, especially in ‘the west,’ especially in positions of bodily safety, especially especially whites, are still feeling hopeless and lost about the genocide, may i offer, as gently as possible... get over it. your body is safe. you have been told over and over and over exactly what you can do to help, in exhaustive detail according to your specific social and political position. find out what you should do and do it if you can. if you can’t, that’s on you. find something you can do. stop asking palestinians to tell you what to do; take what is already given. you can find the instructions that have already been so explicitly left for you. you are an adult. your job is to keep moving. you are not allowed to be hopeless — that is a betrayal of everything the palestinian community and its supporters stand for. keep moving. don’t let anyone tell you that anti-zionist means anti-semite. don’t let anti-zionists around you become anti-semites. don’t let islamophobia stand. know that propaganda works and it’s working on you right now. keep moving. you are an adult. your life is yours to care for — that means finding the support you need, which also means knowing the boundaries and needs of those supporting you. you aren’t special. you aren’t alone. keep moving. you are not a hero. you are safe. you have agency. there is nothing you can do that can’t be done by someone else while you recharge. you are part of a collective; no one is looking directly at you. do what you can, and if you can do nothing, make your peace with that. palestine has no time for your shame or your guilt. feel these feelings when they come to you and then move through them.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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don't stress about that opportunity that fell through or that friend you lost or that thing you really want to happen but isn't. as long as you keep your chin up and try try try again, better things will replace your losses. i'm looking at my life rn and actually marveling at how every single thing i stressed about, whether it be an opportunity or a person, got supplanted w another thing that is so much better. it really is true that loss makes space for better things. these days i don't get sad when something doesn't work out. i get excited that i'm now open to so many other possibilities out there, so long as i actively seek them. you never lack. you just transition.
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I can't stop thinking about the relationship between Jon and Helen as perhaps one of the most important ones in the entire show. They are narrative parallels for each other, and they both know it. They've both known it from the very start!
Helen walks into the Archives, paranoid, unsure of who to trust, and Jon sees himself in her. And he thinks "If i can help her, maybe there's hope for me too." Then he can't save her. The next time they meet, she's a monster. They're both monsters. There was never any other way their stories could have gone, their fates entwined from the very start.
And Helen answers his original thought with one of her own: "Maybe if we can help each other, there's hope for us both." But Jon looks at her and sees everything that he fears becoming, and so he turns her away, and refuses to accept that their stories are still one and the same.
Helen went to the last person who was ever kind to her, the only person who both knew her as a human and had the context to understand what she'd become, and he hated her. He hated her because he liked Helen, and told her that she couldn't be Helen.
So she stopped trying to be Helen, and embraced being a monster. Reveled in it even. Then Jon wakes up from a six month coma, more monster than person, and tries so hard to cling to the things that mattered to him when he was human. Even with no support, even with the entire archives staff against him, he chooses humanity and compassion over and over again.
And this is a direct threat to Helen's world view. Their stories are entwined. If Jon can continue to be a person even after everything he's been through, then she could have clung to her humanity too, if only she'd tried a little harder. And that terrifies her! She wants to conceptualize herself as someone who was completely overwhelmed by forces beyond her control, who never had a choice but to become a monster. She want's to be an innocent victim. But Jon argues with his actions that they'd both had choices.
And, Jon, in turn, holds out hope that she might make better choices until the very end.
This is the conflict between them for all of season 4 and 5. Jon wants to prove that they can both be decent people, and Helen wants to prove that they were never going to be anything but monsters. This is why she's so devoted to trying to goad Jon into enjoying his newfound godhood. She knows that they are the same, and wants that to mean that he has a spark of evil inside of him, and not that she was always capable of doing good.
When Jon kills her, she loses her life, but wins the argument. Helen is nothing but a dangerous monster who needs to be killed for the good of everyone, and in the moment he decides that, Jon dooms himself to the same fate. Their stories are one and the same. "If i can help her, maybe there's hope for me too." he thought. But he couldn't help her, refused to, even, in the one moment when it actually mattered. And thus, there was never hope for him.
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i feel like there's gotta be a WEIRD puberty process in between the last two stages of inkling development. bc like there's no way THIS is an overnight change right.
inkling middle school is probably just full of 13 year olds full of the wrath of a thousand suns that their skin tone is taking so long to grow in
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