#my chronic pain is getting worse
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the stress of the election plus college is really getting to me. I’m a great student but I feel like one really dropping the ball in this last quarter
#I feel really overwhelmed by like everything even tho I’m on top of things#I’m always tired#I only finish my food sometimes so I’m always hungry but always full#my chronic pain is getting worse#my SAD is setting in#it’s about to be fucking November#I think it’s just bad timing and you know. the looming cloud of more fascism on top of facsim#but hey! ppl like show your spine! :D and regardless of who wins. I think we really need it now
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i think everyone who's ever had migraines should be financially compensated forever btw
#camera talks#disability stuff#this is for my chronic migraine girlies (gn) <3#i think we should all get 1 million million dollars everyday actually#this is the worst fucking night of my life (everytime i have migraines) (specifically rn tho)#chronic pain#chronic migraine#migraines#chronically ill#disabled#disclaimer because idk I’ve got a lot of notes on this#I have diagnosed chronic migraines. I used to have them 5-6 times a week#now with medication on a good week I’ll only be affected 2-3 days#on bad weeks it’s much worse#anyways don’t doubt my condition I know what I’m talking about thx
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Can anyone help me out with getting some pads, otc meds n some food? I spent my last dollars getting my girlfriend to work. I need like $45-50 ASAP!
CA: $sleepyhen
VN: wildwotko
Dm 4 PyPl
#i started my cycle early and im outta cash and maxed on my cc#n i just wanna get like soup bc my chronic nausea is worse at this time#chronic illness#chronic pain#pls share if u can#thanks c:
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currently the worst part my health rapidly declining is that I have barely any energy at all and the energy I do have is spent on booking drs appointments, arranging with specialists, organising all of my medical records and history to bring to new drs, submitting applications for disability support, getting blood drawn for genetic tests, etcetera. I don't have time to do anything except be sick, and I don't even know what I'm fucking sick with
#chronic pain#chronic illness#chronic fatigue#disability#chronically ill#chronic fatigue syndrome#fibromyalgia#multiple sclerosis#pots syndrome#<- tagging bc I am currently being investigated for all of these but have no idea what it actually it#could be all of them or could be none#my only official diagnosis is#joint hypermobility#and#sleep apnea#but there is something far worse happening here#I should not be in pain all the time#as of this week I am a new#cane user#bc I can't fucking walk for 5 minutes without getting sore and dizzy and tired#I'm just so tired#rant
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I MIGHT BE ABLE GO SEE A GHOST CONCERT IN APRIL
AND SEE MY LONG DISTANCE GIRLFRIEND FOR THE FIRST TIME
AND ILL BE ABLE BRING MY CANE WITH ME TO TRAVEL
IV NEVER BEEN ABLE DO ANY OF THOSE THINGS BEFORE
IM SO FUCKING EXCITED
#i have known my girlfriend for three years#beem dating two#and ILL ACTUALLY GET TO SEE HER#IMA BE ABLE KISS MY GIRLFRIEND LADS#and bite her#hehehehe#And the idea of going to concerts has always been really anxiety inducing#even more so since my chronic pain got worse#but ghost has been the only band iv wanted to see#AND ILL BE ABLE GO WITH MY GIRLFRIEND!#ALSO iv never been able take my cane travelling with me because my parents dont know i have it#but ill be able go by myself this time#which is making me even more excited#cuz woo dealing with pain easier!#hdkshdjsjdh im so excited#ghost band#tobias forge#papa nihil#papa emeritus iv#papa emeritus iii#papa terzo#cardinal copia#physically disabled#cane user#physical disability#hypermobile#hypermobility#ambulatory mobility aid user#hypermobile ehlers danlos#ambulatory cane user
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I JUST FOUND OUT I CAN BIKE WITHOUT* PAIN!!!!! I JUST FOUND OUT I CAN BIKE WITHOUT PAIN!!!!!!! I NOW HAVE TWO PHYSICAL ACTIVITIES I CAN DO WITHOUT PAIN!!!!!!! I CAN BIKE WHEN IM NOT FIGURE SKATING!!!!!!! IM GENUINELY SOBBING RIGHT NOW THIS IS SUCH A MASSIVE THING FOR ME YOU DONT UNDERSTAND
* = check tags for explanation
#My chronic pain has been getting so much worse lately#Dislcoations are also happening more often#And as someone who used to be insanely athletic I’ve been grieving so heavily for who I used to be and what I used to be capable of#I used to be able to run a marathon easily and now *walking* is painful#I use a cane most days now#My literal only freedom is while figure skating#And to discover there’s another thing I can do? I feel like I’m getting a piece of myself back even while my health is getting worse#This feels so euphoric#But knowing I be active by skating? It’s been my life line. And now I can bike!#And I just don’t know what to say#Also for clarification I can bike now but it’s still painful to a degree: Figure skating is not painful for me#But biking still has a level of pain but so far it’s not like ‘I’m completely unable to do this’ pain instead it’s like#‘Wow yeah this is painful but everything is and this is a pain I can manage to deal with because I’m being active and that makes me happy’#ykwim?#Oh and new symptoms of paralysis. I’ll make a post about that too. My luck is awesome /s#Chronic illness#Fibromyalgia#hEDS#Cane user#dynamic disability#Disabled#Chronic pain#Disability#Chronically ill
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It’s disability pride month, and if you are disabled in the U.S. from Long Covid I want you to know that you’re not alone, and you’re valid in whatever you feel. Whether that’s sorrow at your new problems or rage at society for failing you, you are valid, and it is truly messed up that society is continuing to fail you.
