#chronic pain issues

[fortunaestalta]

[decodedlvr]

As long as I’m with You

Steve Harrington x You (short)

Summary: Steve wakes up to another bad night you’ve had this week

Warnings: hurt/comfort, talks of poor physical and mental health, doctors, suicidal ideation, medication use, drug use, chronic health issues, BPD if you squint, disabilities, use of the word “girl” x times, negative self talk, mentions of sex, angst, fluff~~

This is based off my own experiences and inspired by my pal Morgan’s version; feel free to check hers out

Tick tick tick

The clock strikes 12 and then 1, 3, 5am in the morning, no sleep no rest it’s an every day cycle. The same shitty cycle.

It’s a new year, but not a new you.

Sitting in your walker in front of the excruciatingly bright television screen, high as a kite, everything in existence running through your mind 100 mph, sometimes the weed helps the pain. Sometimes it induces it or even makes it worse. Right now it’s doing nothing for you. Looking over at your loved one sound asleep. You don’t want to bother him with your whines or crying. So you just sit there silence, tears rolling down your cheeks; while you watch some bullshit on YouTube.

Sniff Sniff

“Baby?”

Shit.

“..yea?” you say in a whispered tone

“Are you ok? what’s wrong?”

“Ah, you already know”, you’ve used that line probably over a million times

Steve comes along your side expecting a few dried tears, but his eyes widen when he’s sees the collar around your shirt bitten, snot dribbling down your mouth and throat, crouching down, he lies his head onto your thigh looking up at you, “Talk to me sweetheart”

“No.”

“Hey, I know you’re hurting”—

“GOOD FOR YOU! Congratulations you know I’m hurting, you know I’ve been hurting for fucking years. I’m glad you’ve acknowledged it unlike some people”you sniffle getting up in a hurry to take a piss as he follows with sad eyes leaning against the door frame

“I’m fucking tired, I’m so goddamn exhausted nobody will ever know what I’m dealing with!”, you say wiping your ass not bothering to wash your hands, “I can’t do anything I can’t run, I can’t jump, can’t go to the stupid, fucking grocery store without one of those motorized carts.. my back hurts, my fucking knees are throbbing, stupid fucking nerves won’t calm down FUCK! It’s not like I can get in the bathtub to calm my muscles down. Nothing is helping! No medication, no PT, no injections, no nothing! Why?? am I just resistant to any source of help or treatment? I-I can’t even lay in the goddamn bed to sleep. That’s all I have left is rest!! What is rest!? I don’t know what the hell that even is”

“I know baby I know”—

“NO YOU DONT STEVE, all you know is what you see. I wouldn’t wish on our worst enemy, my worst enemy to feel what I feel. That’s how bad it all hurts. The most evil, sick and twisted person in this world, I would never wish this upon. I just..”, getting dizzy you collapse on the bed sobbing into your own hands, then eventually into Steve’s shoulder as he rocks you, tears spilling from his own eyes—

“Nobody cares, nobody wants to help me. nobody cares unless I’m rich and can afford to give them any and ALL the things off my back, but I can’t. Even with the money you make it will never be enough to help the poor girl who’s too young to have any kind of issue. It’s “all in my head” I’m just fucking crazy. I could break my own neck and still be told it’s only from anxiety. Nobody cares just”—

“I care” he exhales

“It doesn’t matter if you care, all your care is useless, all your help is worthless to me because it gets me nowhere. Nobody’s love and care gets me nowhere. It’s nothing all but fucking false hope. Don’t you get that? None of you still to this day seems understand that. Stop praying for me to get better. It’s never going to happen. I can’t take it anymore.. I just wanna die! All I wish for is to die but, I can’t even have that. It’s like all of you want me here, to live and suffer for the rest of my life for y’all, it’s not fair, fuck that”, your trembling, body in fight or flight

“Don’t say that, you know I’d do anything to take your pain away”

“It doesn’t matter what you’d do because you’re not a doctor. You’re not a professional, you can’t help me get better.. sucks to hear but it’s the truth Steve..fuck”—

Steve’s really trying not to beat himself up over your words, he knows you’re in pain, it comes from a place of anger, frustration and fear

“I have all these pain medications I could easily take all at once, so I’ll never have to wake up in this position ever again. Why can’t I do it huh? I could end right here right now you never have to suffer again, but I just d-don’t; If anything, I’m the most selfless person for staying alive for YOU just so I can be alive but in pain all over again for YOU!”, your tone getting higher and higher in pitch

