#Increase fatigue
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Health is a privilege
They speak of body and mind as two separate entities As if they are not inextricably intertwined One keeping me alive, the other dragging us down
Having a functional body is a privilege As is having a working brain Being reminded of what I have lost
Is anything but
#my writing#poetry#personal#creative writing#my poetry#writing#personal writing#chronically ill#chronic illness#chronic pain#chronic fatigue#chronic migraine#migraine#notebook#collection: responses to increased risk#responses to increased risk: page 19#responses to increased risk: sales tax#spilled emotions#spilled feelings#spilled writing#spilled poetry#spilled words#spilled thoughts#spilled ink#responses to shannon lee barry#inspired by shannon lee barry
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(searches up symptoms of chronic fatigue) hm. oh well. (continues to push through until i pass out)
#symptoms include major fatigue which has lasted over six months with no improvement (CHECK)#worsening of symptoms with increases in activity (CHECK)#lightheadedness or disassociation (YEAH.YEAH.)#poor short-term memory and concentration (MASSIVE CHECK)#feeling unrested no matter how much sleep one has had (CHECK)#DAMN#im just gonna. keep going. bleh#complaining tag#<- i said i would get a lot of use out of it
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Had to leave school early again because the pain was making me nauseous, and I couldn't focus, and I was struggling to stand for more than like 30 seconds. I hate this. I missed a cool assembly because of this. I missed my favorite class because of this. I'm so tired.
#and no doctors believe me#or they just blame it on my arthritis#which has been in remission for OVER 4 YEARS#like jesus fuck its not that hard to evaluate me and figure it out#my rheumatologist wont even put fibromyalgia on my chart but keeps increased BMI on there#chronic illness#chronic disability#chronicpain#chronic disease#chronically ill#disabled#other chronic illness bs#disablity#fibromyalgia#undiagnosed chronic illness#chronic disorder#chronic fatigue#chronic pain#undiagnosed chronic pain#joint pain#physical disability#invisible disability#disability#physically disabled#cpunk#cripple life#cripple problems#crip punk#cripple punk#angry cripple
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alexa play gary come home :((
#pens lb#i miss him....#i know playing a goalie while hes hot is a thing. i know that. but whats the long-term plan here? you're going to have#ned still increasing his chances of injuries and fatigue AND a goalie who hasnt played in weeks#its unfair to ned and its setting jarry up to be a scrapgoat in important games#like im not a big fan of the bruins but theyve been doing the right thing in actually alternating their goalies every other game#so the other gets to rest while staying sharp and they're both well experienced.#jarry has 6!!!! shutouts!!!! and thats while being the goalie for the fucking pittsburgh penguins!#you KNOW he can play. you know hes good. why are you purposely setting him up to fail.#and ned has been wonderful! i was so nervous he was going to be traded after not being played for a good bit. i love my eyebrows boy and am#so happy and proud he's been having these opportunities to show how good and valuable he is to this team#but overworking him to such an extent is (once again) setting him up to fail just as much as its setting jarry up to be that scrapegoat#mike sullivan i am shaking you by the shoulders demanding to know what the fuck has been up with these lineups lately
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X/Twitter link
#covid isn't over#covid is airborne#covid conscious#ongoing pandemic#continued pandemic#global pandemic#wear a mask#wear a respirator#long covid#chronic illness#covid prematurely ages T cells#covid is immunocompromising#covid can cause long-term chronic heart conditions#covid can cause long-term chronic lung conditions#covid can cause chronic fatigue#covid increases the chances of heart failure and stroke#covid can decrease fertility#covid can cause miscarriages as well as pregnancy and birth complications#covid CAN AND WILL FUCK YOU UP#covid is not the flu#covid is not mild#wear a fucking mask#clean the air#clean air movement#covid is still killing people#covid 19#sars cov 2#covid#covid continues to mutate#DO NOT be vaxxed and relaxed - be vaxxed and masked
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I'm going to vacuum my apartment, which means I'll be out for the next few days.
Keep me in your thoughts.
#chronic illness#chronic pain#chronic fatigue#fibromyalgia#fibropain#fibro problems#chronically ill#personal#txt#oh I fully anticipate the increased PAIN and FATIGUE but I still have to do it#maybe one day I'll just hire someone to do it for me#but I'm paranoid about someone being in my home and about the person not doing it correctly#because I'm a control freak when it comes to my things#I HATE when someone touches or moves my things#I don't even know why#it's not rational but it is what it is#(I'm fully aware that that's a 'me' problem btw!)#thankfully I live alone#but that also means I have to do all the cleaning and housekeeping by myself#also I'd be worried about the cost#I wouldn't want to underpay and exploit someone but that might mean I couldn't afford it#idk what the cost might be#wow that's a lot of yapping to avoid starting the vacuuming proces#but I'm practicing self love now so IT'S OKAY#I can talk#it's tumblr ffs
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Annoyed bc i'm just so so tired and can barely keep from falling asleep much less do anything but lie in bed.... Hmm i wonder.... *Checks blood pressure* *96/51* ... Yep that'd fucking do it :/
#and anything online and from dcotors is always “how to lower blood pressure” “what foods to lower blood pressure” “high blood pressure?”#and there's just nothing on how to raise blood pressure#“drink more fluids” yeah#i already am what do you think i'm doing??#increase salt? drink electrolytes?#it's just not doing anything#and low blood pressure is making me so fatigued i can barely sit up#and even when i do#I can't hold up my body#disability#chronic illness#disabled#chronically ill#low blood pressure#fatigue#rant#vent#how is this my life??#why is this my life??#cripple punk#tumblr
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sorry i haven’t been around much! if i lose focus my body will melt off my bones.
