#more than okay to reblog!

[flutterbyfairy]

i've been collecting resources and studies about myalgic encephalomyelitis for upcoming doctors appointments, and since there's a lot of misinformation about ME out there i thought i'd make a post with links and information that might be helpful for other ME patients, or just generally educational!

for anyone who doesn't know, myalgic encephalomyelitis is a debilitating multi system chronic illness. it's most characteristic symptom is post exertional malaise/symptom exacerbation (meaning symptoms getting significantly worse after exertion with prolonged recovery periods - see the diagnostic criteria linked below for more explanation). it has previously been called chronic fatigue syndrome, a name associated with claims of it being a psychosomatic condition rather than a medical one despite evidence to the contrary (here's a page with some information about the history of ME, and see the pathology section further down for evidence of ME being a physical disease). ME is also often comorbid with conditions like POTS (or other forms of orthostatic intolerance and dysautonomia), MCAS, and Small Fibre Neuropathy, and it's not uncommon for people who have long covid to develop ME. but yea! here's some links to resources i've gathered.

general resources/overviews:

Chronic Fatigue Syndrome Myalgic Encephalomyelitis Primer For Clinical Practitioners 2014 Edition

Diagnosis and Management of Myalgic Encephalomyelitis - ME Action

Initiating Care of a Patient With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

Medical considerations when treating urgently ill patients with underlying myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)

Caring for the Patient with Severe or Very Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Three Cases of Severe ME/CFS in Adults

diagnostics:

Myalgic Encephalomyelitis: International Consensus Criteria <- just the criteria

Myalgic encephalomyelitis: International Consensus Criteria <- criteria with explanation of how and why it was developed

TESTING RECOMMENDATIONS FOR SUSPECTED ME/CFS US ME/CFS Clinician Coalition

there are multiple ME severity scales, and exact definitions of what constitutes mild/moderate/severe/very severe vary a bit, but here is one: M.E. Disability Scale, another one is the ME/CFS Disability Rating Scale from ME Association, however the pdf on their website costs so i also have a pdf that i made with the text

pathology:

Brainstem volume changes in myalgic encephalomyelitis/chronic fatigue syndrome and long COVID patients

Decreased oxygen extraction during cardiopulmonary exercise test in patients with chronic fatigue syndrome

Developing a blood cell-based diagnostic test for myalgic encephalomyelitis/chronic fatigue syndrome using peripheral blood mononuclear cells

Human Herpesvirus-6 Reactivation, Mitochondrial Fragmentation, and the Coordination of Antiviral and Metabolic Phenotypes in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Mitochondrial complex activity in permeabilised cells of chronic fatigue syndrome patients using two cell types

Muscle sodium content in patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Redox imbalance links COVID-19 and myalgic encephalomyelitis/chronic fatigue syndrome

The use of oxygen as a possible screening biomarker for the diagnosis of chronic fatigue

Tissue specific signature of HHV-6 infection in ME/CFS

treatment (both helpful and harmful):

ME/CFS TREATMENT RECOMMENDATIONS US ME/CFS Clinician Coalition

Low-dose naltrexone in the treatment of myalgic encephalomyelitis/chronic fatigue syndrome (ME/ CFS)

Potential Therapeutic Benefit of Low Dose Naltrexone in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Role of Transient Receptor Potential Melastatin 3 Ion Channels in Pathophysiology and Treatment

Back to the Future? Immunoglobulin Therapy for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Evidence Against Exercise for people with PEM/PESE in Long COVID and ME/CFS

PACE trial claims for recovery in myalgic encephalomyelitis/chronic fatigue syndrome – true or false? It’s time for an independent review of the methodology and results

Treatment harms to patients with ME/CFS

[coughwheezecough]

Remember when Klaus was queer. Remember when Luthor was an astronaut. Remember when all Lila wanted was family. Remember when Five made jokes. Remember when Klaus was a veteran. Remember when Five said damn the world, where's my family.

