#Multiple sclerosis

[take-a-dip-in-the-deadpool]

THIS!!

THIS IS AN AMAZING WAY TO THINK OF CHRONIC PAIN

[ayeforscotland]

Holy shit.

Researchers at the University of Chicago have been able to create an ‘inverse vaccine’ that can remove the immune systems memory of specific molecules.

Reading that, sounds like a horrendous bio weapon in the making. But the plan is for it to be used to treat autoimmune diseases like multiple sclerosis, type one diabetes and rheumatoid arthritis.

This was already proven to be able to prevent autoimmunity but the new work shows it can be used to treat ongoing autoimmune issues.

Source.

[smoov-criminal]

happy disability pride month to those with conditions no one talks about, online or in general:

multiple sclerosis (me lol)

marfans

cerebral palsy

bells palsy

hidradenitis suppurativa

cauda equina syndrome

mixed connective tissue disorder

hyperadrenergic pots

non hypermobile eds types

stickler syndrome

mitochondrial disease

cystic fibrosis

sickle cell disease

myasthenia gravis

post-cholecystectomy syndrome

SWAN (syndromes without a name)

...just to name a few. i see you and you deserve awareness and understanding.

this list is non exhaustive, rb with other conditions you want to see represented!!

[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]

[gayaest]

Lishai 🌈🌸♿️🩷🪴 [ID in alt-text]

He has PPMS and uses an intermittent catheter! There is way too much stigma (from both disabled and non-disabled people) about incontinence, catheters, and bladder issues. It’s not “gross”. The only “gross” thing is being judgmental of disabled people for something they cannot control and keeps them alive.

[ellevandersneed]

Hello, Hala Dawoud has contacted me concerning her GoFundMe. She is a mother of 3 living in Gaza who suffers from Multiple Sclerosis and cannot access the medication necessary to prevent her conditioning worsening and leaving her with permanent disability. MS attacks the nervous system, causing fatigue, loss of balance, difficulty with cognitive functioning, tremors, etc. and the body steadily deteriorates if the condition is not properly treated. Hala She needs to get to Egypt where she will be able to access the healthcare necessary to continue caring for her 3 children (Osama age 17, Lana age 13, Mohammed age 9). Please share and donate if you can. Sharing costs nothing and takes only a moment. This is a real, vetted fundraiser (#307).

🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉

Please consider donating as she has only raised €1,135/€17,000 at the time of this post being made. There are living, breathing human beings on the other end of these GoFundMe's who are suffering and can be helped with just a few clicks and dollars by people like you. Have a heart, share and donate.

🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉🍉

[rebirthgarments]

TW: Chemical w-rfare, Ab-rtion

Urgent Ask to evacuate Nara, a 🍉 disabled woman with MS who also has pancreatic cancer due to chemical w-rfare.

Support by financially contributing to her @FedUp4Palestine vetted funhnd-raizer (that I personally vetted): givebutter.com/NaraMedicalAid

+ resharing/ reposting this post!

I, Sky Cubacub- a Fed up 4 Palestine team member, have been in direct contact with Nara to get to know her and her story more over the past few days. We have become fast friends due to so many overlapping symptoms of our disabilities. Nara’s story caught my eye because I have post-viral ME/CFS which many times is a precursor to MS. I really want my disability community to show up for her to get this campaign funded that is so close to my heart so that she can continue medical treatment.

We have chatted extensively! During our chats, I found out from Nara that she had not previously had health issues until she was exposed in the white phosphorus attack in 2008. The long lasting damage and effects of phosphorus continue to compound and become more and more disabling to this day, even after 16 years.

Here is her story in her own words (edited for clarity):

“Hi I'm Nara,

I'm a cancer and multiple sclerosis patient. I need treatment, examinations, and follow-up on a regular basis, but the hospitals in which I used to follow up were bombed and the other one was turned into military barracks. All I need now is to leave Gaza for treatment, preserve my life, and live with my family in peace.

We're a family of 4, including my 12 and 7 year old children.

I had been diagnosed with a tumor in the pancreas as a result of inhaling phosphorus in a previous war. A couple years after being exposed to phosphorus, I became pregnant, and the fetus was pressing on the tumor, which drew the doctor’s attention to the cancer. My fetus was emergency aborted, and the spleen, 80% of the pancreas, and part of the small intestine were removed. I complained every now and then of a lot of pain as a result of the removal of part of the pancreas. I was having follow up care in the Turkish Friendship Hospital for hematology and tumors. But since the beginning of October, I have not been able to follow up because the hospital has turned into a military barracks.

