#chronic pain too
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Man! I’ve got a crooked jaw that opens weird and does Odd things (Dentists hate me)
Anyways I wonder just how Harry’s condition would present since a lot of the symptoms that were mentioned in game are pretty similar to my Miscellaneous Jaw Problem but more severe. Mostly I wonder if it would be painful, especially in his inner ear if he tried to move his jaw to the less/non mobile side. Mine makes this horrible crunching noise when I do that so I’m quite curious about that. And if it’s difficult to eat. I’m a horrible eater when my jaw acts up. It’s silly but also. Ow. It’s painful and I tend to dribble a bit if I’m not careful. I figure Harry would have the same issue. Maybe he’d have to chew just on one side of his mouth.
Poor Harry. Such an obstacle when it comes to dick sucking 😔
Sorry for the largely pointless rambling and the oral sex joke!
I'm so sorry I missed this! I don't have a lot to add because I've just gotten home from a flight, but I really like this and I want other people to see it too.
#thank you for the insight genuinely#i might have more to say after i sleep but i can see harry having issues with eating because of his paralysis#chronic pain too#i really wanna explore his whole jaw deal more#disco elysium#harry du bois#also i liked the dick sucking joke bc ur right
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I'm in an insomnia support group. And part of my problem is distinct from theirs, which is that I'm a fucking idiot and when I'm tired my judgment about "should I start a project now" becomes supremely unreliable.
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i am unreasonably proud and excited about this
#disability#chronic pain#mobility aid#i am officially running a thing to make my university accessible#i am so ready to fight people over it and I've recruited a bunch of people#we may or may not end up in our local news too#im done with this shit#literally on Friday had to walk around the building bc the elevator broke again and i couldn't do stairs#should take 30 seconds instead took like 10 minutes
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You are well within your right to be angry about the help you didn't get and should have gotten.
You are well within your right to be angry about having your needs neglected.
You are well within your right to be angry.
#this post is mainly about physical disabilities and needs not being met#things like medical neglect or refusal of services for whatever reason#able bodied ppl with non-physical disabilities are allowed to like and reblog and relate and stuff too ofc!#But I made this post in part for myself#to reassure myself that it's ok that I never received help for my chronic pain as a child despite it being bad#cripple punk#cpunk#cripplepunk#physical disability#actually disabled#physically disabled#angry cripple
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[images ID: three images of a comic titled "one must imagine sisyphus happy" by druid-for-hire. it is a visual narrative beginning with someone with wrist pain (depicted by bright orange nerves) working at a drafting table. the reader is shown the same wrist as the person uses it for many everyday tasks such as carrying a grocery basket, pushing elevator buttons, typing, and doing dishes, until the pain dissolves all the panels into chaos. the person then performs several physical therapy exercises until the pain subsides. they sit back down at a desk with their laptop, sigh, and begin typing. a small spark of pain reappears. end id]
a fun little piece i made during the semester and submitted into our school comic anthology! (which you can buy at the Static Fish table at MoCCAFest in NYC ;] ). it's about artists and injury
#comic art#comics#original comic#chronic pain#carpal tunnel#tendonitis#my art#original#edit: what a delightful surprise to see this take off#this was made for class on very low fuel and very few thoughts and late at night and exhausted#the prompt was just a wordless narrative essay. three pages. and i had nothing and no ideas#and my head hurt and i was too tired to think about doing any of the like. research and mind mapping and ideating i'd do otherwise#but my arm hurt#so i decided to do a thing about arm hurty#i'm surprised to see so many people finding it resonating with them#but then again i shouldn't be. the universal lies in the specific#i should make more things about smaller stuff
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btw something im working on learning is that disabled is something that im allowed to be in public.
im allowed to lay down on the living room floor if im in middle of a conversation & enjoying it but feeling too lightheaded to sit up. im allowed to sit at the table to do meal prep and to sit on a stool at the stove to cook. im allowed to use my cane while i run errands.
if people are uncomfortable with my disabled existence, it’s their responsibility to work on that, it’s not my responsibility to try to hide my disability from the view of abled people.
i shouldn’t be relegated to my bedroom or to my house or to places where no one else will be just to have accommodations. im allowed to just exist & not have to pretend to be able bodied for the comfort & convenience of others.
