#health care

[flipocrite]

I’ve heard one horror story where they held the patient’s clothes hostage until she verbally agreed to not pursue an abortion

Is anyone else just... exhausted?

[politijohn]

Source

[typhlonectes]

[liberalsarecool]

We need to end lobbyism as we know it. Corporate bribery is the worst way to provide a human right like health care.

Sad that $800 million/year in bribes costs us $650 billion/year in savings.

[creature-wizard]

Since folks are exhausted from hearing about Project 2025 and Agenda 47, here are some reasons to feel hopeful about Harris

(It would be wonderful if folks could reblog this, a lot of people are feeling very discouraged right now and could use the morale boost!)

[bloodofstarvation]

My partner was just recently in the emergency for something bacterial (major chest congestion, coughing fits, hot flash fevers/chills for a week, then throwing up/fever a week after things haven’t gotten better)

The doctor says, more and more of these sorts of things are coming in, but he was the worst yet. No one in that ER but US were masked. Not even doctors, and we were put in isolation. Then they masked. (Sometimes if they remembered).

Wear a fucking mask. Get your fucking vaccinations. As people who have and do, we implore you too. Just because the lot of us do, doesn’t mean you guys can just slink around without doing your part.

Im not writing this as in response to the OP, but as a general reminder as part of humanity.

Im tired.

Anyone else notice that we went from as-close-to-socialism-as-this-country-has-ever-seen to hygiene theater to façade of fatigue to head-in-the-sand "normal" to being REALLY clear that you have no idea what you're sick with for the 3rd time this year but it's noT COVID because you took a rapid test back in 2022 so you're good for like 20 years, right?

Anyone else notice the phases of mass covid denial? Anyone else notice another week of more than 1,000 dying from preventable illness? Anyone else notice how little people care?

[becausegoodheroesdeservekidneys]

My sister rang me today.

Ever since she was six, she's had pain in her legs, which turns into pain in her hips and back for stretches of time. She's tried for years to get a diagnosis, with absolutely no joy. As a kid they thought she had collapsed arches in her feet; then it became clear her feet were fine, but something was wrong with her tendons; and then in her 20s they just shrugged it off with a "We'll never know probably" and that was that. She keeps on top of it with daily yoga, generally, though flare ups happen periodically. If she has to pause the yoga for some reason, she fairly rapidly regresses. Currently she has plantar fascitis again, which has halted everything once more, so right now she's back into a pain slump.

Anyway, she called me today while going from Doctors to pharmacy to get the codeine they've prescribed her for it.

"I think one of my yoga moves to help the fascitis might have exacerbated the legs," she said. "Trouble is, there's never been a diagnosis. I just have to trial and error what might help."

... And I had one of those lightbulb moments, you know? My brain suddenly went "Wait hang on, this is very familiar isn't it?" and rang the bells of memory.

"Did they ever test you for fibromyalgia?" I said.

They had not. It's never been suggested, even. My sister said she'd look up the symptoms and see if it chimed, and rang off.

Fifteen minutes later, she calls back.

Turns out she got to the pharmacy and gave them the prescription. While waiting, she googled fibromyalgia symptoms and found the NHS website.

"It was like someone had written a profile of me," she tells me on the phone. "Like, spookily, scarily accurate to me, right down to the temperature regulation bit. It felt like a practical joke."

And of course, as she stood there in the pharmacy, suddenly staring at the age of forty at the apparent answer she's been trying to get since she was six years old, she burst into tears.

"Oh no!" Said the pharmacist, hurdling the counter in a single leap and scattering the queue (I am exaggerating for humorous affectation.) "Quickly! Come into our little exam room, we'll get you tissues and water!"

My sister was duly ensconced into a Safe Place, and encouraged to cry it out. It took several hiccuping minutes, but finally, she managed to calm down and get back to an Extremely Watery Smile.

"Do you want to talk about it?" the pharmacist asked sympathetically.

"It's just..." my sister said, overwhelmed and searching for words. "My whole life I've been in pain, and they've never found why..."

