#i literally only make it thru my life

[uptownhags]

made it thru my first month at work so i get to be hybrid now! this is great-- i will have 2 days a week to do my PT and walk instead of wheeling. i am getting to use the creative part of my brain and skill set, which is also great! but the part i am laughing at the ceiling the most about is that i get to facilitate disability etiquette training for all three of my previous orgs!! pls laugh with me :))

[giantkillerjack]

Today my therapist introduced me to a concept surrounding disability that she called "hLep".

[plain-text version of this post can be found under the cut]

Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"

And my therapist pointed out that this is not "help", it's "hLep".

Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.

At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.

So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!

Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!

Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!

Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.

Plain-text version:

Today my therapist introduced me to a concept surrounding disability that she called "hLep".

Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"

And my therapist pointed out that this is not "help", it's "hLep".

Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.

At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.

So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!

P.S. Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!

Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!

Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.

[inkskinned]

the thing about art is that it was always supposed to be about us, about the human-ness of us, the impossible and beautiful reality that we (for centuries) have stood still, transfixed by music. that we can close our eyes and cry about the same book passage; the events of which aren't real and never happened. theatre in shakespeare's time was as real as it is now; we all laugh at the same cue (pursued by bear), separated hundreds of years apart.

three years ago my housemates were jamming outdoors, just messing around with their instruments, mostly just making noise. our neighbors - shy, cautious, a little sheepish - sat down and started playing. i don't really know how it happened; i was somehow in charge of dancing, barefoot and laughing - but i looked up, and our yard was full of people. kids stacked on the shoulders of parents. old couples holding hands. someone had brought sidewalk chalk; our front walk became a riot of color. someone ran in with a flute and played the most astounding solo i've ever heard in my life, upright and wiggling, skipping as she did so. she only paused because the violin player was kicking his heels up and she was laughing too hard to continue.

two weeks ago my friend and i met in the basement of her apartment complex so she could work out a piece of choreography. we have a language barrier - i'm not as good at ASL as i'd like to be (i'm still learning!) so we communicate mostly through the notes app and this strange secret language of dancers - we have the same movement vocabulary. the two of us cracking jokes at each other, giggling. there were kids in the basement too, who had been playing soccer until we took up the far corner of the room. one by one they made their slow way over like feral cats - they laid down, belly-flat against the floor, just watching. my friend and i were not in tutus - we were in slouchy shirts and leggings and socks. nothing fancy. but when i asked the kids would you like to dance too? they were immediately on their feet and spinning. i love when people dance with abandon, the wild and leggy fervor of childhood. i think it is gorgeous.

their adults showed up eventually, and a few of them said hey, let's not bother the nice ladies. but they weren't bothering us, they were just having fun - so. a few of the adults started dancing awkwardly along, and then most of the adults. someone brought down a better sound system. someone opened a watermelon and started handing out slices. it was 8 PM on a tuesday and nothing about that day was particularly special; we might as well party.

one time i hosted a free "paint along party" and about 20 adults worked quietly while i taught them how to paint nessie. one time i taught community dance classes and so many people showed up we had to move the whole thing outside. we used chairs and coatracks to balance. one time i showed up to a random band playing in a random location, and the whole thing got packed so quickly we had to open every door and window in the place.

i don't think i can tell you how much people want to be making art and engaging with art. they want to, desperately. so many people would be stunning artists, but they are lied to and told from a very young age that art only matters if it is planned, purposeful, beautiful. that if you have an idea, you need to be able to express it perfectly. this is not true. you don't get only 1 chance to communicate. you can spend a lifetime trying to display exactly 1 thing you can never quite language. you can just express the "!!??!!!"-ing-ness of being alive; that is something none of us really have a full grasp on creating. and even when we can't make what we want - god, it feels fucking good to try. and even just enjoying other artists - art inherently rewards the act of participating.

i wasn't raised wealthy. whenever i make a post about art, someone inevitably says something along the lines of well some of us aren't that lucky. i am not lucky; i am dedicated. i have a chronic condition, my hands are constantly in pain. i am not neurotypical, nor was i raised safe. i worked 5-7 jobs while some of these memories happened. i chose art because it mattered to me more than anything on this fucking planet - i would work 80 hours a week just so i could afford to write in 3 of them.

and i am still telling you - if you are called to make art, you are called to the part of you that is human. you do not have to be good at it. you do not have to have enormous amounts of privilege. you can just... give yourself permission. you can just say i'm going to make something now and then - go out and make it. raquel it won't be good though that is okay, i don't make good things every time either. besides. who decides what good even is?