#writing this as i lay on the floor of my parents’ house because my body is too fatigued for sitting up 🫡#chronic pain#chronic fatigue#disabled#disability#0
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psa: you actually are worth it. you are worth the trouble. you are not too much to put up with. your disability doesn’t make you unlovable. you’re not too much of a burden to “put up with”.
you are amazing and lovely and the right person will come and see just how wonderful of a person you are. your disability changes nothing about that
#i hope this is gonna help someone#it’s certainly something i need to hear so maybe someone else does too#chronic disability#chronic illness#chronically ill#chronicpain#chronic disease#disabled#chronic fatigue#chronic pain#disability#disabilties
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breaking news disabled people aren't using their disabilities as an excuse because it turns out it isn't an excuse it's a state of fucking existence
and existence is everywhere all the time no matter what even if you wish it wasn't
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#i fucking wish it wasnt too for what its worth#disabled#disabilities#actually disabled#physical disability#physical disabilities#neurological disability#epilepsy#ehlers danlos syndrome#hEDS#hypermobile ehlers danlos syndrome#spoonie#chronically ill#chronic illness#chronic pain#chronic fatigue#crip punk#cripple punk#cpunk#c punk#seizures#seizure disorder#actually epileptic#disability culture#1k
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I need a badge that says "Nothing happened, I'm just disabled" to wear when I use my braces or other disability aids. Maybe abled people would stop asking me about it then.
#maybe ill make my own#cant be too hard right?#disabled#different aids for different days#chronically ill#chronic pain#ehlers danlos syndrome#cripplepunk#unitypunk#disability#mobility aid#badges#buttons#pins#chronic illness#spoonie#disibility#accessibility#disability rights#disability pride#disabled pride#wheel chair#cane user#wheel chair user#crutches#crutches user#walking stick#walking stick user#walker#walker user
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a moment of silence for all us disabled ones who had to watch each of their friends move on with their lives without you and get jobs, go to school, have partners come and go, get engaged and move house etc.
shout out to my fellow struggling people who are still sitting in the same bedroom they grew up in. the ones who can't get a job, can't make new friends, can't find a partner or partners, can't move house and can't go to school.
I hope one day we can all find someone to at least sit with us in our rooms. I see you and I understand... and I'm sorry we can't be that person for each other
#hell o void#hell o hadal#disabled#disability#invisible disability#nuerodivergent#nuerodiversity#mental health#agoraphobia#depression#anxiety#chronic pain#chronic fatigue#autistic#autism#i know this applies to more people but i am too tired to think of more tags and i really need to stop posting and do other things#but this is something i struggle with constantly and cant get over so#about#it hurts even more knowing that my friends who have done this are also disabled#like.... what do you mean they can overcome their disabilities and have lives why the fuck cant i do that
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Ok I drew them with silly 'hats' to cover their ears too (Vasco is wearing ear socks)
Machete looks like a jester
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#EAR SOCKS#he needs a pair of those elastic mitten clips to keep them up#suspenders for your ear socks#ear sock garters if you will#you really captured Machete's noodly wretchedness here#the driest most chronically unfun stick in the mud jester#that's such a sighthound expression#he looks mildly displeased but ultimately resigns to his fate of wearing silly knitted caps#to protect his delicate ears from the elements#Vasco's eyebrows are perfect#they're both too precious I'm in pain TmT#an excellent follow-up 10/10#gift art#arttsuka#Machete#Vasco#own characters#oh my heavens just look at them
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I'm just such a big fan of Edwin having some permanent issues after a second trip to hell and the final run in with Esther.
I like the idea that he actually has to sleep now. Nowhere near what a living human needs but more then he ever needed before. Maybe sleeping for several hours every few weeks.
Iron wounds take longer to heal, even though Edwin has always had a higher pain tolerance due to his experiences in hell.
When he's really tired, things start to hurt. Tender pain along all his joints, the spots where the demon spider found it was the easiest to tear him apart.
He get bruises under his eyes, headaches, occasionally a little chill, stiffness, and just a general aching all over his body.
It's hard for Edwin to sleep, for several reasons. Nightmares, anxiety, restlessness, and just being stubborn.
The vulnerability of sleep is terrifying.
The idea of leaving Edwin alone somewhere to sleep, even in their office, has Charles skin pickling. Especially knowing Edwin is also reluctant to sleep without him there.
So, Edwin does not sleep alone. Ever. Occasionally he gets left with Niko, and sometimes Crystal, but it's for very brief amounts of time before he's back with Charles.
It should be embarrassing to have these issues now, and it is, but they're even closer after Port Townsend and it's not something Edwin can avoid. He has to sleep now.
Really, it comes down to does he wants to keep it to himself and nap when no one else is around to avoid feeling weak? Or does he want to sleep with the comfort of knowing someone is with him and hell won't take him before he even gets a chance to wake up?
It comes down to how fearful is he of something dragging him off into hell again and the answer is apparently incredibly so.
Also, if he's going to look vulnerable and weak then it might as well be with Charles, who's seen him at his worst.
He tries not to overthink how pleased Charles is each time Edwin seeks him out for a nap or how good it feels to be held, the safest place he can think of is in Charles arms or under his sharp watch.
