#not-narcolepsy
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A while ago, in a post I can't be bothered to find, I mentioned that I was experiencing symptoms that are typical of narcolepsy. A month ago, I finally talked to a doctor about it and he had me do some exams.
The exam results concluded that I don't have narcolepsy. I'm just very sleepy all the time for unexplainable reasons.
"It's sleep deprivation," says the doctor.
How can it be sleep deprivation if I sleep ALL THE TIME? That sounds like the opposite of sleep deprivation?!
"It's depression," say medical articles on the internet. Because apparently everything that is wrong with you for no apparent reason is due to depression these days.
Anyway, even though it's Not Narcolepsy™, the doctor prescribed some medicine for narcolepsy (🤷) to take in the morning as well as medicine to help me sleep at night.
The narcolepsy med actually helps. It doesn't make the random sleepiness attacks go away completely, but they're easier to resist now. The sleeping med is completely useless, though.
Anyway, since I still feel dangerously sleepy when I'm trying to study, I've been looking into some kind of app or device that could help me stay awake. Maybe a smartwatch/smartband that vibrates when it detects that I fell asleep?
I COULD use a plain old alarm clock app, but I don't want to set it to sound every ten minutes all day, that'd be super annoying for me and everyone around me. 😑
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my heart goes out to you if you're a disabled person who has a complicated or negative relationship with sleep. if you need to sleep a lot but can't due to life circumstances, or sleeping extra causing other symptoms to flare up. if you can't sleep enough due to pain, or nightmares, or psychosis, or bipolar, or depression. if you sleep way too much and find it hard to stay awake. if you can't fall or stay asleep. if you need medication in order to be able to sleep. if you don't feel rested from sleep. if you wake up a lot in the night. if you have bladder or bowel accidents while asleep. if you twitch or convulse or move too or get injured in your sleep. if you can't control your sleep schedule no matter what. if you can't sleep during "normal" sleeping hours. if you can't sleep for 8+ hours straight but can sleep for shorter amounts of time. if sleep is what you need but for one reason or another you just can't or refuse to do it.
i care about you. your disabilities deserve to be seen and acknowledged
#actually disabled#chronic pain#cripple punk#fibromyalgia#crip punk#insomnia#troubled sleep#trouble sleeping'#sleep disturbances#sleep disorder#sleep disorders#narcolepsy#depression#bipolary#psychosis#schizophrenia#autism#adhd#ptsd#did#dissociative identity disorder#osdd#mental illness#disability#madpunk#]our writing#cpunk#disability culture#cripplepunk#c punk
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Fuck your insomniac Tim Drake head canons instead join my team and start pushing the idea that Tim actually has narcolepsy boy can't stop himself from falling asleep even if he wanted to
#dc#dc comics#batman#tim drake#further hc that he refuses to admit he has narcolepsy#“what do you mean steph everyone falls asleep on rollacosters thats normal im up all night”
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"where'd you get that... comically large block of ice?" "huh? oh don't worry about that" is genuinely one of the funniest lines in tdp history and i think we should be discussing it
#funniest line since “wait narcolepsy?”#or “am i be needing a boat?”#but i suppose as a standalone line it is definitively my favorite#like this is a sitcom line and in this context it is just incredible#tdp spoilers#tdp s6#tdp#the dragon prince#continuethesaga#giveusthesaga#moonless night
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Off my usual topic, I want to talk about idiopathic hypersomnia for a minute.
I have been tired for YEARS. I sleep and sleep and sleep and I can still fall asleep at the drop of a hat. I have followed alllll the sleep hygeine advice, regular physical activity, giving up caffeine. I went to the doctor and got my iron levels up, started using a CPAP.
I was sleeping 10 hours a night, napping two hours in the afternoon, and I was still exhausted and crabby all. the. time.
I was convinced that this was something I was doing wrong. I wasn’t cut out for motherhood, I wasn’t following the advice correctly, I needed to…I don’t know, something.
I finally asked my doctor for a referral to a sleep specialist. She talked to me at length, but it at one point she looked at my CPAP data and I saw her eyes get huge. “Is this ACCURATE?!” she asked me “You sleep a LOT!”