you weren't called to make something because you wanted it to be good, you were called to make something because it is a basic instinct. you were taught to judge its worth and over-value perfection. you are doing something impossible. a god's ability: from nothing springs creation.

a few months ago i found a piece of sidewalk chalk and started drawing. within an hour i had somehow collected a small classroom of young children. their adults often brought their own chalk. i looked up and about fifteen families had joined me from around the block. we drew scrangly unicorns and messed up flowers and one girl asked me to draw charizard. i am not good at drawing. i basically drew an orb with wings. you would have thought i drew her the mona lisa. she dragged her mother over and pointed and said look! look what she drew for me and, in the moment, i admit i flinched (sorry, i don't -). but the mother just grinned at me. he's beautiful. and then she sat down and started drawing.

someone took a picture of it. it was in the local newspaper. the summary underneath said joyful and spontaneous artwork from local artists springs up in public gallery. in the picture, a little girl covered in chalk dust has her head thrown back, delighted. laughing.

[karamazovanon]

i think the recurring theme of dostoevsky's that will always destroy me the most is when despite how much a character wishes and yearns for it, they continuously refuse pure and unconditional love when it's offered because they don't think they're worthy of it (and then hate themselves even more for turning it down). it will ruin me EVERY TIME

[touchlikethesun]

okay so. don’t crucify me. but su she and jin guangyao do actually make some pretty compelling points.

[spaciebabie]

shoutout 2 this person in my class who i can tell wants 2 talk 2 me really bad but instead of doing that whenever she has the chance she'll talk 2 whoever else is around and ignore me entirely unless im mentioned by name

[thelastharbinger]

Tidbits of ATSV That I Enjoyed (Or Alternatively: Just Miles Being The Most Endearing Spidey Ever)

Miles patting The Spot's head after successfully webbing him (I don't see this as condescending, but rather him still engaging with the humanity of a villain like Spot) and ~very assertively~ telling/asking him not to escape.

"I'm like Robin Hood-if he gave to himself."

Miles' spidey senses going off when he arrives late to his dad's party because there's nothing more frightening than Brown parents when they're mad at you. Beware the chancla or correa!

O.k. So we all know there are different versions of the movie out there. You may already know that one of the slight differences is when Miles goes to save Inspector Singh. There's a version where you can hear Gwen's voice in the distant background yelling no! when she thinks Miles gets crushed under the rubble, and there's another where she's silent as she webs to him. Now, I have found ANOTHER version (online) where her shouting is even more at the forefront. She's practically screaming and sounds more desperate, (prolly because it's close to the same way her Peter Parker died so she's reliving trauma) and the fear in her voice is palpable. That one haunts me.

Jefferson trying to equate studying for his police exams to childbirth, which Rio quickly nips in the bud.

Ganke having a soccer poster of Son Heung Min, a famous Korean footballer who currently plays for the Premier League Tottenham Hotspur and is captain of the South Korean national team.

Miles having a Sashimi (his universe's version of Supreme, but I just like the idea that Miles loves eating sashimi. Like I know that kid has good taste in food) poster in his bedroom.

The fact that Miles kept in touch with Aunt May for long enough after the events of ITSV that he helps her move.

The Spot saying he was one of the more handsome scientists at Alchemax according to his colleagues.

Miles and Gwen having the same collectible toys, the only difference being that he keeps his in the box and she doesn't.

"Hey, don't try to wow me with big words, man," *in deep manly voice* "I do crosswords every day"- Miles after Spot points out Alchemax as "the crucible of our connection!"

Miles going, "This job is so dumb sometimes" after he tries to web Spot at the deli, but it goes through a hole and lands on his face.

"Nahhh, he seems more Dominican to me." Kinda want Miles to meet a native Dominican Spidey because that dynamic would highkey fuck hard *pun not intended*. They would repair relations between our two islands-PR&DR.

"Almost there Mami *smiley face* *cowboy* prayer hands*"

The college admissions coach at Visions Academy straight up saying, "That's your story! Now, just stick to the script..." Ma'am what???

"Calmate Mami, eso no es my fault."

"I've hit a lot of different villains with a lot of different food...I'm just trying to lighten the mood."

Miles in his angsty teen era and smart-mouthing everyone around him. Love that for him.

