#with chronic fatigue
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What is it with people and saying to my face that if they were in my shoes they would either kill themselves or become an alcoholic? Like how does anyone think that's a useful or appropriate thing to say
#wooo#interactions with neighbours#with chronic fatigue#the lift is broken#so i can't leave the house#bc wheelchair#maybe it's just the German directness#Doctors do it too though#kinda mad#tw sui talk
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what is it with able bodied people saying “get well soon” after you say that you’re chronically ill?? like? i am not gonna? and i once literally responded with “i’m not gonna, it’s chronic, as in permanent.” and they went like “oh well, hope you get better!” like bro 💀
#chronic disability#chronic illness#chronically ill#chronicpain#chronic disease#disabled#chronic fatigue#chronic pain#disability#disabilties
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Say it with me! Wheelchairs aren’t sad! Mobility aids aren’t sad! Mobility aids are instruments of freedom!
#chronically ill#chronic illness#chronic pain#disability#disabled#chronic fatigue#autoimmine disease#mobility aid#cripple punk
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#comic#first comic on da new pc#and now i go lay down#if you’re wondering why I am so Tired: I have PCOS which leads to chronic fatigue AND I work full time where I have to mask 8 hours a day#and talk to customers on the phone and solve their problems#I’m pretty fucking sleepy most of the time
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Something I think people who don’t live with chronic illness don’t understand is that there is a big difference between resting to get better and resting to avoid getting worse.
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anyone else ever wish they could lie down harder? Like, I'm already horizontal, but I need more horizontal. I need to be absorbed by the floor. I think that would fix me
#My orthostatic tolerance is currently zero#POTS#postural orthostatic tachycardia syndrome#me/cfs#fibromyalgia#chronic illness#disability#migraine#gastroparesis#chronic pain#chronic fatigue#chronic fatigue syndrome#myalgic encephalomyelitis#spoonie#mast cell activation syndrome#MCAS#dysautonomia#chronic migraine#joint pain#hEDS#ehlers danlos syndrome#hypermobility#hypermobile ehlers danlos#interstitial cystitis
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#disability#chronic pain#fibromyalgia#chronic fatigue#chronic illness#long covid#sleep disorder#activism
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#rest#give yourself permission to rest#self care#self care is not selfish#self compassion#self respect#self love#work culture#grind culture#stop the glorification of busy#spoons#chronic illness#burnout#compassion fatigue#activism fatigue#no guilt#no shame
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shaking myself (very gently) . being in pain takes a lot of energy!!!!!! being in pain is exhausting!!!!!!! you are not lazy or weak because you need to spend so much time resting, this is your body coping with how much pain you’re in literally 24/7!!!!!!!!!
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chronic fatigue from mental illness and neurodivergency isn't something you can just will your way out of. your nervous system is part of your body. your brain is an organ. the fatigue is real. you're not lazy. so be kinder to yourself. be gentler with your bodymind.
#softspoonie#chronic fatigue#fatigue#mental health#mental illness#chronic illness#chronically ill#mentally ill#neurodivergent#bodymind#depression#anxiety#autistic burnout#disability#disabled
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#fibromyalgia#chronic illness#chronic pain#chronic fatigue#fibro#spoonie#chronically ill#invisible illness
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Shout out to the ten year old who just got diagnosed. Shout out to the housebound fourteen year old. Shout out to the eighteen year old who can’t go to the university they wanted. Shout out to the twenty two year old who can’t get a job. Shout out to the twenty six year old with a caretaker. Shout out to the thirty year old who can’t buy their own house.
Shout out to young disabled people. We exist.
#disability#actually disabled#young disabled#wheelchair user#cane user#chronically ill#chronic illness#chronic pain#chronic fatigue#functional neurological disorder#cripplepunk
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Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.
#chronic fatigue#chronic illness#chronic pain#chronically ill#disability#disabled#fibromyalgia#lupus#autoimmine disease#pots#pots syndrome#invisible illness#invisible disability#accessibility#cripple punk
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Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside
#it feels like i got jumped by seven people but NO#if my body is going to make me feel like ive been stabbed five thousand times i should at least get a sword fight out of it im just saying#fibromyalgia#fibropain#fibro problems#fibro flare#fibro#chronic pain#chronic fatigue#chronic illness#hypermobility#hypermobile#hypermobility syndrome#spoonie#disabled#actually disabled#disability#c punk#cripple punk
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Anyone else with chronic pain ever get really absorbed in a project and dissociate from your body while you're working but then you finish and you come back to your body and you're just like AAAAAAAHHH! WHAT'S WRONG?? oh yeah. The horrors. Never mind
#my body is ouchie#chronic illness#disability#fibromyalgia#me/cfs#migraine#postural orthostatic tachycardia syndrome#chronic fatigue#chronic pain#gastroparesis#pots#hEDS#ehlers danlos syndrome#hypermobile ehlers danlos#hypermobility#the horrors persist but so do I#the horrors#interstitial cystitis#I no longer desire internal organs#or bones#oof ouch my bones#dysautonomia
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i wanna say fuck you to anyone who shame disabled, chronically ill & neurodivergent people, especially homebound folks, for "spending too much time on their phone/on the internet/etc." when it's the only (Somewhat) accessible way for them to experience the world. many people don't get to get out much even if they want to because of their disabilities. shaming someone for trying to connect with the world, make friends and engage with hobbies in ways that are accessible to them is beyond cruel and unnecessary
#cripple punk#cripplepunk#crip punk#cpunk#actually disabled#chronic pain#disability culture#fibromyalgia#disability rights#disability advocacy#physical disability#c punk#angry cripple#queer cripple#cfsme#chronic fatigue syndrome#chronic fatigue#arthritis#diabetes#neurodiverse#neurodiversity#neurodivergent#autism#autistic#adhd#actually autistic#hypermobile eds#hypermobilty syndrome#our writing
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