#need to draw more of them in a wheelchair
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Thanks OP! It has always been a goal of mine to try to give charecters in Unlikely diverse backgrounds. And for 5 years of development, I never worked on a charecter in a chair.
My partner now uses a chair and my eyes are absolutely open to the importance checking how narrow your views of diversity can be (you may still have blinders on) when making charecters I didn’t understand wheelchairs so it seems I unintentionally avoided them out of ignorance.
Now I’m really familiar with accessibility devices and we have a lot of friends who need accessibility aids so it’s almost second nature to be working on charecter designs with chairs for future chapters. I was a proponent of saying ‘you don’t know until you know’ when we were learning everything and I stand by that. With out posts like this or more awareness or open community spaces with acsessable activities or hang outs you may rarely meet anyone who uses these kinds of devices. Seriously I don’t think I knew more than one person in a chair before my partner started using one! Now that my community is full of chair users I don’t understand how I never met more people who used them.
Anyway remeber to look outside your bubbles! Write characters with physical/mental disabilities draw with research and be explorative in your life/art/social circles etc.
To add to this post I suggest the website ‘writing the other’ great resource for writing characters in demographics you have no experience in. It’s videos write ups and seminars with authors or creators within those demographics who speak on charecter creation with visibility in mind. Check it out!
A guide to designing wheelchair using characters!
I hope this helps anyone who's trying to design their oc using a wheelchair, it's not a complete guide but I tried my best! deffo do more research if you're writing them as a character
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hear me out on scag x split guys. they both start with "s" it's practically canon.
#labyposting#yes i know split x bive but guys we have other women for the both of them. let's explore!!!#don't bully me on my wheelchair drawing skills i have both never drawn one and also attempted a mashup for it so. no real accurate refs#i also couldn't think of how to attach the claw prosthetic to scag's arm so we got tha arm warmerrrrrrrrrrrrr.#probs will change it at some point cus i don't like it. sigh. more references and studies.#not enough time for that now though i must create lesbians#futch4butch my beloved...#they would be so awesome together guys do you have any idea. DO YOU GUYS EVEN KNOW??!???!?!??!#someone ask me about them i want to think about their relationship more but im stuggling with ideas. of what to think.#somebody else ship this with me also. i need a friend in these lonely and trying times#cleft lip gamer electric wheelchair butch nonbinary lesbian IT worker and shop owner scag for the win#oh my gooddddd someone PLEAASEEEEEEEEEEEEEEEEEE#my newest freshest brainrot born straight out of my mind. i'm not going to stop thinking about this.#i want what they have.#ok now i will actually put tags#soz guys i got a little carried away#labyart#my art#regretevator#regretevator roblox#roblox regretevator#regretevator fanart#regretevator art#roblox#roblox art#roblox fanart#fanart#regretevator split#split regretevator#split
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me and my need for bedman and faust friendship
#guilty gear#bedman#faust#ギルティギア#ベッドマン#ファウスト#this is another case of go go bullshit go#need to finish that chibi doodle#and i want to actually draw proper art of them#lord have mercy on my soul#wanted bedman to have like a cane or staff that he has around to lean on when he walks#idk what design yet#before he got to this state it took some time#he was mostly bedridden and in a wheelchair#when he physically got better and can move properly he started travelling around with faust#to help along the way and maybe find more clues about his condition#boy he is lost#he doesnt know what to do yet and if he can face his sister#iruiruart
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heres a quick Philby sketch !! just pretend all their clothes are rainbow coloured 🌈 :]
#one day I'll use pencil crayons or smth to colour stuff but it is just not smth I enjoy a whole lot#Lake is the one who rly enjoys using pencil crayons - he doesnt even use pencil fjdkdl just goes right in with the crayolas its crazy#and then a couple of the kiddos use markers and crayons! i want to share one of the kiddos art styles bc its genuinely so cool.... hmmm#maybe I'll make a post just to show our system's different art styles fhfkdl just for funsies#i like sharing stuff on this blog way more than my other account bc this is a smaller space w nicer ppl DBFHDKL#like my other account has some absolutely lovely ppl but theres also some ppl who make me nervous on my main LOL#i dont block them bc they rarely show up in my activity and they dont rly bother me that much#ANYWAYS WOW IM RAMBLING LOL this is what happens when i post less fhdkdl#the ramblers curse stores up power and then BLAM it all comes spewing out#ANYWAYS YAY PHILBY YAY YIPPEE MY BELOVED OC#i do not know how to draw canes very well yet but im going to figure it out!! same with wheelchairs!!#i want(+need) to learn how to draw mobility aids for some other OCs so Philby is good motivation to learn !!!#☎️philby#doodlebug.png#dandy.cmd
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2/2
(psst @mrrotten @mylackofgrammaristerrifying @nyenylon this tag list is slowly growing and that terrifies me /pos)
(it's not all OCs this time but i'll upload smth 100% OCs soon! also should be added this is completely non-canonical now!! my babies have grown up a little bit <3)
Plus my cat (Velma) <3
notebook: 2021-2022
sooooooooooooooo i decided to upload every notebook i fill out to tumblr! my current one (2023-present) will be uploaded in mid-late 2025 probably, so this is my notebook from 2021-2022!
however: this was kind of a diary, i have drawings from friends in there that haven't consented to having them online, and one of the people who drew in it isn't someone i still speak to. as a result, i have blotted these things out for our privacy and my general comfort. if i notice something i've missed, i'll edit!
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#artsy's post#artsy's notebook#artsy's fabrication#artsy's ocs#artsy's art#old art#artsy's asuna#artsy's dew#artsy's chaaya#artsy's cody#artsy's chichi#thunder i'm sorry you don't show up :(((#won't tag fandoms!#also NONE OF THIS IS CANON NOW. THESE OUTFITS ARE OLDDDDD#plus some queer idebtites of ocs have changed so shhhhhh#fandoms include: utmv; sanders sides; yona of the dawn; toh; bbu; probably some i'm missing too#some of this IS still canon. like dew did wear bunches for a while when they were younger (probably 8-12)#azzie had a bob and found all the hairclips in the world to put in it#and cody wears cute dresses sometimes. but now it's rarer#also!!!! i always forget but azzie is an ambulatory wheelchair user!!!!! (bc of dyspraxia fatigue/pain. she moves around too much sometimes#need to draw more of them in a wheelchair#ALSO. CANNOT STRESS ENOUGH THIS IS OLD ART. I HAVE IMPROVED I SWEAR#also sorry the image quality is shit lol. the pages are the shiny type in the sun and i used to draw with faint lines ;-;
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Gotham fucking loves Brucie Wayne
Some nice Brucie Wayne headcanons for you all
Hes an idiot and a dork but he makes social events interesting because who else would fall into the chocolate fountain?