"Ah," said the pharmacist thoughtfully. "Have you explored fibromyalgia?"

...

"TWICE IN ONE DAY," my sister yells on the phone to me later. "HOW THE HELL HAVE TWO SEPARATE PEOPLE ON THE SAME DAY FINALLY GIVEN ME THE ANSWER, AND NEITHER OF YOU IS A DOCTOR"

Anyway she has a doctor's appointment for tomorrow to discuss it, so we'll see

[infiniteglitterfall]

know someone who enjoys horror stories? share this one! it's true!

hahahahahahahahahaha aarrggghhhhhhhhhh 3,000,000 deaths due to COVID-19 last year. Globally. Three million. Case rates higher than 90% of the rest of the pandemic. The reason people are still worried about COVID is because it has a way of quietly fucking up your body. And the risk is cumulative.

I'm going to say that again: the risk is cumulative.

It's not just that a lot of people get bad long-term effects from it. One in seven or so? Enough that it's kind of the Russian Roulette of diseases. It's also that the more times you get it, the higher that risk becomes. Like if each time you survived Russian Roulette, the empty chamber was removed from the gun entirely. The worst part is that, psychologically, we have the absolute opposite reaction. If we survive something with no ill effects, we assume it's pretty safe. It is really, really hard to override that sense of, "Ok, well, I got it and now I probably have a lot of immunity and also it wasn't that bad." It is not a respiratory disease. Airborne, yes. Respiratory disease, no: not a cold, not a flu, not RSV.

Like measles (or maybe chickenpox?), it starts with respiratory symptoms. And then it moves to other parts of your body. It seems to target the lungs, the digestive system, the heart, and the brain the most.

It also hits the immune system really hard - a lot of people are suddenly more susceptible to completely unrelated viruses. People get brain fog, migraines, forget things they used to know.

(I really, really hate that it can cross the blood-brain barrier. NOTHING SHOULD EVER CROSS THE BLOOD-BRAIN BARRIER IT IS THERE FOR A REASON.) Anecdotal examples of this shit are horrifying. I've seen people talk about coworkers who've had COVID five or more times, and now their work... just often doesn't make sense? They send emails that say things like, "Sorry, I didn't mean Los Angeles, I meant Los Angeles."

Or they insist they've never heard of some project that they were actually in charge of a year or two before.

Or their work is just kind of falling apart, and they don't seem to be aware of it.

People talk about how they don't want to get the person in trouble, so their team just works around it. Or they describe neighbors and relatives who had COVID repeatedly, were nearly hospitalized, talked about how incredibly sick they felt at the time... and now swear they've only had it once and it wasn't bad, they barely even noticed it.

(As someone who lived with severe dissociation for most of my life, this is a genuinely terrifying idea to me. I've already spent my whole life being like, "but what if I told them that already? but what if I did do that? what if that did happen to me and I just don't remember?") One of its known effects in the brain is to increase impulsivity and risk-taking, which is real fucking convenient honestly. What a fantastic fucking mutation. So happy for it on that one. Yes, please make it seem less important to wear a mask and get vaccinated. I'm not screaming internally at all now.

I saw a tweet from someone last year whose family hadn't had COVID yet, who were still masking in public, including school.

She said that her son was no kind of an athlete. Solidly bottom middle of the pack in gym.

And suddenly, this year, he was absolutely blowing past all the other kids who had to run the mile. He wasn't running any faster. His times weren't fantastic or anything. It's just that the rest of the kids were worse than him now. For some reason. I think about that a lot. (Like my incredibly active six-year-old getting a cold, and suddenly developing post-viral asthma that looked like pneumonia.

He went back to school the day before yesterday, after being home for a month and using preventative inhalers for almost week.

He told me that it was GREAT - except that he couldn't run as much at recess, because he immediately got really tired. Like how I went outside with him to do some yard work and felt like my body couldn't figure out how to increase breathing and heart rate.