“I-I’m sorry.. I wish I knew the right words to say baby”, he’s trying his best to stay strong for you

“You’ve got to be sick of me, tired of me. All I do is cause more money to come out of your pockets, more exhaustion, more burdening, more crying, more everything bad for you. You already deal with your own shit. I do nothing but make your own mentality worse, hell you’re making your own self worse being with a person like me. A broken and useless excuse of a human being. You deserve somebody who can go hiking with you, go to the beach, travel with, who can do the bare minimum. Can’t even fuck you properly—

“STOP! Stop that right now” he shouts

You freeze because he’s never raised his voice at you, atleast not on purpose at such a vulnerable time

“I hate it too. You know it hurts me to know that you hurt and I’m sorry that I can’t take the pain away from you. My sweet, sweet girl I’m so sorry that nobody has given you the chance to hear your voice, to help heal you..but I’m gonna make you the same promise I make you almost every single night. As long as I’m with you, I will try my best with all my power to make it a little bit more bearable for you to be here, and I am so grateful that you are still here and choose to be here with me for us to be together. I know you hurt, but as long as you’re with me, I’m going to do my best to put a smile on your pretty face, beautiful sunshine of a smile because you’re my sunshine.. y-your smile gives me life did you know that?”

You nod. He tells you all the time

“I- I’m tired for wishing to feel ok for my birthdays, every Christmas. All the shirts and posters you got me for Christmas? I haven’t even touched them yet, you know why? Because the selfish person in me doesn’t give a fuck about none of it. The only thing I care about and want and NEED is pain relief and that’s too much to ask for isn’t it? Apparently wanting to be better in the world it’s too much to ask for”

“You deserve to feel better”, he says while his hand travels up your back to rub your tense neck, “You deserve to be free from all of this and I can’t give that to you. You’re not selfish baby you’re hurting. I love you for you. I knew what I was signing up for, and if I didn’t want that I wouldn’t be here right now with you. I know the sacrifices Ill have to make, the tears I’ll have to shed, the strength it’ll take me to pick you up when you’re down, but I fell in love with you, how you are, and who you are”

“Who are you kidding Steve, you don’t even know who I am. The real me. I don’t even know who I am anymore. I wish you met me when I wasn’t sick then maybe you wouldn’t be so stressed out a-and.. and,” you start sobbing again, it’s all too overwhelming

“Hey, hey look at me, no. I met you at the right time. You need me just as much as I need you. You may not think you’re worth nothing but you’re worth everything to me. Yeah you have a good and bad days..—

“I’ve had nothing but bad days for the past few months Steve”-

“I know, I see it, I hear it and I witness it, I may not can feel it, but at the end of it all, you still love me. You’re still here. You still want to cook for me. You still get up to brush your teeth and I’m so proud of you for still trying to care for yourself. That’s the biggest job you’ll ever have, and it’s been a very hard job hasn’t it?

You nod, as he nods with you

“Yeah, it has, but you don’t have to do it alone anymore. I want to provide for you. I want to take care of you. You’re my girl, you deserve so much and as long as I’m with you, I will try every day, every hour, every second or minute, to make sure you know how loved, how great and how amazing you are. How great and amazing you’re doing for yourself and for me. How strong you are”—

—“im tired of having being strong all the time”, interrupting him

“I know you are. You are so strong for being on this earth, even when you don’t want to be. I wouldn’t ask for anybody else, you’re it for me always. Will you continue to let me try to make it better for you every day? To take care of you?”, he squats in front of you, cupping your wet cheeks, kissing your forehead

“But Stevie.. you know you’re getting your own hopes up because nothing you do helps either and I feel like a piece of shit for saying that because”—

“I know what you mean, you don’t have to be sorry. I understand you may not have hope but I do. All my Hope goes towards you and it always will. You are the most important thing in my life. I’m not gonna give up on you, on me or on us, ok sunshine?”

..”okay”, you repeat rubbing your temples

“Head hurt, darling?”

“yes”

“From crying too hard?”

You nod, looking away in shame, “It’s okay, I’ll get your Migrane cap from the freezer and i’ll set your pillows up how you like, just sit tight”, he says it standing then pausing at the doorway, looking over his shoulder, “I love you”

“luv you—

“Hmm? What was that, I couldn’t hear you” he exclaims

“I said love you gosh.. shut up”, you barely crack a smile

That was enough to get him through the rest of the night.