At any social event where kids are invited as well he can most definitely be found with the kids, talking to them like they are adults
He never treats anyone as inferior unless they're dicks
He once punched riddler in the face because he interrupted a girls birthday party
He has an entire fashion line that is dedicated to giving people actually comfortable practical clothes
Hes an absolute unit in bed. For both men and women. (either top or bottom)
He once held a man upside down by his ankles and shook him until everything had fallen out of his pockets because he had used to be a bully and was now a dick
Can and will walk teenagers home if its late at night.
Always tips very generously
He was once in line at a batburger and there was a karen yelling at the poor 16 year old cashier and he walked to the front and just started sticking 100 dollar bills into the tip jar with the nastiest smile aimed at the karen. ‘The more you yell the more i tip.’ (the cashier was, coincidently stephanie brown, and she high fived him)
He has a social media but never uses it unless its to draw awareness to a certain cause or to show off his children.
He also posts beautiful pictures of gotham, or of mundane everyday things, showcasing the beauty in life
(Is canonically a feminist)
Will protect waiters/servers/janitors from creeps or gotham elite who think theyre better than them
He stopped adopting kids but still pays for as many college tuitions as he can
Funded a city wide disability infrastructure plan so people with wheelchairs could go places too
He once rocked three guys with guns’s shit because they were attempting to molest these little boys
Punched a teacher in the face for making a student cry
Will at any time drop everything the second one of his kids asks him to
There is an entire instagram account dedicated to pictures of him helping old people cross the street
Once a month he visits inmates at the prison and offers them jobs
Genuinely cares for his workers and buys them houses and cars if they need it
Literally created gothams public transportation system and made sure it was free
Teamed up with poison ivy to make public gardens for everyone to enjoy
Funds clean energy research
Any celebrity fan mail he receives he answers personally
One time a little girl asked him to come to her birthday party and he did and brought presents
Taught an entire school basic self defense
Brucie Wayne may be an idiotic little shit but he is the Prince of Gotham and Gothamites would lay down their lives for him more willingly than they would for Batman.
#just some headcanons#some might be tru#some not#idk#i just wanted some good bruce wayne#not batman#but bruce wayne#brucie wayne#batfam#batman#good guy bruce wayne
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Tips for writing and drawing Wheelchair using characters: Your character's wheelchair can tell us a lot about them
When you first start learning character design, you'll often be told something to the effect of "use your character's outfit to tell us more about them" - and this same principles can be applied to a disabled character's mobility aids.
Mobility aids like wheelchairs, to many disabled people, are a part of us. They can be an extension to a person's body and chances are, if you're going to be using this piece of equipment every day for the foreseeable future (or at least for a good amount of time for the foreseeable future), it's going to start reflecting some aspects of your personality, your interests, your passions, especially when you remember, a lot of people get their wheelchairs custom built for them.
You can use your character's wheelchair to tell us a lot about them without ever needing to show/describe them directly.
Let me show you two examples:
Take a look at these two wheelchairs. they're similar in shape and build, but still pretty different to each other. Can you make some guesses about their users based only on what's shown here?
intended answers below:
Please note, the following points are all generalisations and the real world is rarely this simple. This is to demonstrate how to use disability aids to contribute to your character's design, not how to make assumptions about real people in real life.
So here are some similarities between the chairs:
Both wheelchairs have ridged frames, this means the wheelchair can't be folded in any way. These kinds of chairs can imply a few different things depending on the person. They are typically lighter, sturdier and more durable, and indicate the person probably will be using the wheelchair for a long time and/or has the money to get something built to last (or lives in a place where cost not an issue due to universal/subsidised access to healthcare). They are also typically better to travel with when flying, as they are less likely to be broken by airport security/staff.
Both wheelchairs also lack anti-tip wheels, which are a third set of wheels that extend from the back of the chair. Them not being present could indicate the person is likely pretty confident in their ability to use the chair without worrying about tipping out. It could also indicate they are in an environment where the anti-tips could be more of a hazard than a help, such as on rough terrain.
So lets look at some specifics for the green wheelchair:
Take a look at the wheels. The front wheels are pretty small and appear to be solid, while the back wheels appear to be quite narrow (compared to the orange chair anyway). This indicates the user likely lives somewhere with decent accessibility like a (well funded) city where they are unlikely to encounter unpaved/dirt roads/grass. Small front wheels and thin back wheels are good for manoeuvrability and a smooth ride over even terrain, but they will get stuck as soon as bumps appear, so this probably isn't an issue for this person.
While its a bit hard to tell unless you have seen other similar wheelchairs, this wheelchair is very long in the front, meaning the footplate and front wheels are further away from the seat than most. There could be a few reasons for this. One either indicates the person has very long legs, or a lack of motion in their knees, making it harder to bend their legs. This is moves the chair's centre of gravity forward by a decent amount, making it harder to tip back, which could indicate the person's legs are very light. You tend to see this most often in the wheelchairs of bilateral leg amputees, who are at a greater risk of tipping backwards due to a lack of weight at the front of the chair (even if they wear their prosthetics).
The colour of the chair is bright. This could simply be the character's favourite colour, or maybe this colour has some significance to them?
There are stickers on the side of the chair relating to the Paralympics. This could indicate the person is a fan, or perhaps had some involvement in the games?
The wheelchair has handles on the back, but they are able to be folded down. This is a popular feature for people who are independent enough to go out on their own, but still want to have the option for some help. folding down the handles also deters random strangers from grabbing at you (an unfortunately common experience for wheelchair users).
There is some mild paint scratching to the front of the wheelchair, but nothing too noticable. This is typical of older chairs and people who are a little rough on their chairs. Maybe they've had a few stacks and falls throughout the years, probably going a decent speed.
Ok, now let's look at the orange chair
This wheelchair has very large, inflatable front wheels, and very thick back wheels. This will make the chair slower and less manoeuvrable on flat/even surfaces, but much, much easier to push on rough terrain. This is supported by the amount of mud on the wheelchair.
The seat on this wheelchair tilts upwards slightly. This is called a bucket (or according to an old basketball teammate of mine, a dump-truck lol). This is a feature you typically see in wheelchairs made for people with spinal injuries who are unable to move their legs and engage their lower bodies or core to help keep them stable.
The back of this chair is very low, indicating that if this wheelchair user has a spinal injury, it's probably pretty low on their spine, likely fairly close to the hips, making the person a low-level paraplegic. Higher-level paraplegics and quadriplegics usually need a higher back to help support them and keep them from flopping over, since all the muscles below their place where their spine broke either doesn't work, or is significantly weaker. Higher backs though can get in the way of pushing and reduce mobility, so people who need less support will likely opt for a lower back rest.
