#adenomyosis

[theotherhappyplace]

Surgery done and recovering now

Feeling a bit better already

Tmi but who cares I had to have a hysterectomy. So that's the big thing I'm trying to recover from. Thank you to everyone sending me such kind messages I can't respond to everyone individually because I'm very tired. But I read them all thank you thank you

[akajustmerry]

I relatively recently learned that a lot of ppl who get periods can't actually tell when they're ovulating because ovulating doesn't cause them pain whereas ovulating for me has meant 1-2 days of low to mid grade sharp pelvic pain since I was a teenager and yeah. anyways big reminder that your menstrual cycle shouldn't cause you life-interfering pain regularly and if it does that's not normal and you should insist on a doctor investigating!

[yrfemmehusband]

Female reproductive health terms you should know!

(terfs not welcome)

Dysmenorrhea: Period pain that isn't normal, i.e. any pain more than Mild cramping.

Dyspareunia: painful intercourse

Oligomenorrhea: lighter, shorter menstrual flow.

Menorrhagia: heavier, longer menstrual flow.

Ovarian cysts: a mass on or in one's ovary, can be resolved on its own, or can remain and cause complications such as a rupture.

Polycystic ovary syndrome: a chronic condition causing cysts to reoccur on the ovaries and enlarging them. Symptoms include:

Irregular periods

hormonal imbalance

facial hair

weight gain

painful periods/ ovulation

infertility

People with PCOS are at higher risk for endometrial cancer, type II diabetes heart problems and high blood pressure.

Endometriosis: A chronic condition in which a tissue similar to, but different than, the endometrial lining grows outside of the uterus instead of inside. During menstruation this tissue sheds and has nowhere to go, thus irritating surrounding organs.

Symptoms include:

Irregular periods

Dysmenorrhea

Widespread pain

Painful ovulation

Vomiting, fainting, chills, sweating, fever and brain fog during menstruation

Infertility

Severe bloating

This also puts people at a higher risk for endometrial and ovarian cancer. There are four stages to Endo as it is a progressive disease, with 3/4 being more severe. The average time it takes to be diagnosed is 7 years.

Adenomyosis: A chronic disease similar and comorbid to endometriosis in which a tissue similar to the endometrial lining grows inside of the uterine wall. Symptoms are nearly identical to endometriosis but more difficult to detect.

Many people are diagnosed post menopause, by fault of the medical system, but it can and does develop much before then.

Ovarian cancer: cancer of the ovary(ies).

Endometrial cancer: cancer of the endometrium, the inner lining of the uterus.

Endometrial cyst, or chocolate cyst: cystic lesions from endometriosis.

Tilted uterus: the uterus is positioned pointing towards the back or severely to the front of the pelvis instead of a slight tilt towards at the cervix. Can cause painful sex and periods.

Pelvic floor dysfunction: inability to control your pelvic muscles. Comorbid with many things and is highly comorbid with endometriosis. Can cause pain and incontinence.

Vulvodynia: chronic and unexplained pain at the opening of the vagina.

Interstitial cystitis: a chronic condition where cysts form on the inside of the bladder and urinary tract and cause symptoms similar to that of a UTI.

Pre-eclampsia: a condition occurring in pregnancy where the blood supply between the fetus and the pregnant person is affected and can cause irregular blood pressure, swelling, and in more severe cases headache, nausea and vomiting, a burning sensation behind the sternum, shortness of breath and potentially death if untreated.

Endometritis: an infection or irritation of the uterine lining. Is not the same as endometriosis and is treatable but can cause pain, bleeding, swelling, general discomfort and fever, and more.

Pelvic inflammatory disease: an infection of the reproductive organs

Ectopic pregnancy: a pregnancy that is attached to the outside of the uterus. Can be fatal if left untreated.

There are many more I could probably add but if you see something missing, please add it!

[newhologram]

I’m really gonna need people, whether in the medical field or not, to stop saying “you’re too young for a hysterectomy!” when learning I just had one. Do you know what it took to get this surgery? I didn’t have a whole organ removed for the fucking funzies. Think for a second.