I wasn't physically out of breath, but I felt like I was out of breath. That COVID feeling people describe, of "I'm not getting enough air." Except that I didn't have that problem when I had COVID.) Some people don't observe any long (or medium) term side effects after they have it.

But researchers have found viral reservoirs of COVID-19 in everyone they've studied who had it.

It just seems to hang out, dormant, for... well, longer than we've had an opportunity to observe it, so far.

(I definitely watched that literal horror movie. I think that's an entire genre. The alien dormant under ice in the Arctic.)

(oh hey I don't like that either!!!!!!!!!) All of which is to explain why we should still care about avoiding it, and how it manages to still cause excess deaths. Measuring excess deaths has been a standard tool in public health for a long time.

We know how many people usually die from all different causes, every year. So we can tell if, for example, deaths from heart disease have gone way up in the past three years, and look for reasons. Those are excess deaths: deaths that, four years ago, would not have happened. During the pandemic, excess death rates have been a really important tool. For all sorts of reasons. Like, sometimes people die from COVID without ever getting tested, and the official cause is listed as something else because nobody knows they had COVID. But also, people are dying from cardiovascular illness much younger now.

People are having strokes and heart attacks younger, and more often, than they did before the pandemic started. COVID causes a lot of problems. And some of those problems kill people. And some of them make it easier for other things to kill us. Lung damage from COVID leading to lungs collapsing, or to pneumonia, or to a pulmonary embolism, for example. The Economist built a machine-learning model with a 95% confidence interval that gauges excess death statistics around the world, to tell them what the true toll of the ongoing COVID pandemic has been so far.

Total excess deaths globally in 2023: Three million.

3,000,000.

Official COVID-19 deaths globally so far: Seven million. 7,000,000. Total excess deaths during COVID so far: Thirty-five point two million. 35,200,000.

Five times as many.

That's bad. I don't like that at all. I'm glad last year was less than a tenth of that. I'm not particularly confident about that continuing, though, because last year we started a period of really high COVID transmission. Case rates higher than 90% of the rest of the pandemic. Here's their data, and charts you can play with, and links to detailed information on how they did all of this:

Here's a non-paywalled link to it:

https://archive.vn/2024.01.26-012536/https://www.economist.com/graphic-detail/coronavirus-excess-deaths-estimates

Oh: here's a link to where you can buy comfy, effective N95 masks in all sizes:

Those ones are about a buck each after shipping - about $30 for a box of 30. They also have sample packs for a dollar, so you can try a couple of different sizes and styles.

You can wear an N95 mask for about 40 total hours before the effectiveness really drops, so that's like a dollar for a week of wear.

They're also family-owned and have cat-shaped masks and I really love them. These ones are cuter and in a much wider range of colors, prints, and styles, but they're also more expensive; they range from $1.80 to $3 for a mask. ($18-$30 for a box of ten.)

[batboyblog]

Things Biden and the Democrats did, this week #16

April 26-May 3 2024

President Biden announced $3 billion to help replace lead pipes in the drinking water system. Millions of Americans get their drinking water through lead pipes, which are toxic, no level of lead exposure is safe. This problem disproportionately affects people of color and low income communities. This first investment of a planned $15 billion will replace 1.7 million lead pipe lines. The Biden Administration plans to replace all lead pipes in the country by the end of the decade.

President Biden canceled the student debt of 317,000 former students of a fraudulent for-profit college system. The Art Institutes was a for-profit system of dozens of schools offering degrees in video-game design and other arts. After years of legal troubles around misleading students and falsifying data the last AI schools closed abruptly without warning in September last year. This adds to the $29 billion in debt for 1.7 borrowers who wee mislead and defrauded by their schools which the Biden Administration has done, and a total debt relief for 4.6 million borrowers so far under Biden.

President Biden expanded two California national monuments protecting thousands of acres of land. The two national monuments are the San Gabriel Mountains National Monument and the Berryessa Snow Mountain National Monument, which are being expanded by 120,000 acres. The new protections cover lands of cultural and religious importance to a number of California based native communities. This expansion was first proposed by then Senator Kamala Harris in 2018 as part of a wide ranging plan to expand and protect public land in California. This expansion is part of the Administration's goals to protect, conserve, and restore at least 30 percent of U.S. lands and waters by 2030.

