#my chronic pain is getting worse

[cherrysnax]

the stress of the election plus college is really getting to me. I’m a great student but I feel like one really dropping the ball in this last quarter

[s-ccaam-era-crepe]

i think everyone who's ever had migraines should be financially compensated forever btw

[theatrekidenergy]

I JUST FOUND OUT I CAN BIKE WITHOUT* PAIN!!!!! I JUST FOUND OUT I CAN BIKE WITHOUT PAIN!!!!!!! I NOW HAVE TWO PHYSICAL ACTIVITIES I CAN DO WITHOUT PAIN!!!!!!! I CAN BIKE WHEN IM NOT FIGURE SKATING!!!!!!! IM GENUINELY SOBBING RIGHT NOW THIS IS SUCH A MASSIVE THING FOR ME YOU DONT UNDERSTAND

* = check tags for explanation

[9ofspades]

It’s disability pride month, and if you are disabled in the U.S. from Long Covid I want you to know that you’re not alone, and you’re valid in whatever you feel. Whether that’s sorrow at your new problems or rage at society for failing you, you are valid, and it is truly messed up that society is continuing to fail you.

[uncanny-tranny]

I know other adults like to joke about how much pain they're in, but genuinely, please try to get your pain checked out if you're an adult experiencing it, or at least adapt your life in whatever way lessens your pain.

Your pain deserves to be addressed. Please don't "let" it get worse because you've been told that to grow older is to suffer. No, you aren't being needy or selfish or annoying. Ultimately, you are the one who suffers the most from the state of your health, and it's entirely reasonable to want your health to be up to your standards.

[gayinajar]

I MIGHT BE ABLE GO SEE A GHOST CONCERT IN APRIL

AND SEE MY LONG DISTANCE GIRLFRIEND FOR THE FIRST TIME

AND ILL BE ABLE BRING MY CANE WITH ME TO TRAVEL

IV NEVER BEEN ABLE DO ANY OF THOSE THINGS BEFORE

IM SO FUCKING EXCITED

[godofidea]

I'm so normal about Him

[thornsinpudding]

There's something so devastating about becoming chronically ill in your teens because everyone around you is still young and healthy and can't relate to or sympathize with your situation, so you're essentially just left to learn that no matter what there will always be a part of yourself that alienates you from everyone else you know

[justsayapple]

I finally got Covid. I'm up to date on all my boosters, still mask wherever I go, and take every precaution I can (I even worked as a mortuary transfer assistant for the first two years of the pandemic without getting it) I feel like garbage and I'm so upset oh my god

[cryptile]

Its always so hard to believe that not being in pain is just the casual state of being for most people, and not a rare event they experience every now and again

[sheryl-lee]

soooo turns out i have condylar resorption, a severe degenerative joint disease that causes gradual bone loss of the mandibular condyles (the bones that are part of the jaw joints, aka the TMJs). this has probably been going on i was a kid but went diagnosed all this time. my symptoms like functional issues, pain, etc. were repeatedly dismissed by doctors my whole life. the pain and dysfunction is increasing more and more by the day.

it's a progressive disease, and nothing can stop it or slow it down until the joints are completely eaten away. the only solution to prevent further bone loss and restore function is a total temporomandibular joint replacement, where the two diseased joints that literally hold my face together are removed and permanently replaced with metal prostheses. aka a major surgery with a 6-12 month recovery 😃

[milkweedman]

Hi, you said in your bio that you're chronically ill. I was wondering if you had any tips for knitting with chronic pain (assuming that's your flavour of chronic illness)? Or do you know anyone who could give me advice?knitting/sewing is my sanity-saver.

I use compression gloves, only knit with specific weights of yarn (the ones that are the least painful for me), and try to take frequent breaks, which for me looks like switching hobbies every 30 minutes or so (knitting to spinning to knitting, etc). I also do my best to be very gentle on my joints when i can, altho i honestly rarely have the choice at work.

Personally i have joint problems and migraines, so thats what im correcting for/trying not to make worse. Helpful advice probably varies depending on what youre trying to correct for. Really my only general advice is "when it starts to hurt, try to stop" and "if possible, save the painfully difficult stuff for when youre doing well, and make the easier stuff your usual work"

If anyone who sees this has got other tips please feel free to comment them

[stars-and-branches]

Going to bed when you have chronic pain

[dreamlogic]

going through another round of "what if i got a cane would my life be easier with a cane should i get a cane" hmmmm

[feverdreamsandlucidnightmares]

My favorite band will be in my city in 2 weeks and I am running out of time to figure out if I am physically able to go to a punk rock concert bc the last time I did I actually passed out and I’ve only gotten worse since then but it’s my favorite band

Objectively this is a horrible idea, I’ll have been at work all day, I have a doctors appointment and class the next morning, it’s an hour by public transit to get to the venue, and there’s a chance my cane gets damaged if I bring it. I struggle to stand for long periods of time and have a history of fainting. But. Tickets are $60 and I have no other events or anything this month so that’s doable. But I might fuck up my whole week to do it. And I’d be going alone.

But. It’s my life to fuck up. I think I’m going to do it

[hazel2468]

“Inaccessibility has a massive impact on disabled people, especially people with mobility issues and those who use aids like canes, walkers, wheelchairs, service animals, etc. and these things are often ignored and should not be and you are right to be angry about it.”

And

“Even within the disabled community, there is a disgusting amount of dismissal and yes, ableism directed at people who have needs related to mental illness/mental disorders- to the point that other disabled people will refer to those of us with invisible disabilities, chronic illness, and mental disorders as abled and tell us that our needs are lesser and that is not okay.”

Are statements that must co-exist.