[sergle]

I'm thinking abt that pretty fall leaves embroidery pattern post and about how like... it is categorically a repost, it's a reupload. right? a thing that is generally disliked. but because it's credited, it's genuinely boosting the artist in question. and it could ALWAYS be like this. reposting content could ALWAYS be a symbiotic relationship, but because sourcing back to the original creator of something is so uncommon, it's just easier to ask people not to repost it at all. and people still don't understand the difference. or they'll go to the effort of cropping out usernames/signatures to repost something, which is More Effort than literally crediting the creator of something you liked enough to want to repost. Like. I literally don't actually care if my own shit gets reposted, you have to understand. I just don't want it STOLEN. But "do not repost" is easier to write on my art than "you can repost this, but don't alter the image/remove my signature, don't you dare write 'credit goes to the artist' because that is not credit, please link back to my original post or someplace that you can actually find me. please use an actual link/url instead of writing a non-clickable link of my username, because making it text instead of a clickable link cuts the number of people who will go to the effort of visiting my own page in Half." All those aggregate themed accounts, those fuckin annoying as hell instagrams and facebook groups that are like "body positive art we love wamen 💕 hashtag feminism" and then MASS-STEAL plus sized art created by women, if pages like these that always go and steal my older self-portraits and other works... If they just put a link to my prints of those pieces in the text of those posts, or, fuck, my commission info page? I would literally be living on the moon right now. I would have a house on the moon

[luce-and-friends-fanblog]

heyy hello everyone this is a prayer request for someone who had just followed this account, to which i promptly blocked and reported.

this user’s account was full of horrible and hateful posts and i am asking you all to pray for this persons soul. thank you 🧡

[swordsonnet]

lately, i've seen more people in the online autistic community acknowledging the struggles of people with higher support needs, which is of course an important development. but for some, that seems to come with the implicit assumption that low needs autistics "have it easy" or experience no stigma at all, which is just wrong??? people with low support needs are still disabled by their autism and still face discrimination because of it. sure, they are impaired to a lesser degree than those with higher support needs, but that doesn't mean you can just erase their struggles, y'know?

[dhmis-autism]

ok fine bc i cant stop drawing them and i thought i would be done with it by now;

my human YG AND Duck designs ok? ok :]

[rock-a-noodle]

Much love to autistics who:

* Constantly say dumb/unintentionally impolite shit and are constantly corrected by the "straight man" of the group (not out of malice but out of an honest mistake). Especially if you're femme presenting/AFAB/a girl as guys/masc people are stereotyped as being such.

* Have always had that one person who's praised and loved that you're jealous of but can't Legally Hate and they treat you like you're stupid and no one does shit about it.

* Are struggling to find and keep friends who are closer to their level while constantly having to be a caretaker to their friends with more baggage.

* Who've always been in friend groups where one or more of the other members treat them like shit and not enough is done.

* Who are more reluctant to socialize among neurotypicals in fear of rejection.

* Who are so sick of seeing double standards with them vs. their peers, be they neurotypicals or divergent.

* Who have a history of being pulled into unhealthy/toxic/ relationships and being taken advantage of despite feeling they've learned from that.

* Who are sick of lower support disableds crapping on others with high support needs/the R-slur/anti-Special Olympics jokes.

* Who struggle to adjust their tone/come off ruder than intended/have their intents or purpose of saying things misinterpreted

* Slipped through the cracks diagnosis/service wise due to being an older autistic, financial status or other.

* Who felt like they weren't checked in on enough as a child.

YOU ARE ENOUGH.

[yardsards]

people love an "i'll take care of you" "it's rotten work" "not to me, not if it's you" character dynamic until the character who needs to be taken care of is disabled. then it's supposedly fucked up and toxic for a person to have to take care of someone else.

[stranger-theory]

LOOKKKK... I know it's a stretch but my mom and I were going over Mike's weird sideways pocket and she found stuff on the rune Dagaz so I thought I'd share !! (we're still huge fans of pocketgate, but who's to say it can't have double meaning!)

"And if you are following your TRUE path, you will notice that everything falls into place on its own". Hm... Just thinking about his relationship with El being in shambles.

So if things "landing on your doorstep" ISN'T the way to go (milevens relationship)... and actually putting in the work IS (bylers relationship).... Idk what to tell you.

I mean.. come on.

"Light of knowledge" and Will also being known as "Will the Wise" omfg- THE IMAGERY IS ENOUGH ARE YOU KIDDING ME

These last ones are just simple explanations for what the rune represents and I think it fits Mike well enough. He is absolutely on the verge of realization AND change ("change" would be being with Will and "realization" possibly being about the painting............).