The Department of Transportation announced new rules that will require car manufacturers to install automatic braking systems in new cars. Starting in 2029 all new cars will be required to have systems to detect pedestrians and automatically apply the breaks in an emergency. The National Highway Traffic Safety Administration projects this new rule will save 360 lives every year and prevent at least 24,000 injuries annually.

The IRS announced plans to ramp up audits on the wealthiest Americans. The IRS plans on increasing its audit rate on taxpayers who make over $10 million a year. After decades of Republicans in Congress cutting IRS funding to protect wealthy tax cheats the Biden Administration passed $80 billion for tougher enforcement on the wealthy. The IRS has been able to collect just in one year $500 Million in undisputed but unpaid back taxes from wealthy households, and shows a rise of $31 billion from audits in the 2023 tax year. The IRS also announced its free direct file pilot program was a smashing success. The program allowed tax payers across 12 states to file directly for free with the IRS over the internet. The IRS announced that 140,000 tax payers were able to use it over their target of 100,000, they estimated it saved $5.6 million in tax prep fees, over 90% of users were happy with the webpage and reported it quicker and easier than companies like H&R Block. the IRS plans to bring direct file nationwide next year.

The Department of Interior announced plans for new off shore wind power. The two new sites, off the coast of Oregon and in the Gulf of Maine, would together generate 18 gigawatts of totally clean energy, enough to power 6 million homes.

The Biden Administration announced new rules to finally allow DACA recipients to be covered by Obamacare. Deferred Action for Childhood Arrivals (DACA) is an Obama era policy that allows people brought to the United States as children without legal status to remain and to legally work. However for years DACA recipients have not been able to get health coverage through the Obamacare Health Care Marketplace. This rule change will bring health coverage to at least 100,000 uninsured people.

The Department of Health and Human Services finalized rules that require LGBTQ+ and Intersex minors in the foster care system be placed in supportive and affirming homes.

The Senate confirmed Georgia Alexakis to a life time federal judgeship in Illinois. This brings the total number of federal judges appointed by President Biden to 194. For the first time in history the majority of a President's nominees to the federal bench have not been white men.

[beemovieerotica]

I want to address this with yes, rates of chronic illness and physical disabilities are statistically higher in queer people

but you have it backwards: someone having a disability and "low expectations" regarding their life is not any more likely to transition.

what's happening is that queer people are being ostracized by their families, social safety nets are removed, they're kicked off their parents' health insurance earlier, they're more likely to be homeless, and ALL of these are barriers to stable medical care. the social stigma of being queer results in worse health outcomes than the rest of the population and higher rates of disability.

something that should be taken with a grain of salt are the statistics talking about the high rates of mental illness + neurodivergence among trans people (ocd, bpd, adhd, autism, etc)

I see both sides of the political spectrum taking these studies at face value - conservatives say we're broken, and trans people try to come up with reasons why for example autism + gender dysphoria makes sense and why one of them feeds into another

at the end of the day you have to remember that we're the one category of people on this planet who are legally required to go see a psychiatrist in order to receive non-psychiatric medication and surgeries.

more trans people are in therapy by law than any other demographic of people, and as a result, this captures more comorbidities.

if I had to look at my own family & rates of mental illness?

mom, dad, 2 maternal aunts, maternal grandmother, paternal grandmother, sister, sibling, and me all have OCD.

7/9 of them are cishet, never been to therapy, never diagnosed. 2/9 are trans, required therapy for hormone treatment, and were diagnosed.

you don't have to do any math to just see that the resulting statistics end up intensely skewed.

and we can think back to how autism was virtually never diagnosed more than 50 years ago - ruling out any grandparents being included in statistics - and even my parents' generation (they're in their 60s now) wouldn't have been included either.