Charles hovers, and he's aware of it. He can't convince himself to stray too far from Edwin. Part of it's because he's protective, reluctant to leave Edwin in anyone else's hands when he's more vulnerable then before.
Part of it is selfish, he's a little possessive. A sleeping Edwin is not something anyone else needs to see. Edwin in pain is not something anyone else needs to see.
Crystal had recently demanded they have a bed available in the office for when her and Niko stayed over, even though they rarely use it. It's soft, covered in pillows and blankets, and Edwin has taken to hiding away in it when he sleeps. Crystal looks incredibly pleased when it slips that Edwin uses it and Charles is hit with a intense wave of fondness for her.
No one needs to see Edwin like this. Especially not when he loses a lot of his layers and curls up in something more comfortable. It leaves him vulnerable, his throat and wrists bare, and looking smaller without all extra clothing.
Nobody needs to see how he only really lets himself sleep when Charles is in bed with him or close enough in the room to reach out for if needed. He watches Charles do whatever it is he's doing with half lidded eyes, a strip of green that stubbornly stays visible until Charles is closer.
In the beginning they thought it was something temporary. Ghost don't need to sleep, Charles never sleeps. Sometimes he can get himself to relax enough that it's almost like sleeping but it's not anywhere near actual sleep.
They think it's just him trying to make up what Esther took.
But it keeps happening. Again and again.
And it makes them both anxious. Charles is worried about why Edwin suddenly needs to sleep but Edwin is worried about the actual sleeping part.
He does not want to sleep. Sleep means dreaming and nothing good will come from his dreams, he's sure of it.
It's also scary. Sleep is a weakness, it leaves him vulnerable and unaware. He doesn't want to sleep.
In those first few weeks where they all still thought this would pass, exhaustion caught up to him one evening as they were finishing up a long case. Charles was out and he couldn't even think about how wonderful it would be to go to go lay down because Charles was not there.
The office was too quiet. It made him restless and he would have paced but he was feeling especially sore that day. His hands had ached while he was writing and he had to stop frequently to flex them.
He was weak, alone, and rapidly sliding into a decreased mental awareness due to exhaustion. It's not a situation he liked.
They weren't apart for long those days, and still aren't, so Charles is back pretty quickly but it's long enough that Edwin was struggling. He blinked sleepily at Charles, with eyes that itched when they shouldn't have, and he must have looked terrible because Charles straightened up a little bit and his eyes jumped around the room before he relaxed.
He said something, dropped his bag and walked forward until he could put his hands on Edwin and that's it. Edwin leaned forward until he was relying on Charles to hold him up, turned his face into his neck and passed out still standing up.
It doesn't get that bad again. Charles is good about noticing when Edwin starts to slow down, and when it takes him a little longer to string his words together or explain himself. He picks up the way he carries himself different on day where things hurt a little more or how he rubs his temple when he feels a headache coming on.
He herds Edwin to bed like a sheep dog and makes sure everything is locked up so they won't be bothered. Edwin had managed to find a spell that would keep anyone else, living and none, out of their office when activated. It's perfect for extra privacy and security.
Charles hates that Edwin was hurt enough that he needs this now, and he hates seeing him wore down and exhausted... but part of him loves these days.
Edwin sleepy and soft, usually pulling Charles down with him until they're under all the blankets and pillows, tucked on their own little world.
He clings when he sleeps. He buries his face in Charles throat and under his chin like he's trying to hide, presses in as close as he can until they're completely tangled together. Not that Charles has any problem with that. He runs his fingers over skin in soothing gestures and pulls him in close if he starts to show any signs of a nightmare.
He wakes up with hair sticking up and clothes rumpled, blinking at Charles a few times as he tries to wake up enough to remember what's happening. Sometimes, Charles gets lucky and Edwin will stretch out like a cat before readjusting himself to be close again and doze off for a little longer.
It knocks the breath he doesn't need out of his lungs and love sits in his throat until it threatens to choke him.
Sometimes there are nightmares and Edwin shoves himself away desperately with a pained and fearful noise that has Charles cringing. Edwin stares at him from the other side of the bed, eyes big but unfocused in a way that shows he's not actually seeing Charles. He's tight, tense and completely locked up. He couldn't move even if he wanted to. They're both still laying down, and Charles doesn't move even though he wants to. He starts talking, low and soft, keeps doing that until Edwin starts to relax again. It's a slow process and it takes a while before Edwin is relaxed enough that Charles can reach out and coax him back closer. He's exhausted after those little episodes, too tired and his body too sore from being so tense to put up much of a fight as Charles tucks him in close again. Sometimes he's asleep before they're even settled back in, limp with sleep as Charles rearranges him in a way that won't have him aching when he wakes up.
Sometimes Charles is too wired to lay down, even if cuddling is great motivation, and he keeps himself busy while Edwin rests. Sometimes they're in the middle of a case and there's still work that needs to be done, so he does what can while until Edwin is back up and functional.