#you ever feel so fatigued it’s like your skeleton can’t hold up your skin#whatever bonkers combination of chronic fatigue and bipolar depression and seroquel is really reaching new lows#doctors gave me the option of upping my seroquel but is increased sedation really the answer#like how much flatter can i get#the symptoms
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[experiences symptom] huh maybe this is abnormal. lets look it up [its pots again]
#ok. is hypoglycemia without diabetes#waking up from nap with heart palpitations and red hot face#constant constant constant fatigue#increased heart rate without increased blood pressure#is All of this associated with PoTS#and if so what rhe fuck do i do about it because it is making me so tired all the time#basically none of my doctors have taken me seriously when i mention pots
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shocking how much more energy i have at 8 in the morning if i just don't go to sleep the night before
#my typical day is a drag race#i get exponentially increasing energy the longer i'm awake#if i want energy i best find a way to simply stay awake as long as i can#where is doctor house#he would know what the hell is wrong with me#it reminds me of the phases i have where eating makes me incredibly tired#house if you're reading this i tested my room for toxins but it was inconclusive#if i were alanis morrisette i'd have something inaccurate to say about the whole thing#chronic illness#chronic fatigue#cfs/me#me cfs#house md
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The storm
The best way to describe it is as a storm The pain is like a lightning bolt Shooting through my eye My temple My jaw The clouds though, they’re the real problem Nebulous and untouchable The clouds describe my vision, my brain Fuzzy and grey and not something you can ease
Painkillers may not work all the time, but there’s at least the chance the lightning will fade It lights up the sky, blinding, it’s silhouette bright in my vision But even when the pain fades, the clouds are still there, waiting, darkening the day Hours after the final lightning strike The clouds still remain
#my writing#poetry#personal#creative writing#my poetry#writing#personal writing#chronically ill#chronic illness#chronic pain#chronic fatigue#chronic migraine#migraine#notebook#collection: responses to increased risk#responses to increased risk: page 49-50#responses to increased risk: the weather#spilled emotions#spilled feelings#spilled writing#spilled poetry#spilled words#spilled thoughts#spilled ink#responses to shannon lee barry#inspired by shannon lee barry
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Went to the doctor to follow up on some concerns and to go over test results and after i explain the problems im having for the third time that month my doctor sits down smugly and says, "let me guess, you're thinking you have POTS or something?" Dog i don't know what that even is PLEASE just give me a referral to a specialist like I asked for
#jay says a thing#shes so unwilling to take me seriously all of a sudden and its pissing me off#she also was like 'just remember we do gain weight as we get older..ur not going to be the same weight you were as a teen ^-^'#MA'AM IVE GAINED OVER 40 POUNDS IN LESS THAN A YEAR IN ADDITION TO INCREASED HEART PALPITATIONS AND CHRONIC PAIN AND FATIGUE#DESPITE ME EATING BETTER AND GETTING MORE EXERCISE THAN I HAVE IN YEARS#like i truly do believe this is something to be taken seriously and not hand waved away bcos literally everyone in my life is so worried#AND paired with the fact that I've had weight related health issues in the past that also went unsolved because i was rapidly LOSING weight#and my doctors were like 'this is a good thing ur getting healthier ^-^' shut UP#like i am on the ground rn please ma'am#ok to rb
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My fatigue continues to be a problem
Yeah, I went to cardiac rehab yesterday and did resistance training and 20+ minutes of cardio! But then when I got home I passed out and had a 2 hour nap, then last night I slept like 11 hours and woke up still tired.
All day I've been tired and sluggish. Managed to take enough Advil and drink enough coffee to find the strength to go for a walk, then spent most of the rest of the evening collapsed on the couch
I'm pushing myself to do all the things I'm supposed to be doing to have more energy and lose more weight yet somehow I am still tired all the damn time
#i ask my doc if i should increase my b12 supplements. no she says without even testing my b12 levels#eat more almonds and other nuts she says. they'll give you energy#i'm dying doc i don't think almonds are gonna cut it#i think maybe there is a bigger problem#seeing the doc next week so maybe i will bring this up. again.#fatigue#mod post
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I just finished recording Laoft!!!
It is not all edited, and it’ll take more work and a bit of time before it’s all posted, but it’s all recorded now!!
