#gi disability
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i remember being ten years old and wishing to die rather than experience the pain i was in yet still my parents and my doctors didn’t believe me. sometimes it just hits me. that wasn’t a normal experience for a ten year old, was it?
#chronic illness#chronically ill#chronic pain#cripple posting#cripple punk#cripplepunk#crip punk#cripple shit#queer cripple#crippunk#angry cripple#cripple life#cripple problems#functional neurological disorder#fibro problems#fibromyalgia#the chronicles of illness#stomach issues#gi disability#gi issues#medical neglect#medical trauma#physically disabled#physical disability#disabled#disability#disabilties#cripple punk community#c punk#pain posting
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ID: a picture of a cartoonish orange stomach plush with a smiling face and a yellow sticky note with “out of order” written on it stuck to it laying on a black blanket with white stripes. End ID
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I have severe gastrointestinal disabilities, and can eat very few things. And that is with me not having some common food intolerances and only having one food allergy.
There are those like me, and those who have those other food intolerances that I don’t, and those who have *both*, everywhere — including in all demographics that need food aid.
I don’t know what food is there in food aid. But I know that I cannot eat oranges, like the ones that were thrown onto that truck heading to Gaza, and tomato soup about which I’ve heard I think quite a lot of times when hearing about food banks. And just the vast majority of things that everyone eats. And I know that digestive disabilities are not a thing that is considered a lot. And, again, I know that they exist everywhere.
If someone who has any influence in any kind of food aid is reading this — please pay attention that there is food that is safe for various digestive disabilities. If someone points a direction to me, like what food is there in general, I could say (some of) what should be added if something should be.
#leviathan.txt#disability#gi disability#including but not limited to#chronic illness#needs more tags
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It’s also incredibly fucking traumatic to live with GI issues in the society that sees them as the Height of degradation.
Also accessibility issues in not being able to eat so many things and there being so fucking few and so fucking bad public toilets.
I’d been planning a huge post on my experiences as someone who’s lived with GI disabilities all his life, been just thinking about it last night, perhaps one fucking day
(all this absolutely not to detract from the op, & sending all the support)
real talk, people with GI issues like to joke and self deprecate with stuff like “I am so brave for surviving a tummyache” or “IBS stands for I Be Shittin’” but if you weren’t aware, having GERD or IBS or a hernia or any other digestive issue can hurt so much that it feels like your organs are on fire or you’re having a heart attack or going through opiate withdrawals and people do go to the hospital sometimes
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how cruel that muscle relaxers cause constipation I JUST WANNA CHEW MY FOOD AND THEN POOP IT OUT CMON BODY GET IT TOGETHER
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i just wanted to say you're not gross if you deal with gastrointestinal issues. even if people treat your symptoms and disorders like they're disgusting, they're not. they're genuine health problems- health includes your entire body. if you are having issues digesting/processing foods, eating, controlling your bowels or having diarrhea or constipation issues or frequent gas and bloating, you're not gross. if you need a colostomy bag, you're not gross. if you need to use diapers you're not gross. if you frequently vomit you're not gross. if you deal with acid reflux and chronic heartburn you're not gross.
people and even doctors will treat people with these kinds of issues like we're disgusting but we're just people with health issues. a GI issue is no less worthy of attention than a broken bone. it doesn't matter where it's located in the body you still need help with it. there are many issues people can have with digestion that aren't necessarily "gross" and they don't deserve to be looked down on. you deserve care and respect from everyone in your life. you don't deserve to be treated like your health problems don't matter
#crip punk#cpunk#cripple punk#actually disabled#disability culture#chronically chill#disabled culture#angry cripple#gi health#gastrointestinal#health#cripplepunk#chronic pain#our writing
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i think it's beyond fucked that medical professionals expect you to deal with misery as long as it's not actually killing you. even when there are procedures and therapies and medications, doctors always wait until the very last second until it's actually life or death. preventative medicine is so hard to find. sick and disabled people are forced to live with misery simply because we're not actively dying.
nobody should have to sit around miserable just because they *technically* can survive this. is it really even surviving when you can't function?
#chronic illness#chronically chill#disabled#disability#disabled community#actually disabled#hypermobile ehlers danlos#heds#eds#fibromyalgia#gi health#gastrointestinal#physical disability#mental health#neurodivergence#mental illness#depression#bipolar disorder#bipolar#schizophrenia#schizophrenic#schizoaffective#ptsd#personality disorder#borderline personality disorder#avoidant personality disorder#antisocial personality disorder#narcissistic personality disorder#histrionic personality disorder#our writing
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!!!!! Thank you for this specifically.