I don't think it's to anyone's benefit to accept these studies uncritically. a lot of these things are hereditary and far more prevalent in the overall population than people realize

[reasonsforhope]

Less than three months after U.S. Senator Tammy Baldwin and her colleagues launched an investigation into the four major American manufacturers of inhalers, three of the companies have relented, making commitments to cap costs for their inhalers at $35 for patients who now pay much more.

25 million Americans have asthma and 16 million Americans have chronic obstructive pulmonary disease (COPD), meaning over 40 million Americans rely on inhalers to breathe.

Inhalers have been available since the 1950s, and most of the drugs they use have been on the market for more than 25 years.

According to a statement from the Wisconsin Senator’s office, inhaler manufacturers sell the exact same products at a much lower costs in other countries. One of AstraZeneca’s inhalers, Breztri Aerosphere, costs $645 in the U.S.��but just $49 in the UK. Inhalers made by Boehringer Ingelheim, GlaxoSmithKline, and Teva have similar disparities.

Baldwin and her Democratic colleagues—New Mexico Sen. Ben Ray Luján, Massachusetts Sen. Ed Markey, and Vermont Sen. Bernie Sanders—pressured the companies to lower their prices by writing letters to GSK, Boehringer Ingelheim, Teva, and AstraZeneca requesting a variety of documents that show why such higher prices are charged in America compared to Europe.

As a ranking member of the Senate Committee on Health, Education, Labor, and Pensions, Baldwin recently announced that as a result of the letters they had secured commitments from three of the four to lower the out-of-pocket costs of inhalers to a fixed $35.00 rate.

“For the millions of Americans who rely on inhalers to breathe, this news is a major step in the right direction as we work to lower costs and hold big drug companies accountable,” said Senator Baldwin.

A full list of the inhalers and associated drugs can be viewed here.

It’s the second time in the last year that pharmaceutical companies were forced to provide reasonable prices—after the cost of insulin was similarly capped successfully at $35 per month thanks to Congressional actions led by the White House.

-via Good News Network, March 25, 2024

[the-cimmerians]

Vice President Kamala Harris announced this week that the Biden administration is looking to lessen the burden medical debt has on people by purging it from their credit report. This means that even if people have piles of medical debt — one in five Americans say they do — it’s not going to affect their ability to get a mortgage or a car loan. So they will at least have a place to rest their head and a car they can drive to work every day while paying off their medical bills.

Via AP:

Harris said that would make it easier for them to obtain an auto loan or a home mortgage. Roughly one in five people report having medical debt. The vice president said the Consumer Financial Protection Bureau is beginning the rulemaking process to make the change. The agency said in a statement that including medical debt in credit scores is problematic because “mistakes and inaccuracies in medical billing are common.” “Access to health care should be a right and not a privilege,” Harris told reporters in call to preview the action. “These measures will improve the credit scores of millions of Americans so that they will better be able to invest in their future.”

It only seems fair that high medical bills for an emergency or serious illness shouldn’t affect one’s credit rating anyway. It’s not like we’re talking about someone irresponsibly dropping several grand at Versace and then never paying off the credit card bill. Fifty-seven percent of Americans could not afford a surprise $1000 emergency, so the inability to pay off massive amounts of medical debt is hardly a fair reflection of an inclination to default on normal payments — payments you can budget for — on something like a mortgage or auto loan. “Way to be irresponsible by getting cancer, lady! You should definitely be punished for that by not being able to find any place to live!” seems pretty harsh, no?

[whatareyoureallyafraidof]

Also, I'll be voting blue all the way down the ticket, too!

[originalleftist]

I had my gallbladder removed years ago.

I was in pain, could barely eat.

I went two, or three times to the hospital before they did shit.

Once, I had to walk back home after (maybe a 45 minute walk) at night in pain.

Even when they finally checked me in and figured out the problem, they tried to weasel out of doing surgery to remove it and send me home. After I started not so subtly hinting I would sue them, they did.

I am a middle class white man.