I hope you found this entertaining !! I thought it was fun to research.

[vellichorom]

let's talk for a moment. if you're so hellbent on having an AI chatbot, then for the love of god please think about the characters you're using & what the creators intentions with them are / how they want them to be used.

i don't think anybody's going to bat an eye if you make a mickey mouse or winnie the pooh chatbot, for instance. those characters are practically public domain by this point, EVERYBODY knows who they are, they're the furthest from their original creators by this point, such & such, that's one thing.

but you do not apply that free logic to ANY character ever. you do not go to some little tumblr blog with their niche character design / interpretation, or even their OC, & decide- without the creator's permission, that you can then use their creation to feed into an AI chatbot for your entertainment.

that's how we end up with, in so many words, situations like Welcome Home, where one creator's passion project gets ripped from their hands & made into ANYTHING the fans want. it gets fandomized before it even becomes more of a public creation, or even fully fleshed out.

that's sickening to me. & you're doing this with AI, no less. to smaller creators with smaller creations they'd much rather keep close to home.

don't do that. get EXPLICIT permission if you feel you NEED something like that.

better yet, if a creator welcomes questions or interaction with their character(s), ENGAGE IN THAT! see about askblogs / rp blogs, send asks, engage with a creator puppeting their creations FOR you.

& if they don't welcome that? if they're not the kind to do that? maybe they haven't gotten around to interacting with you yet?

oh well. that's life. move on.

if you care any about your favorite creators & what they make, you'll respect the boundaries they put out. & i realize there's some that DON'T care, & will do these things out of spite or disregarding a creator's words.

but for those who mean well & just want some harmless fun? please just think about what you're doing. consider my words & others's words, & prioritize CONSENT.

thank you.

[evilfloralfoolery]

I don't know if this will help any of my fellow writers, but a good friend of mine put some things into perspective for me today, so I wanted to share.

I often wonder why some things of mine get a decent amount of engagement while others do not. Is it the content? Is it the length? Is it not enough snzfuckery? Blah, blah, blah.

My friend writes for a well-known organization in our town and told me that she experiences the same thing with her articles. She says that her most popular article is actually quite bad (lol) and she's not even sure why people love it so much. So, she started running statistics on all of her stuff, literally studied trends, markets, etc. She found that it has absolutely nothing to do with her content at all. It's all timing. Every bit of it. Did the right people see it at the right time? Was there a good amount of traffic on the website at that time?

So, if you feel like your stuff isn't being seen or isn't being commented on enough, sometimes? It's probably the timing more than anything else. Did people reblog it at the time when others will see it? Did you post it when people were actually there to read it?

Just something to think about before you go all "I MUST SUCK!" on yourself. <3

[bucket-puns]

Old limbus women but one of them is my OC LMAOOOO

[jewishbarbies]

jews voted bluer than any other religion by a mile, and even more so than atheists. I’d love to see a pro palestine jill stein/no voter explain why the ‘new nazis’ didn’t vote for the new hitler - but they did.

[wylldebee]

To those who choose third party or abstained to "teach the democrats a lesson":

I hope the moral hill you chose to die on was fucking worth it.

[the-way-astray]

alright everybody can we please stop tagging me/talking about me in the notes of pro keefe/sokeefe posts. i know strieefe has made it so that it's really funny to talk about how much i love him and how much i'm in denial when i say negative things about him under those posts (and that's all in good fun and not the problem), but we have to think about the fact that the ops are just trying to make a positive post and probably don't want a keefe hater in their notes /srs

[sygneth]

I have always admired people who could write one fic or draw a comic for years because I am living in a constant fear of not finishing what I have started. Not in a 'maybe something terrible will happen to me' way, but simply knowing myself and that after a couple of months or years, I will catch a new fixation and finishing the old story will become hard. And yeah sure, I have heard people say "You don't have to finish if it doesn't interest you anymore" or "It's your art and you decide what it will be about" and I fully agree, but I still love those old things I came up with you know? I still love these characters and I want their stories to be told, but at the same time there already are new characters with new stories in my head and I want to tell them too.