This wheelchair has no handles, which indicates the user is probably very independent and doesn't need a lot of help getting around.
The paint on this wheelchair is very scratched up, showing the person is very tough on their wheelchair and doesn't care to get the paint touched up.
This wheelchair has no breaks. This is very common on chairs with larger tiers as they don't tend to be as effective, but also on many outdoor wheelchairs, for two reasons. One is because they are made for rough terrain, so chances are, you aren't going to go far without a big push to get you moving. The second reason is that to get over large bumps and obsticals in a wheelchair, it can be helpful to do very large pushes using the top and front of the wheel. When pushing a normal chair, most people will only use the top section of the wheel to push since it's closest, but these big pushes that use the front of the wheel make it easier to push, since you can benefit from downwards momentum. However, this is also where the breaks are located on most wheelchairs, which can create a hazard. I've lost entire fingernails by them getting snagged on the breaks when pushing this way. So if you live somewhere where the breaks are not going to be helpful to you often, it makes sense to not get them.
And here are the characters who own these wheelchairs
The owner of the green wheelchair is an amalgamation of a few people I knew from when I played wheelchair basketball. They're a bilateral leg amputee, and judging by their outfit (The Official National Wheelchair Basketball uniform for Australia), they're an elite athlete. This wheelchair is not the one they play sport in, but it still needs to be durable enough to withstand the rough treatment of airport staff when traveling, as well as heavy day-to-day use that comes with being an active person. While it needs to be rough, the person also seemed to want to prioritise speed and manoeuvrability, and likely doesn't need to worry about rough terrain too much, so they probably live in a major city.
The owner of the orange chair was inspired by a family friend of mine. They live on a farm, and need a chair that can handle life in those conditions, rough terrain and all. This comes at the cost of speed and manoeuvrability on smoother terrain, but honestly, anyone who's lived in the country knows you won't find many of those around there anyway, so that's not too big of a sacrifice. They are paraplegic, are very confident in their ability to use their wheelchair, and probably doesn't need help too often, but still benefit from some extra stability support from the raised seat on their chair.
Conclusion
Once again, these are generalisations, and in real life there are always exceptions, but I hope this helped demonstrate what I meant when I said you can use your character's wheelchair to tell us more info about them if you're smart about it.
I originally planned to do a whole series of these, showing a wider variety of wheelchairs and the people who they belong to, but I guess I kind of forgot because they've been sitting, abandoned on my hard drive for the last 2 years 😅. If that's something you folks would be interested in seeing though, let me know, I'd happily revive the series lol.
#Writing Disability with Cy Cyborg#id in alt text#long post#writing disability#disability#disabilities#disabled#physical disability#wheelchair user#physically disabled#wheelchair#character design#character illustration#character concept#Designing Disabled Characters#writers on tumblr#writing#writing community#writblr#writerblr#writing advice#writing tips#writing resources#art reference#artists on tumblr#artblr#illustrator#visibly disabled#disabled and proud
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I made a zine about adjusting cheaper wheelchairs, after adjusting my NHS wheelchair.
Notes: Your wheelchair ‘service manual’ is a good resource for adjustments! You can often google them. Also, with the wheel adjustments, be prepared to move the breaks. Google how to measure for a wheelchair to find your seat width, and if you want to get extra, look at seat depth. Leg length is usually done by adjusting the footplate height.
Image description and printable version under the ‘read more’ .
Image Description:
An 8 page zine. Both images have the same content but the first one is arranged to be read on a computer. I am going to describe each page.
First page reads “A cripple’s guide to.. making a cheap(er) wheelchair work for you” and in smaller writing “by Sock - who uses an Invacare Action 2NG”. There is a drawing of a wheelchair in the centre.
Page 2 reads “Choosing a wheelchair. Look for adjustability (can you change wheel height? COG?), seat width (as close to your size as possible), and arm rests that can be lowered/removed.” Each item has a small drawing illustrating the point.
Page 3 reads “Adjusting a wheelchair. You will need… Allen key set (bike ones are good!), Pliers (for holding bolts) and Phone (for access to manuals, taking photos at each step.” Each item has a small drawing of it.
Page 4 reads “1. Adjust Wheel height. This can be done where the wheel “plugs in”. Your fingers should touch the wheel hub centre. If you can, move the wheel forward too (centre of gravity adjustment).” There is a small drawing of the wheel base, an arm reaching down to touch the centre of the wheel and a wheel base with an arrow pointing to the right showing it being moved.
Page 5 reads “2. Arm rest adjustments. Get your armrests as far down and as far back as they go. I keep mine on because of muddy weather/to protect clothes from spokes but you can also just remove them!” There is 2 drawings of a rounded and straight arm rest.
Page 6 reads “3. Modding castor wheels. Adjusting the height will change the seat angle. Smaller castor = easier turning, but makes rough pavements harder.” There is a drawing of a tilted chair with big castors and a straight chair with small castors, with a double pointed arrow between, with the caption “Play around!”
Page 7 reads “4. Footplates. You can take the footplates off and toe propel. You can make a foot sling out of a belt/luggage strap/paracord.” Both have an accompanying illustration. Then there is a note saying “if you have poor circulation, weakness, etc. oh might just want to keep the footplates on”.
Page 8 reads “5. Cushion. You need a cushion for your chair. Depending on how long you sit/how bony you are, you might need to spend a little more” then “£: Foam. ££: pressure relief cushion. £££: EBay/second hand for jay, invacare, low zone etc.”
End.
Printable version:
#forsakeofabetterarttag#hope this helps someone#wheelchair#nhs wheelchair#hospital wheelchair#cripplepunk#physically disabled#heds#spoonie#potsie
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As an ambulatory wheelchair user I have so many thoughts about how people draw/write disabled!Scar. This is sort of a guide/insight from a disabled person about writing/drawing disabled people.
Specifically in regards to wheelchair users.
Do not get me wrong, this fandom is genuinely probably the best group of people I have ever seen when it comes to drawing wheelchairs. I do not believe I have ever seen Scar fanart where he is in a completely unusable, horrible, hospital chair. It is so clear people have taken the time and energy to research into wheelchairs and I love it. I am in no way saying stop that.
I just think people could maybe put a little bit more consideration into him being disabled beyond visual appearance.
I saw a really amazing artwork of SL!Scar and he is in a sports chair. Which is really cool, in many ways, as it shows some thought being put into the setting. If I were in combat, I would in fact like to not be knocked from my chair or have my chair tipped over.
Yet, you have very limited mobility in a sports chair. It is, by design, made to prevent you from tipping over. Which means that you are incapable of going over bumps, really, let alone natural terrain.