#disability#trauma#chronic illness#long COVID#COVID#Tbh I’m not sure if I have long covid or not but I keep swinging between despair and fury#The brain fog SUCKS#I might have always had it but it feels especially bad now?#And I have all kinds of respiratory problems that got exacerbated#And possibly chronic fatigue but it’s unclear#And I’m one of the lucky ones!!!#I can still exercise without needing three days of bed rest after!#I was so RELIEVED when it turned out I could do that#I did like. Three weeks of breathing rehab to make sure#Not sure if it helped but now I’m not getting post-exertional backlash nearly as much anymore#And I didn’t lose my sense of smell or get my taste messed up#And I don’t need a respirator just an inhaler and some allergy meds and to take frequent breaks#And like. I know so many people have it worse#And that suuuuucks#But EVEN THIS makes me want to scream and rail half the time#Update as of Sept 2024 — this is no longer true#Got Covid again and now I can’t exercise without being too tired to move for three days#🙃#Probably will die mad about this actually#I had SUCH a good time working out one night#But then the next morning#Nope#head-to-toe muscle pain#couldn’t do any chores#Couldn’t even feed myself
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I know other adults like to joke about how much pain they're in, but genuinely, please try to get your pain checked out if you're an adult experiencing it, or at least adapt your life in whatever way lessens your pain.
Your pain deserves to be addressed. Please don't "let" it get worse because you've been told that to grow older is to suffer. No, you aren't being needy or selfish or annoying. Ultimately, you are the one who suffers the most from the state of your health, and it's entirely reasonable to want your health to be up to your standards.
#disability#chronic pain#it's actually not normal to feel scared to sneeze for fear of making your pain worse (calling myself out)#i dunno i guess maybe i'm just ~too young~ an adult but i'm already tired of the jokes about pain 😮💨#i've been at this pain going on decades now so i guess that's what's gotten me kind of sensitive lol#like... it's just shitty to be told that 'its gonna get SO much worse so don't even TRY' as an adult with pain#basically when you're a kid you're too young but if you're an adult well... that's just what you get so suck it tf up#i'm going back to playing video games so that i may live in the comforting realm of fantasy (Much Less Pain Universe)#(trying to be grateful that my body is Very invested in telling me that it needs to be handled gently but it's hard)#talking so much about this just to continuously make sure that people don't do what i did in the past
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Me at 7pm, every time: I'm so sleeeepy. I can't go to sleep now tho or I'll wake up at 3 am and not be able to go back to sleep
Me at 7:30pm: but I'm so sleeeepy. Surely I won't wake up at 3 am THIS time
Me at 3 am:
#ALAS#this is NOT enough sleep btw.#less than 8 hours of sleep makes my chronic pain way worse#I got 7 hours and 20 minutes of sleep and I feel like garbage#if you got less sleep than that and are mad at me for getting more sleep I am holding your hand telling#why are we pitting two bad bitches against each other#and then singing you a lullaby#we BOTH deserve more sleep
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I'm so normal about Him
#Trigun#Trigun Stampede#vash the stampede#hand farts#this took me 3 goddamn hours and made my chronic arm pain so much worse but I HAD TO I LOVE HIM!!#I literally haven't been able to hold a pen for more than 5-10min w/o significant pain for like... 5+ years now. I can't draw anymore reall#this is the first full drawing I've done in well over a year at least#but I've had this picture in my head for weeks and finally had to get it out!! shitty arms be damned!!#sorry for the inaccuracies for his prosthetic arm and bracelet thing. i simply couldn't handle adding more details if I wanted to finish it#all of the hearts are freehanded btw! i just like doing space fillers#this has been a post#i couldn't figure out how to do his crossed fingers in this simpler style either so feel free to stone me or w/e#tristamp
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There's something so devastating about becoming chronically ill in your teens because everyone around you is still young and healthy and can't relate to or sympathize with your situation, so you're essentially just left to learn that no matter what there will always be a part of yourself that alienates you from everyone else you know
#chronic illness#disability#fibromyalgia#chronic pain#honestly i wish i had a chronically ill friend#because it feels like im just being made to go through this entire process alone#like everyones uncomfortable when i bring up my pain#but they dont realize that im mourning#like ill never really get the chance to do anything i wanted to do#i had to quit so many things already and its only getting worse#i just wish i was normal#tbh#my post#disabled
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I've had hip issues since I was born, hip dysplasia and perthes disease and interior hip anteversion (my femur's rotated inwards 50°, then my foot's rotated outwards about the same) and my femur on one leg is 4-5cm shorter than the other, developed arthritis at 15 and then recurrent bursitis. I was on the waitlist for surgery as a kid and it got scheduled and cancelled three times, then never ended up happening. Financial issues meant I couldn't get it privately, then when I moved to NSW I had to get on the waitlist over here and went straight back to the bottom of the list.