"He almost killed his mom as a baby, I mean, look at those shoulders." No but for real tho. Those shoulders are as wide as a truck. Kim Seokjin who??? (if you understood that reference, ily).

Miles writing a love letter to his dad in 2 cakes.

Gwen at the water tower chowing and saying how feelings make her hungry after her and Miles talked about how they can't be together cause it would end in tragedy. Like Gwen, come again?!

Also, Miles' and Gwen's talk at the Williamsburg Bank Building being lowkey the catalyst for the 2nd/3rd acts of the film. Without them both kind of silently admitting their feelings for each other, Miles probably wouldn't have chased after her the way he did. Pretty sure you know the rest.

"I bet she doesn't even speak Spanish," and Jeff going "Que barbaridad" in his very broken Spanish. Queue Rio's bombastic side eye.

Both Gwen and Miles referring to Spot as a Villain Of The Week, even though neither of them have spoken about Spot to each other.

"I was bitten by a-wouldnt you like to know? Know what I mean?" SIR. Chill. This movie is for children.

The Spot inverting himself, going from a white mass with black spots to a gaping black hole with smaller white spirals. It's giving Junji Ito.

The irony of Pavitr exclaiming, "Well that was another easy adventure for Spider-Man!" right before an incoming canon event. HIS. He was about to experience his first big loss, and his happy-go-lucky nature would've been challenged.

Miguel saying conyo! when all the Spideys start pointing at each other.

"!Cállate!" "Nosy!" Sidebar: we don't talk about Gwen's banter with bad guys enough. She's so funny!

A lot of the Peters saying hi to Gwen as she passes HQ because she is canonically the one lost love--the love interest they all would've ended up with had she not died, so they all have an affection for her.

Web-Slinger going "Giddy up!" Cause he's swinging up.

Miles offering his fresh new takes on how to deal with the Spot upon meeting Miguel, saying "He just wants to be taken seriously. Like we all do." MILES YOU BEAUTIFUL, COMPASSIONATE GOLDEN SUNFLOWER BOY I LOVE YOUUUUU.

Hobie referring to Peter B. as Humbling Reality Spider-Man, which considering how steeped in tragedy the Spidey lore is, is really saying something.

Miguel's nonono no puedo más no puedo más. His misery is very funny and delightful to me. Little bitch ass.

"You know you're the only Spider-Man who isn't funny." Yes! More Miguel slander in the next one, please! Little bitch ass.

"Snitch!"

Miles shouting out Peter's name for help whilst Miguel pins and lays into him the fact that he's an anomaly. This after he momentarily glitches back to his ITSV store-bought suit. Mimicking the way-in also the first movie-Miles shouting out Peter's name for his own rescue as Doc Ock attacks him at the research facility. Because even though he feels hurt by Peter at this point, that's still his dad mentor and he still instinctively looks to him for protection. Rip my heart out why don't you!

Gwen sneaking back into her and her dad's place just to get that printed polaroid of her and Miles, a pic she already has on her phone.

Earth-42 Miles wearing Nike while our Miles wears Jordans.

[her-canine-teeth]

bad astrology by flower face

[selfinflictedgunshotwound]

i'm kind of amazed how most of the stardew marriage candidates just want you to be their manic pixie dream whatever by agreeing with everything they like and plying them with compliments or praise or whatever (which is fine but a bit. Much) but for shane his romance is just you being there for him while he figures his own shit out... dunno why i never wanted to romance him before he's so good

[slashersweethearts]

honestly gotta say one of my favorite things abt yvieliv is the way the way the insanely overt flirting/tension between the two of them (the former being like entirely yvie @ liv) goes practically entirely unnoticed by the whole rest of the group bc like. it does not register as anything noteworthy as far as yvie is concerned. like ofc she's calling liv babygirl and making other much fruitier comments. she talks to all of her friends in a way that borderline if not outright would constitute harassment 😭 so that could literally mean nothing!

