#adenomyosis

[shamebats]

On gynecological suffering, how we normalize it & why it needs to stop.

OP's pronouns are they/them.

[theotherhappyplace]

Surgery done and recovering now

Feeling a bit better already

Tmi but who cares I had to have a hysterectomy. So that's the big thing I'm trying to recover from. Thank you to everyone sending me such kind messages I can't respond to everyone individually because I'm very tired. But I read them all thank you thank you

[newhologram]

I’m really gonna need people, whether in the medical field or not, to stop saying “you’re too young for a hysterectomy!” when learning I just had one. Do you know what it took to get this surgery? I didn’t have a whole organ removed for the fucking funzies. Think for a second.

[unironicallyabrony]

It's sooooo awkward having a Woman Disease™ when you're a trans man because like. Every time you look for resources or community it's always like "LET'S GO GIRLS!!! 🥰🥰🥰" "Support group for WOMEN struggling with this disease 💕💕" "We are WOMEN fighting this disease together!!!" and it's like yas I support you queens!!!! But also. I'm here too. And I know it's not just me..... so like....... scratches head

[indycinders]

biggest part of recovering from surgeries is forgetting that it takes time. And since this was a major surgery involving a major organ, it's going to take a LOT more time than I think.

Yesterday I was feeling okay and had a good day, but today, man, today all I could do was sleep and watch a couple YouTube videos in the time I've been up.

I showered finally and even that just took a lot out of me. Sometimes you get caught up in the whole "I should be healed now" line of thinking instead of listening to your body and adjusting your expectations.

I think that's where I'm at right now. I know I've still got a hell of a long road ahead of me, it's just reminding myself to be patient and not spiral because things don't seem to be progressing.

It's a marathon, not a sprint uvu

Also if anyone is having a hysterectomy soon, be prepared for nausea because not even the patch helped mine .w. They're not lying when they say it's one of the most nauseating surgeries.

[akajustmerry]

I relatively recently learned that a lot of ppl who get periods can't actually tell when they're ovulating because ovulating doesn't cause them pain whereas ovulating for me has meant 1-2 days of low to mid grade sharp pelvic pain since I was a teenager and yeah. anyways big reminder that your menstrual cycle shouldn't cause you life-interfering pain regularly and if it does that's not normal and you should insist on a doctor investigating!

[yrfemmehusband]

Female reproductive health terms you should know!

(terfs not welcome)

Dysmenorrhea: Period pain that isn't normal, i.e. any pain more than Mild cramping.

Dyspareunia: painful intercourse

Oligomenorrhea: lighter, shorter menstrual flow.

Menorrhagia: heavier, longer menstrual flow.

Ovarian cysts: a mass on or in one's ovary, can be resolved on its own, or can remain and cause complications such as a rupture.

Polycystic ovary syndrome: a chronic condition causing cysts to reoccur on the ovaries and enlarging them. Symptoms include:

Irregular periods

hormonal imbalance

facial hair

weight gain

painful periods/ ovulation

infertility

People with PCOS are at higher risk for endometrial cancer, type II diabetes heart problems and high blood pressure.

Endometriosis: A chronic condition in which a tissue similar to, but different than, the endometrial lining grows outside of the uterus instead of inside. During menstruation this tissue sheds and has nowhere to go, thus irritating surrounding organs.

Symptoms include:

Irregular periods

Dysmenorrhea

Widespread pain

Painful ovulation

Vomiting, fainting, chills, sweating, fever and brain fog during menstruation

Infertility

Severe bloating

This also puts people at a higher risk for endometrial and ovarian cancer. There are four stages to Endo as it is a progressive disease, with 3/4 being more severe. The average time it takes to be diagnosed is 7 years.

Adenomyosis: A chronic disease similar and comorbid to endometriosis in which a tissue similar to the endometrial lining grows inside of the uterine wall. Symptoms are nearly identical to endometriosis but more difficult to detect.

Many people are diagnosed post menopause, by fault of the medical system, but it can and does develop much before then.

Ovarian cancer: cancer of the ovary(ies).

Endometrial cancer: cancer of the endometrium, the inner lining of the uterus.

Endometrial cyst, or chocolate cyst: cystic lesions from endometriosis.

Tilted uterus: the uterus is positioned pointing towards the back or severely to the front of the pelvis instead of a slight tilt towards at the cervix. Can cause painful sex and periods.

Pelvic floor dysfunction: inability to control your pelvic muscles. Comorbid with many things and is highly comorbid with endometriosis. Can cause pain and incontinence.

Vulvodynia: chronic and unexplained pain at the opening of the vagina.

Interstitial cystitis: a chronic condition where cysts form on the inside of the bladder and urinary tract and cause symptoms similar to that of a UTI.

Pre-eclampsia: a condition occurring in pregnancy where the blood supply between the fetus and the pregnant person is affected and can cause irregular blood pressure, swelling, and in more severe cases headache, nausea and vomiting, a burning sensation behind the sternum, shortness of breath and potentially death if untreated.