I got offered a cancellation spot three weeks from now. I know it's not going to fix everything wrong with it, it's the first of three surgeries I need, but once I have this first one the next two are guaranteed to be only months apart, and I'm so happy about it I'm trying not to cry on the train. My physio says these surgeries should fix about 95% of the pain I experience, which has gotten so bad over the last year that I regularly can't sleep without codeine, it wakes me up in the middle of the night, and sometimes I just can't sleep at all.
I'll be spending christmas alone in the hospital most likely, but I literally don't care!!! i'm so happy. i'm so relieved. this doesn't feel real. this feels life saving. god.
#someone be happy for me#please#i've been in exruciating pain since i was 8 years old and no one ever took me seriously and then it just got worse and worse and worse#until i lost the ability to walk further than 20 metres without collapsing and suddenly it was all oh whats wrong#the same thing that's been wrong my entire life!!!! and you refused to help me with!!!! fuck you#(my dad refused to let me get any surgery whilst i was living with him bc i “didn't need it”)#wheelchair user#chronic disability#disabled#chronic pain#disability#hope#spoonie#actually disabled#hip surgery#perthes disease#arthritis#hip dysplasia#healthcare
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just had an appointment with my doctor post MRI about the next steps of dealing with endometriosis. there isn't much i can do surgically, and there's honestly too much risk with that, which is fine. there might be medication i can go on, but eh, who knows.
what i need to get my parents to realize is that I still have chronic health issues and I would benefit from a mobility aid. and that I'm not giving up by using a mobility aid.
#they wont take me seriously just generally#but even more so when it comes to my health#and even more so with chronic pain#I think i need to start working out and then when i still have issues because my issues are chronic and often get worse with activity#they will maybe comprehend that me using mobility aids is not the end of the world#gotta schedule physical therapy soon#chronic pain is a bitch#chronic illness#chronic pain#chronic fatigue#chronically ill#chronic disability#fatigue#disabled#disabilties#invisible disability#disability#physical disability#spoons#spoonie#low spoons#cripple punk#actually disabled#cripple posting#angry cripple#cripplepunk#queer cripple#cripple life#crip punk#cpunk
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I finally got Covid. I'm up to date on all my boosters, still mask wherever I go, and take every precaution I can (I even worked as a mortuary transfer assistant for the first two years of the pandemic without getting it) I feel like garbage and I'm so upset oh my god
#I'm really worried about what this means for my physical health (I have asthma and fibromyalgia)#I'm just hoping there'll be no permanent long lasting effects cause holy shit things are already rough#I don't need my breathing and chronic pain getting worse than they already areee#ask to tag
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Its always so hard to believe that not being in pain is just the casual state of being for most people, and not a rare event they experience every now and again
#its actually unreal to me#people take it for granted#i dont remember the last time i lived a day without at least a little bit of pain or ache#im sure functioning wasn't so painful when i was a kid tho#it just got worse recently and its become my reality. i can't imagine myself without it#i wonder if it'll get worse or better#id rather not think about it tho#if i hope for a future without chronic pain i might get disappointed#and if i assume I'll get worse and worse I'll just be really sad all the time lol#ouchie posting
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soooo turns out i have condylar resorption, a severe degenerative joint disease that causes gradual bone loss of the mandibular condyles (the bones that are part of the jaw joints, aka the TMJs). this has probably been going on i was a kid but went diagnosed all this time. my symptoms like functional issues, pain, etc. were repeatedly dismissed by doctors my whole life. the pain and dysfunction is increasing more and more by the day.
it's a progressive disease, and nothing can stop it or slow it down until the joints are completely eaten away. the only solution to prevent further bone loss and restore function is a total temporomandibular joint replacement, where the two diseased joints that literally hold my face together are removed and permanently replaced with metal prostheses. aka a major surgery with a 6-12 month recovery 😃
#basically my face is disappearing because my body is attacking itself which has been really Fun to experience#i've had this disease since i was like 10 but only found out after doing my own research because most dentists/orthos don't know about it#i always knew something was really wrong and that my pain/ facial changes were not normal and getting worse#so it's both relieving and frustrating to *finally* be taken seriously#but yeah i'm having a lot of emotions about this and it's been really tough to process#getting joint replacement AND jaw surgery was not how i thought i'd be spending my early 20s#but better than being in chronic pain for the rest of my life for sure#and if i wait any longer i risk severe deterioration/unsalvageable bone loss and total airway collapse in the future#sameera.txt
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