#more than okay to reblog!

[flutterbyfairy]

i've been collecting resources and studies about myalgic encephalomyelitis for upcoming doctors appointments, and since there's a lot of misinformation about ME out there i thought i'd make a post with links and information that might be helpful for other ME patients, or just generally educational!

for anyone who doesn't know, myalgic encephalomyelitis is a debilitating multi system chronic illness. it's most characteristic symptom is post exertional malaise/symptom exacerbation (meaning symptoms getting significantly worse after exertion with prolonged recovery periods - see the diagnostic criteria linked below for more explanation). it has previously been called chronic fatigue syndrome, a name associated with claims of it being a psychosomatic condition rather than a medical one despite evidence to the contrary (here's a page with some information about the history of ME, and see the pathology section further down for evidence of ME being a physical disease). ME is also often comorbid with conditions like POTS (or other forms of orthostatic intolerance and dysautonomia), MCAS, and Small Fibre Neuropathy, and it's not uncommon for people who have long covid to develop ME. but yea! here's some links to resources i've gathered.

general resources/overviews:

Chronic Fatigue Syndrome Myalgic Encephalomyelitis Primer For Clinical Practitioners 2014 Edition

Diagnosis and Management of Myalgic Encephalomyelitis - ME Action

Initiating Care of a Patient With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Medical considerations when treating urgently ill patients with underlying myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)

Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Three Cases of Severe ME/CFS in Adults

diagnostics:

Myalgic Encephalomyelitis: International Consensus Criteria <- just the criteria

Myalgic encephalomyelitis: International Consensus Criteria <- criteria with explanation of how and why it was developed

TESTING RECOMMENDATIONS FOR SUSPECTED ME/CFS US ME/CFS Clinician Coalition

there are multiple ME severity scales, and exact definitions of what constitutes mild/moderate/severe/very severe vary a bit, but here is one: M.E. Disability Scale, another one is the ME/CFS Disability Rating Scale from ME Association, however the pdf on their website costs so i also have a pdf that i made with the text

pathology:

Brainstem volume changes in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID patients

Decreased oxygen extraction during cardiopulmonary exercise test in patients with chronic fatigue syndrome

Developing a blood cell-based diagnostic test for myalgic encephalomyelitis/chronic fatigue syndrome using peripheral blood mononuclear cells

Human Herpesvirus-6 Reactivation, Mitochondrial Fragmentation, and the Coordination of Antiviral and Metabolic Phenotypes in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Mitochondrial complex activity in permeabilised cells of chronic fatigue syndrome patients using two cell types

Muscle sodium content in patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Redox imbalance links COVID-19 and myalgic encephalomyelitis/chronic fatigue syndrome

The use of oxygen as a possible screening biomarker for the diagnosis of chronic fatigue

Tissue specific signature of HHV-6 infection in ME/CFS

treatment (both helpful and harmful):

ME/CFS TREATMENT RECOMMENDATIONS US ME/CFS Clinician Coalition

Low-dose naltrexone in the treatment of myalgic encephalomyelitis/chronic fatigue syndrome (ME/ CFS)

Potential Therapeutic Benefit of Low Dose Naltrexone in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Role of Transient Receptor Potential Melastatin 3 Ion Channels in Pathophysiology and Treatment

Back to the Future? Immunoglobulin Therapy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Evidence Against Exercise for people with PEM/PESE in Long COVID and ME/CFS

PACE trial claims for recovery in myalgic encephalomyelitis/chronic fatigue syndrome – true or false? It’s time for an independent review of the methodology and results

Treatment harms to patients with ME/CFS

[coughwheezecough]

Remember when Klaus was queer. Remember when Luthor was an astronaut. Remember when all Lila wanted was family. Remember when Five made jokes. Remember when Klaus was a veteran. Remember when Five said damn the world, where's my family.

[rabid-transcendentalist]

[sergle]

I'm thinking abt that pretty fall leaves embroidery pattern post and about how like... it is categorically a repost, it's a reupload. right? a thing that is generally disliked. but because it's credited, it's genuinely boosting the artist in question. and it could ALWAYS be like this. reposting content could ALWAYS be a symbiotic relationship, but because sourcing back to the original creator of something is so uncommon, it's just easier to ask people not to repost it at all. and people still don't understand the difference. or they'll go to the effort of cropping out usernames/signatures to repost something, which is More Effort than literally crediting the creator of something you liked enough to want to repost. Like. I literally don't actually care if my own shit gets reposted, you have to understand. I just don't want it STOLEN. But "do not repost" is easier to write on my art than "you can repost this, but don't alter the image/remove my signature, don't you dare write 'credit goes to the artist' because that is not credit, please link back to my original post or someplace that you can actually find me. please use an actual link/url instead of writing a non-clickable link of my username, because making it text instead of a clickable link cuts the number of people who will go to the effort of visiting my own page in Half." All those aggregate themed accounts, those fuckin annoying as hell instagrams and facebook groups that are like "body positive art we love wamen 💕 hashtag feminism" and then MASS-STEAL plus sized art created by women, if pages like these that always go and steal my older self-portraits and other works... If they just put a link to my prints of those pieces in the text of those posts, or, fuck, my commission info page? I would literally be living on the moon right now. I would have a house on the moon