Just in general, there really is not any wheelchair that exists in our world that would allow wheelchair users to exist in a setting like the life series.
So, I have some ideas:
- Horses. Hands down my biggest suggestion. Especially with Secret Life they fit in very well with the setting, everyone uses them, and it fits the bill perfectly for what he would need. Especially considering Scar is an archer, it makes a lot of sense for him to be on horseback. It suits him and his style of fighting so well.
- Some sort of redstone power chair. There are all sorts of ways you could design something like this. Perhaps with pistons that push down against the ground, allowing for jumps. Perhaps just a series of pistions functioning as like a bunch of little spider legs. There are a lot of things you can do with that, you can get very creative.
- For my Vex!Scar lovers, you could have magic be used as a mobility aid. Perhaps a magic wheelchair, or perhaps a magic exoskeleton.
And with all of the ideas, considering how they fit into the setting really changes everything. What are the strengths? What are the draw backs?
With horses, they are strong and fast and agile. But they are big, it is hard to fit into small spaces, and they can be killed.
With some sort of redstone chair, I feel as though it would make sense for it to be robust and strong. Depending on how it is constructed, something fast and agile or perhaps something a bit slower and more clunky. Is it loud? How would stealth work in something like that?
When it comes to any sort of magic you do not want it to fix the disability. It is a mobility aid like any other. Not perfect, not the same as not being disabled, just another tool with its own unique draw backs. Perhaps magic is draining or it takes concentration. Would he tire quicker than others? Would he require food quicker than others? Is it possible for him to lose focus on it in a stressful situation, leaving him stuck until he can calm himself down?
Other things to consider are really specifically the setting as well as what disability you are giving him.
I feel as though on Hermitcraft an option like a redstone chair just makes a lot of sense. Multiple redstone chairs, even, all constructed differently for different uses. Such as ones for building. How does long distance travel work with the chair and how you lore your setting? Is it something he can put in his inventory? Is it something he remains in when using an elytra? Does that have any draw backs, such as being slower or needing more rockets or being less coordinated in the air?
I feel as though in the life series a mix of vex magic and horses makes a lot of sense. The magic is good for small spaces and short trips and emergencies, but it is too tiring to travel across the map with and too much effort to maintain when he needs to concentrate on battles. That would be where the horse comes into play.
As for what disability, well, it truly depends. Most of my rambles here have been based upon paraplegia, because I often times see people making him an ambulatory wheelchair user just because they do not know what to do otherwise.
Not that making him an ambulatory wheelchair user is a bad thing by any means. I am one and I adore reading stories like that. It is just a bit clear that a lot of you are quite lost as to how to navigate hurdles disabled people face, so you make it so he can walk over those hurdles. Which, once again, I am not shaming you for! This post is just to show there are other options
But in the case of him being an ambulatory wheelchair user: why is he one?
Mobilities aids are disabling unless you need them. You cannot access spaces or you do not have hands free or any number of things. What to the Scar you are writing makes using mobility aids helpful instead of a hindrance? What times are they more trouble than help, and what cost is there for not using it?
A good example is if Scar can walk around short distances with minimal difficulty/drawback, but long distances are painful or physically not possible.
Look into different disabilities and consider it. A lot of people tend to default to chronic pain because that tends to be quite a common one across a lot of disabled people, but there are a lot more different reasons why.
It could also be that he is very slow because of his disabilities. I have muscle weakness sometimes because of my FND, and it is like moving through sludge whenever I try and move.
It could also be that the mobility aids are a preventative measure. He does not need to use his wheelchair, unless he has done too much walking and then his body refuses to support his weight. He does not need to use his wheelchair, but when he does not he is a lot more likely to dislocate something and then yeah he can't walk. He does not need to use his wheelchair, but he is a fall risk especially after a lot of walking or running. Him being in his wheelchair prevents him from falling! (And if he's a fall risk, maybe he's strapped in too!)
I just have so many thoughts and I wanted to share them.
I see so many of you putting in effort already and it warms my heart. It is why I feel comfortable enough to make this post, because clearly you all care a lot about representing disabled people well.
:]
If you have read this far thank you so much. Let me know what you think or if you have any questions.
Edit: I made a rough redstone wheelchair design. It is one of the few reblogs that has comments, if you filter for that you should be able to find it. If not, reply to the post and I can send you the link to it. :]
#Mod Tim (He/Him)#Sort of#MCYT#GTWS#scar#goodtimeswithscar#life series#mcyt#secret life#hermitcraft#hc#disabled#disabled scar#actuallydisabled#representation#disabled!scar#wheelchair#wheelchairs#ambulatory wheelchair user#fantasy wheelchairs
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Post ending / rescue AU / recovering Curly is everything to me, so I’m making a list of other people’s posts that feature him. (The links will connect to a reblog of them in case anything ever happens to the original post)
If anyone ever see’s posts like these ones, PLEASE tag me in a reblog!! All posts are welcome, not just art!
Please note that I don’t decide what to add to this list based on shipping, opinions on the metaphors in the game, the accuracy of burn scars, the morality of Curly, or anything else that causes discourse in the fandom. I just add any posts that I come across that include Curly recovering from his injuries in any way. Prosthetics, wheelchair, wig, crutches, It just needs to have him in better shape than when he first got injured.
No NSFW
(Also this post is edited to add new ones when I find them)
Rehabilitated Curly
Party with no Jimmy
Stand around in medbay party (Idk if this counts, but he has prosthetics so I'm saying it does)
Happy abortion!
Post-ending speculation (text)
20 years later (I AM NOT WORTHY TO LOOK UPON THIS WITH MY MERE MORTAL EYES)
ANYA’S GRADUATION DAY
Post ending
Rescue/Recovery AU
My own post! (text)
Aftermath Curly
Good ending
Best way to approach captain’s disability?
A little sketch
They care
“I wouldn’t want to frighten her”
Anya doesn’t quite overdose
They’re safe
Guys rate my fanart
WWI face prosthetics
Less fucked up Curly AU
Fix-it type AU
Silly recovering time
Curly got some gifts for his b-day
Imagine Curly survived (twitter)
Curly with a service dog
I’m not a dog and you’re not a mare
Drawing the dentalcare crew (does this count?)
The quality will not be questioned
Fix-it AU
Want to make Curly some cool new mechanical hands so he can strangle Jimmy
One can dream
He’s got a wig now
Happy ending where they all survive (devianart)
It hurt my heart (twitter)
God forbid I get sick (translated?)
This might be controversial but… (text)
Let’s get you out of the house!
Cyberpunk AU
Cartoons with breakfast
Old-school surgeries (text)
Post-ending fic prompt (text)
Post-rescue AU curlyana
Post-rescue curlyana part two
Why is this goddamn white boy so hard to draw?