The internet having decided that the tag for that should be “unsanitary” makes me want to explode.
shout out to people with bladder and bowel issues this disability pride month.
its so hard to talk about our symptoms without being seen as gross or unsanitary.
you arent gross. you arent dirty. you arent unsanitary. i love you all <3
#disability#gi disability#urological disability#neurological disability#disabled positivity#positivity tag#sanitary culture
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✨ Things I'm insecure about because of my disabilities ✨
Being unreliable
Having a messy room
Abdominal bloating
Not being 100% on top of my hygiene
Having to excuse myself to the washroom more often
Using my mobility aids
Random bruising
My chicken (weak) legs
Having to explain myself to strangers
Taking the accessible seating on the bus/train
Tripping over myself
My brain fog (I used to have a fantastic memory, I feel like I come off as stupid now)
Being super sweaty
Not being "good representation"
Leaving functions early
Sitting on the floor in public
And so much more. This is a reminder that you're not alone in feeling gross or undesirable, it's also okay to feel that way.
Sometimes you need to feel the feelings before you deal with them.
#postural orthostatic tachycardia syndrome#potsie#pots awareness#me/cfs#chronic fatigue#gi issues#irritable bowel syndrome#hypermobility#physically disabled#disability awareness#queer cripple#cane user#rollator#young and disabled
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something that doesn't get talked enough about in my opinion is how absolutely isolating it is when you throw up all. the. time. and especially because it's seen as a "gross" symptom by most people. It is and has been the most isolating symptom for me and also happens to be my most severe symptom. I have thrown up at almost all of my friends houses, in my friends cars, at the majority of all sleepovers that i've been to, in public, on public transportation, in front of my friends or my friends parents, etc etc and this has been happening since i was a young child. It is absolutely devastating to lose your social life due to something you can't control and it is even more devastating to be considered gross by those you are around. And I ask that people please be kind to those of us that experience symptoms like vomiting and other gastrointestinal problems, because i can guarantee that it is a lot harder on us than it is you for witnessing it.
#chronic pain#chronically ill#disability awareness#disabilties#actually disabled#chronic disability#disability#disability aids#disabled#mobility aid#physically disabled#physical disability#disability rights#disabilities#disabled community#chronic illness#nj tube#feeding tube#tubie#gi issues
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thinking about how i was misdiagnosed with an anxiety disorder and the years of unnecessary treatment and medications and being ignored by doctors led me to develop an anxiety disorder.
#chronic illness#chronically ill#chronic pain#cripplepunk#crip punk#cripple posting#cripple punk#cripple shit#functional neurological disorder#crippunk#cpunk#c punk#queer cripple#angry cripple#cripple life#cripple problems#gi disability#gi issues#misdiagnosis#medical gaslighting#medical neglect#my illness is chronic but this ass is iconic#the chronicles of illness#anxiety misdiagnosis#anxiety#generalised anxiety disorder
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Had another bad gastroparesis flare that I couldn’t control and i ended up staying in the hospital for a few days but i’m doing better now, still trying to see a specialist for long term treatment
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as Christmas quickly approaches I wanted to give a word to people who celebrate. if you have people in your life who struggle to/can't eat for whatever reason please be kind and patient with them. Christmas is a very food-centered holiday so when you can't eat or have a hard time eating it becomes a very stressful and isolating holiday. when you are sitting at a dinner table surrounded by people eating it's often a cruel reminder of what you can't do and how you don't fit into the group. be kind to your disabled loved ones if they choose to excuse themselves from the dinner table entirely.
to the people who can't/struggle to eat, I know the impending doom of Christmas dinner is arriving. you are part of the group that you chose to celebrate with even if you can't celebrate the same way. it's easy to feel excluded from the group when you can't participate in a core part of the celebration but you are so important to that group of people. you are not obligated to sit at the dinner table if it brings up negative feelings for you and you certainly do not owe anyone making yourself sick for the sake of participating. dealing with gastrointestinal disease is more traumatic than people realize and you're allowed to have a complicated relationship with food that might even include not wanting to be around it. be gentle with yourself 💕
-> this post is about gastrointestinal disorders but people with other conditions affecting Christmas dinner are welcome to relate as well
#Christmas was a couple of weeks before I got hospitalized for my GI issues#and offered a feeding tube#I was barely keeping down feeding tube formula#and it was such an isolating experience#so I wanted to say something for other people like me#physical disability#physically disabled#cripple punk#cripplepunk#chronic illness#chronically ill
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Everyone with gi issues deserves a kiss on the forehead right now
#chronic illness#chronic pain#cripple punk#disabled#gi issues#undiagnosed#ibs#chronically ill#gastroparesis
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Mika’s Pokemon Team ❄️🤍🗺️🩵🎐
#my art#art#fanart#disabled artist#illustration#mika genshin impact#mika schmidt#mika gi#mika#pokemon#genshin impact
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