[hotsugarbyglassanimals]

.

im going to be stewing about this if I dont get it out of my system but on that post that was about adhd and ended with "here's meth" someone on here called adhd "unserious" and that they cant take it seriously cause there's worse disorders and its like. yeah there's worse disorders. my adhd almost made me kill myself this year though soooo

[inkskinned]

one of the things about having an unstable parent is that it can so easily ruin your future. you want to get out, but getting out takes having agency. it takes the resume and the grades and the stellar community service history.

but you have to choose your battles. you know if you sign up for an after-school activity, it'll be okay for a while, so long as the activity is parent-approved and god-fearing. over time, like all things, it will become an argument (i can't keep carting your ass to these things) or a weapon (talk to me like that again, see if you get to go to practice). sometimes, if you love the thing, it's worth it. but you also know better than to love something: that's how they get you. if you ever actually want something, it will always be the center of their attention. they will never stop threatening you with it. telling you of course i'm a good parent, i came to all of those stupid events.

you learn to balance yourself perfectly. you can either have a social life or you can have hobbies. both of these things will be under constant scrutiny. you spend too much time with her, you should be at home with family is equally paired with you're acting like this because you're addicted to what's on that goddamn screen. you cannot ever actually win, so everything falls within a barter system that you calculate before entering: do you want to learn how to drive? if so, you'll need to give up asking for a new laptop, even though yours died. maybe you can work on a computer at the library. of course, that would mean you'd be allowed to go to the library, which would mean something else has to bleed. nothing ever actually comes free.

and that bitter, horrible irony: you could be literally following their orders and it still isn't pretty. they tell you to get a job; they hate that your job keeps you late and gives you access to actual money. they tell you to do better in school; they say no child of mine needs a tutor. they want you to stop being so morose, don't you know there are people who are really suffering - but they revile the idea you might actually need therapy.

you didn't survive that fall the way other people would. you've seen other people scramble and get their way out, however they could. maybe you were made too-soft: the answer didn't come to you easily. it wasn't quick. it was brutal and nasty. some people even asked you why didn't you just work hard and escape during school? and you felt your head spinning. why didn't you? (they control your financial aid. they control your loan status. they love having that kind of thing). maybe in another life you got diagnosed sooner and got the meds you needed to actually focus and got attention from the right teachers who helped you clear hurdles to get up out of here - but for now? here?

the effort of trying. the effort of not-dying. that kind of effort was absolutely agonizing.

[girlthativealwaysbeen]

it would feel so nice to work towards a career that has meaningful impact and makes millions of people happy

[kashmirichaiwithmehr]

.

[mxddyhero]

who are your tumblr besties? ✨

Oh gosh anon... this is a good question.

@omgitsaddyc is an og bestie 💖 she was my first jubaliker mutual I talked to and I still very much adore and am in awe of them 😳👉👈 also she wrote the juban hannah montana au which is so fucking good you should go read it.

@7-oh-ta1 THE BELOVED TUMBLR BLORBO... TO ME 🫶💖 we played outlast together a while back and are watching a playthrough of botw but also she is the most correct person ever about taichi nanao and tenma sumeragi. She is very wonderful and kind and you should all give her a lotta love I think.

@gompereatsall is a tumblr bestie fr. My favourite tsumugi liker 🫶💙

@primeministerofantarctica really helped me establish batmankai au as an idea and I love their writing. It's so fucking good I eat it for breakfast every day.

@precurea3, @anzushi I go waaaay back, we've been friends about 3 years now... woag. All part of picsgang and bonded over not just a3!, but sonic. Very good sign. Adore them both a lot and they're super friendly. Also, the ones responsible for the dc brainrot 😒 /lh

@lavenderlumi is another fellow jubaliker that I adore!! We play genshin together and scream about juza a lot.

@freedomsnotes IS SWAG AS HELL,, she makes awesome edits and also reminds me when it's fat fuck friday. They're a real one for that.

@mrshamada-dorian has been an absolute doll for sending asks lately and I very much appreciate her!!! ^^/

UHM. I don't really talk to people from here that often thru dms, even barely with some of the people who are on this list... but

@/emilycollins00, @/winterswhite, @/gayforjuza, @/unculturedswine69, @/everwisp, @/azuma-y, @/bambuwu-writes, @/dave-the-timelord, @/beananium, @/lc-is-bored, @/skateboarding-poet, @/natsu-tte-noodle, @/ohagialpaca, @/lcst-at-5ea, @/tappdancing, @/nilesmoon, @/blooming-a3, @/nais-doodles are all incredible a3!(adjacent) accounts I love and stare at from a distance... I'm absolutely positive I'm forgetting some too... I'm sorry if I forgor... ESPECIALLY ARTISTS I KNOW IM FORGETTING THE 6 PEOPLE WHO MAKE AMAZING ART FOR US SOBS...

[pepprs]

update i have to apply for my own job for the SECOND time in two years by wednesday and im taking my learners permit test on friday which means i have to finish absorbing the drivers manual by then. the way i am LONGING to walk into traffic.