Captain stop infodumping the baby
Maybe never forgive
Draw Captain Curly having a prosthetic limb
Curly from Mouthwashing (good ending)
This is how I imagine Curly post OP
whats the worse fate, whatd be better for the tulpar crew
Wip
🐈
Mouthwashing AU (Reddit)
Curly if he survives (Reddit)
My own art
I’ll give him smoochies, prosthetics, and skin grafts
Art dump time✨
Hoppin on da trendin train
The crew built curly a mechanical hand
How to give Captain Curly a voice (idk if this technically counts, but it’s a disability aid so I will)
Doodle of the Tulpar crew post-rescue!
New hyperfixation just dropped
Hi Tumblr. Funny seeing you here
Another rehabilitated Curly
Who up washing they mouth rn
Don’t use the dog buttons (text)
Haunted part one and two
Prosthetics
AU were someone saves them
Mouthwashing doodles
A New Ladder-Reader x Curly (I’ll add the original art videos when I can) (also I didnt read it. if someone did read it, please let me know if it’s SFW)
I know he always have his headphones on
More rehabilitated Curly✨
You guys like this right
Anya, what’s it like working as a medic on a spaceship?
This is how we can still get the good ending
“I’m sorry Anya”
More cringe mouthwashing art be upon thee
Curly’s happy (and recovering) ending
Writing an AU of mouthwashing where the crew survives
Most people seem to be giving him prosthetics…
#mouthwashing#mouthwashing AU#Captain Curly#recovered Curly#healing curly#healing curly mouthwashing#mouthwashing curly#curly mouthwashing#recovering curly#recovering curly mouthwashing
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cumulus / nephos / “cloud” / ☁️
[plain text: cumulus / nephos / “cloud” / ☁️ cloud emoji]
[id: pastel fem looking person in pastel manual wheelchair looking down to slug in lap. there also slug on head n slug slide down skirt (don’t ask how). (all color pastel). person hair pink bangs, purple side hair, & blue low loose pigtails go below hips. purple eyes & medium-light ish skin. wearing bright turquoise ish color shirt collar with pink ruffles, & white shirt body with blue ruffles decorate, n green long sleeve cardigan over it also with ruffles. rainbow midi above knee skirt with white ruffles overflow from side of wheelchair. wear mismatch stockings, person’s left side rainbow stripes, n person right side turquoise blue with clouds on it. person not wearing shoes.
their wheelchair has yellow headrest, teal stroller push handle, green contoured backrest with supportive panels on two side lateral, teal to blue transition arm rest, orange big wheels with rainbow windmill candy swirl as cover & red push rim. frame is turquoise blue gradient to pink, has dump/slant, with yellow slug on one side’s turning point. purple fat caster wheels. attach to backrest is big white angel wings, & above arm rest has glowing yellow halo. their AAC device floating by them, has turquoise blue case with white cloud patterns. is saying “slug” icon. border of art lined with rainbow gradient lace. end id]
☁️.
(otherwise known as hate names terrible at decision)
VERY pastel n rainbow overload >:)
they level 3 autistic (“requiring very substantial support”) with high support needs—meaning they cannot independently do most adaptive functioning skills, needing other people physical help to do/do for them. they also need 24/7 supervision & physical help for all iADLs & bADLs.
they nonverbal & use AAC full time. their AAC is symbol based speech generating device.
their (most likely [<haven’t decided] partner who act as their) disability caretaker is hyacinthos shinya🪻🌌.
they also full time non-ambulatory wheelchair user with very specific posture & seating positioning needs so not out of it for long or really much at all.
angel wing on back of wheelchair is power assist! is magically powered by hyacinthos (who angel) & can be powered even remotely / far away. way control wheelchair & power assist part by intuitive / hand motions & gestures / etc, part by halo hover above armrest that act as joystick. can use it like traditional joystick or wear as bracelet n control that way! (gimme it i want one) (if you recognize this setting it may be because previous version)
they do mix of self propel, power assist, & caregiver push. their wheelchair have stroller style push handle instead traditional push handle for easier caregiver push, especially one handed.
is set in magical world & they do some magic (< haven’t decided]!
character not slug obsessed, artist the slug obsessed one
character sheet below cut!!
artfight character profile (VERY wip)
please do feel free draw them (with credit) n tag me!!!!!!
reblog welcome but please don’t repost
will fight you if debate about autism levels & support needs
.
hi under cut
[character sheet. functionally described below]
top left is full character clothing (with wheelchair translucent in background) because in original there some key parts blocked by wheelchair especially arm rest.
skirt around waist have purple band with blue small ruffles. center have rainbow bow with rainbow star on top.
n also have front n back of AAC device. what drawn here is 5x7 grid with various colored squares showing different parts of speech but grid size more so because like. is how much could fit comfortably. so even when redraw n isn’t exact 5x7 with colors exactly right where is right now, is okay. colors & where they are based on own AAC device >:) because of course
design of aac device case basically same as above. back side just have bigger clouds. oh also device has handles. tho it float around so handles get used less. float around so don’t have worry about how to carry it how to mount on wheelchair etc etc etc it follows you it automatic come to your hand when you wanna say something (kinda also acting as prompting bc sometimes think about say something but don’t actually say in device) it get out way when you don’t want it. if only like this irl lol
bottom left is info about character already said
bottom right is wheelchair design
parts covered up by person: rainbow gradient side guard, blue contoured cushion.
n also drawing of back of backrest: when not in use, wings power assist shrink to small decoration on back. not big there all time.
also have stickers! sticker of nessie, banana slug, sheep, cloud, star, rainbow, & an AAC symbol of “AAC”
wheelchair may also have magical tilt & recline & elevate. how? don’t know!!! why not just make full powerchair? uhhhh like manual chair look better
n picture of irl windmill candy
border of art also rainbow gradient lace.
yea that all please draw them 🥲
praise me put lots work into them
pls be nice to them
#art#artist on tumblr#disabled#disability#wheelchair user#wheelchair art#autism#autistic#wheelchair#pastel#fairy kei#slug scribbles#🍞.txt#oc#original character#original charater art#long post#disabled artist#art fight#art fight 2024
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Art Hacks for Physical Disabilities!!
I know art can be inaccessible to physically disabled people for a lot of reasons, and I think art should be accessible to everyone, so here’s a couple of the things I found to help for a few different issues you may face that stop you participating!
I have a link to all these items (UK) in my link tree!!