[swordsonnet]

lately, i've seen more people in the online autistic community acknowledging the struggles of people with higher support needs, which is of course an important development. but for some, that seems to come with the implicit assumption that low needs autistics "have it easy" or experience no stigma at all, which is just wrong??? people with low support needs are still disabled by their autism and still face discrimination because of it. sure, they are impaired to a lesser degree than those with higher support needs, but that doesn't mean you can just erase their struggles, y'know?

[dhmis-autism]

ok fine bc i cant stop drawing them and i thought i would be done with it by now;

my human YG AND Duck designs ok? ok :]

[stranger-theory]

LOOKKKK... I know it's a stretch but my mom and I were going over Mike's weird sideways pocket and she found stuff on the rune Dagaz so I thought I'd share !! (we're still huge fans of pocketgate, but who's to say it can't have double meaning!)

"And if you are following your TRUE path, you will notice that everything falls into place on its own". Hm... Just thinking about his relationship with El being in shambles.

So if things "landing on your doorstep" ISN'T the way to go (milevens relationship)... and actually putting in the work IS (bylers relationship).... Idk what to tell you.

I mean.. come on.

"Light of knowledge" and Will also being known as "Will the Wise" omfg- THE IMAGERY IS ENOUGH ARE YOU KIDDING ME

These last ones are just simple explanations for what the rune represents and I think it fits Mike well enough. He is absolutely on the verge of realization AND change ("change" would be being with Will and "realization" possibly being about the painting............).

I hope you found this entertaining !! I thought it was fun to research.

[vellichorom]

let's talk for a moment. if you're so hellbent on having an AI chatbot, then for the love of god please think about the characters you're using & what the creators intentions with them are / how they want them to be used.

i don't think anybody's going to bat an eye if you make a mickey mouse or winnie the pooh chatbot, for instance. those characters are practically public domain by this point, EVERYBODY knows who they are, they're the furthest from their original creators by this point, such & such, that's one thing.

but you do not apply that free logic to ANY character ever. you do not go to some little tumblr blog with their niche character design / interpretation, or even their OC, & decide- without the creator's permission, that you can then use their creation to feed into an AI chatbot for your entertainment.

that's how we end up with, in so many words, situations like Welcome Home, where one creator's passion project gets ripped from their hands & made into ANYTHING the fans want. it gets fandomized before it even becomes more of a public creation, or even fully fleshed out.

that's sickening to me. & you're doing this with AI, no less. to smaller creators with smaller creations they'd much rather keep close to home.

don't do that. get EXPLICIT permission if you feel you NEED something like that.

better yet, if a creator welcomes questions or interaction with their character(s), ENGAGE IN THAT! see about askblogs / rp blogs, send asks, engage with a creator puppeting their creations FOR you.

& if they don't welcome that? if they're not the kind to do that? maybe they haven't gotten around to interacting with you yet?

oh well. that's life. move on.

if you care any about your favorite creators & what they make, you'll respect the boundaries they put out. & i realize there's some that DON'T care, & will do these things out of spite or disregarding a creator's words.

but for those who mean well & just want some harmless fun? please just think about what you're doing. consider my words & others's words, & prioritize CONSENT.

thank you.

[yardsards]

people love an "i'll take care of you" "it's rotten work" "not to me, not if it's you" character dynamic until the character who needs to be taken care of is disabled. then it's supposedly fucked up and toxic for a person to have to take care of someone else.

[sygneth]

I have always admired people who could write one fic or draw a comic for years because I am living in a constant fear of not finishing what I have started. Not in a 'maybe something terrible will happen to me' way, but simply knowing myself and that after a couple of months or years, I will catch a new fixation and finishing the old story will become hard. And yeah sure, I have heard people say "You don't have to finish if it doesn't interest you anymore" or "It's your art and you decide what it will be about" and I fully agree, but I still love those old things I came up with you know? I still love these characters and I want their stories to be told, but at the same time there already are new characters with new stories in my head and I want to tell them too.

