#chronic pain discussion

[buried-in-autumn-leaves]

As a fanfic writer, I've always faced more judgement for headcanons that involve making characters disabled than ones that make them queer.

Both of these are matters of projection for me, yet one is always seen as just a touch too far for people to handle.

Disabled people exist. Queer disabled people exist. Chronically ill people exist. Diabled people are not required to ignore their existence when it comes to media. They deserve to be seen just as much as able-bodied queer people do.

If seeing disabled people in media makes you uncomfortable, I can only imagine how you might treat disabled people in real life.

[britcision]

Regular reminder that sudden and severe weight loss is a pretty serious sign that something is very, very wrong

[sorebonez]

i hate my mom making everything a pain contest!! saying a simple “i don’t feel good” prompts her to say “and i’ve not felt good all day!” and don’t let her hear me talking about being in pain because she’ll make sure it’s known that she’s apparently in more pain than me…

[cane-goth]

Are there any like.. idk studies? That look at the permanent effect chronic pain has on the brain?

Because i feel like even if i was magically cured and woke up tomorrow with 0 pain and never had it again, I would still for the rest of my life have issues with regulating my emotions, seeing things rationally, being sociable, etc etc etc.

If you took a person and inflicted non-stop pain on them for years on end and the only time they could possibly take a break was to choose between the pain or taking drugs, that would be considered literal torture and they’d have severe trauma and so many mental issues for the remainder of their life.

But my body being in 24/7 pain that stops me from functioning unless i take pain killers so strong they make me high is just life and I’m expected to get on with it.

I really wanna know what kind of mental toll years of chronic pain, especially in cases like mine where the chronic pain started before I even hit puberty and shaped my entire development.

[worstwolvie]

logan and wade helping each other deal w their chronic pain <3

[james-p-sullivan]

I really think we need to start talking about the stigma around hysterectomies and their place in the treatment for the symptoms of endometriosis.

Something I see often is the phrase 'hysterectomies don't cure endometriosis', which is very true, but do you know what a hysterectomy can cure?

Pain.

And you know the pain I'm talking about. The gnawing, all encompassing agony that surrounds our entire lives. The one that keeps you from going back to school, or uses up all of your sick days and vacation time from work combined, the one that leaves you dry heaving for hours until you pass out on the bathroom floor. That pain. There's truly no describing what it's like until you're living it.

And I cannot describe to you how free I feel knowing I will never have to suffer through that ever again.

If we continue to talk about our pain journeys we can end the stigma against hysterectomies. It will never be a cure-all, but remember that you are not a baby machine, you are a human being who deserves to live pain free. And I'm telling you, it's possible.

[i-am-simply-here]

Me trying and failing to explain to my boss why I think people with a disabled placard/parking thing (what are they called actually?) should be able to park in the parking lot at the nature reserve in town for free because I am struggling to find the words and it just kind of sounds like I'm whining about having to pay $10 to park in the reserve

[autistic-sidestep]

someone remind me to write up my fh disability theory reading meta at some point

[iliveinprocrasti-nationn]

physically disabled people: i love us physically disabled people

other people for some reason: what about everyone else? you don’t love everyone else? you could have just said disabled people. or just people. you’re excluding any non-physically disabled people. why are you promoting exclusion? i’m a bastion of inclusion and yet people are attacking me for it. if physically disabled people have their own spaces or positivity posts it’s because they’re ableist to everyone else and no other reason. if physically disabled people ever uplift themselves and not everyone else too it’s because they’re hateful

[aro-culture-is]

quick note - this blog is gonna be sparse again for at least this week. trying new medications and tbh initial side effects are not super pleasant + actual effects build up. as a result: currently as if unmedicated for mental health, with anxiety+ side effect, extra fatigue, dizziness, and fatigue. it's uh, sure something.

totally recognize that most of y'all know we're absent at times due to health things, just wanted to give a heads up that this one is at least anticipated.

[dashing-hyphen]

Important Doctor Appointment Today. Wish me luck!

[itsbansheebitch]

People who go on and on about how AI art is an accessibility tool are the ones you can 100% GUARANTEE don't follow or know any disabled artists.

There are artists without hands that hold paint brushes with their feet, their are blind people who sculpt, there are people with chronic pain that have their own break schedules, etc.

But you know what AI art generators do? They steal from disabled artists. They dehumanize them and then claim they're making a tool to help them. They see you as a "style" not a person.

Would it be too far to say that the rise of AI art has only made our consumer culture worse and made A LOT of people think they are entitled to someone else's work just because it's "available"? I'll let you decide.