The remaining part is talking about multiple sclerosis:

In 2018, I was diagnosed with multiple sclerosis. I had many complications, such as inflammation of the seventh nerve in the eye, the inability to walk with balance, movement with difficulty, and many symptoms. I was then required to take 12 injections every month and many medications and vitamins. I was following up at the Nasser Medical Complex in Khan Yunis, but unfortunately the hospital was out of service due to the war. So for a long time I have not received any injections. MS is truly difficult and it controls my life completely, and the attacks occur in many and varied ways.”

A note about her breathing apparatus:

Because people in displacement have to wait in long queues and pay to use the bathroom, Nara had started to restrict her water intake because of a UTI she never has been able to heal from. This has created a problem with raised levels of potassium, so doctors have placed her on oxygen for fear of the potassium affecting her heart.

Goals

she needs at least $15,000 to evacuate

2 adults at $5,000 each

2 children at $2,500 each

this price is subject to increase due to the cost of registration for evacuation continuing to go up

The other money will go to the cost of treatment and living costs.

Nara chooses to stay anonymous because she has had to mask her disabilities so much that only her family knows about her MS and Cancer, so we have not linked her instagram, but we are in direct contact with her and can verify that she is who she says she is! Because of this, she cannot promote her own fundraiser, so it is our job to collectively do it for her!

[Image Description: a digital illustration by @k8deciccio of Nara, a Pal-eh-stienian woman wearing a black hijab/outfit with purple highlights. She has a breathing apparatus that is bulbous that goes in her nose. Text Reads: Help Narawith Cancer and MS Treatment, She Must Evacuate with her family of 4. $30k goal givebutter.com/NaraMedicalAid . There is a QR code in the bottom right corner that goes to her support link. The @FedUp4Palestine logo is in the top left corner.]

[stealthwitch]

Feeling extra disabled, gonna start saying that abled people doing normal amount of stuff is them “having the zoomies”

[spookysalem13]

I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.

This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.

I don't get to live my life, I'm surviving not thriving.

[mindblowingscience]

Scientists have identified a natural compound that halts the process involved in the progression of certain forms of cancer and demyelinating conditions—those that damage the sheath, known as myelin, that surrounds neurons—such as multiple sclerosis. A study published in the Journal of Biological Chemistry found a plant-derived flavonoid—a type of chemical compound—called sulfuretin blocked the activity of an enzyme involved in MS and cancer.

Continue Reading.

[mxmorbidmidnight]

I sort of hate how people with disabilities are always expected to be an “inspiration” and in good humour about their disability. We must conform to this idea, hide the worst of our symptoms to make others more comfortable. They are disgusted by our rage. Shout out to disabled people who don’t want to be an inspiration, who are pissed off and sad.

[melodymorningdew]

I cannot fight for my health and fight the world at the same f**king time.

[spoonie-support]

To everyone who is homebound or bed bound this holiday season...

you are not forgotten. we all are invthis together.

[evilwitch]

Chart on myelin damage, "example of cables damaged by rodents, insects, and pests".

[gayaest]

Bisaam 🫧🍧 #cutiepatootie

29 years old • he/him • gay man

Multiple Sclerosis (RRMS) • Malaysian

[sparkylurkdragon]

The other day I was at the retail job, and a little girl was Very Curious about my cane! She asked what it was, and I explained to her that it was to help me walk because I got sick. When her mom noticed her touching my cane, she said, quite gently but firmly, "No no. Don't touch [their] cane. Remember, it's like touching [their] actual body."

I did not actually mind it much because Little Kids Being Curious, but it was very good parenting, I thought, and I thanked the mother.

[rebirthgarments]

Mothers day is just a week away, please support and help evacuate disabled mom Nara and her family!

Send support to givebutter.com/NaraMedicalAid

They need $17,500 to evacuate their family and the rest will go towards medical treatments for her Pancreatic cancer and MS which were both brought on by a white phosphorus exposure in 2008.

Please support this verified give butter that I verified myself and please share with your networks! Sending direct messages to people, texting and calling with specific asks for support work the best, so please take a little time out of your day to share mindfully!

Nara cannot share her own campaign because only her immediate family knows of her disabilities and cancer, so it is our responsibility to get her funded!

[Image Description: a digital illustration by @k8deciccio of Nara, a Pal-eh-stienian woman wearing a black hijab/outfit with purple highlights. She has a breathing apparatus that is bulbous that goes in her nose. Text Reads: Help Narawith Cancer and MS Treatment, She Must Evacuate with her family of 4. $30k goal givebutter.com/NaraMedicalAid . There is a QR code in the bottom right corner that goes to her support link.]