I can't imagine how much harder it would have been if I'd been... virtually anyone else. Probably would have been penalized for being "belligerent" or something.

(I'd say that Canadian health care still beats US though if you're poor, especially pre-Affordable Care Act (which is most certainly getting repealed in the next year or so, you fucking MAGA voters). At least I didn't end up with tens or hundreds of thousands of dollars in debt.)

"Joy Spence, 21, said she visited emergency departments at two hospitals in St. John's over the course of nearly two weeks this May.

What began as weakness and abdominal pain on her right side quickly deteriorated into blacking out from the agony in her torso.

But no matter how dire her symptoms got, doctors kept sending her home.

"They would just tell me, 'Your bloodwork's normal, there's nothing we can do.' They would send me home, then same thing again," she said. "I would go back again. They would get me to do the bloodwork, say everything's normal."

Ultrasound and CT scans apparently turned up nothing, but Spence, in such severe pain, says she had no option but to keep returning to the hospital, where she says she was eventually left screaming in a waiting room, ignored by hospital staff.

"If somebody doesn't help me, I'm going to die," she recalls wailing, watching doctors and nurses pass her by.

At one point, she was dismissed outright by a walk-in clinic nurse, she adds.

"Somebody said to me, 'I don't know what you expect me to do,'" she said. "'You're a healthy 21-year-old young female.'"

One night, she says, her boyfriend had to help her into an ambulance. Spence was in so much pain she couldn't stay conscious and stand on her own.

"I remember the man in the ambulance telling me … how often he sees other young women going into the hospital and seeing them be misdiagnosed and not taken seriously," she said, speaking through tears.

"He said that he would do his best to … get things going for me."

Spence says she went to an ER at the Health Sciences Centre or St. Clare's Mercy Hospital about 10 times over a 12-day period, beginning on May 21. She also visited her family doctor, who could do little except tell her to speak directly to the surgeon at Health Sciences Centre, she said.

Each time she saw a doctor, she says, she was sent home and told to dance around her living room or do yoga to cure what physicians believed was anxiety or sluggish bowels.

"I had so many laxatives," Spence recalls. "I would tell them … nothing's even coming out anymore. It's not just this, I don't think. But no, they were dead set on the constipation and only constipation. Like, it can only be that."

...

Spence says doctors only began to take her seriously once she began vomiting in a Health Sciences Centre hallway. The contents of her stomach were green and black.

An older doctor walking past her happened to notice, stopping in his tracks. Spence says he immediately identified the issue as appendicitis.

At that doctor's urging, Spence was finally wheeled into an operating room, where she says her burst appendix — now gangrenous — was removed.

"I think when I walked into the room and they seen a 21-year-old young girl, they immediately dismissed me and thought that there couldn't be anything wrong with me," Spence said.

"I was not on their minds and not on their radar. And if they didn't have that preconceived idea of me, those thoughts wouldn't have been formed and maybe I would have gotten the proper care that I should have."

...

Spence is still struggling to recover from her ordeal. Physically, she's now fine: her appendix was removed and her stitches have healed.

But she's lost an alarming amount of weight, she says, wakes up gasping in the middle of the night and can't stop herself from crying whenever she remembers the hospital.

"I've been losing a lot of hair," she said. "Mentally, it's just been a struggle."

Spence only received an apology from the health authority after CBC News requested comment and confirmed that Spence had done an interview — a move she says felt hollow and frustrating, since the manager who called her didn't give her an explanation about why she was repeatedly ignored while waiting to be admitted.

The ripple effect from her illness, and how she says she was treated when seeking care, has uprooted her life. She's taken a year off her studies in Memorial University's social work program and has lost her job. She's looking for trauma therapy, but now doesn't have the money to pay for it, she says.

"I think as young women we're always told what we're supposed to do, how we're supposed to think, and not to trust our instincts," she said.

"But most of the time … the gut instinct is right. I knew I was sick. I knew what was happening wasn't right, and I could have died if I didn't keep going back to the hospital.

"If I had listened to those doctors and went back home — what could have really happened?""