[arctic-hands]

Time and distance heals things I guess. My parents got into an abusive fight with me after i took markers and pens to most of my clothes in middle school to scribble doodles and social justice messages (most prominently, Save Darfur–which really needs to be a rallying cry again given that the genocide has kicked up again as the Sudanese civil war rages). They were worried I'd look "unpresentable" in my massively oversized boy graphic tees and baggy jeans held up only by the grace of God (this was all by choice btw, i had and have always despised tight clothing and by middle school I had shunned girl clothes all together). But now at 31 I make mention of writing messages in sharpie on new t-shirts and my mom thinks it's cool and my dad offered to buy me proper fabric markers (I declined bc the cheap shirts will prolly wear out before the sharpies fade anyway). Go figure

[sorebonez]

Haaaiiiii I’m WAYNE

He/Him

I made this blog to feel less alone and bond with people who are similar to me in attempts to accept being disabled!

Little bit about myself & interests:

I’m a 16yo gay trans man who’s happily taken:) and I’m a cane user who’s trying to get leg braces because knee braces aren’t enough

I’m not 100% sure what’s wrong with me and my body, but I have been diagnosed with Joint Hypermobility syndrome, POTS, anddd autism..! I’m still going to doctors and trying to find a place to do physical therapy because I suppose it’s not normal for your body to be in constant paint…

Things I’m into include The Last Of Us, Haikyuu, Bungo Stray Dogs, Criminal Minds, Money Heist, Given, JJK, Avatar the Last Air Bender, Saiki K…

My absolute all time favorite media and thing in the whole wide world is VOCALOID and Project Sekai!!! My fav Vocaloids are Fukase, KAITO, Len… !!!!

On this blog

I want to complain, vent(?), and ramble about my physical disabilities that make my life hard and exhausting.. But I also want to try and accept that this is a part of me and accept my current situation and diagnosis’s. I also just wanna try existing in a space like every one else:) and talk about things that make me happy!!!

DNI>:(

𝖸𝗈𝗎'𝗋𝖾 𝖺 𝗉𝗋ø𝗌𝗁1𝗉𝗉𝖾𝗋/𝖼ø𝗆𝗌𝗁1𝗉𝗉𝖾𝗋 𝗈𝗋 𝖼ø𝗆𝗌𝗁𝗂𝗉/𝗉𝗋ø𝗌𝗁1𝗉 𝖽𝖾𝖿𝖾𝗇𝖽𝖾𝗋 𝗈𝗋 𝗌𝗎𝗉𝗉𝗈𝗋𝗍𝖾𝗋, 𝖸𝗈𝗎'𝗋𝖾 𝗁ø𝗆𝗈𝗉𝗁𝗈𝖻1𝖼, 𝗍𝗋𝖺𝗇𝗌𝗉𝗁ø𝖻1𝖼, 𝖺𝖻𝗅𝖾𝗂𝗌𝗍, 𝗋𝖺𝖼𝗂𝗌𝗍, 𝗌𝖾𝗑𝗂𝗌𝗍 𝖾𝗍𝖼, 𝖥𝖺𝗄𝖾 𝖼𝗅𝖺1𝗆𝖾𝗋𝗌, 𝖸𝗈𝗎'𝗋𝖾 𝖺𝗀𝖺𝗂𝗇𝗌𝗍 𝗑𝖾𝗇𝗈𝗂𝖽𝖾𝗇𝗍𝗂𝗍𝗂𝖾𝗌, 𝖸𝗈𝗎'𝗋𝖾 𝖺𝗀𝖺𝗂𝗇𝗌𝗍 𝗇𝖾𝗈𝗉𝗋𝗈𝗇𝗈𝗎𝗇𝗌, 𝖸𝗈𝗎 𝗆𝗂𝗌𝗎𝗌𝖾 𝖠𝖠𝖵𝖤 (𝗈𝗇 𝗉𝗎𝗋𝗉𝗈𝗌𝖾), 𝖸𝗈𝗎'𝗋𝖾 𝖺 𝖻𝖺𝗂𝗍 𝖺𝖼𝖼𝗈𝗎𝗇𝗍, 𝖸𝗈𝗎'𝗋𝖾 𝖺 𝗉𝖾𝖽ø𝗉𝗁1𝗅𝖾, 𝗓𝗈ø𝗉𝗁1𝗅𝖾, 𝗇𝖾𝖼𝗋ø𝗉𝗁1𝗅𝖾 𝖾𝗍𝖼…

[disgruntled-lifeform]

Question for my fellow chronic back pain sufferers:

I went to the doctor today to get my results for my knee and lower back scans and surprise, surprise, there was nothing showing on the results that would indicate why I'm in pain.

Botox injections for my back pain was suggested and my knee-jerk(ha!) reaction was "nope".

It sounds scary af to go for needles every 2-3 months and have them stab somewhere that is tender already. Not to mention how unnerving the word Botox is to me...

Have you ever done the injections and what was your experience with it? My doctor gave little to no info and it felt like pulling teeth to even get this far so any input would be better than me falling down a search engine hole

[grugzone]

ive been talking to a psychologist to get diagnosed with the tism and i had to fill a form talking about my experiences with sensory and social stuff you know whatever BUT also it asked about my special interests and you know i HAD to rant about how much i love debunking psuedoscience to someone who would also appreciate it