It's a powerful feeling, having Edwin trust him so much and so openly. Sometimes Charles has to check on him, the quiet and unmoving lump on the bed making him nervous until he looks him over, just to make sure everything is okay. It's hard to tell sometimes since they don't breathe like the living, and Edwin sleeps so quiet. He doesn't even flinch at Charles getting close, nothing triggering those survival instincts gained in hell that would have him awake and moving if it was anyone else this close.
God help anyone stupid enough to try something when they're like this. He'd fight anyone who disturbed them, anyone who woke Edwin up from his much needed rest or threaten to cause them harm. It burns under his skin and it makes his teeth itch.
Nothing would separate them. Nothing could take them away from each other.
#dead boy detectives#payneland#charles rowland#edwin payne#dbda#chronic pain edwin keeps me going#you know he's gotta be all fucked up from everything#plus if Esther figured out she could use him then you know there's going to be others who are going to figure it out and give it a try too#anyway#solving cases with greyskyflowers
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Shen Yuan getting transported into pidw isn't "the system punishing him for being a lazy internet hater," but instead representative of "step 1 of the creative process: getting so mad at something you decide to go write your own fucking book" in this essay I will
#svsss#scum villian self saving system#shen qingqiu#shen yuan#the fact that people think scum villain#-a series that examines and criticizes common tropes in fiction-#is somehow against criticism or being a little hater is wild to me#especially since shen qingqiu never gets punished for being a hater#heck- he's still a little hater by the end of the series#he mostly gets punished for treating life like a play and like he and the people around him are characters#(or in other words- he suffers for denying his own wants and emotions and his own sense of empathy)#I think some of y'all underestimate how much writing/art is inspired by creaters being little haters#like example off the top of my head-#the author of Iron Widow has been pretty vocal about the book being inspired by their hatred of Darling in the Franxx#I think my interpretation of Shen Yuan's transmigration is also supported by the fact that this series is an examines writing processes#side note- though i understand why people say Shen Yuan is lazy and think its a valid take it still doesnt sit right with me#i am probably biased because my own experiences with chronic pain and depression and isolation#but ya- i dont think Shen Yuan is lazy so much as he is deeply lonely and feels purposeless after denying parts of himself for 20ish years#like yall remember the online fandom boom from covid right?#being stuck completely alone in bed while feeling like shit for 20 days straight does shit to your brain#the fact that no one came to check on him + he wasn't exactly upset about leaving anyone behind supports the isolation interpretation too#+in the skinner demon arc he describes his life of being a faker/inability to stop being a faker now that he's Shen Qingqiu#as “so bland he's tempted to throw salt on himself” and “all he could do is lay around and wait for death” (<-paraphrasing)#bro wants to be doing stuff but is stuck in paralysis from repeatedly following scrips made by other people#another point on “Shen Yuan isn’t lazy” is just the sheer amount of studying that man does#also he did graduate college- how lazy can he really be#he doesnt know what hes doing but he at least tries to actively train his students#and he actually works on improving his own cultivation + spends quite a bit of time preping the mushroom body thing#+he's experiencing bouts of debilitating chronic pain throughout all this#but ya tldr: Shen Yuan's transmigration is an encouragement to write and not a punishment and also i dont think its fair to call him lazy
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I hate it here
#chronically ill#chronic illness#chronic pain#chronic fatigue#autoimmune#doctors will say I’m pretty sure you’re just anxious#it’s not too concerning#endometriosis#pots syndrome#i hate it here
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shout out to disabled people who can't access aids
shout out to disabled people who have to fight to be believed
shout out to disabled people who can't get diagnosed for any reason
shout out to self-diagnosed disabled people
shout out to disabled people who have experienced medical neglect
shout out to disabled people with unsupportive/abusive family
shout out to disabled people who are forced to push themselves beyond their limits
i love you
#sillyposting#disabled#actually disabled#cripple punk#c punk#mobility aid#chronic illness#chronically ill#chronic pain#chronic fatigue#medical neglect#ignoring the fact these are all me too#shhhh
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It is okay to need pain medication to function with your chronic pain. It is okay. I promise. I know everywhere you turn pain medication is demonized. I know that it is scary to talk about. It is okay to be grateful that you have access to pain medication. Pain meds have greatly improved my quality of life and I wouldn't be able to live my life outside of my bed without them. And that's okay!!!
#of course i wish i didn't have to take meds to function#but I'm so grateful they exist and I have access to them!#I am able to live much fuller life#they are one of my pain management tools and they have made my life better#chronic pain#of course this is not everyone else's experience#and that is okay too#there is space for both sides of the conversation#I just feel like this side is very often left out#pain medication#meds tw
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