IMAGE DESCRIPTION
Slide one: illustration of a white woman with pink hair, wearing a pink outfit, sitting in a power wheelchair, looking at the viewer with thumbs up. Text Reese “hacks to make art more accessible”
Slide two: illustration of three different kinds, using three different types of pencil grips. One hand uses a circular grip. 100 is a large, rectangular grip. Another uses a grip that is ergonomic and fit into the hand. Main text reads “Paul, grip, strength and dexterity”. Subtext reads “there are loads of different types of pencil, grips or design for different disabilities and conditions. Increasing the width of the pencil can give more texture for a better grip using a pencil with a thicker with also reduces the amounts of pressure needed to hold a pencil you can make your own using items like pool noodles. KT tape an air dry clay. You can also put these groups on things like paint brushes.“
Slide three: illustration of a hand using a tool that looks like a wrist support with a paintbrush connected to it text next to it reads “this talk next a paintbrush to your hand in a way that means you don’t need to hold the paintbrush with your fingers and you will need to move your arm around“ on the bottom right hand corner is in photograph of a guided hand device. Text read “regarded hand as a tool designed to reduce the need for moving your hands and fingers and relies on the movement of your shoulder and upper arms and can be used with different materials like paintbrushes, pencils, pens and styluses.
Slide four: main header reads “when in bed“. Illustration of an iPad pillow with a iPad in it is next to text that reads “iPad pillows, put your tablet at an easier to access level when sitting or lying down“. In the bottom left hand corner is an illustration of a girl sitting in bed in her pyjamas with a pillow behind her and a bed table as she is drawing. On the left hand side is a photograph of a bed table with the text reading “bed tables are used to give you a flat tire up surface while in bed, and are often height adjustable”. In the bottom right hand side is a bedsit, a pillow with the text underneath, reading “ bedsitters of specially shaped pillows that you put behind you in bed to help you set up and give you a soft surface to lean back on”.
Slide five: maisie had a read out “at a desk left”. On the left hand side is a photograph of the document holder with the text “document holders put your paper at an angle to help prevent crane in your neck down”. On the right hand, middle side is an illustration of someone using a armrest and on the bottom left hand side is a photograph of the armrest. Text next to them reads “economic arm rests clip onto your table or desk and give you a surface you lean you’re forearms or elbows on. This can be used to steady your arm and reduce pain and fatigue while sitting at a desk”.
Slide six: maisie reads “foot and mouth painters” . on the right hand side is an photograph of swapping Augustine, an Indian woman with no arms, wearing a sari painting with her left foot. In the bottom left hand corner is an illustration of a woman with green hair painting using her mouth. Text reads “foot and mouth painting is a technique used by artists who do not have, or cannot use their arms so hold the paintbrush in their mouth or using their foot. Swapna Augustine is a foot painter who has painted with her feet and participated in multiple exhibitions of foot and mouth painters. Her art is stunning and I would definitely recommend checking some of help work out.“
Slide seven: main text reeds “art without brushes and pens”. On the left-hand side is a photograph of a spin art device. Text next to read it reads “spin out involves using bottles of ink and squirting them onto a spinning piece of paper to create spiral art. On the middle right hand side is a illustration of a laptop with coding art written on the screen. Text me next to it reads “coding art involves making programs that design and create art pieces digitally. This could be used in conjunction with an eye tracking software.“ On the bottom left hand side is a photograph of a child in a power wheelchair with paint on their wheels painting onto a large piece of paper. Next to this is text reading “wheelchair painting involves putting paint on your wheelchair wheels and moving around and large piece of paper. Sometimes you can connect a roller to create more marks.“
Slide eight: text reads “what do you do to make art accessible for you?”
End of ID.
#art#original art#artist#oc art#original character#queer#disabled#disabled rights#disability#disability pride month#disabled artists#disability art#art hacks#accessible art#accessibility#foot and mouth painter#foot and mouth painting
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hihi hello is there anyway you can share your cuteguy /hotguy designs? or maybe share some notes about them?... im very fond of them and would like to draw em....
of course anon :^] thank you so much!! i'll also take this as an opportunity to share how I landed on their designs, if that's ok!
my initial sketch of them was done pretty quickly to throw around some ideas.
i wanted hotguy's to be reminiscient of his namesake (hawkeye) but different enough that it wasn't a direct 1 to 1. i also REALLY wanted to play with the idea of him using redstone leg braces and actor scar primarily using a wheelchair. originally i was thinking that they would've actually been made/designed by tango, though i'm not sure if that fits in with the finalized timeline/lore anymore. me and luna also talked very briefly about what the effects of wearing redstone so close to your body could do to you, but i dont think it ever went anywhere in lieu of Skulk taking more of a front role in that regard.
hotguy's design ended up not really changing much at all from this since i was already pretty happy with it, but cuteguy's definitely did based on a bunch of factors (the era of the zine we were in, character development, other contributor's designs etc).
thus begins the great Cuteguy redesign. i jest, but i was um-ing and ah-ing a lot over what i wanted him to look like, mainly because i wanted to keep him looking practical and less showboaty than hotguy. but at this point we had decided a timeline and i knew we were in the last era, so it felt important not have a design that looks like he quickly put it together or like something he'd be wearing in his early years as a vigilante.
eventually, i landed on these designs for them both! cuteguy matching hotguy's outfit as an established vigilante duo, keeping the casual elements of the hood and the joggers but having them more integrated into his suit, that all felt like a best of both worlds situation to me. i also switched the mask to a heart-shaped visor, both purely for cool effect and to match better. it isnt here, but additionally in the comic i switched his wings as cuteguy to a sort of maroony colour, as one of the things contributors played around with early on was the idea that he would dye his wings to hide his identity. i liked that idea as a failsafe if he was in a situation where couldn't hide them as a civillian, hence the change!
if you need any more info i'd be happy to share, or maybe even draw less messy references (i didn't think i'd be sharing these publicly LOL). thank you so much for reading the zine, and i sincerely hope you enjoyed it :^]
#apologies for the late reply i've been fighting health demons </3 absolutely blown away by the reaction to the zine though!#hgcz#hotguy comic zine#my art
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Hi, can you please do a mapi x ingrid x reader where ingrid and reader are taking care of Mapi after her injury and surgery
Her Favorite Artist
A/N: Knowing Mapi is going to be out the whole season breaks my heart
Mapi x Ingrid x Reader
Word Count: 1,122
The day of Mapi's surgery was the day of the Champions League game. You two wanted to stay, but Mapi forced you guys to go. The team was already full of injuries, so you guys were really needed.
It made you feel better at the fact that Alexia and Mapi's parents would be there waiting for her to get out of surgery, and Alexia would be taking her home.
You called her after the game, but she was still a bit loopy, and Alexia told you guys what the doctor had told her about Mapi probably missing the whole season.
You felt terrible for her; one moment the two of you were giggling and warming up, and the next she was on the floor in pain during a defensive drill.