[disassociation-culture-is]

depersonalization and chronic pain culture is finding yourself feeling the whole body only at an unusual level of pain*. you forgot this feeling.

* – too low (happens not every year) and too severe (happens almost every 2 months)

.

[songbirdmunson]

If someone could pop my back like a glow stick it would solve half of my problems

[scrapraptor]

I have crippling ibs

[disabled-bug]

I’m so proud of people living with chronic health conditions. That shit is HARD. Idk who needs to hear this, but if no one else has said it: I’m proud of you. You’re sticking it out through so much pain and grief. That’s no small feat.

Every small thing you do for yourself health adds up. The grief is heavy and it comes from a place of love. The grief knows the pain is wronging you.

I’m proud of you. I hope on the good days you can be proud of yourself.

Keep going.

[decodedlvr]

damn I can’t have this, my back is too sensitive ☹️☹️

when he throws you on the bed >>>>

[vm-sys]

shout out to clumsy people.

shout out to people with coordination issues.

shout out to people with dyspraxia.

shout out to people with apraxia.

shout out to people with muscle weakness.

shout out to people with paresis.

shout out to people with paralysis.

shout out to people with arthritis n/or joint deformities.

shout out to people with chronic pain whose pain makes it hard to control their movements.

shout out to people with chronic fatigue whose fatigue makes them hard to control their movements.

shout out to people with balance issues.

shout out to people with other conditions that make hard to control body n/or movements.

shout out to people who are undiagnosed n struggling with control movements.

it's not your fault. it's not your carelessness. you deserve support n accommodations. you shouldn't be judged or mocked. you deserve respect. your struggles deserve respect.

[moss-opossum]

It’s okay to have low pain tolerance.

It’s okay to cry because your pain is at a 2 out of 10.

It’s okay to have higher tolerance for certain types of pain and lower tolerance for others.

It’s okay to be upset that your pain makes you dissociate, but not know any other way to deal with it.

Chronic pain is awful, period. Everyone who deals with it deserves compassion.

[mxmorbidmidnight]

Use the mobility aid. Pay no heed to that terrible voice in your head dear. Your lovely self does not deserve this, does not deserve be to be told they do not have the right to make their life easier. Just because you do not always need a mobility aid, or because your disability is not as severe as others does not mean you should not use it. If a mobility aid assists you then you are who it was made for. All I want you to worry about dear is how you can help yourself. I am so proud of you, those who fake claim you or dismiss your disabilities are ableists. They will claim to be disability advocates however it is entirely clear all they do to our communities is harm. They do not speak for the disabled community. We stand behind you, you do not deserve such mistreatment.

What you do deserve is to take care of yourself. You deserve the the independence a mobility aid gives, the stability and the confidence. You do not deserve to rot away, you do not desrve to ache in pain, nor do you deserve to stumble and fall.

You have a right to mobility aids and disability support. I love you so much, I know I do not know many of you but I can assure now that you’ve got a friend on your side who has a lot of experience in cursing ableists.

[decodedlvr]

Tw vent

You know what’s really, really hard?

Having chronic health conditions along with your parents also having them..

along with only one parent working.. along with my (black) dad always getting fucked on his pay… along with living check to check

Along with him, not allowed to work overtime anymore..along with them, both, breaking down body wise, along with having to try to take care of myself..along with always being poor … along with my broken down bodied mom taking care of her sick narcissis ungreatful parents along with me… not her taking care of herself bc we just can’t…

along with hardly having food.. fucked up car problems … constant gas issues with appointments… constantly canceling appointments because your car is broken down and you can’t afford new tires. ..toilet paper..? constant stress on our bodies. stress kills people. And all of our hearts have been having lots of pains…

Along with seeing my parents get more and more tired and stressed and fucked over by people… even our BILLS trying to take and take more money that we don’t have… sometimes he has to skip out on going to work bc of no gas that’s fucking SAD. PATHETIC

Along with having a partner who is all the way across the world and it’s not like you could have any stress relief, with them because they’re going through stuff too and work alot and they live too far away to even comfort you

Along with always having to lose your teeth only at 22 years old, because you can’t afford to get root canals or to get them fixed

They say money, can’t buy you happiness, but… it can make you more comfortable less stressed and mentally ill if you could afford the things that helped you, but you just can’t… ever ever

Miracles never happen for us. We’re just the unlucky side of the family. Nobody helps us out. Meh used to bad luck

[bifflesnitch]

My disability has once again disabled me and I for one and shocked.