So. With a hypersomnia diagnosis she got me started on a stimulant medication to help me stay awake during the day. This was two weeks ago and I am MIND BLOWN. I was worried that I might feel…amped up, but I just feel like myself for the first time in years.
I don’t need a nap. I can play with my kid, I can push the swing. I can walk the dog. I CAN GO OUT TO DINNER. My well of patience is so much deeper because I’m not fighting to stay awake after 2pm.
We’re still pursuing more diagnostics, including a 24 hour sleep study to see if I have a form of narcolepsy and some more blood work. But. I feel like I’ve gotten a fresh start.
So please. If you’ve got something weird going on physically or mentally and you KNOW it’s not right, keep pushing for more diagnostics, ask for referrals, get to the bottom of it!
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Go back to sleep, Ace
Ace has an episode and wakes up with his head in your lap.
First time writing Ace so lemme know how I did! ❤️
Masterlist
Ace doesn't remember passing out, so that must mean that he'd had another one of his episodes. Usually, that wouldn't bother him, but he vaguely recalls speaking to you, his crush, right before his mind goes blank. However, wherever he is, Ace is comfy as hell and really doesn't want to get up.
There are fingers running through his hair that stop and gently scratch his scalp every now and then. Ace doesn't remember the last time someone has played with his hair like this. He kinda likes it. His face is pressed into something soft and squishy, and he is shameless in the way he sighs and presses into it.
The sound of you snickering has Ace opening his eyes, embarrassment, and mortification flooding his system. The first thing he sees are your legs extended in front of him, your sandal covered feet crossed at the ankles. He goes to rise up, apologies bubbling up and spilling out.
"Shit. _, I'm so sorry. I didn't uhm-"
"Shut up, Ace. It's not a big deal," you interrupt Fire Fist and gently push his head back down to your lap, your fingers still tangled in his black locks. His mouth clicks shut, his freckled cheeks so hot they may as well have been on fire.
"Are you sure? I know I'm heavy, I can move?" Ace stresses again but can't help the way he slumps down when you resume your careful petting, and soon his eyes begin to grow heavy.
"I don't mind. Go back to sleep, Ace," You assure him once more and are rewarded with the young man rolling so that he could look up at you, his arms winding around your waist to cuddle you close. Fire Fist is back asleep within moments, feeling safe and comfortable with you keeping him company.
#reader insert#one piece#fluff#portgas ace x reader#ace x reader#portgas d ace#ace#ace one piece#one piece x reader#blorbo#narcolepsy
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More Second Coming? Yes! I HC him as for sure having Narcolepsy, it's strongly implied lol.
#digital art#my art#fanart#doodles#avm tsc#ava tsc#tsc#narcolepsy#hc#ava alan becker#alan becker#ava green#avm green
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AHH HII!!! saw the mr crawling fic u posted and it's adorable :(( can i please have a mr crawling x reader where they have a condition that makes them sleepy? andAND because of this, sometimes they do strange things like, for example, talking non coherently, sleeping in weird places and having tics while sleeping!! i really want some fluff with this man...... *holds my hands out like a poor victorian child*
As always, take your time!! your aesthetic and work is genuinely really good!! you are great at this <3 mwahmwah. 🐁
Mr Crawling and Narcoleptic!reader
A/N: *shakes you violently* OMG ANON YOU'RE A GENIUS you just made my day with this btw — ask and ye shall receive >:)) As for the condition I think you might be asking for a Narcoleptic reader or something of those lines but YEAH I can totally do that, here you go, mini oneshot for you 🫵🏻🫵🏻
Summary: Mr Crawling’s been noticing some weird behaviours from you lately for the past few days and it’s both funny and worrying, are you okay???
WARNING: This is set after the Blissful Love Life ending, if you don’t want spoilers then keep scrolling!
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It’s been little over a few days now since you and Mr. Crawling escaped his world, and the two of you were perfectly settled together at your place. Mr. Crawling so far’s been pretty happy overall, getting to stay home with you in your world and has grown pretty attached to you. But, as of lately, he’s been noticing some…'strange' behaviours from you.