[nothorses]

I understand that there is absolutely a reason for folks to argue that there are no "good enough" conditions under which religion just disappears, and I agree that it's an incredibly hateful and harmful position to hold in the first place. along with being, y'know, completely fucking nonsensical.

however

if your argument to this is "the thing that makes humans human is religion" respectfully I need you to re-evaluate with people who are not religious in mind & consider what kind of impact that has on a group that is already dehumanized. for not being religious.

[struck-by-the-rain]

bored and on the train so have some miscellaneous karate joe headcanons, I've typed some of these out before but most r new! under the cut because it's long and idk if I wanna maintag this

the reading material is conflicted but in my head he's really good at karate! it does say somewhere that his style has a unique sense of rhythm and hes unsuccessful in competitions because his opponents can read his moves, but I think he gets past this by sticking to increasingly complex rhythms! he completes at the highest level that's there in the rh universe, like their equiv of the olympics or whatever. senior's standards for "mastering karate" are ill-defined and he probably keeps moving the goalposts (pun not intended) on joe

he's extremely overworked and over-stressed by his training, to the point where he has pretty bad chronic pain/repetitive strain injuries in his hands.

similarly im also considering hcing him being partially deaf in 1 ear from the first time his father introduced bombs into his training (& 1 exploded in his ear)

also he listens to music really loud on the reg and (like all my fav characters) hes autistic 2 me (so has audio processing issues to boot) so I think he needs 2 ask ppl to repeat themselves a lot

or he would, if he wasn't really shy and afraid of coming across as weak/useless/a disappointment! I've talked about that before but yeah. he masks it by trying to put on a tough guy persona & doesn't talk v much (he's a v expressive person as the games suggest but i think he actively tries to hide it most of the time)

he's a decent cook, having learned because seniors is so bad!! I need 2 give him a silly fav food other than pancakes (from honeybee remix...),,, my heart says he likes rly cosy things like soups and stews and everything

^ kinda fits vibes wise with how I like to draw him wearing comfy sweaters loads!! i think he's kinda winter-coded as a person but I'm not sure if it's actually his fav season or what!

in general he's not super fashion-y (makes it a challenge to draw him sometimes BC I love making characters dripped out),,, man lives in old band t-shirts and hoodies/sweaters and really knackered jeans

ohhh yeah this was a big 1 and I've said this before but he really likes the rockers (was a fan of jj's stuff pre-retirement and then when he comes back onto the scene w his student),,, I think he had a childhood crush on jj at one point

& I think he gets really into old games/consoles at some point, maybe because senior keeps them down in the basement in a box! he likes to take old consoles apart and figure out how they work

ummmmmm also he's like really scared of sucking at something (like a new hobby/sport or whatever)/disappointing others. idk I already said that

might think of more if so I'll just make an addition to this post

[rosetintedgunman]

(Text from here)

-

If no one got you, know that Wilford Warfstache got you.

Bonus reaction pic if you want to use it:

[that-was-anticlimactic]

shut up biden shut up obama "there's no place for this kind of violence in amercia" "there is absolutely no place for political violence in our democracy" Y'ALL ARE WAR CRIMINALS!!! y'all don't get to condemn violence just bc it's the brand of violence that impacts you oh my god oh my god oh my god

[ratsonas]

i prefer amateur art with its mistakes and rough spots so much over overpolished professional art. if something's created perfectly i tune out the effort it takes to make it perfect. but if somethings created poorly, on purpose or on accident, it draws me in so much more because i can conceptualize the creative process more easily

[the-kipsabian]

a quick hot guide for people that struggle commenting on fics aka things authors love to hear and youre just over thinking it and its actually really simple to leave comments on stuff!!

key smash/emoji spam/reaction image/etc (it conveys emotions way more than you might think)

drop a line you really liked

say how much you love a ship/character and how happy you are that theres content about them

ALL CAPS ANYTHING

"i liked/loved/enjoyed/whatever it!" its better to say the most basic thing than saying nothing tbh; writers appreciate hearing anything over nothing 💜

"thank you for writing this" its short, sweet, and very powerful

think what kind of feedback you'd personally like to receive on a piece of art you made. try to translate that want into comments you leave for other people too

you dont have to be critical or constructive or anything, even if the author asks for that stuff in their notes. they'll get it from someone else, you just do you

i feel like people make leaving comments too hard on themselves, so really just make it simple. if you really dont come up with anything, just say thank you. youre there reading for some reason, tell the author what it is. fic comments dont need to be book analysis essays (tho those are. incredibly appreciated as well if you want to write one!!), writers publishing their works for free online appreciate any kind of feedback regardless if you consider it good or well written. a comment is a comment

bottom line is, leave comments on fics and other written works. its whats keeping this game alive