#Increase fatigue
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lovenliterature · 23 days ago
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Health is a privilege
They speak of body and mind as two separate entities As if they are not inextricably intertwined One keeping me alive, the other dragging us down
Having a functional body is a privilege As is having a working brain Being reminded of what I have lost
Is anything but
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geee-three · 3 months ago
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(searches up symptoms of chronic fatigue) hm. oh well. (continues to push through until i pass out)
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tumble-tv · 9 months ago
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Had to leave school early again because the pain was making me nauseous, and I couldn't focus, and I was struggling to stand for more than like 30 seconds. I hate this. I missed a cool assembly because of this. I missed my favorite class because of this. I'm so tired.
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martyrbat · 10 months ago
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alexa play gary come home :((
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playingplayer2 · 6 months ago
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X/Twitter link
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katsy-kitty · 9 months ago
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I'm going to vacuum my apartment, which means I'll be out for the next few days.
Keep me in your thoughts.
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Annoyed bc i'm just so so tired and can barely keep from falling asleep much less do anything but lie in bed.... Hmm i wonder.... *Checks blood pressure* *96/51* ... Yep that'd fucking do it :/
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mylittleredgirl · 1 year ago
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sorry i haven’t been around much! if i lose focus my body will melt off my bones.
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boxheadpaint · 1 year ago
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[experiences symptom] huh maybe this is abnormal. lets look it up [its pots again]
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always-thyme · 9 days ago
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shocking how much more energy i have at 8 in the morning if i just don't go to sleep the night before
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lovenliterature · 15 days ago
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The storm
The best way to describe it is as a storm The pain is like a lightning bolt  Shooting through my eye My temple My jaw The clouds though, they’re the real problem Nebulous and untouchable The clouds describe my vision, my brain Fuzzy and grey and not something you can ease
Painkillers may not work all the time, but there’s at least the chance the lightning will fade It lights up the sky, blinding, it’s silhouette bright in my vision But even when the pain fades, the clouds are still there, waiting, darkening the day Hours after the final lightning strike  The clouds still remain
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boimgfrog · 2 months ago
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Went to the doctor to follow up on some concerns and to go over test results and after i explain the problems im having for the third time that month my doctor sits down smugly and says, "let me guess, you're thinking you have POTS or something?" Dog i don't know what that even is PLEASE just give me a referral to a specialist like I asked for
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naomiknight-17 · 4 months ago
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My fatigue continues to be a problem
Yeah, I went to cardiac rehab yesterday and did resistance training and 20+ minutes of cardio! But then when I got home I passed out and had a 2 hour nap, then last night I slept like 11 hours and woke up still tired.
All day I've been tired and sluggish. Managed to take enough Advil and drink enough coffee to find the strength to go for a walk, then spent most of the rest of the evening collapsed on the couch
I'm pushing myself to do all the things I'm supposed to be doing to have more energy and lose more weight yet somehow I am still tired all the damn time
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kieraelieson · 5 months ago
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I just finished recording Laoft!!!
It is not all edited, and it’ll take more work and a bit of time before it’s all posted, but it’s all recorded now!!
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welcometoteyvat · 11 months ago
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whagghh can we see that hu tao xingqiu snippet wip?
Xingqiu slumps onto his desk, defeated. The deadline for a special volume of A Legend of Sword is scarcely three nights away, and yet he still hasn’t progressed past the first fight sequence. Every word he pens is inadequate, and the brush in his hand is crooked and sluggish, and another colorless midnight has almost passed, and still, he has nothing to show for it. His valiant unnamed hero claims a narrow victory against the Tai-Shogun’s cyborg samurai, and then—and then…
When Xingqiu’s eyelids flutter open again, the lantern by his window has dimmed considerably… He cannot have dozed off for that long, can he?
At least his father and brother are asleep. It would be best if they never find out about his sleeping schedule.
The shadow of his hand is so sharp against his lantern-lit draft. Xingqiu traces the ridges of his knuckles, a flickering black silhouette on the page beneath it. From this angle, it almost looks like a dragon’s mouth, one of the Natlan kinds… maybe he’ll be able to see one in person someday…
His eyes shut slowly.
———
ermmmmm embarrassing... this was supposed to be published with the snippet (so i could've just given you the full snippet since it isn't long anyways) but it's ballooned rather fast and I don't want to wait. also yeah this has no hu tao mentioned because unfortunately she comes in right after this lmao. also the hu tao xingqiu dialogue inspiration that struck me at 2 am yesterday left so now i have to reinvent the wheel (<- bad at banter). anyways i hope you enjoy <3 this idea was kinda random haha, i just wanted to write something from xingqiu's perspective and show how they bounce off each other really well LOL nothing much to it. I was going to change it into xingqiu + venti writers block (venti is one of the muses fr) but i haven't watched irodori thoroughly and decided to keep hu tao. anyways yeah hopefully i finish this thing soon lol
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cextra-loz · 2 years ago
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Today I was able to stand for a new limit of 50 minutes when my physical symptoms are at their most minimal in a controlled environment. So we know 50 is the max now we're trying to reach 1 hour. I feel like I could've reached an hour with how I was feeling but the muscle endurance in my legs wouldn't have let me. I'm reaching a weird stage in my progress where its been so long since my body has had to support my weight for that long the blood pooling in my soles irritates and hurts like hell the days afterwards so now i'm rubbing the my feet like i've worked a hard day to prevent the inflammation from impeding my progress. I feel tho if I can reach that 1 hour limit I can reach longer times with practice. Its been years since i've stood for so long i'm really excited to keep practicing and hopefully keep improving. Last year around this time I was barely reaching 35 maybe 40 if I really really pushed- during my least symptomatic hours. Those extra 10 minutes might not mean much but since the beginning of my illness I never imagined i'd be able to make it to 30 let alone 50. I felt pretty good this session too which is the most important part, I feel like its the lack of muscular stamina that held me back rather than cardiac endurance. Anyway update is over, if I reach that 1 hour time it'll be a happy day I cannot tell how long it'll take me to reach that time but with some more practice I think a few weeks or months at least i'd imagine maybe even sooner. I'm so happy lets go! Dreams do come true at least 4 me ehehe!
#pots#dysautonomia#progress#the best thing about longer uptime means more endurance - the longer i'm able to stay up the more my legs should begin to adapt#if I can push the amount of time when i'm not as symptomatic maybe it'll help increase my endurance when i'm most symptomatic#when i'm at my most symptomatic I cannot stand for the life of me more than a minute#i will collapse#but increasing my minimal symptomatic time to higher numbers means I feel less physical pain and exhaustion when I am at my most#symptomatic which is honestly all i want#if I can withstand the exhaustion of when i'm most physically ill for more than a minute or two at a time then I can endure it#when i'm compeltely still and laying down which is rlly hard and it hurts like hell and i'm exhausted when it happens#theres nothing in this world like trying to catch your breath while your body is writhing in pain and youre trying not to pass out#i'm just glad on a good day and lots of monitoring i can manage a few hours without any of those#when it was happening once an hour for like hours at a time for months i was in literal hell#the scariest bit is i'm forgetting how it felt to be like normal-ish#like there were days where the most I worried about was like regular stuff like homework#now i'm worried about things like making sure i have a glass of water with me or else i'll die#which sounds absurd but its now my reality its strange how that just becomes real#ive been typing for so long but i don't feel fatigued it really shows how far ive gotten these last few years#last time i wrote this much on a tumblr text post about my illness i was trying to catch my breath the entire time#im kinda happy#ehehe!
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