#Invisible Disability

[chronicallymistreated]

I find that it's so unnecessarily hard to explain that chronic illnesses and pain are... chronic. People seem to not understand the chronic part. Whilst I understand that some people recover, a lot of us never will and people seem unable to grasp that...

[tired-cripple-punk]

I’ve been dismissed by doctors many times, so I wanted to know the experiences that other people have had

hate going to the doctors with persistent debilitating symptoms and then then they call you with the results which is just like good news! your blood is red

[thexie-and-stars]

Whoever decided to force chronically ill/physically disabled kids to do p.e should be hunted for sport

[vampiresblog]

casting a spell to combat the fatigue today. I will have energy to do the things I need to do. I will have energy to make it to the kitchen to microwave a meal. I will have energy to call for help if I need it. I will have energy to pick up my cane. I will have energy to feed my cat tonight. I will have energy to take my meds .

[lupusbaby]

Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.

[yellow-dress-basil]

Since the Paralympics are happening and I’m seeing all sorts of people saying “See? This person doesn’t let their disability stop them!”

I would like you to remember that Paralympions are OLYMPIC LEVEL ATHLETES.

How would it feel if I compared your output to that of a literal olympic athlete and used that to justify not helping you or giving you what you need?

Oh, well Michael Phelps and Simone Biles can do it - why can’t you?

Thats how you sound.

[chroniclesofchronicillness]

This makes so much sense

[the-royalgarden]

I really wish butchhood wasn't conflated with being a protector so much, honestly.

I'm a very vulnerable butch. I'm chronically ill, invisibly physically disabled, and have a lot of mental health issues. My masculinity doesn't inherently make me more strong or powerful.

But there's a huge amount of butch culture built on butches being protective of femmes, or just being strong and working in very physically laborious jobs. It feels disheartening to be locked out of a major part of my culture, just because I'm disabled.

So here's to all the disabled butches who want, or are expected to, be strong because toxic masculinity has taught us the mascs are the protectors, but we can't be.

We're the ones who need people to slow down for us. We're the ones who need to sit down and catch our breath after walking a bit. We're the ones who need help. And that doesn't make us any less butch.

[lordhavemercyyyyy]

🫂

I need a hug from every disabled person ever right now.

I'm going through a really rough patch with my ME/CFS and chronic pain, and I'm still coming to terms with the fact that I'll most likely need to start using a wheelchair before 2025.

Can every disabled person hug me rn? Like virtually just have a little disabled moment.

[zebulontheplanet]

Just a reminder that people who still live with their parents as adults deserve respect and for you to stop being ableist. There are multiple reasons someone could still live with their parents! From invisible to visible disabilities, finance issues, and more!

Stop using the “well they’re gonna turn into a creep living in their parents basement” punchline! It’s disgusting. STOP. BEING. ABLEIST. STOP. FORGETTING. THE. POOR.

[fadingwonderlandkryptonite]

Something I want able bodied people to understand is that I don't want a diagnosis cause I wanna be sick so bad; I want a diagnosis because there is already something wrong with my body but I don't know what the fuck it is.

[haowenyang]

you’re not a disability advocate if you make fun of people with incontinence or people that drool or peoples motor functions or people with brain damage or people with low intelligence 👍

[potsiepumpkin]

Useful information

[johnlennonirl]

Here I am, posting something similar like the fibro post... this one goes out to my psychotic folks🫶

[hellyeahsickaf]

I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)

It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:

How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.

Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."

How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills

How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud

Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides

Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance

Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!

There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.

Please boost!