You seemed to be more sluggish when moving around the house and sleepy, he even found you crashed in the bathroom, at your desk, and other places in the house. He found the sight to be cute but at the same time it was also getting a little worrisome.
Were humans always this sleepy?? He’s never seen you this sleepy when the both of you were still in his world. Well, maybe he did a few times without realizing it, but he failed to pick up on it.
He even caught you mumbling incoherent things and twitching in your sleep while the two of you were cuddled up in bed. He thought you were hurting somewhere whenever he felt you quivering in his arms, which made him hug you tighter and run his fingers through your hair, trying to soothe you. It was another day done of hours of work when you came back home, had food, and shortly went to bed with Mr. Crawling following after you like a lost puppy. Considering how exhausted you were from work, you passed out in seconds the moment you flopped onto the bed.
Later in the night, Mr. Crawling was curled up under the covers, with you spooned in his arms, the bedroom completely pitch black with the curtains drawn closed and there was a comfortable silence that filled the room. His arms were wrapped securely around you in a comforting squeeze, he nuzzled his face into the back of your neck, inhaling your scent for a moment and he instinctively squeezed you a little tighter. Relishing in the warmth your body radiated...
The silence then was suddenly broken when he heard you mumbling things in a slurred tone, (unfortunately he picked up little words he could understand considering he still had a lot to learn with your language), and he could feel your muscles twitching once in awhile. Mr. Crawling however grew worried again, he lied there uncertain if he should try to wake you up or not. He didn’t want you getting cranky or annoyed for waking you up, but this was really starting to bug him and he wanted to help.
Mr. Crawling began to shake you gently to rouse you from your slumber, but you weren’t budging much, so he shook you a tad harder. “Human? Wake?” He murmured quietly. It took him another few tries until you started to stir from your sleep and you shifted in his arms to your discomfort.
“Mmn?… Mr. Crawling?….” You mumbled out quietly, your words sounding slurred in your half-asleep state.
Oh, good, you’re not mad. “Human hurt? Why twitching in sleep?” Mr. Crawling questioned, his fingers curled into the fabric of your night shirt. “Me worry, me want to help.”
You shifted under the covers again and you turned over to face Mr. Crawling, stretching your legs in a sluggish manner and your muscles relaxed. “I’m okay bud, I’m not hurt,…” Your words trailed off for a moment, straining back another yawn and your fingers found their way into Mr. Crawling’s hair, gently patting him. “It’s just my narcolepsy acting up, nothing to worry about…”
Narcolepsy?
Of course the term sounded unfamiliar to Mr. Crawling’s ears, “Narc-lep-see?…” He repeated, confused. As you could feel yourself slowly slipping in and out of unconsciousness, you did your best to try and explain your condition to Mr. Crawling. Mr. Crawling failed grasp much of it (in complicating terms-wise), but he seemed to understand it was something that made you very sleepy throughout the day. He also had the look of disappointment when you mentioned it was incurable, surely it could be fixable. If Mr. Silvair was here he might’ve found a way!
Before Mr. Crawling could even ask more questions about it, you were now unresponsive and had drifted off to sleep. He couldn’t be mad at you (not like he would anyways), he did abruptly wake you up after all. So he decided to keep quiet and save the rest of his questions for the morning, his arms fastened around you again and he rests his chin on the top of your head. Intently listening to your soft breathing and the dark noise of the bedroom that filled his ears. From this point on starting tomorrow, he’ll do the best he can to help you out…
#OMG YAY MY FIRST ASK FOR REQS#LETS GOOOOOOOOO#I hope this is to your liking anon 😌#thiejfjsb I’m not entirely sure if I portrayed narcolepsy right but I do apologize if it’s wrong#I did my best and I tried looking more into it before I did my writing lmao#this took awhile I’m so sorry I was busy for a little gnskbdj#dead’s asks#dead’s writing#oneshot#homicipher#homicipher x reader#mr crawling x reader#mr crawling#gn reader#fluffies
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I finally came up with the perfect way to describe my fatigue to my doctors, husband, or whomever needs to know, because I used to be able bodied:
You know when you've been on your feet all day, working, hiking, playing sports, or something where you've been walking and walking, and you haven't had a chance to sit? There's that moment where you've had enough, and you say to yourself, "I just HAVE to sit right now. I NEED to sit!"