She was taken away, and you were stressing out the whole training about it. When you were finally able to see her again, it wasn’t a pretty sight.
You had never seen Mapi so broken; it was something you wished you would never see again.
You spent the whole day trying to cheer her up and just being there to listen and help her with what she was feeling.
—————
You were antsy to see Mapi, bouncing up and down in your seat. You had so much energy, considering you didn’t have your other energetic buddy to help you release it, and the blow-out win did not help one bit, only making you way more energetic.
You usually blabbered on the whole bus ride about random topics, and Mapi was the one that listened since Ingrid was never able to keep up. Now Ingrid had to force herself to keep up with your ranting.
But when you noticed she wasn’t keeping up, you just went silent and listened to music.
————
Now you were with your usual questions being a passenger princess. Ingrid answering them all, knowing if she didn’t it would put you in a bad mood.
“Is Mapi sleeping?” "No" You tapped on the window. “Can I sign her cast?" “No”
“Can I push her around in a wheelchair?” “She won’t let you." You thought about that. “Maybe, would you?” Ingrid put the car in park. “No”
You quickly got out of the car and ran to the door. Ingrid sighed and got to work, having to carry all the bags.
————
Right when Alexia opened the door, you ran inside to find Mapi. "Hello to you too," Alexia said sarcastically. She grinned as she noticed Ingrid struggling to carry all the bags by herself and quickly took some. Ingrid smiled, hugging her, and they got into a conversation.
Mapi smiled at you and patted the seat beside her. She was on the long part of the couch, the part where you loved to take your midday naps. "Guess you could have that part for now," you told her. "Wow, thank you for being so considerate," she said sarcastically.
You gave her a tight hug, and she kissed your head. "How are you feeling?" Ingrid asked her, now joining you two in the living room, "Tired." Ingrid nodded as she hugged Mapi and gave her a kiss on the cheek.
"How does it feel?" You questioned her, knocking on her cast. Ingrid quickly smacked your arm away.
"It doesn't feel good, that's for sure," you hummed as you continued to look at it. "Can I sign it?" "No," Ingrid said sternly.
"Why don't you go check on the soup that Ale was making" she told you as she got a pillow to lift Mapi's leg. You nodded and went to check on it.
You stirred it a bit before turning off the stove. "I think it's ready," you called out, and Ingrid came back in to make sure your judgment was right.
She gave you a kiss on the head, and you went back to Mapi. "Did Alexia give you the drawing I made you for after your surgery?" She smiled. "It's hung up on the fridge Carino."
"Did you like it?" She nodded. "You know I like everything that's made by my favorite artist." You smiled at that. You loved drawing pictures for everyone; it was just something you did when you got bored.
Mapi patted her non-injured leg, signaling for you to lay your head there. "I don't want to hurt you," she shook her head. "You won't; come on, it's been a while since I've played with your hair."
You sighed and listened. Mapi playing with your hair brought a huge comfort to the both of you. Ingrid walked in with two bowls of soup and smiled at the sight in front of her. She gave one to Mapi and set yours on the coffee table before going to get hers.
"What a sight," she said as she squeezed in next to Mapi. "Ale said you two played amazing yesterday." You jumped up again, scaring them a bit. "I made you another drawing," you told her as you rushed to find it in your backpack.
"She was working on it during the plane ride," Ingrid told Mapi. Again, it was a regular occurrence, and they had them everywhere in the house. Some hung up on the fridge, some hung up on the walls; Ingrid even had a whole folder filled with them.
You gave the drawing to Mapi, and she admired it. It was a drawing of her in the blue kit. "Aitana did the coloring," she smiled. "I'll put this one in the folder." She kissed your head and tapped her thigh so you could lay back in her lap.
“Are you going to be our wag now?” You asked her again, and Ingrid nodded; she wanted it too. “Yes amor, I’ll be your guys wag."
Mapi smirked. “Only if you agree to tell Lucy that I’m a way better defender than her,” you groaned. “I can’t! She’ll kill me, and don’t you dare say you’ll protect me because we both know you won’t be able to."
“Then I’m not going to be a wag,” you looked at Ingrid for help. “Don’t bring me into this."
She secretly loved it; it was boring not having to break up a childish argument between you and Mapi during the plane ride.
“Fine, whatever, now why don’t you be a dear and get the crippled lady a water” you scowled, but listened.
You knew Mapi was going to be bossing you around a lot now, but you were happy to do it. Anything to help her recover.
#woso x reader#woso fanfics#woso#ingrid engen#mapi leon#mapi leon x reader#ingrid engen x reader#barcelona femeni x reader#barcelona femeni
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Alright, I'm just gonna bite the bullet. Worst that can happen is I make a fool of myself. I've been working on superhero stories, versions of the same universe since I was in 8th grade and what I want more than anything is to modernize superheroes, create a world where they act for all people's social good and take representation to the highest level I can think of. From your position of expertise, what can I do with the creation of disabled characters that would buck the trend, do some good, and show a good side. The non-prosthetic and non-corrected for disability rep in the genre is basically nil, I have no ideas and nothing to draw on. I guess I just wanna know what disabled audiences might like to see for once in their lives.
Hello!
Disabled superheroes are awesome. There's really few of them but the ones that we do have are often really important to us - you can look at the reactions to Sun-Spider being first introduced to the Spiderverse, back then I couldn't open my fridge without seeing that one panel where she explicitly says she has Ehlers-Danlos.
Here are a few suggestions of what I'd like to see in the superhero genre:
Superheroes with facial differences. Comics love to use us for their ugly disfigured evil villains but not much else unfortunately. I'd kill for a superman type hero who saves people with a smile and a facial difference on his face. Especially for superhero stories that are geared towards kids and teens, we just desperately need something to help with shifting the public perception of people with facial differences from "evil and ugly" to "people that can be awesome". A hero with burn scars, with Treacher Collins syndrome, Bell's palsy, neurofibromatosis... anything.
Superheroes who use disability aids (and still need them when doing their job!). Sun-Spider is an awesome example, she swings from her crutches and has a spider wheelchair. That's cool as hell. But even a less in-your-face aid would be great. A superhero flying above the city with her ankle-foot orthoses visible would go really hard. Also, superheroes who are concerned on how much these things cost and try their best to make sure they're still functional while they save the city.
Heroes with different causes of their disabilities! The vast majority of morally good disabled characters were involved in An Accident or some sort of Attack that disabled them. That's not bad or wrong at all, but I think in media is kind of oversaturated with this specific portrayal when a lot of people have progressive or congenital conditions. We need more stories that show those who were born disabled as heroes equal to those who were born abled and spent most of their lives abled. Superheroes with cerebral palsy, chromosomal disorders, congenital rubella, achondroplasia, all the disabilities that tend to get ignored despite so many people having them. Same for really common chronic illnesses, diabetes or COPD are criminally underrepresented.
