#invisible illness blog

[disabled-bug]

disabled people when their disability disables them

[pixieverse-icedtea]

hot girl summer but its me taking care of my emotional health, spending time under the sun, reading more, finding new things that make me happy, doing things that bring out good versions of myself

[lazosdivinos]

͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏͏𐔌 numbers and extras ！✿˚₊‧⋆˚࿔

𝟬 𝟭 𝟮 𝟯 𝟰 𝟱 𝟲 𝟳 𝟴 𝟵

𝟘 𝟙 𝟚 𝟛 𝟜 𝟝 𝟞 𝟟 𝟠 𝟡

𝟶 𝟷 𝟸 𝟹 𝟺 𝟻 𝟼 𝟽 𝟾 𝟿

para deixar a bio centralizada: (⠀⠀)

para tirar o “traduzir bio”: ( ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏ ͏͏ ͏ ͏ ͏ ͏)͏

para deixar sem nome: ( ؘ ) ( ִֶָ ) ( ً )

[hellhoundzzz]

I sent this to my partner and want to share my funniness to a larger audience here

DHIT I FORGIT TO SAY [got reminded by emoji creator liking this post]

the joint pain emoji is by tontoemojis, the rest are by archangel-mojis

[melodymorningdew]

You have inherent worth.

[spaghettimakesflags]

rheumatoid arthritis pride flag

[vampyrdiariez]

Despite the fact that IEP's and 504 plans are (usually) provided to the people that need them, the lack of accommodation for kids that suffer with disabilities or chronic illnesses is CRAZY. I'm nearly a month and a half into school and am already facing issues with grades and assignments because I missed two days of school in relation to my medical problems. A few of my teachers have refused to work with my IEP and denied me my documented, legal accommodations on multiple occasions. The way that our school system and our teachers treat students that need accommodations is just diabolical, we need to do better to provide disabled kids & teenagers with proper accommodations without defiance from school staff.

[a113cowgirl]

I had 3 doctors appointments in the last week AND a call/long conversation with my case manager/care plan manager, and she’s doing her damnest to get me back into palliative care. (For those who don’t know, palliative care is basically hospice for those who aren’t expected to die in the next 6 months.)

Looks like the specialists are finally starting to agree with me… I’m done with trying to find a cure, I’m exhausted from years of surgeries trying to fix the root problem/cause.

I just want to treat the symptoms and try to improve my quality of life as much as I can and focus on comfort and reliving suffering, rather than fighting so hard to fix everything and be cured. I just want to stop suffering so much.

This partially feels like “giving up,” and makes me sad… but the other part of me feels so much relief in finally giving up the fight. I just want to live the rest of my existence in as little pain as possible, and try to prevent more health crises-es and emergencies.

It’s been a lot of years of this… I’m ready to focus on being comfortable and getting my life back a bit. I’m finally coming to terms with that hard conversation a doctor had with me 8ish months ago about “accepting that I will always be disabled” and “coming to terms with a new normal.” At the time, I was so mad at him suggesting that… but now I’m realizing it may be more peaceful for me to go that route. I’m tired of constantly fighting it and spending so much time researching experimental surgeries and treatments to find a miracle cure. I just wanna focus on living.

[kieren-fucking-walker]

Hey folks,

My body is shit and because of my heart condition I've been given a machine to help me breathe, mostly at night but in the day too when I need it.

It's eating into my electricity (the NHS is great but they don't cover running costs.) I'm stretched thin financially as it is, so as grateful as I am that it's helping me breathe, I guess it's adding quite literally to my cost of living.

Anyway if you'd like to help me keep on top of electricity costs my PayPal is here and my Ko-Fi is here.

If you can't (or just don't want to) this isn't for you, but if you would like to do something and can't help out monetarily you could write to your local MP about the importance of the NHS because we all know it's struggling.

Thanks for reading, and now I'm partially a cyborg I'm hoping to be spared in the upcoming robot apocalypse.

[s3x-drvgs-and-bpd]

I’m on my cycle

The weather is changing

I ran out of my lithium

So yeah I’m tired and all I wanna do is sleep because I’m having horrible cramps and my bones hurt and my brain is not okay…

Forgive me for sleeping all day but right now it sounds a hell of a lot better than being awake

But no, I’m an “entitled brat”

[soupandspoonies]

So I just recently saw one of my doctors and it made me start thinking again about internal battles I have to have with myself over my health.

I've been looking for answers and solutions for my illnesses for upwards of 9 years now and throughout that I often find myself wishing they'd just diagnose me to get it over with.

Seeing a rheumatologist and hoping they just tell me it's rheumatoid arthritis or lupus so that I actually have an answer ends up making me feel pretty guilty - like I need to have something wrong with me. I know it's just me looking for answers, but I can't help but feel bad about it.

Does anybody else have this experience? Hoping you just have something wrong with you so that you finally have an answer, no matter how bad it is? How do you deal with it? I've been doing this for a long time and I still don't really know how to deal with it.

I hope people have been well,

Soup :)

[pixieverse-icedtea]

if you write me a letter, i will literally keep it for the rest of my life

[tears-that-heal]

yeah 😭

[theautismcorner]

Intro!

I have had an influx of new followers recently so I thought I would make a little intro post!

Hi, I am ghoul here on tumblr and ghOul_z3ro on ao3 (hoping to write more soon) and I use any pronouns/am agender and I am queer! I am chronically ill, disabled, and auDHD

I am in a boat load of fandoms but a few are Hannibal NBC, TMA, Ghost (the band), Good Omens, MCR, All For The Game, Arcane, Baldurs Gate 3, Marvel (especially X-Men), Interview with the Vampire, and Game of Thrones/House of the Dragon/A Song of Ice and Fire. I am also a huge DND and Warhammer nerd. I post a ton of shitposts for all of these :)

Please please please interact with me! Feel free to ask/message/send me:

playlists/music/recommendations

your writing/other peoples writing

art

things about your dnd characters/campaigns

literally anything about a shared interest

recommendations for any type of media (movie, tv, book, ao3)

Dni: homophobia, racism, transphobia, zionism, ableism, etc. I think you get the gist; just be a decent human being <333

[melodymorningdew]

@doctordisco12

[snowy-heartsx]

medical;

so check this out;

i have POTS, pseudo seizures, kidney problems, and liver problems. i even have gut issues, heart problems, hormone problems, and untreated autism. along with low vision and an eye condition called nystagmus. even on top of this. i have sensory issues and an eating disorder.

i had an endometriosis removed back in 2018. it is now 2024, i have been told it could be growing back. my lesions are all over my organs.

so don't come into my inbox saying shit when you have no idea what illnesses are beyond the human eye could see. disrespectfully. fuck you.