Endometritis: an infection or irritation of the uterine lining. Is not the same as endometriosis and is treatable but can cause pain, bleeding, swelling, general discomfort and fever, and more.

Pelvic inflammatory disease: an infection of the reproductive organs

Ectopic pregnancy: a pregnancy that is attached to the outside of the uterus. Can be fatal if left untreated.

There are many more I could probably add but if you see something missing, please add it!

[deliamount]

A desperate plea from a Welsh neuro spicy bookworm

https://gofund.me/93bbe404

Hi all! It’s been years since I’ve used this platform but I’ve been around the block during my time. Mainly in the phan and Call the Midwife fandoms.

This may gain no traction as I am a dinosaur who has no clue how this platform works any more but I’ve created a go fund me for my endometriosis and adenomyosis surgery

This is not only for a much better quality of life for myself but also to raise awareness of what a truly awful disease this is and the lack of understanding and support around it. Shoutout to any girl who’s ever been told to use a heat pad or just get pregnant!

There are only 2 endo specialists in Wales and I have been rejected from seeing them on the NHS due to a insane postcode lottery so if you can support either with a donation or a share I would be super grateful

Love and cwtches to you all ❤️

[james-p-sullivan]

I really think we need to start talking about the stigma around hysterectomies and their place in the treatment for the symptoms of endometriosis.

Something I see often is the phrase 'hysterectomies don't cure endometriosis', which is very true, but do you know what a hysterectomy can cure?

Pain.

And you know the pain I'm talking about. The gnawing, all encompassing agony that surrounds our entire lives. The one that keeps you from going back to school, or uses up all of your sick days and vacation time from work combined, the one that leaves you dry heaving for hours until you pass out on the bathroom floor. That pain. There's truly no describing what it's like until you're living it.

And I cannot describe to you how free I feel knowing I will never have to suffer through that ever again.

If we continue to talk about our pain journeys we can end the stigma against hysterectomies. It will never be a cure-all, but remember that you are not a baby machine, you are a human being who deserves to live pain free. And I'm telling you, it's possible.

[trippy-bunny]

they should make an e.r that treats chronic pain flare ups like theyre an actual problem and not smth i should deal with at home

[blackforrestpunk]

Hello, just a little life sign between the scheduled postings.

Surgery was fine. I am alive.

They ripped out what shouldnt be in me.

But still a bit sleepy.

Next goal, shitting without bleeding 😬😬😬

[akajustmerry]

if you can imagine getting a painful heavy period that lasts 4-6 days every 18 days or so than you can imagine one small part of my personal hell

[mommyisdownwiththesickness]

I just need to vent…read or don’t….its okay either way.

I feel like I have the worst luck medically. I know people have it a lot worse than me but things just keep piling up.

I feel like it started when I was 3 and had asthma. After that at around age 13, I had thyroid problems that made me an emotion wreck and roller coaster. At 14 I got diagnosed with type 1 diabetes. I rode those waves for a while until I was 20 and got epilepsy. Next, I had to have a colonoscopy that showed I had colitis and at 24 I was diagnosed with multiple sclerosis. After having chemo infusions for my MS my IGG levels went low and now o need an infusion for my low IGG levels. Finally, I went to the OBGYN with some abdominal pain and I was diagnosed with adenomyosis.

I have had my fair share of the shit stick with my health. Then since I was about 14 years old I have been struggling with depression and anxiety. I have been traumatized with every sort of abuse imaginable (physical, sexual, verbal, emotional) and even medical trauma.

I can’t go into any type of doctors office without my blood pressure spiking up to pretty much 140/90.

I don’t know what lesson the universe is trying to teach me but I’m about ready for my next life already.

[lunar-whispers]

This is the thing about chronic illness that I keep trying to wrap my head around; it's chronic.

The horrors persist.

The horrors will continue to persist.

I've run out of medical interventions, I've run out of options. And at the same time I know I can't keep running away from my life. It's an excuse, and a valid one at that, but I'm tired of it derailing my life. But I have no choice.

As this disease perseveres in my body, I will have to persevere with my life in spite of it.

I am strong and resilient, and this is a good thing, but I wish I could be soft too. A soft version of me died many years ago. Years before the inflammation and pain took over my body. I wonder plenty about causation and correlation but I don't believe it's really of any consolidation now. Thinking about it isn't helpful.

I am grateful my condition is periodic. At least I get breaks. Others aren't so lucky with their medical misfortunes.

Although I generally endeavour to keep a zen mindset, a little 'woe is me' is good for the soul, I think. It can be cathartic. I'm allowed to shout out to the universe and to the void that this sucks. Because it does. It fucking sucks.

[newhologram]

I’m going to be taking rest very seriously so I’m not sure when I’ll return to work. I haven’t worked that much the past few months because my pain was pretty rough. If you like my let’s plays, J-pop translations, fancams, or spoonie stuff and want to support me during recovery, there are three ways: Patreon, Ko-Fi, and GoFundMe

Thank you! I’ll update each step of the way.