Disabled superheroes that aren't saints because of their disability. This is the whole "disabled person can do no wrong" trope that appears sometimes. I'm mentioning it since superheroes are more "perfect" than most characters in other genres, so try to not make it so the disabled ones can do no wrong. Disabled people can still make mistakes that are their fault, make poor decisions, or just simply be angry sometimes.
When there's no active superhero action going on, show the normal human parts of the disabled experience. Depending on the demographic you're writing for it would be different things, but there are some fairly universal concepts like inaccessibility, microaggressions, or just boring things like the prosthetic leg no longer fitting well after the character gained some weight. If your characters are from the US, don't be afraid to mention that their insulin costs are barely affordable with their superhero pay. Show how the common everyday kind of ableism affect them when they're in civilian mode. This will make it much more authentic to disabled readers.
These are my suggestions, and I hope they are helpful. My last advice is to have multiple disabled characters, and in different roles. Maybe a character with late ALS can no longer do superhero fighting, but he can still be a wonderful parent. Maybe the character with Usher syndrome is more interested in the hero than being a hero themselves (disabled heroes in relationships!). Maybe the character with phocomelia can't be a hero yet because she's six, but she can train hard to be one when she's older. Keep it varied, have them come from different life situations and have different goals just like abled characters do.
I hope this helps!
mod Sasza
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Hey! If you don't mind sharing, I'd be interested to hear more about your chronic illness diagnosis journey (I also get that it can be a private thing!).
I've been struggling for the last 5 or so years with chronic fatigue, muscle weakness, muscle pain and brain fog, and my doctors have checked a bunch of different things. EBV, thyroid, vitamin D, "are you sure you're not just depressed" and they've now gone for ME/CFS. A part of that just doesn't feel right to me because I feel like they should have done more tests or walked me through alternatives before settling! Especially because it fluctuates so much. Sometimes I can't leave the house, sometimes I have to borrow a wheelchair if I'm in a shop, sometimes I can walk 5000 steps??
Love and support for you and your gluten free adventure - potatoes, rice and polenta tend to be pretty good for me when I want something bready! (Doesn't quite hit the spot as well as buttered toast does though...)
My decline was really painfully gradual. I didn’t realize why things were getting so much harder. It manifested first with friction between my beloved because they were frustrated I was always too tired to run little errands myself. I went to the doctor and talked about my fatigue but was assured I was fine. I went on Chinese herbs and they buoyed up my reserves so I could keep functioning.
That went on for months, just getting more and more tired. I’d wake up sobbing because I wasn’t any more rested than I’d gone to bed. I went to a new doctor at that point. I got diagnosed with anemia until my blood work came back normal and then I was told I was fine.
Then I started fainting. My hair was falling out. I went to a different doctor. She ran my blood. I got told I was fine, but that maybe I had a food allergy. She slapped me with a full elimination diet that broke my spirit. I did feel some minor improvement but I wasn’t healthy by any means.
Finally, my good friend who is a doctor said that’s enough. She was in a different state but she was furious that I wasn’t getting any help. She ran my blood on a bunch of different ailment tests that were less well known. She tested for antibodies to EBV. If you have over 20 they consider you to have an active infection.
I had over 700 which is when they stop bothering to count.
I was so chock full of virus I was pound for pound virus by that point.
Then came the hard part. Knowing you’re bursting at the seams with a virus doesn’t make it easy to treat. The virus was living in me, in my cells. Too much of the medication and my body would start siccing it’s defenses against its own tissue.
I went on a bonanza of supplements. There was syrups to boost energy, pills to increase my immune system, antivirals, iron and vitamin D because those were kinda low. It was a three times a day regime of medicines.
My initial dose of antiviral was too high. I experienced a pain unlike what any mortal should bear as a result, dropping to the ground to writhe in agony when it hit. My dosage got lowered and my progress crept along.
I started school sometime in there and barely kept my head afloat above coursework. My stress load from school correlated to how much energy I had and I longed to finish my degree and just prioritize feeling better.
Then things got worse. My original doctor friend let her prescription rights for my state lapse, it didn’t make financial sense to keep them. A different friend from yet another state wrote my antivirals for a while but eventually I needed a new doctor.
I found another, this time a naturopathic doctor like my friends, hoping I’d keep receiving good care in that scope of practice. I didn’t. I had the most painful blood draw of my life in her office, writhing in agony, then didn’t hear back from her. I got ghosted by my doctor. When I pestered her for results she wrote me a script for antivirals but that was all.
I’d find out about eight months later when my health was declining and my friends demanded to see my blood work that my iron had been dangerously low but she hadn’t bothered to tell me. I got on iron supplements and staggered along.
Through precision time management I could budget my functional time into schoolwork then collapse to recuperate. It was working, but barely.
When my scrip on antivirals ran out I hunted once again for a doctor. This time I’d realized that any good care I’d gotten was when I’d made a personal connection with the doctor, a rare privilege not many people got. So I sought out a friend of a friend, someone I’d seen on occasion in the doctory social circle.
I have never been more happy with a doctor. She tested my viral numbers and pronounced herself satisfied that it was in check but was suspicious that although my thyroid numbers always looked normal that something was going on there. She ran more tests and lo. A thyroid imbalance.
Around that time I’d sunk into needing the chair. I stopped functioning, it was almost as bad as my first collapse. And yet again the fun part of getting my thyroid in balance was a delicate balance of making sure I wasn’t taking too much and hurting myself.
That balancing act took about a year to stabilize. I was still so weak from years of fatigue and inactivity. An able bodied person cannot imagine how hard it is to build up from ground zero on all your muscles. And the worst part was any time I felt tired I was terrified I was going to slip back down into the depths of exhaustion.
Then my beloved and I got Wyvern the puppy. And before we realized we had both somehow developed allergies to dogs and had to break our hearts giving him up, he saved me the last time.
Potty training meant I had to get up every two hours to take him out. I didn’t have to walk far but I had to do it consistently. Every single day I’d go to bed aching in every muscle, terrified to wake up. But every day I woke up with energy and was able to do it again.
It was like puppy boot camp, and I was able to go longer and farther every walk. By the time we realized we couldn’t keep him I was mobile again, I hadn’t needed my chair at all. When we said goodbye to him I promised I wouldn’t lose the progress he helped me make.
Now I finally, for the first time in six years, feel healthy again. I can go on long walks, I can run little errands for my beloved, I can fill my days with activity and wake up to do it again the next day. It’s the most amazing thing.
I hope you can stumble upon a doctor who can listen to you and help you. I know how hard things can get, but sometimes they can get better.
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