[insert-name-heres-things]

Happy Disability Pride Month!!!

Remember Folks:

- SELF CARE IS NUMBER ONE

- Use your spoons sparingly! Here’s some spoons to go: 🥄🥄🥄🥄🥄🥄🥄

- Clean your mobility aids! (Seriously dude when was the last time you wiped that shit down with an antibacterial?)

- Accommodate yourself, as others will follow.

- Make goals within your reach and abilities

- DO YOUR COPINGS SKILLS

- Remember to stay hydrated and take your meds!

- For my fellow heat sensitive homies, stay cool this summer! A cold rag draped behind your neck, airy clothing, a small portable hand fan, keeping ice packs ready, cold water and expecially cold electrolyte drinks, all do wonders!

- For my fellow autistic folks, don’t be afraid wear earmuffs, stim, use chew charms, whatever it is that helps you regulate. You don’t have to mask if it’s something that isn’t benefitting to your life.

- POTS havin mofos like me, salt the ever loving fuck out of your food. Try different foods with salt, such as fruits and vegetables! I’m currently eating a salty tomato. Drink lots of water, I’ve been aiding gateraid packets to my water and it’s made a HUGE difference, especially as someone who hates drinking water.

- Those with PTSD for whatever reason, I wish you safety and support as you learn to cope and hopefully heal.

- I don’t know exactly what to say to others with H-EDS, as I’m still understanding this disorder other then BE CAREFUL WITH YOURSELF THIS PRIDE MONTH. I swear to god we are the most accident prone mother fuckers lmfao-

- If your immune system is all fucky like mine, keep clean and be sanitary, communicate with others that if they’re sick you can’t be around them, and wear a mask if you feel like that’s the right option for you. In my hometown I’ve gotten yelled at more than once for wearing a mask post-covid, however you can’t let someone else’s ignorance result in your own suffering.

- Don’t forget to move around and stretch! A little movement can do a lot for your body.

- Check in with your disabled friends! Try and see if there’s any way you can help one another, see where both of your strengths and weaknesses lie, and swap some spoons!!

- Be aware of what triggers your disorders. Whether if it’s caffeine triggering bipolar episodes, the weather causing fibro flares, big changes causing meltdowns, overexerting your hypermobility, whatever it is, it matters. Listen to your body and mind.

- Don’t be afraid to call out that doctor who isn’t listening, dismissing your symptoms and medically gaslighting you.

- While it may not seem like a big difference for some, trust me when I say your appetite is so important! Remember if it comes down to it, that it’s better to eat something, ANYTHING, than nothing at all. 

- To that person who might be hesitant, ashamed or might be questioning wether or not they should use a mobility aid, if it’s the difference between you being stuck at home vs going out and living some life… USE THAT MOBILITY AID!!! Same goes for braces and any other tool that may help you live a better quality of life.

- Be accepting towards those with disabilities different then your own- remember this month isn’t a competition about who’s struggling the most, rather to understand that people of physical, psychological, sensory, neurodivergence, and even undiagnosed disabilities all share one thing in common.. WHICH IS BEING DISABLED!

- Doesn’t matter who you are, how young or old, black or white, thick or thin - the disabled minority is one you can end up becoming a part of at any time, and likely will if you live long enough. Disability doesn’t discriminate, so EVERYONE should be advocating for disabled people’s rights.

- And of course, have pride in being disabled. This shit is fucking hard, but if you’re reading this, you’re doing it. Just being here today and doing what you can handle or manage, is doing your best, and that’s enough. You don’t have to push yourselves to impossible lengths to be proud of yourself.

Here, have the disability pride flag:

[justsomerandomgay]

i remember being ten years old and wishing to die rather than experience the pain i was in yet still my parents and my doctors didn’t believe me. sometimes it just hits me. that wasn’t a normal experience for a ten year old, was it?

[matchakuracat]

disabled people aren't "strong" for not using mobility aids when they need them. lots of people are/would be a lot stronger with the help of mobility aids, that is the reason they exist. using mobility aids doesn't make you weak, it's quite literally the opposite

[eyeofthenewt1]

chronic pain