I remember feeling like that sometimes, after a long hike, or roller skating for hours. That's how I feel all the time. Every moment of every day, I feel like I just ran a marathon, or hiked up a mountain, and I NEED to SIT!
I could always walk a few more steps. I could keep pushing myself, because sometimes you have to. Sometimes your still at the top of the mountain, and it's time to climb down.
But I always feel like, good god I really need to have a seat. And once I'm sitting, I don't get rested. I don't feel like, "Okay, I'm ready to get up now!"
When I'm standing, I always feel like I need to sit, and when I'm sitting, I always feel like I just sat down after a very long day. I am at rest, but I am never rested.
I can always push myself. But, I am always pushing myself. I think, maybe I pushed myself into the position I'm in now. I live from one rest to the next. One counter than I can lean on with as much weight as possible, to a chair, to an out of the way corner where I can just crouch for a minute.
I don't get rested. But now, with my power chair, I can be at rest without feeling imprisoned.
#chronically ill#chronic illness#chronic fatigue#narcolepsy#neurological disability#invisible disability#disablity#ambulatory wheelchair user
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Prompt 290
Ghosts have the habit of taking names of those they’ve defeated. Not in spars or play-fights of course, and one has to actually be an adult for the instinct to hit, but it happens. It happens far more often than one would think.
Jason? Actually has no clue when he comes back to the living why he stole one of the Joker’s older names, nor why the Pit goes so angry when he thinks about Robin- HisTitleHisFraidNameFromFamily-
Now the Pit? Not a baby semi-near the cusp of adulthood, in fact is Very Old even if it’s more hivemind-esque then a full on realms entity. Very offended for the Baby it was gifted, because who takes that from a literal infant?!
Oh! Oh that’s another baby! Hm, change of plans, obviously the baby is also its. Because while adult ghosts trying to forcefully take a Name is a direct challenge? A ghostling- or in this case liminal- doing it is an open invitation for adoption.
#DCxDP#DPxDC#Prompts#Sentient Lazarus Pit#Jason has no clue what happened either#Tim got kidnapped by Pit Mad Jason and bundled into a nest#At this point Hood’s Merry Men is used to their Boss bundling up kids and helping them detox so they leave him be#Let Liminals & ghosts Purr#Dick & Bruce are so very panicked & tearing through Gotham#Not unlike how Tim’s teammates are freaking out & searching outside Gotham#Meanwhile Tim is just confuzzled as Big Crime Lord curls around him & growls at anyone who so much as opens the door#the Pit: I am such a good parent :)#Later when Jason isn’t actively having Pit Episode (the Pit totally isn’t wanting babies to meet each other)#Jason holding Tim by the armpits audibly confused: You are not one of my brats#Tim who is concussed & has narcolepsy: No shit helmet-man but let me go back to sleep it’s comfy
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#thepandaredd#pandaredd#dcverse#dcau#dc#dc comics#batman#bruce wayne#superman#clark kent#“symptoms”#Bruce is sleep deprived#lots of training and plenty of caffeine#Clark is concerned#symptom 7: minor narcolepsy#how are you not dead?! I'm Batman#just tranquilize the bat
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More flightless wings Tim !!!!! Just some doodles from class ^_^
#art#batman#fanart#tim drake#digital art#dc robin#batman and robin#dc comics#red robin#redrobin!tim#flightless wings au#wings au#birds#his fit lowkey based on one of my fav fits to wear around the house when it’s cold but warm clothes are in the wash#keeps me decently warm#he is the sleeber#my narcolepsy hc has a very strong chokehold on me…#but also this dude can be sooo tired but if he doesn’t feel safe enough subconsciously he will NAUT be sleeping#when he is out tho he is OUT
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List of the neurodivergent creatures
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+ a couple extra I found: (click for better quality)
Alt anxiety creature, by @ thisartisfine
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Auditory processing issues creature by @ xgarlicbredx (the "huh?")