#Kiera out loud#laoft#I recorded like four chapters today#turns out some sore throat drops Work for podficcing voice fatigue!#my amount I can do in a day has increased~
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whagghh can we see that hu tao xingqiu snippet wip?
Xingqiu slumps onto his desk, defeated. The deadline for a special volume of A Legend of Sword is scarcely three nights away, and yet he still hasn’t progressed past the first fight sequence. Every word he pens is inadequate, and the brush in his hand is crooked and sluggish, and another colorless midnight has almost passed, and still, he has nothing to show for it. His valiant unnamed hero claims a narrow victory against the Tai-Shogun’s cyborg samurai, and then—and then…
When Xingqiu’s eyelids flutter open again, the lantern by his window has dimmed considerably… He cannot have dozed off for that long, can he?
At least his father and brother are asleep. It would be best if they never find out about his sleeping schedule.
The shadow of his hand is so sharp against his lantern-lit draft. Xingqiu traces the ridges of his knuckles, a flickering black silhouette on the page beneath it. From this angle, it almost looks like a dragon’s mouth, one of the Natlan kinds… maybe he’ll be able to see one in person someday…
His eyes shut slowly.
———
ermmmmm embarrassing... this was supposed to be published with the snippet (so i could've just given you the full snippet since it isn't long anyways) but it's ballooned rather fast and I don't want to wait. also yeah this has no hu tao mentioned because unfortunately she comes in right after this lmao. also the hu tao xingqiu dialogue inspiration that struck me at 2 am yesterday left so now i have to reinvent the wheel (<- bad at banter). anyways i hope you enjoy <3 this idea was kinda random haha, i just wanted to write something from xingqiu's perspective and show how they bounce off each other really well LOL nothing much to it. I was going to change it into xingqiu + venti writers block (venti is one of the muses fr) but i haven't watched irodori thoroughly and decided to keep hu tao. anyways yeah hopefully i finish this thing soon lol
#maybe i will someday write enough of them to put in one fic and make it vaguely chronological and more than 1k words for once#anyways thank... for asking about them wwwww my two loveliest chars and abyss killers#asks#anon ask#i have an inkling of who this is from but if i guess wrong its going to be so awkward for everyone so i wont#but anyways hi anon <3 ty for the ask#also idk if you noticed but i tried making his speech go from more verbose to less as his fatigue increases lol it doesnt rlly work bc the#sentences at the beginning aren't super fancy but yeah hopefully it shows a bit#genshin impact
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Today I was able to stand for a new limit of 50 minutes when my physical symptoms are at their most minimal in a controlled environment. So we know 50 is the max now we're trying to reach 1 hour. I feel like I could've reached an hour with how I was feeling but the muscle endurance in my legs wouldn't have let me. I'm reaching a weird stage in my progress where its been so long since my body has had to support my weight for that long the blood pooling in my soles irritates and hurts like hell the days afterwards so now i'm rubbing the my feet like i've worked a hard day to prevent the inflammation from impeding my progress. I feel tho if I can reach that 1 hour limit I can reach longer times with practice. Its been years since i've stood for so long i'm really excited to keep practicing and hopefully keep improving. Last year around this time I was barely reaching 35 maybe 40 if I really really pushed- during my least symptomatic hours. Those extra 10 minutes might not mean much but since the beginning of my illness I never imagined i'd be able to make it to 30 let alone 50. I felt pretty good this session too which is the most important part, I feel like its the lack of muscular stamina that held me back rather than cardiac endurance. Anyway update is over, if I reach that 1 hour time it'll be a happy day I cannot tell how long it'll take me to reach that time but with some more practice I think a few weeks or months at least i'd imagine maybe even sooner. I'm so happy lets go! Dreams do come true at least 4 me ehehe!
#pots#dysautonomia#progress#the best thing about longer uptime means more endurance - the longer i'm able to stay up the more my legs should begin to adapt#if I can push the amount of time when i'm not as symptomatic maybe it'll help increase my endurance when i'm most symptomatic#when i'm at my most symptomatic I cannot stand for the life of me more than a minute#i will collapse#but increasing my minimal symptomatic time to higher numbers means I feel less physical pain and exhaustion when I am at my most#symptomatic which is honestly all i want#if I can withstand the exhaustion of when i'm most physically ill for more than a minute or two at a time then I can endure it#when i'm compeltely still and laying down which is rlly hard and it hurts like hell and i'm exhausted when it happens#theres nothing in this world like trying to catch your breath while your body is writhing in pain and youre trying not to pass out#i'm just glad on a good day and lots of monitoring i can manage a few hours without any of those#when it was happening once an hour for like hours at a time for months i was in literal hell#the scariest bit is i'm forgetting how it felt to be like normal-ish#like there were days where the most I worried about was like regular stuff like homework#now i'm worried about things like making sure i have a glass of water with me or else i'll die#which sounds absurd but its now my reality its strange how that just becomes real#ive been typing for so long but i don't feel fatigued it really shows how far ive gotten these last few years#last time i wrote this much on a tumblr text post about my illness i was trying to catch my breath the entire time#im kinda happy#ehehe!
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