[deliamount]

A desperate plea from a Welsh neuro spicy bookworm

https://gofund.me/93bbe404

Hi all! It’s been years since I’ve used this platform but I’ve been around the block during my time. Mainly in the phan and Call the Midwife fandoms.

This may gain no traction as I am a dinosaur who has no clue how this platform works any more but I’ve created a go fund me for my endometriosis and adenomyosis surgery

This is not only for a much better quality of life for myself but also to raise awareness of what a truly awful disease this is and the lack of understanding and support around it. Shoutout to any girl who’s ever been told to use a heat pad or just get pregnant!

There are only 2 endo specialists in Wales and I have been rejected from seeing them on the NHS due to a insane postcode lottery so if you can support either with a donation or a share I would be super grateful

Love and cwtches to you all ❤️

[chonky-goth]

Lidocaine patches are amazing for chronic pain 💕

[james-p-sullivan]

I really think we need to start talking about the stigma around hysterectomies and their place in the treatment for the symptoms of endometriosis.

Something I see often is the phrase 'hysterectomies don't cure endometriosis', which is very true, but do you know what a hysterectomy can cure?

Pain.

And you know the pain I'm talking about. The gnawing, all encompassing agony that surrounds our entire lives. The one that keeps you from going back to school, or uses up all of your sick days and vacation time from work combined, the one that leaves you dry heaving for hours until you pass out on the bathroom floor. That pain. There's truly no describing what it's like until you're living it.

And I cannot describe to you how free I feel knowing I will never have to suffer through that ever again.

If we continue to talk about our pain journeys we can end the stigma against hysterectomies. It will never be a cure-all, but remember that you are not a baby machine, you are a human being who deserves to live pain free. And I'm telling you, it's possible.

[unironicallyabrony]

It's sooooo awkward having a Woman Disease™ when you're a trans man because like. Every time you look for resources or community it's always like "LET'S GO GIRLS!!! 🥰🥰🥰" "Support group for WOMEN struggling with this disease 💕💕" "We are WOMEN fighting this disease together!!!" and it's like yas I support you queens!!!! But also. I'm here too. And I know it's not just me..... so like....... scratches head

[bardace]

the desire to headcanon my faves as having the same medical issues as me vs the fact that those medical issues suck ass and I don’t actually want anyone to have to suffer through them the way I do

[after-the-line]

And trying to go to work to pay for this body is also impossible lol

[trippy-bunny]

they should make an e.r that treats chronic pain flare ups like theyre an actual problem and not smth i should deal with at home

[mommyisdownwiththesickness]

I just need to vent…read or don’t….its okay either way.

I feel like I have the worst luck medically. I know people have it a lot worse than me but things just keep piling up.

I feel like it started when I was 3 and had asthma. After that at around age 13, I had thyroid problems that made me an emotion wreck and roller coaster. At 14 I got diagnosed with type 1 diabetes. I rode those waves for a while until I was 20 and got epilepsy. Next, I had to have a colonoscopy that showed I had colitis and at 24 I was diagnosed with multiple sclerosis. After having chemo infusions for my MS my IGG levels went low and now o need an infusion for my low IGG levels. Finally, I went to the OBGYN with some abdominal pain and I was diagnosed with adenomyosis.

I have had my fair share of the shit stick with my health. Then since I was about 14 years old I have been struggling with depression and anxiety. I have been traumatized with every sort of abuse imaginable (physical, sexual, verbal, emotional) and even medical trauma.

I can’t go into any type of doctors office without my blood pressure spiking up to pretty much 140/90.

I don’t know what lesson the universe is trying to teach me but I’m about ready for my next life already.

[akajustmerry]

if you can imagine getting a painful heavy period that lasts 4-6 days every 18 days or so than you can imagine one small part of my personal hell

[newhologram]

Pain is intense. Took nurse many doses and a cocktail to manage. Home now. Couldn’t make it to pharmacy before closing but I have a few things to get me through Christmas day. Definitely feeling fragile in every way. But glad this years-long fight is over and I can finally rest.

[blackforrestpunk]

Hello, just a little life sign between the scheduled postings.

Surgery was fine. I am alive.

They ripped out what shouldnt be in me.

But still a bit sleepy.

Next goal, shitting without bleeding 😬😬😬