disabled-planet

[disabled-planet]

[disabled-planet]

When you, when you have two conditions that give you both pain and fatigue. And when you have flare ups on both conditions.

Ouchy ouch my pain disorder is causing me pain, how unexpected

[disabled-planet]

Me trying to figure out my level of support needs when this new condition is just so spontaneous that I do not have average days. I mean yes I kinda feel like medium level but gah, you don’t realize how fluid and unpredictable this shit is.

What level of support needs do I label myself if I have a condition that’s like this?!

[disabled-planet]

Hey doll, just saw your photosensitivity post. I’ve just started a new med that has that as a symptom. Are you ok if I DM you and compare notes?

Heya! I am not on any medications aside from an acid reducers, from which my knowledge says there isn’t a result of photosensitivity. Really this feels like an auto-immune thing. /nm /info

I would like to still chat/DM about this! /gen

[disabled-planet]

Okay.

I really, really miss the sun. Basking in it, wearing clothing that exposed my skin, and not needing to apply sunscreen.

Now I have to cover up, wear UV protective clothing, carry my umbrella around, and stay in the shadows. Now I realized UV light not just sunlight triggers my flares, and now I can’t be totally safe in some rooms.

What. Why. WHY!

[disabled-planet]

THIS! Good point!!

Being anti-self diagnosis = being classist and perhaps other things as well. (Such as sexism and racism).

There I said it.

You cannot change my mind.

[disabled-planet]

"Unfortunately, I'm a trans man"

Oh honey, no. Fortunately, you are. Because the world needs more people who aren't afraid to be their most authentic selves. Being a man is yours, and I will celebrate it with you.

[disabled-planet]

Fake claimers are a much bigger threat to disabled people than fakers ever will be.

[disabled-planet]

My body is a demonic, ancient temple that at times cracks and crumbles. It is the palace of Hell.

my body? a temple? yes & it’s very not up to code.

[disabled-planet]

Everyone say it with me.

Just because someone posts about their disability(s), it does not mean they are suddenly lying or faking it.

Posting about one's own disability(s) does not mean we suddenly can go to a therapist/doctor and be 'cured'. It means we are human, literally *anyone* can become disabled but still hold some cognitive function and should be allowed to advocate for themselves regardless of their situation.

We are not 'faking' anything. We are simply using the platforms we have to express ourselves and have a voice, one that the rest of the world often ignores in favor of infantilizing us for their benefit.

[disabled-planet]

Nah it counts. Also adding on that he is autistic as well!!

Why do I see this if Fry figured out he has an auto-immune disease (or more). I’m sorry but he screams that he does. He’s just a goober with fatigue and brain fog.

[disabled-planet]

And if you have low processing speeds and/or poor working memory, you are still intelligent.

Hey, if you’re not as mentally quick as you used to be because of your illness- that’s okay. If you’re can’t think as fast or handle as many tasks that’s okay. You aren’t stupid, you aren’t unintelligent, and you aren’t less worthy of love or respect. It’s okay that your brain won’t or can’t go back to how it used to be. It’s different now, but it’s okay.

[disabled-planet]

At times I wonder if I may need a caregiver since it’s difficult for me to track time and actually exist in stores and busy places that overstim the hell out of me. Like I need a friend when it comes to grocery shopping or I’ll be wandering and overstimulated, BLEGH. Let alone I may need a caregiver since whatever condition I now have (may be lupus) makes cleaning an absolute hassle with this fatigue and pain.

And I have no idea what to do about this.

[disabled-planet]

Agrees in fatigue and chronic pain. My fatigue can get to a point where I feel like I could pass out. My pain and fatigue can get to a point where I am bedridden. I have arm weakness, not a whole whole lot, but enough to make door pushing a pain.

Let alone whatever condition I have is unpredictable and occurs during hormonal changes (cries in having a uterus) so I intend to do dishes or make the bed when I feel generally okay but then suddenly, oopsie I can’t.

when i say that i can’t do something due to my disabilities, like the dishes or mop the floors, the thing i hate most is hearing other disabled people go “well i can’t do it either but i don’t have a choice so i do it anyways” because like, there are those of us who can’t do a thing under no circumstances. it doesn’t matter if i don’t have a choice or if im forced to do it, i still can’t.

my entire apartment looks like shit, it’s very dusty, there’s dirt all over the floors, i have no clean dishes & im tuning out of bowls/plates & cutlery. and i can’t do anything about it. like literally.

for some of us, “i can’t do it” very literally means I CANT DO IT.

[this is MAINLY about physical disability, but people who can ACTUALLY relate to this even if it’s not because of physical disability can reblog & share their thoughts etc.]

[disabled-planet]

I wish people wouldn’t laugh at my words that I have difficulty with, how I jumble up my words, and so forth.

Looking back, man I got laughed at so many times

[disabled-planet]

And a disability community, well partial, can be very unwelcoming and at times mean to those without diagnoses. I am honestly a little scared and worried being undiagnosed and advocate.

being disabled without having a diagnosis yet is so incredibly lonely. i’m unable to find community with people who understand what i’m going through and able bodied people don’t take me seriously when i explain what i’m dealing with. they expect you to be able to give them a name and i can’t yet. it’s so hard to get the proper accommodations and the right supports. it feels like purgatory.

[disabled-planet]

Why do I see this if Fry figured out he has an auto-immune disease (or more). I’m sorry but he screams that he does. He’s just a goober with fatigue and brain fog.