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AuDHD (autism+adhd) creature by @ konesamotan (the "brb")
Feel free to reblog/comment with any I might have missed!
Tag urself!!!
#anxiety creature#autism creature#adhd creature#schizo-spec creature#ADD creature#tourettes creature#OCD creature#depression creature#dyscalculia creature#dyslexia creature#dysgraphia creature#dispraxia creature#hyperlexia creature#epilepsy creature#narcolepsy creature#down syndrome creature#api creature#audhd creature#phew#not tagging the other names cos im TIRED lol#100
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Silver’s narcolepsy is so… interesting to me
everyone always talks about it like it’s a silly joke. like “ha ha sleepy boy!!!” which is. fine. but from what we see in the game, it’s undoubtedly a serious physical disability. it literally causes him to fall asleep randomly throughout the day and there’s no way he can fight it. that’s genuinely scary and a cause for concern. what if he fell asleep next to a lake and drowned or something??
i can’t help but think about how much it must affect him mentally. imagine you’re the only human in a fae family, and your whole life you believed that you would be the first to die, and you need to make the most out of the short time you have to repay your loved ones for raising you.
and the universe decides to give you a sleep disorder that completely hindrances your ability to do so. you doze off CONSTANTLY, wasting hours upon hours of precious time that you could’ve used for something more useful.
you can’t control it. once you feel that drowsiness, it’s over. nothing helps; you just can’t stay awake regardless of what you try. no one knows what’s wrong with you so you just assume that it’s your own fault for being so lazy. your father’s done everything he can, bless his kind heart, but even he can’t find a solution.
nobody understands what you’re going through, they all say it’s normal to feel bored or tired from schoolwork every now and then. which isn’t how you feel at all, but you just don’t have the words to describe it.
it gets to the point where you’re failing your classes because your body simply refuses to function the way it’s supposed to. your teachers blame you and they’re right, it’s your fault it’s all your fault isn’t it?
your peers make fun of or look down on you for being unusual. for always falling asleep. for not expressing emotion (doesn’t anyone else find it hard?). you feel ashamed. you try to fix it but you can’t. nothing can ever be fixed.
it’s frustrating to be unable to control your own body. you’ve grown used to it, and so has everybody else, although that doesn’t make it any less of a problem. but at this point it feels like there’s no other choice but to just live with it.
and in the end, you feel guilty. your father has given you everything, and yet you can’t give back. does that not make you a failure? a disappointment of a son? here you are, living, breathing, thinking, and you can’t even do anything to thank the person who gave you the luxury of existence.
wouldn’t you hate sleep? wouldn’t you utterly despise that feeling of drowsiness that overtakes your mind when you so much as stay still for a single minute? would you not cherish the moments in which lethargy did not plague you?
oh, how you wish there was a cure.
(tagging: @fruixtii )
#these are just my personal thoughts so pls be nice if u disagree—#twisted wonderland#disney twisted wonderland#twst silver#lilia vanrouge#diasomnia#malleus draconia#sebek zigvolt#twst headcanons#twst analysis#twst angst#narcolepsy
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🐍⚔️
#he didnt even get to eat his dinner. what the fuck narcolepsy cmon#ill be so real i rly struggled w this one. so fun fact the scarabia dorm is SO STRANGE at this angle it looks weirdly empty#still. the night lighting in scarabia is so peaceful its wonderful. i want to have a sleepover there#twst#twstファンアート#twistedwonderland#twstsilver#jamilviper#ruggiebucchi#floydleech#riddlerosehearts#jadeleech#kalimalasim#azulashengrotto#we also hit 50 books ordered earlier today!!!! i need to make an official post abt it this weekend but i cannot thank u all enough! <3#i need to add a sticker to the orders as a thank u. i gotta draw another super cyute silver ^_^#if we somehow hit 100. looks into the distance. perhaps ill announce a stretch goal of another lil item. something fun#i must ponder#suntails
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did you know it's world narcolepsy day? happy world narcolepsy day!!! I hope everyone with narcolepsy has a wonderful day today :]
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